Autism Blueprints

8/7/2019 Autism Blueprints

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TACA’s AUTISM JOURNEY BLUEPRINTS ©

A visual foundation on best practices for your child

This booklet contains TACA’s unique visual reference tools to help give you

an overview of each process to guide you on the autism journey. We call

these flow charts the TACA “AUTISM JOURNEY BLUE PRINTS” for every

topic parents will face on their journey.

These step-by-step processes will help you to determine appropriate

interventions and timelines for taking action in the realms of medical and

dietary intervention, education, finances and home life. These flow charts

will provide a visual foundation on best practices for your child and work for

families new to the journey or who have been on the journey for years, and

anywhere in between.

Autism Journey Blueprints© are a copyright of Talk About Curing Autism

(TACA). Please do not copy, reproduce or distribute without the express

written consent of TACA.



Autism JourneyYear One

Formalassessment

and diagnosis:neurologist,behaviorist,speech & OT

Ruling-outmedical tests:

geneticdisorders like:

Fragile X(boys), Rhetts.Perform MRI &

24 hour EEG.

Call ABA (AppliedBehavioral Analysis)

providers andget on wait

list. Implementintensive 1:1

program.

Start theGluten Free/Casein Free/

Soy Free(GFCFSF) Diet

Find aDOCTOR for

the long term!Performbaseline

medical testsand necessary

medical

treatments.

Removeallergens (fro

diet andenvironment

Removeadditives,

preservatives

and dyes fromall foods. Goorganic and

clean diet.

See anaudiologist for

a completehearing

evaluation.

Encourageproper

sulphation with

nightly Epsomsalt baths

Start basicsupplemen-

tation andprobiotics.

Test for andtreat YEAST

(Go low-sugarand low-

carbohydrates)

Investigate &try the “Bs” –

B6, B12, TMGor DMG,

SuperNuThera

Begin Omegasupplements

like Cod LiverOil, or

Flaxseed Meal,

etc.

Get support &information!!

Attend regularTACA or other

meetings.

It is all in thePOOPS: deal

with the

constipation ordiarrhea

EvaluateGlutathione! – try oral, topical

then IV – withyour doctor's

help!

Consider

chelation

Educateyourself aboutthe potential

risks ofvaccination.

Copyright TACA, 2010

Autism Journey Blueprint©

A visual foundation on best practices for your

Hire an specialeducationattorney or

advocate.Learn yourlegal rights!

Understandhealth

insurance

coverage anreimburseme

Start Socialskills

development –

with structuredplay dates at

home

Fathers are

important too!

Remove toxinsfrom water,

bedding,clothes, etc.

Help your childobtain 8-10

hours a sleep

each night.

Keep yourmarriage &

family intact

Further refinediet: remove

phenols,sacylilates &

corn

On to Year

Two!

This document is a “sample” checklist to consider in planning intervention for a

child affected by autism. Please note, the order and action items will vary by child.

This is only a sample. Please consult with your child’s development and medical

eam for what is appropriate for their individual needs.



Autism Journey

Year Two

Perform annualassessments:behaviorist,speech & OT

Perform annualmedical tests:

Compreh.Stool test,RBC, Toxicmetals and

allergy panel

Evaluate allmedical andtraditionaltherapy

options for

their efficacy.

Get involved instate & federal

legislationefforts.

Continuesocial skillsefforts with

preschoolactivities.

Considersocial skills

videos.

Keep learning

your childslegal rights and

get educated.

Get an

Immuneassessmenconsider ora

IG, or IVIG

Consider

Listeningtherapies

Consider a

rotation diet toprevent future

allergies. Orother diets

SCD, BED if

GFCFSF is notenough.

Refine

supplements:takesupplement

vacations.Change

brands ofsupplementsas needed

Continueeducation:

DAN!Conferences

and others

Continuereceiving

respite andsupport! Keepyour marriage

& family intact.

If your child is6 or older,

considerCAPD

evaluation by

an audiologist.

Performannual

assessments:

behaviorist,speech & OT

Evaluate all

medical andtraditional

therapyoptions for

their efficacy.

Get involved in

state andfederal

legislation

efforts – getfamily

involved.

Performannual medical

tests:Compreh.

Stool test,RBC, Toxicmetals and

allergy panel




Refinesupplements:

takesupplementvacations.

