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Caring for an Aging Population Karen Donelan, ScD, EdM Associate Professor, Harvard Medical School Senior Scientist in Health Policy, Massachusetts General Hospital April 6, 2018: Bozeman, MT

Caring for an Aging Population - Montana

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Page 1: Caring for an Aging Population - Montana

Caring for an Aging Population

Karen Donelan, ScD, EdMAssociate Professor, Harvard Medical SchoolSenior Scientist in Health Policy,Massachusetts General Hospital

April 6, 2018: Bozeman, MT

Page 2: Caring for an Aging Population - Montana

Today

“O you who love clear edges more than anything . . . watch the edges that blur.”

Adrienne Rich (1929-2012)

• Increasing aging population• Health care systems in transition• Forces pushing out of hospital• Is Community-based care ready?• Changing health professional roles

and teams• Race of traditionalists and

innovators• Are we including the patient and

caregivers?

Page 3: Caring for an Aging Population - Montana

Older Adults in Community:

• Older adults 65+ are now 15% of US population and growing

• Shorter length of hospital stay, reduced nursing home days

• 13 medical visits per year per capita (62% specialty, 38% primary care)

• Ratio of available family caregivers to older adults is decreasing

• How will care be arranged?

Page 4: Caring for an Aging Population - Montana

U.S. Population

194,302,963

281,421,906

323,127,513

50

100

150

200

250

300

350

1965 1970 1975 1980 1985 1990 1995 2000 2005 2010 2015

(mill

ions

)

Source: U.S. Bureau of the Census

Page 5: Caring for an Aging Population - Montana

U.S. Population, Adults 65+ and 85+

18,451,393

34,991,753

47,813,596

82,344,000

1,081,7604,175,000 5,493,433 6,304,000 14,634,000

10

20

30

40

50

60

70

80

90

1965 1975 1985 1995 2005 2015 2025 2035

(mill

ions

)

Ages 65+ Ages 85+ Source: U.S. Bureau of the Census

Page 6: Caring for an Aging Population - Montana

Race and Ethnicity by Age Cohort, 2017

56%

61%

72%

79%

21%

18%

11%

8%

13%

12%

11%

8%

7%

7%

5%

5%

3%

2%

2%

1%

0% 20% 40% 60% 80% 100% 120%

Ages 21-36

Ages 37-52

Ages 53-71

Ages 72 and older

White Hispanic Black Asian Other

Source: Pew Research Center

Page 7: Caring for an Aging Population - Montana

Adults 65+ Living Alone, by Gender

Source: Pew Research Center analysis of Census data

Page 8: Caring for an Aging Population - Montana
Page 9: Caring for an Aging Population - Montana

Hospital Stay in Past 12 months, Adults 65+

17.9%13.9%

22.8% 20.3%

0%

5%

10%

15%

20%

25%

1980 1985 1990 1995 2000 2005 2010 2015

65-74 years 75 years and over

Source: Health, United States (National Health Interview Survey)

Page 10: Caring for an Aging Population - Montana

Average Length of Hospital Stay, Adults 65+

Source: Centers for Medicare and Medicaid Services and CDC

11.4

6

5.4

0

2

4

6

8

10

12

1980 1994 1996 1999 2001 2005 2014 2016

Page 11: Caring for an Aging Population - Montana

Physician Office Visits, Adults 65+

Source: National Health Interview Surveys

Page 12: Caring for an Aging Population - Montana

Nursing Home Population

793,000

1,280,000

1,503,000

1,368,000

0

200,000

400,000

600,000

800,000

1,000,000

1,200,000

1,400,000

1,600,000

1970 1977 1995 1997 2005 2014

Adults 65+

Source: CDC, NCHS

Page 13: Caring for an Aging Population - Montana

Adults 65+ Served by Hospice

100,000

700,000

1,656,000

200

400

600

800

1,000

1,200

1,400

1,600

1,800

1965 1970 1975 1980 1985 1990 1995 2000 2005 2010 2015

Source: National Hospice and Palliative Care Organization

Page 14: Caring for an Aging Population - Montana

The True Uncompensated Care System43.5 million Unpaid Caregivers, $450+ billion in care• DEFINITION (NY STATE):

• “any individual duly identified as a caregiver by a patient who provides after-care assistance to a patient living in his or her residence. An identified caregiver shall include, but is not limited to, a relative, partner, friend or neighbor who has a significant relationship with the patient.”

