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Coalition of NYSAlzheimer’s Association
Chapters
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WHO WE ARE
The Coalition of New York State Alzheimer’s Association Chapters is the only statewide organization representing all New Yorkers affected by Alzheimer’s disease and dementia.
The Coalition is comprised of seven NYS chapters (see map) and a main office in Albany.
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WHAT WE DO
The Coalition promotes the concern and awareness of Alzheimer’s disease and
related dementia and caregiver health facilitates care and support advances public policy
on behalf of the 390,000 New Yorkers with Alzheimer’s disease and their 1.1 million informal caregivers.
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Chapters services include:• a free 24/7 helpline –• 1.800.272.3900• information and referrals• care consultations• support groups• safety services• education for individuals, families,
community members and healthcare professionals
• social enrichment programs
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To ensure NYS policy reflects the concerns of those affected by Alzheimer’s, we collaborate with: statewide organizations state agencies policy-minded individuals elected officials
We facilitate dementia capability while pursuing our vision - a world without Alzheimer’s disease.
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Dementia is a general term for a decline in mental ability severe enough to interfere with daily life. Memory loss is an example. Alzheimer's is the most common type of dementia.
What is Dementia?
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Characteristics: AD is a slowly progressive braindisease that begins well before symptoms emerge andis fatal. There is no known cure or vaccine for thisdisease. AD is the most common type of dementia,accounting for an estimated 60 to 80% of cases.
• Early-stage:o Difficulty remembering recent conversations,
names, or eventso Confusion with time and placeo Word finding issueso Difficulty performing familiar tasks in home,
social, or work settingso Misplacing valuable itemso Losses in planning, problem solving,
and organizational abilitieso Changes in mood or behavioro Withdrawal from work or social activitieso Impaired judgment
What is Alzheimer’s Disease?
• Middle-stage:o Forgetting events in one’s
personal historyo Mood changes (apathy,
depression, irritability)o Behavioral changes
(agitation, wandering,aggression)
o Increasing confusion related to date, time, and place
o Difficulty maintaining continenceo Disturbances in sleep,
disruptions in sleep patternso Increasing difficulties
with ADLs, mobility, andfunctional independence
• Late-stage:o Lack of awareness of
recent experiences,surroundings, andphysical functioning
o Difficulty swallowingo At risk for infections, especially
pneumoniao Further decline in physical
ability and mobilityo Significant dependence on
caregivers for ADLs andpersonal care
o Impaired verbal and receptivecommunication skills
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Why Alzheimer’s Is Costly
243 hospital stays for every 1,000
seniors without these conditions
780 hospital stays for every 1,000
seniors with Alzheimer’s or
dementia
People with Alzheimer’s or dementia have over 3 times as many hospital stays
Created from unpublished data from the Medicare Current Beneficiary Survey for 2008.
Source: 2015 Alzheimer’s Association Facts & Figures
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In April 2015, thanks to Governor Cuomo, the NYS legislature allocated $25+ million/year for 5 years to
Alzheimer’s Disease Caregiver Initiatives.This is the largest state award for Caregiver support ever in the US.
AlzCAP$4,976,000
CEAD$4,000,000
Caregiver Support and Respite $15,000,000
Underserved$1,500,000
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ALZHEIMER’S DISEASE CAREGIVER SUPPORT INITIATIVEA five year initiative to provide a wide range of comprehensive and coordinated evidenced-based caregiver support and respite services within specified geographic regions.
STATEWIDE CAREGIVER PROJECT GOALS• Develop and sustain of evidenced-based support services.• Reduce avoidable ED visits and hospitalizations.• Improve coordination and access to new and existing support services.• Expand and enhance access to respite services.• Improve health and well-being of caregivers and individuals with AD/D.• Limit all unnecessary transitions.• Continue community residence and reduce institutionalization of individuals
diagnosed with AD/D.
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CEAD Program Overview
Patient Management & Care
Training and Education
Community Collaborations
Public Awareness
Program Evaluation
Albany Medical Center
SUNY Downstate
SUNY Upstate
Columbia University
NYU
University at Buffalo
Burke Rehab Hospital
Glens Falls Hospital
SUNY at Stonybrook
University of Rochester
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Ten regional contractors, reaching every county in the state… receive $1.5 million each annually to provide support services to promote the mental and physical well-being of caregivers.