Changebrands of

supplementsas needed

Evaluate

alternativetherapies:

HBOT,neurofeedbac

etc.

Continuesocial skills for

advanced

needs withlocal providers.

LAST

RESORT:Consider

pharmacologywhen medicalefforts are not

progressing.

Keep yourmarriage &

family intact.

Continueeducation:

DAN!Conferencesand others

Continue,review and testother chelation

protocols.

Autism Journey

Year Three

This document is a “sample” checklist to consider in planning

ntervention for a child affected by autism. Please note, the

order and action items will vary by child.

This is only a sample. Please consult with your child’s

development and medical team for what is appropriate for

heir individual needs.



START

GFCFSF

BasicsRemove all

Gluten, Casein

and Soy

AllergiesRun IgG and IgE

food allergy

blood tests.

Remove

offenders.

Remove Basic

ToxinsNitrates, MSG,

Aspartame,

HFCS, fluoride,

arsenic

YeastLearn what

yeast looks like,

what causes it.

Carb JunkieLearn what

carbs are, adjust

diet

Food

LabelsLearn how to

read food labels

Go Organic9 is Fine!

Remove colors

and

preservatives.

Join a CSA.

Phenols and

SalicylatesLearn what they

are, watch for

reactions

Remove

Other ToxinsAluminum,

chlorine, BPA,

water

Cooking and

StorageRemove Teflon,

aluminum, and

plastics

$$ Costs $$On‐A‐Budget,

cook from

scratch, buy and

cook in bulk

GFCFSF not

enough?

SCD‐CFRedo Allergy

tests first.

Remember

supplements.

LODResearch

oxalates and run

24‐hour urine

oxalate test.

Dietary Intervention

BEDLow carb,

cultured foods,

fats and

probiotics.

The End

Maybe…

SupplementsDon’t forget

calcium.600-1200mg

per day



A visual foundation on best practices for your c



Dietary Intervention

1. Basics – Remove gluten, casein and soya. http://gfcf-diet.tacanow.org/gfcf-in-10-

weeks.htm 2. Supplements

a. Calcium – you MUST give calcium when

removing dairyi. 600-1200mg per day is the RDA

1. Available in powder, pills,chewables and liquid

b. Multivitaminsc. Specialty supplements like B6, Magnesium, P5P,

TMG, EFA’s etc.i. http://www.tacanow.org/medical/Ideas_t

o_take_supplements.htm 3. Allergies - IgG and IgE food allergy tests, rotation diet4. Toxins - MSG, aspartame, nitrates, arsenic, fluoride,

aspartame, HFCS (high fructose corn syrup).a. http://gfcf-diet.tacanow.org/toxins-in-food-and-

environment.htm b. http://www.foodnews.org/ c. http://www.iatp.org Arsenic in chicken and rice

and rice milk.5. Yeast and carbohydrates

a. Keeping the diet as low sugar as possible isimportant.

i. http://www.tacanow.org/medical/yeast-

overgrowth-candida.htm b. Recheck your diet, don’t supplant calories.c. Don’t create a carb junkie.

i. http://gfcf-diet.tacanow.org/what-are-carbohydrates.htm

6. Learn to read food packaging labelsa. http://gfcf-diet.tacanow.org/how-to-read-food-

labels.htm 7. Go Organic

a. Join a local organic CSA athttp://www.localharvest.org/csa

b. http://www.organic.org/home/faq 8. Research Phenols/Salicylates – learn what they are and

what reactions they givea. http://gfcf-diet.tacanow.org/phenols-salicylates-

additives.htm

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http://gfcf-diet.tacanow.org/gfcf-in-10-weeks.htm



http://www.tacanow.org/medical/Ideas_to_take_supplements.htm



http://gfcf-diet.tacanow.org/toxins-in-food-and-environment.htm



http://www.foodnews.org/


http://www.iatp.org/


http://www.tacanow.org/medical/yeast-overgrowth-candida.htm



http://gfcf-diet.tacanow.org/what-are-carbohydrates.htm



http://gfcf-diet.tacanow.org/how-to-read-food-labels.htm



http://www.localharvest.org/csa


http://www.organic.org/home/faq


http://gfcf-diet.tacanow.org/phenols-salicylates-additives.htm























9. Remove more toxinsa. Test water and filter.b. Avoid aluminum in food packaging like juice,

milk sub or broth boxes and cookware.c. Replace Teflon and aluminum pans with

Stainless steel and cast iron.d. Replace plastic with glass.

