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Changing Prospects: eHealth to improve supportive care for
cancer patients.
Irma Verdonck-de Leeuw and Nelly van Uden-Kraan
VU University, Clinical PsychologyVU University Medical Center,
Otolaryngology / Head & Neck Surgery
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Cancer: incidence and prevalenceIncidence: almost 100.000 new
cases per year
age:70 % older than 60 years20 % between 45 and 60 years 9 %
younger than 45 years 1 % younger than 15 years
Survival: about 60%, dependent on type and stage of disease
Prevalence: 650.000 patients living with cancer (estimation)
iknl.nl
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Increase in the number of cancer survivors Earlier diagnosis,
Improved therapies
Greater emphasis on quantity AND quantity of life
Cancer is seen as a chronic disease at least for some types of
cancer as breast, prostate cancer in an early stage
Burden on health care delivery systems Innovation of our care
delivery models in general Focus on cost in relation to quality of
careCurrent focus on cancer survivorship
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Cancer Care Pathways
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Cancer Care Pathways: examplesBreastProstateLungHead and
NeckMelanomaColo-rectal..and more
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BreastProstateLungHead and NeckMelanomaColo-rectal..and
moreOncoKompas
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Head Matters: Guided self-help exercises during radiotherapy to
prevent speech and swallowing problemsIngrid Cnossen
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Selfmanagement portal for larygectomized patients
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Stepped care targeting anxiety and depressionVoorbeeld vanaantal
patienten in: 100 7035 15 (hersteld) uit: 30 35 20
Week 0 2 7 12Anne-Marie Krebber
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Head Lines: Guided self-help targeting anxiety and
depression
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Screening / monitoring quality of life in clinical practice
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Participatory design approach *Development cycleStudies
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Development cycle OncoKompas Step 1: Qualitative needs
assessment patients (N=30)Step 2: Qualitative needs assessment
multidisciplinary oncology team (N=11) OncoKompas prototype
(OncoKompas 0.1)
Step 4: Usability study among HNC patients (N=18)Step 5:
Cognitive walkthrough care professionals (N=21)
OncoKompas 1.0
Step 6: Feasibility study among HNC patients (N=61) *
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loss of taste or smell hearingdyspnealymphoma
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Feasibility study (1) Aim multi-centre pilot study To assess
feasibility of OncoKompas in clinical practice in patients with
head and neck cancer
Study design Baseline measurement OncoKompas is made available
to patients at the VUmc, LUMC and Maastricht UMC Quantitative
(satisfaction) survey
Participants (N=61) 36 men and 25 women Average age: 58 years
(24-73 years)
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Feasibility study (2) Mean OncoKompas score: 7 (1-10 scale)
Positive findings75% would recommend OncoKompas to fellow
patients 80% could easily find relevant information in OncoKompas
>60% satisfied with the supportive care options offered
Considerations 35% indicated that certain questions were
difficult to answer31% felt that going through the OncoKompas took
too much timeOncoKompas should be made available on a tablet *
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Up-dating OncoKompasAdding tumor specific modulesDevelopment of
new functionalities (e.g. zip code specification)Optimizing
OncoKompasUpcoming studies *
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Contact informationQuestionsNelly van
[email protected]
VUmc BasispresentatieVUmc Basispresentatie*VUmc
Basispresentatie*