• 18 million provide higher intensity, longer term 6 months+ care• 61% of family caregivers are currently employed full (49%) time or part-time (11%)• 68% of employed caregivers make work accommodations, arriving late/leaving early/stopping• $25.2 billion estimated US business losses per year in lost productivity (Gallup poll)

Sources: Reinhard, Susan C., Feinberg, Lynn Friss, Choula, Rita, and Houser, Ari. Valuing the Invaluable: 2015 Update – Undeniable Progress, but Big Gaps Remain (2015): 1-25. AARP Public Policy Institute. 16 July 2015.Levine, Carol. United Hospital Fund, Next Step in Care

Page 15: Caring for an Aging Population - Montana

Care Models and Care Teamsfor Frail Older Adults

Page 16: Caring for an Aging Population - Montana

Private Investment in New Care Models

Iora: 127 million (Series A,B,C,D)—different care models in primary care, recent Medicare Advantage, health plan and employer sponsors

Devoted: 62 million (Series A,B)—(Athena, Sibelius, Frist)—Medicare, Tech focus

Cityblock Health: 23.2 million (Series A)—(Slavitt, Conway, Molina): urban health, Medicare and Medicaid

Oak Street (private): Medicare Advantage, primary care deserts

One Medical: 117 million: primary care redesign, all ages, 2013 Startup of the Year

Page 17: Caring for an Aging Population - Montana

Health Teams for Frail Eldersfunded by the Gordon and Betty Moore Foundation

…..the historical and present roles of patients/caregivers, social workers, nurses and physicians 1965 to present

Trace

….a frail elder focused competency framework to investigate roles of professionals and patients and in qualitative (focus groups, site visits) and quantitative data (surveys)

Apply

…empirical data to understand optimal staffing, cost, and efficiency of care models for frail elders living in community

Analyse

Page 18: Caring for an Aging Population - Montana

Site Selection Criteria and Screening

• Range of autonomous and collaborative practice

• Focus of care (primary care, geriatric, care management, palliative, urgent, community)

• Professional team leadership (Nurse (RN or APRN), MD, Social worker)

• Ownership and Organization (non-profit, for profit, venture)

• Site(s) of care (home, office, congregate housing, system, exclude SNF)

• Number of frail elderly patients served

Page 19: Caring for an Aging Population - Montana

Site Visit, Focus Group Locations

Alaska Hawaii

Chicago

New England

San Diego

Denver

TampaOrlando

Page 20: Caring for an Aging Population - Montana

20 Focus Groups, 5 Cities

• 2 Clinician groups• nursing (RN or APRN), medicine,

and social work

• 1 informal caregiver group• Actively caring for frail

elderly spouse/parent/family without compensation >3 months

• Participates in care planning

• 1 group of older adults 70+ • using home services, and recent

experience of hospitalization, and have a primary care or geriatric MD or NP

Page 21: Caring for an Aging Population - Montana

Site Visit and Focus Group Tools: Key Questions

Team or Group Interactions

Professional Identity:

Patient/Caregiver Interactions:

Clinical Activities for Frail Older Adults

Page 22: Caring for an Aging Population - Montana

Themes from Elder

Groups In the last year, I’ve fallen four times. It’s not because I’m unstable, but I have animals in my house that I have fallen over and slipped on water. They put their toys in a water bowl and then they dribble it all over the floor and I don’t see it. I look at some people and I say, oh, man, I wish I could walk like that now

.So, I was starting to get better with rheumatoid arthritis, then I got worse because I got drug-induced lupus from it. And, then, I developed

lung problems from the meds –so now I’m seeing a pulmonologist. It seems like my life

would be much better if I didn’t have to see so many doctors…I’m just thinking this morning

“I’m getting up and which -ologist am I going to go see today? “

Page 23: Caring for an Aging Population - Montana

Themes from Elder

Groups

I had retired and so I was going on this great vacation… I had rented a place and everything. I almost died on vacation in San Diego. And when I came home which took three months and four surgeries and a partridge in a pear tree….all my doctors were about my age, and just as I had retired now they're retiring so I had to start over …And getting them all to …coordinate, this can be as challenging as your corporate job.

If you take one thing back. We're all older people. We grew up in generations where people talked to you. And there was respect. Everything was Mr. and Mrs. Looked at you, smiled at you. Absolutely. And you had a person that respected you. We want people that will sit with us, look us in the eye, tell us the truth, and care about us.