e. http://www.tacanow.org/medical/living-in-a-toxic-world.html

10. Costs – Diet on a Budget http://gfcf-diet.tacanow.org/ a. Special diet foods can be deducted on taxesb. Schools can provide special diet meals

i. If you qualify, reduced- or free lunch andbreakfast programs

c. GFCFSF on Food Stampsi. http://gfcf-diet.tacanow.org/gfcfsf-diet-

on-food-stamps.htm d. Cook whole foods from scratch, it will save you a

ton of money11. Other Diets

a. SCD-CF – Specific Carbohydrate Diet, Casein-freei. http://gfcf-diet.tacanow.org/specific-

carbohydrate-diet-scd.htm b. LOD – Low Oxalate Diet

i. http://www.lowoxalate.info c. BED – Body Ecology Diet

i. http://www.bodyecology.com/autism.php

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http://www.tacanow.org/medical/living-in-a-toxic-world.html



http://gfcf-diet.tacanow.org/



http://gfcf-diet.tacanow.org/gfcfsf-diet-on-food-stamps.htm



http://gfcf-diet.tacanow.org/specific-carbohydrate-diet-scd.htm



http://www.lowoxalate.info/


http://www.bodyecology.com/autism.php













Medical Interventions

AutismDiagnosis

Genetic testingBaselinetesting

Neurological/Seizures

GFCFSF DietGet a DAN!

DoctorAdvanced

testing

GastroSupplementsRecurring

YeastToxinsHeavy MetalsRepeat Testing

Co-morbidissues

OtherRelaxation and

Fitness

Functional

Medicine

PICA - mineraldeficiency testing

Hearingsensit ivity -bacterial and

mineral levels,Berard AIT,noiseblockerheadphones

Sleep – test forreflux, diet, check bacteria, give

melatonin

Remove all gluten,casein and soy.

Symptoms:

Undigested foodchronic oralternating

diarrhea and/oconstipation,

posturing, bloatebelly.

Testing:colonoscopy,endoscopy,

pillcam, CDSA

glutathione, CDSTNFa, C-ReactivProtein, purine

porphryins,pterins, endocrinautoimmune, AStiters, Anti DNAs

antibodies, coppezinc ratio,

oxidative stressmethylation,metabolic

diseases, myelibasic protein,viral titers,

testosterone,

ammonia, oxalat

If you getpregnant againfollow the safetyguidelines – diet,

no tylenol, novaccines, for you

and the baby.

Get your child’sgut in the BESTshape you can

BEFORE pubertystarts.

Exercise is crucialfor ASD children. Adapted Yoga,running/walking,

gym exercise,sensory input, Tai

Chi, and use theNintendo Wii forcoordination andmuscle tone. Get

them movingeveryday!

FM is personalizedmedicine that

deals with primaryprevention and

underlying causes

instead of symptoms forserious chronic

disease.

Reduce exposureto arsenic, lead,

cadmium,organophosphate

pesticides,tobacco, fluoride,ammonia, BPA,

chlorine, mercury.Check your water,

personal careproducts, food and

bedding.

Multivitamins,minerals, zinc,

antioxidants, D3,sulfation, B6,

magnesium, EFA,amino acids,

glutathione, B12,calcium, immuneboosters, TMG/

DMG, antifungals,probiotics,enzymes, GABA,

melatonin

Test with CDSA,behavioral,

medical symptoms

Treat with low-sugar diet,probiotics,colostrum,

medications

(diflucan, nizoral,nystatin), GSE,caprylic acid,

garlic, oregano oil

Test for lead,mercury, arsenic,

cadmium, bismuth,nickel, tin, thallium

Test with blood,urine, urinary

porphryin

Treat with DMSA,EDTA, DMPS, GSH;oral, transdermal,

IV.

MTHFR, Fragile X,Rett Syndrome,

Wilson’s Disease,mitochondrialdysfunction,

Chiari1, PON1 butonly if insurance

pays.

CDSA, IgG food,CMP, CBC, RBC.Have your reg

doctor order theseunder insurance!

MRI every 3 years

for comparison.