Caregiver Support And Respite Services Grant – Care Consultation
– Family Consultations
– Support Groups– Respite– Education &
Training– Wellness
Activities– Joint Enrichment
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Caregiver Support And Respite Services Grant cont’d
• Alzheimer's Association, Hudson Valley Chapter• Alzheimer’s Association, Central New York• Research Foundation for SUNY Plattsburgh• Northeast Health Foundation, Inc.• Catholic Charities of Buffalo• Lifespan of Greater Rochester, Inc.• Parker Jewish Institute for Health Care and Rehabilitation• Sunnyside Community Services, Inc.• New York University School of Medicine• Presbyterian Senior Services, Inc.
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Alzheimer's Disease Caregiver Support Initiative for Underserved Communities
• Jamaica Service Program for Older Adults
• Jewish Community Ctr of Staten Island
• New York Memory Center• Regional Aid for Interim Need• Riverstone Senior Life
Services• Sunnyside Community
Services• Alzheimer’s Association of the
Hudson Valley• Alzheimer’s Association of
Rochester and Finger Lakes• Chautauqua Opportunities• Family & Children’s
Association• Lutheran Home of CNY• Pride Center of WNY• Caring Kind• Resource Center for
Independent Living• Syracuse University
- Outreach - Education - Support And - Targeted Respite
Opportunities for underserved ethnic or geographic populations
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Alzheimer’s Community Assistance Program - AlzCAP
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• support groups•care consultations• free 24-hour helpline response •expanded community outreach and education caregiver education (professional and informal)
• safety services
Through the generous support of DOH, the Coalition has expanded core services and outreach to important community partners. Through AlzCAP, and increased funds, we have increased the number of:
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We have grown AlzCAP and …
• Partnered with providers, houses of worship, senior centers, first responders, pharmacies, cultural organizations, financial planners, lawyers, mail carriers, and so many others to bring public awareness to the Alzheimer's epidemic and empower them to be dementia-friendly and dementia-capable.
• Hired bilingual professionals, additional social workers and patient advocates to support family members of individuals with Alzheimer's.
• Created passionate ambassadors to increase concern and awareness, advance public policy and enhance the care and support so desperately needed through New York's 62 counties.
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As the statewide leader in Alzheimer’s care and support, in collaboration with the NYS DOH, we partner with and convene other DOH contractors & subcontractors, community gatekeepers, healthcare and LTC providers - and others – who also support increased care and support for those facing Alzheimer’s and related dementia.
Our Mandate
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Train!
Offer Respite!
Partner!
How can NYSADSA members work with the Coalition?
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Professional Training
CARES online training, developed collaboratively by the Alzheimer's Association and HealthCare Interactive®, is a person-centered, easy-to-remember approach to caring for an individual with dementia at any stage of the disease.
The CARES training modules use a wide variety of interactive techniques, featuring demonstrations by real CNAs and staff members working with actual people living with dementia. CEUs are available for CARES Dementia Basics & Advanced Care online training.
http://www.hcinteractive.com/TestDriveCares
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• The Alzheimer’s Association and MedicAlertFoundation International have formed an alliance to improve the safety of individuals with Alzheimer’s or a related dementia.
• MedicAlert® + Alzheimer’s Association Safe Return® is a 24-hour nationwide emergency response service for individuals with Alzheimer’s or a related dementia who wander or have a medical emergency.
• If an individual with Alzheimer’s or a related dementia wanders and becomes lost, caregivers can call the 24-hour emergency response line (1.800.625.3780) to report it.
• A community support network will be activated, including local Alzheimer’s Association chapters and law enforcement agencies, to help reunite the family member or caregiver with the person who wandered.
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Please be in touch. We want to work with you.
Jane Ginsburg Executive Director518.867.4999 [email protected]
4 Pine West Plaza, Suite 405 Albany, NY 12205
alznys.org