Caroline Struthers

Cochrane Training Coordinator

(eLearning Development)

Anna Noel-Storr,

TSC Cochrane Dementia Group

Study Manager, ALOIS register of dementia studies

GETTING COCHRANE INTO SCHOOLS

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Declaration of interest

No commercial conflicts of interest

Helping my daughter get into medical school...

does that count?!

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• Non-experts could do more for Cochrane

• Developing engaging tasks• Developing Cochrane skills• Never too early to start training up Cochranites!

Introduction

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Background

Dementia

Schizophrenia

MS

Asthma

Depression

ENT

Arthritis

Heart

Childbirth

Skin

Diabetes

ME

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Task 1: ALOIS coding task

Recruitment

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Task 1: ALOIS coding task

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Task 1: ALOIS volunteer task

Non-experts convert this...

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Task 1: ALOIS coding task

Into this...

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The Duke of Edinburgh

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Jenny’s first record

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Jenny’s first record

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ALOIS coding in action

I think it will certainly feel like eight hours

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ALOIS coding in action

It will certainly feel like eight hours

Why do they make it so difficult to find the information in these papers?

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ALOIS coding in action

It will certainly feel like eight hours

I see why Cochrane do it. If I was a doctor I wouldn’t want to read this stuff.

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ALOIS coding in action

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So although she complained...

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Task 2: Trial Blazers

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Task 2: Trial Blazers

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What’s the motivation?

Wanting to help the researchers

“My wife made me do it”Wanting to help Cochrane“Dementia is such a cruel disease, I want to help find new treatments”

Wanting to help their career“This will look great on my CV”

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Task 3: Missing data

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Task 3: Missing data

20 May 2011...I was interested in seeing the results of the bilberry/grape study BBM, and I could not access the data ...Have the results been published anywhere....?

24 June 2011

....I did not hear back after writing to Professor Blomhoff last month about the results of the BBM: Bilberry-Memory study ...it would be great to hear back from one of you about where the results of this trial have been published,....

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Task 3: Missing data

24 June 2011

Our university web pages have been redesigned and all links are not up and running yet....My PhD student is at present in Australia.....Siv, maybe you could send Caroline the appropriate files....

27 June 2011...I look forward to receiving the files...Are they being published in a journal, or on a results register anywhere?

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Task 3: Missing data28 June 2011

This paper has not been accepted for publication yet, and the data will not be available before publication. I am sorry that I forgot to mention this in my previous email. After publication the data will be freely available.

28 June 2011

Dear Ms. Struthers:

This paper was submitted to the AJCN but was not accepted for publication.

Peer Review & Production Support Specialist American Society for Nutrition

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Task 3: Missing data

28 June 2011

When do you expect the article to be in press? It looked like the results had been available on the University of Oslo website and that's what really led me to contact you directly.

2 November 2011

I never received a reply to my question about when the data from this study will be available. If the paper is not accepted for publication, the results should be made available, otherwise any future systematic review will be subject to publication bias.

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Task 3: Missing data

8 November 2011

The data will absolutely be published and available, don't worry :) We have not been able to finish this yet. The first author is at present in Australia. We will work on this.

21 September 2013

Still no publication

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Task 4: Trial detectives

alois.cochrane.org

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Task 4: Trial detectives

alois.cochrane.org

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Cochrane Strategy 2020 – does it fit in?

ObjectiveGetting Cochrane into

the mainstream Has been moved from

Goal 3: Advocating for evidence to Goal 2: Making Evidence accessible

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And finally....

“But Mummy, is that evidence based?”

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Acknowledgements and thanks

Anna Noel-StorrJenny and Lisa MilneThe Cochrane Dementia GroupSally Bailey, NIHRLynne Ramsay, Alzheimer’s Society Kit Huckvale, Imperial Collegeand all the ALOIS Community supporters

and volunteers past, present, and (of course) future