Autism, Aspergers,PDD, PDD-NOS

CDSA, lipids, Amino Acids, IgGand IgE food and

environmentalallergies, OAT,ComprehensiveMetabolic Panel,CBC, RBC, zinc,

25-Hydroxy Vit D,blood and urineImmune panel,hearing, celiac,thyroid panel

Non-sedated 2-hour+ EEG, MRI

Get a referral fromother parents.

Learn about billinginsurance before

you go.

What is it?

Regression is anormal part of thehealing process.Some kids lose askill while gainingother bigger skills.

Keeping a journalwill help find out

what went wrong.More testing may

be needed.




This document is a “sample” checklist to consider in planning intervention for a child

affected by autism. Please note, the order and action items will vary by child.

This is only a sample. Please consult with your child’s development and medical

team for what is appropriate for their individual needs.



Medical Track Tests and Treatments

1. Autism Diagnosis (Autism, Asperger’s, PDD)2. Genetic testing - MTHFR, Fragile X, Rett Syndrome,

Wilson’s Disease, mitochondrial dysfunction/disease,

PON1, Chiari 1, but ONLY if insurance covered,otherwise delay these.

3. Read this Beginner’s guide to Biomedical Treatmenthttp://www.tacanow.org/medical/beginner-biomedical-treatment-for-autism.htm

4. Baseline testing – CDSA, IgG and IgE food andenvironmental allergies, Comprehensive MetabolicPanel, CBC, RBC, zinc, 25-Hydroxy Vitamin D, bloodand urine Amino Acids, OAT, Immune panel, viralpanel, hearing, lipids, celiac, thyroid panel.

a. These tests are all standard and should beordered by your regular pediatrician andinsurance-covered, but don’t bill them underautism

b. If you are unsuccessful with your pediatrician,you can have these tests run by a DAN doctor

5. Neurological/Seizures– EEG, MRIa. Non-medicated EEG, minimum 2 hours,

preferably 24 hours. Rule out seizures,Landau–Kleffner syndrome.

i. If seizures found, medications (beware

seizure meds as they affect folic acidmetabolism).

ii. Further testing with QEEG, MEG, PET,SPECT scan.

b. MRI - to be repeated every 3 years forcomparison.

6. Diet – GFCFSF, SCD-CF, LOD, Feingold, BED…7. Get a DAN! Doctor – get referrals from parents.8. Advanced testing – glutathione, CDSA, TNFa, C-

Reactive Protein, porphryins, pterins, endocrine,

purine, autoimmune, ASO titers, Anti DNAseantibodies, copper/zinc ratio, oxidative stress,methylation, metabolic, myelin basic protein, vaccineviral titers, testosterone, ammonia, oxalates.

a. Methylation – B12, TMG/DMG, Folic/Folinic,Glutathione

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http://www.tacanow.org/medical/beginner-biomedical-treatment-for-autism.htm







b. Immune, virals – colostrum, oralimmunoglobulin, IVIG, ACTOS, Low-dosenaltrexone, Valtrex. Titres, strep, lyme disease

9. Vaccines – reactions, boosters, titers, exemptions,doctors, schools, alternative schedules

10. Anti-inflammatories – Ibuprofen; Celebrex; Actos;Curcumin; IVIG, Subq or oral IgG; HBOT; Bethanecol;GABA; Theanine; Iodine.

11. Gastro issues – maldisgestion, malabsorption,allergies, colitis, chron’s, autistic enterocolitis.

a. Testing - colonoscopy, endoscopy, pillcam,CDSA

b. Treatments - GI cleanout, sulfur-based gutmeds, reflux meds, probiotics, Oxypowder,dietary change, antibacterials, antifungals,antibiotics, antiparasitic (Vermox), HBOT.

c. http://www.tacanow.org/medical/poops.htm 12. Supplements – Multivitamins, sulfation, B6,

Magnesium, EFA, amino acids, glutathione, B12,minerals, antifungals, Probiotics, Enzymes . Be waryof B vitamins and DMG/TMG if child has yeast.