Page 24: Caring for an Aging Population - Montana

Practice Types

• Primary Care for Seriously Ill• Senior Health, Geriatric Care• Primary Care All Ages• Care Management • Residential Care• Mobile Health

Page 25: Caring for an Aging Population - Montana

PRIMARY CARE FOR SERIOUSLY ILL

Page 26: Caring for an Aging Population - Montana

Homebound adults of all ages

Though hospice care

Visit/ServiceSite

Home

Group Residence

Free-Standing Clinic

Continuum of Care

Primary/Specialty Care

Hospital

ADL AssistanceHome Health

RehabilitationSkilled Nursing

Palliative CareHospice

Academic Medical Center

MD

APRNRN

PA

1.5

1

21

3.5

Primary Care at Home

Page 27: Caring for an Aging Population - Montana

Primary Care Home and Office

All age, dual-eligible adults and Senior Care Options

who have complex conditions

Through hospice care

Visit/ServiceSite

Home

Group Residence

Free-Standing Clinic

Continuum of Care

Primary/Specialty Care

Hospital

ADL AssistanceHome Health

RehabilitationSkilled Nursing

Palliative CareHospice

Academic Medical Center

MD

APRN

RN

SW

PA

1.5

2

1.21

2

0.5

0.5

1

1

Page 28: Caring for an Aging Population - Montana

PACE

55+ yrs, nursing home level of care, able to live

safely in communityThough hospice care

Visit/ServiceSite

Home

Group Residence

Free-Standing Clinic

Continuum of Care

Primary/Specialty Care

Hospital

ADL AssistanceHome Health

RehabilitationSkilled Nursing

Palliative CareHospice

Academic Medical Center

MD

APRN

RN

SW

LPN

12

5

5

11

5

1

Page 29: Caring for an Aging Population - Montana

SENIOR CARE ONLY

Page 30: Caring for an Aging Population - Montana

65 yrs+ and Medicare FFS or Medicare ACO

member

Care continues as long as patient can

come to clinic.

Visit/ServiceSite

Home

Group Residence

Free-Standing Clinic

Continuum of Care

Primary/Specialty Care

Hospital

ADL AssistanceHome Health

RehabilitationSkilled Nursing

Palliative CareHospice

Academic Medical Center

MD

APRN

RN

SW

Scribe

3

2

3

25

5

Page 31: Caring for an Aging Population - Montana

65 yrs+ and contracted Medicare

ACO member

Care continues as long as patient can

come to clinic.

Visit/ServiceSite

Home

Group Residence

Free-Standing Clinic

Continuum of Care

Primary/Specialty Care

Hospital

ADL AssistanceHome Health

RehabilitationSkilled Nursing

Palliative CareHospice

Academic Medical Center

MD

RN SW

Health Coach

1

0.33

0.333

Page 32: Caring for an Aging Population - Montana

75 yrs+Through transfer to

nursing home or hospice

Visit/ServiceSite

Home

Group Residence

Free-Standing Clinic

Continuum of Care

Primary/Specialty Care

Hospital

ADL AssistanceHome Health

RehabilitationSkilled Nursing

Palliative CareHospice

Academic Medical Center

MD

APRNRN

SW4

22

1

3

1

Page 33: Caring for an Aging Population - Montana

75 yrs+Through transfer to

nursing home or hospice

Visit/ServiceSite

Home

Group Residence

Free-Standing Clinic

Continuum of Care

Primary/Specialty Care

Hospital

ADL AssistanceHome Health

RehabilitationSkilled Nursing

Palliative CareHospice

Academic Medical Center

MD

RN

SW

3

1

12

1

1

1

1

Page 34: Caring for an Aging Population - Montana

CARE MANAGEMENT

Page 35: Caring for an Aging Population - Montana

Older adults who need connection

with resources

Visit/ServiceSite

Home

Group Residence

Free-Standing Clinic

Continuum of Care

Primary/Specialty Care

Hospital

ADL AssistanceHome Health

RehabilitationSkilled Nursing

Palliative CareHospice

Academic Medical Center

RN SW

5 3

100

Page 36: Caring for an Aging Population - Montana

All adults, 90 day care management for patients with complex non-medical

needs

Visit/ServiceSite

Home

Group Residence

Free-Standing Clinic

Continuum of Care

Primary/Specialty Care

Hospital

ADL AssistanceHome Health

RehabilitationSkilled Nursing

Palliative CareHospice

Academic Medical Center

SW

7

Page 37: Caring for an Aging Population - Montana

All adults, 90 day care management for patients with recent hospitalization and high

utilization of services

Visit/ServiceSite

Home

Group Residence

Free-Standing Clinic

Continuum of Care

Primary/Specialty Care

Hospital

ADL AssistanceHome Health

RehabilitationSkilled Nursing

Palliative CareHospice

Academic Medical Center

MD

RN

SW

1

38

3

40

Page 38: Caring for an Aging Population - Montana

Conclusions

• Tremendous needs• Tremendous variation in care organization• Always competing interests• We do not educate in teams, can we really create them?• Can we identify optimal configurations that maximize efficiency and

do not overwhelm patients?• With so much variation, how will we measure progress? Community?

Provider? System?• Will the patient and caregiver be a part of the solutions?