13. Recurring yeast – Test for yeast with CDSA,behavioral, medical symptoms.

a. Treat with low-sugar diet, probiotics,colostrums, medications (diflucan, nizoral,nystatin), GSE, caprylic acid, garlic, oregano oil

b. http://www.tacanow.org/medical/yeast-overgrowth-candida.htm

14. Toxins – arsenic, cadmium, organophosphatepesticides, tobacco, fluoride, ammonia, BPA, lead,chlorine

a. HBOT, sauna, GI cleanout for detoxb. Taurine for chlorine

15. Heavy Metals – lead, mercury, arsenic, cadmium,bismuth, nickel, tin, thallium.

a. Tests – blood, urine, urinary porphryin.b. Treatments – DMSA, EDTA, DMPS, GSH; oral,

transdermal, IV.c. http://www.tacanow.org/medical/glutathione.ht

m d. http://www.tacanow.org/medical/chelation.htm

16. Repeat testing – CDSA, IgG food, CMP, CBC, RBC.17. Co-morbid disorders – PICA, hearing sensitivity, sleep

issues

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http://www.tacanow.org/medical/poops.htm





http://www.tacanow.org/medical/glutathione.htm



http://www.tacanow.org/medical/chelation.htm










a. PICA – vitamin and mineral deficiencytesting

b. Hearing sensitivity – bacterial andmineral levels, Berard AIT, noiseblockerheadphones

b. Sleep – test for reflux, diet, check bacteria, givemelatonin

18. Other – another pregnancy, pubertya. Follow safety guidelines for another pregnancy:

diet, no Tylenol or vaccines for both.b. Get the gut in shape BEFORE puberty!

19. When something isn’t right.a. http://www.tacanow.org/medical/whatisit.htm b. Know that treatment can mean “2-steps

forward, 1-step back” sometimes.c. Regression is a normal part of the healing

process. Some kids lose a skill while gainingother bigger skills.

i. Keeping a journal will help find out whatwent wrong. More testing may beneeded.

20. Relaxation and Fitness - Yoga, exercise, sensory input,Tai Chi, Wii for coordination and muscle tone.

21. Functional medicine - FM is personalized medicine thatdeals with primary prevention and underlying causesinstead of symptoms for serious chronic disease.

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http://www.tacanow.org/medical/whatisit.htm





Living in a Toxic World

WaterNo fluoride, BPA,lead, rocketfuel,pH, PCB, PCPs,parasites, arsenic

FoodNo pesticides,

aluminum, MSG,mercury, colors,nitrates, arsenic,

preservatives

FlooringAvoid Stainmasterand Scotchguard.Use baking soda

and water to cleancarpets.

Clothes &Bedding

No fire retardants,GoreTex, light-upsneakers, foam

mattresses

Cooking &Storage

No Teflon, plasticor aluminum.

Cook in cast ironor stainless steel.

Store in glass.

HouseholdCleaners All-purpose

cleaners, laundrydetergent,

dishwashing soap

Chlorinatedphenols found intoilet cleaners.

Diethylene glycolfound in window

cleaners.Phenols found in

disinfectants.Nonylphenol

ethoxylate found inlaundry detergents

and all-purposecleaners.

Formaldehyde

found in spray andwick deodorizers.

Petroleumsolvents in floor

cleaners.Perchloroethylenein spot remover.Butyl cellosolve,common in all-

purpose, windowand others.

PersonalCare

Sunscreen,makeup, lotion,

medications,shampoo, soaps,

antiperspirant

PaperProductsDiapers, baby

wipes, tampons,toilet paper, paper

towels,

PFC(Perfluorinated

compounds) andPFOA

(Perfluorooctanoicacid) in teflon,

stain resistants,popcorn;

Polybrominateddiphenyl ethers(PBDEs) used infire retardants,foam, plastic in

TVs and computermonitors

WHAT TO AVOID

Butyl acetate,Butylated

hydroxytoluene,Cocamide DEA/ lauramide DEA,

Diazolidinyl urea,Ethyl acetate,

Formaldehyde,Parabens (methyl,

ethyl, propyl andbutyl), Coal tar,Oxybenzone

(Benzophenone-3), Micronized

Titanium Dioxide,Nano Titanium

Dioxide, Nano ZincOxide, Petrolatum,

Phthalates,Propylene glycol,Sodium laureth/ sodium laurelsulfate, Talc,

Toluene,Triethanolamine

Brand names:Teflon,

StainMaster,ScotchGuard,Silverstone.

Anything“nonstick” orantibacterial(triclosan).

Ingredients like:hydroquinone;

ethylene dioxide;1,4-dioxane;

fluoride;formaldehyde;nitrosamines;

PAHs; acrylamide;oxybenone,

aluminum, andingredients that

include theclauses "PEG,""xynol", "oleth"and"ceteareth"

I n g e s t e d

P e r s o n a l U s e

H

o u s e h o l d

Fluoridated water,

toothpaste,mouthwash;plastic bottles,plastic-lined

bottles

Avoid nonstickpans, don’t cook in

the microwave,avoid aluminum-lined (juice, milk

sub, broth) boxes,avoid plastic-lined

cans (they arewhite inside).

Avoid products with "Warning", "Caution", or "Danger: labels (i.e., cleaningproducts and pesticides). These labels are there because one or more of the

ingredients has the potential for causing serious harm or death.

Artificial colors,preservatives,

pesticides,nitrates, sulfites,

aspartame or otherartificial

sweeteners, MSG

WHAT TO AVOID

WHAT TO AVOID






Living in a Toxic World

1. Toxins - MSG, aspartame, nitrates, colors, preservatives,arsenic, fluoride, Tylenol, aluminum, chlorine, molds,Teflon, aspartame, HFCS, pesticides, phenols/salicylates,lead, mercury, cadmium, BPA, water.

a. http://gfcf-diet.tacanow.org/toxins-in-food-and-

environment.htm b. http://www.foodnews.org/

2. Go Organic – Not all “organic” is created equal.a. “100% organic” - single ingredient such as a fruit,

vegetable, meat, milk and cheese (excludes waterand salt).

b. “Organic” - multiple ingredient foods which are 95 to100% organic.

c. “Made with organic ingredients” - 70% of theingredients are organic. Can appear on the front of package, naming the specific ingredients.

d. “Contains organic ingredients” - contains less than70% organic ingredients.

e. ‘9 is fine’. On the produce PLU code, if the firstnumber is a 9, it’s organic.

f. http://www.organic.org/home/faq 3. Pots and Pans

a. stainless-steel, cast-iron and enameled cast-ironcookware are best

b. no Teflon or aluminumi. http://www.ewg.org/node/21787

4.

Household Cleaners and paper productsa. All-purpose cleaners, laundry detergent, dishwashingsoap, diapers, baby wipes, tampons, recycled toiletpaper, tissues, and paper towels

i. Seventh Generation and Ecover availablenationally

ii. No legal mandate for labeling or safetyiii. Use HEPA air filtersiv. http://www.greenlivingonline.com/article/six-

household-chemicals-avoid b. Prescriptions and Over the counter meds

5. Personal Hygiene and medicationsa. Shampoo, conditioner, lotion, deodorant, toothpaste,

soaps, bubble bath, sunscreen, make upi. For sunscreen, look for zinc oxide or titanium

dioxide, and avoid oxybenzone and

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http://www.ewg.org/node/21787


http://www.greenlivingonline.com/article/six-household-chemicals-avoid












sunscreens with fragrance. Choose SPF 30and higher that block UVA and UVB.

ii. Avoid aluminum in food packaging like juiceor broth many body lotions and creams, mostcosmetics, shampoos and conditioners, soaps,suntan lotions, lip balm.

6. Water

a. Plastic water bottles contain BPA and other toxins.Use unlined stainless bottles like Klean Kanteen (notSigg).

b. Have your home water tested – check your county’sCooperative Extension office for testing. InstallReverse Osmosis and any other needed filters, eitherfor the whole house or just for the faucet you drink out of.

7. Packaginga. Plastics like Ziploc bags, plastic wrap, Tupperware

should be avoided. Store food in glass.

8. Household items containing PFCsa. Non-stick pans, carpeting, furniture, cosmetics,

household cleaners, clothing, and packaged foodcontainers can all contain PFCs, many of whichbreak down into PFOA in the environment or in thehuman body. The brand names are well-known:Teflon, Stainmaster, Scotchgard, SilverStone, andothers.

b. Mattresses with foam and fire-retardants give off toxic gasses.

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STARTThe IEP Process

Child entersschool system

via ChildFind, EI,RC, parent referral

or regularenrollment

Parent mustreceive evaluationreports prior to IEP

meeting

IEP MeetingNever go alone,

always taperecord, never sign

IEP at firstmeeting.

DiscussevaluationsDiscuss yourchild’s current

educational levels

Discuss thedevelopmentallyappropriate stepsto get your childfrom where he is

to where he shouldbe compared to

his peers.

Createmeasurable goals

Write only goalsthat are able to bemeasured, never

vague. Whomeasures, how

and when?

Placement OfferGoals beforeplacement.

Placements are tobe individualized

to your child’sneeds, NOT their

available programs

Services offersBased on goals,document level,

frequency, setting,and duration ofeach service.

Discuss whataccommodations

your child will needto fully participatein the placement

and servicesagreed to. Put it in

writing!

CommunicationDiscuss anddocument

parent-staffcommunication indetail. Frequency,data. Don’t settlefor “a good day”.

Don’t agree withplacement or

services offers?

Don’t sign IEP!

Hire a lawyer oradvocate

Some schools willbuckle when you

threaten to file dueprocess, some

won’t. Beprepared to go the

distance.

File Due Process

Educational

Consider privateplacement options

Follow ThroughHave quarterlyreviews of your

child’s progress onthe IEP goals. If

not meetingbenchmarks, call a

new meeting.

Child referred toSpecial Education

department forevaluations in ALLareas of suspected

delay.


Disagree withassessment? Seek

independentevaluation.

Goals driveplacement andservices. Makesure there is at

least one for everyarea of need.

Does theplacement offer

meet LRE?No? Reject offer.

Yes? On toservices.





Finance

Early

Intervention(Part B)

Ages 0-3

Private

HealthInsurance

Regional

CentersCA only

School

District(Part C)

Ages 3-22

FederalPrograms

SSDIFood Stamps/SNAP

MedicaidMedwaivers

Other StateFunding

TaxDeductions

Budget TipsGrants and

Scholarships

Does not require adiagnosis, just

delay.

Will bill privatehealth insuranceand pick up anyremaining fees.

Covers OT, PT,ST and behavioral/

developmentalinterventions.

Coverage variesby plan and state.If self-funded plan,federal ERISA law

doesn’t apply.

Do not billanything under299. Autism.

Read the TACAInsurance booklet.

Funding throughDept of Ed.

Free to families.

Pays for alleducationaltherapies,

interventions and

related servicesthat are written

into IEP.

Each RC candetermine what

services they fund.Generally, the RCsfund ABA, respite,diapers, and day

care subsidy.Children with a “substantial” developmentaldisability qualifyfor RC services.

July 09 cuts meanno “non-medical”

therapies oreducationalservices.

Medicaid will payfor medicallynecessary

treatments likedoctors, dentists,

vision,prescriptions, labtests, OT, Speech,

Behavioral, PT,diapers but is

income dependant.

Waiver programsWAIVE the

parent’s income sothat the disabledchild qualifies.

You must qualifyfor these programs

on income anddisability. If you

do qualify, you canget up to $674

cash per month forSSDI and up to

$585 a month (fora family of 4) of Food Stamps.

Most every statehas anotherprogram forchildren withdisabilities.

Google search “developmental

disabilitiesfunding” and the

name of yourstate.

There are manyways to save

money on your journey. Read all

of our “On A Budget” articlesand save whereyou can, so thatwhen you must

pay out of pocket,you can afford it.

http:// www.tacanow.org/ resources/autism-on-a-budget.htm

There are morethan 25 nationalgrants, and manymore local grant

programs availablefor children with ASD for various

funding.

Google search for“autism

scholarship” or“autism grant” and

your state.

All medicalappointment travel

and costs, alldisability-related

reading materials,all therapists and

therapyequipment, special

diet foods, andmuch more, canbe deducted on

your taxes. Keepall your receipts!






Finance

1. Who Pays for What?a. http://www.tacanow.org/resources/who-pays-for-

what-national.pdf 2. Early Intervention – birth to age 3, full funding after billing

your private health insurance.

a. http://www.nectac.org/partc/partc.asp 3. Private Health Insurance – never bill tests or treatments

under ‘299. Autism’.a. http://www.tacanow.org/resources/autism-

insurance/insurance-coverage-for-biomedical-traditional-treatments.htm

4. School District – ages 3-22, educational only, must bewritten into IEP to get funding.

5. SSDI, Food Stamps/SNAP – You must qualify for theseprograms on income and disability. If you do qualify, youcan get up to $674 cash per month from SSDI and up to

$585 a month (for a family of 4) of Food Stamps.a. www.ssa.gov 800-772-1213b. www.fns.usda.gov/FSP

6. Medicaid/Medwaiver pays medical, hospital, dental,behavioral, OT, PT and Speech, prescription, diapers,vision, and copays.

a. http://www.cms.hhs.gov/MedicaidStWaivProgDemoPGI/MWDL/list.asp

7. Other state programsa. Most every state has another program for children

with disabilities. Google search “developmentaldisabilities funding” and the name of your state.8. Tax deductions – all medical appointment travel and costs,

all disability-related reading materials, all therapists andtherapy equipment, special diet foods, and much more, canbe deducted on your taxes. Keep all your receipts!

a. http://www.tacanow.org/resources/tax-strategies/tax-strategies-for-parents-of-special-needs-children.htm

9. Grants and Scholarshipsa. http://www.tacanow.org/resources/autism-

grants.html b. Other funding

http://www.tacanow.org/resources/autism-on-public-assistance.htm

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http://www.tacanow.org/resources/who-pays-for-what-national.pdf



http://www.nectac.org/partc/partc.asp


http://www.tacanow.org/resources/autism-insurance/insurance-coverage-for-biomedical-traditional-treatments.htm




http://www.ssa.gov/

http://www.ssa.gov/

http://www.fns.usda.gov/FSP/


http://www.cms.hhs.gov/MedicaidStWaivProgDemoPGI/MWDL/list.asp



http://www.tacanow.org/resources/tax-strategies/tax-strategies-for-parents-of-special-needs-children.htm




http://www.tacanow.org/resources/autism-grants.html
















http://www.ssa.gov/









Marriage Siblings

Home Life

Home Extended Family

Getting

Organized Divorce

Moms to Dads:Get involved, Stay

involved.Acknowledge her

work, Listen.

For Dads:Define roles, makea plan, realize men

act and reactdifferently

Make special timefor other kids

Physical safety,locks, fences

Prep them forproper

expectations, howto relate

Use a journal totrack progress

Build a SpecialNeeds Trust and

wills

Siblings should notbe raised to be

caregivers.

Don’t expend allresources on ASD

kid, leavingnothing for

siblings.

Durable, easy toclean furniture and

décor.

Use non-toxiccleaners andfurnishings

Holidays, traveland gatherings

Gifts to go intoSpecial Needs

Trust

Get and scan alldocuments beforethey are destroyed

Get one creditcard just for autismrelated purchasesto help track and

for taxes

No ego parenting.Lead, follow or get

out of the way.Make time away

from autism.

Plan for the worst,hope for the best.Put it all in writing.

Decide whodecides -

educational andmedical






Home Life

1. Marriage – Keeping it together!a. Moms to Dads: Dads need to be involved, stay involved.

Let her vent. Acknowledge her work.b. For Dads: Define roles. Make a 2-year plan. Realize men

and women deal with things differently.c. For both: Give each other time away from autism,

teamwork, split the effort, talk and listen. No egoparenting.

2. Siblings – don’t forget the other kidsa. Make special time just for them.b. Don’t expend all resources on ASD child.c. Don’t raise siblings to be responsible for ASD kid.

3. Home environment – Decorating for autisma. Safety - Install double-sided deadbolts, window locks and

alarms, fence the yard, triple-secure the pool.b. In the home – check for mold, replace toxic cleaners,

carpets, bedding, pots and bottles.

c.

Decorating – replace fragile items with durable furnitureand window coverings. Use nontoxic paint.4. Extended family – can be great or disaster.

a. Prepare them for proper expectations and how to interactwith your child.

b. Holidays, travel and special events may need to beadjusted to suit your child.

c. All monetary gifts should go to a Special Needs Trust foryour ASD child.

5. Getting organized, tracking child’s progressa. Use a journal to track your child’s progress and new

treatments.

b. Scan all documents and burn to CD when starting newpractitioner

i. Get an auto-document feeder attachment for yourscanner

ii. Get copies of all past doctor and therapist visitsbefore they are destroyed

c. Get one credit card just for autism-related purchases tohelp track spending and easy tax submittal.

6. Divorce – if all else fails.a. Build a Special Needs Trust and wills for both parents.

Funnel all insurance into it.

b.

Hope for the best, plan for the worst. Get it all in writing.c. Decide who decidesi. Educational and Medical decision making is key.

Get it in writing.d. http://www.talkaboutcuringautism.org/resources/divorce-

and-autism.htm

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http://www.talkaboutcuringautism.org/resources/divorce-and-autism.htm





Documents

Autism Blueprints