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Advocacy Strategies: Managed Care Gwen Orlowski Central Jersey Legal Services [email protected]

Advocacy Strategies: Managed Care Gwen Orlowski Central Jersey Legal Services [email protected]

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Page 1: Advocacy Strategies: Managed Care Gwen Orlowski Central Jersey Legal Services gorlowski@lsnj.org

Advocacy Strategies: Managed Care

Gwen OrlowskiCentral Jersey Legal Services

[email protected]

Page 2: Advocacy Strategies: Managed Care Gwen Orlowski Central Jersey Legal Services gorlowski@lsnj.org

Central Jersey Legal Services

Keeping the promise of justice for all.

Serving low-income residents of Union, Middlesex, and Mercer Counties

Page 3: Advocacy Strategies: Managed Care Gwen Orlowski Central Jersey Legal Services gorlowski@lsnj.org

What we will cover today:• Overview of Managed Long-Term Services and

Supports (MLTSS)

• New Jersey Experience

• Consumer Advocacy: Effective Strategies– Using the 2014 Person-Centered Planning Rules– Appeals and Fair Hearing Strategies

• Role of the Ombudsman in Wisconsin

Page 4: Advocacy Strategies: Managed Care Gwen Orlowski Central Jersey Legal Services gorlowski@lsnj.org

Story #1

HCBS waiver participant’s PCA hours are reduced by ½ from 36 hrs/wk to 18 hrs/wk after MCO nurse shows up at house with little notice

– Participant speaks Portuguese– She is a recently widowed and 85– Nurse/Care Manager, who she has never met

before, is 40 something year old man

Page 5: Advocacy Strategies: Managed Care Gwen Orlowski Central Jersey Legal Services gorlowski@lsnj.org

Story #2

Young adult with TBI is placed in a nursing home with no special TBI services and all PT/OT therapies are cut within weeks – the MCO seems unfamiliar with TBI NF and HCBS services

– Prior to MLTSS, NJ had TBI waiver and SCNF TBI units– All but 1 TBI special nursing facility dropped out of Medicaid

after July 1, 2014, and that NF won’t admit this client– MCO won’t provide network info about HCBS providers, and

then says none will take client because he needs ADL assistance

Page 6: Advocacy Strategies: Managed Care Gwen Orlowski Central Jersey Legal Services gorlowski@lsnj.org

Story #3

NF resident wants to return home and is told by her MCO care manager that she can’t – she needs too many hours of service and no provider agency can cover weekends

– Resident still maintains affordable apartment – MCO care manager never discusses self-direction– MCO says cost cap “budget” is proprietary – No Notice of Action is provided to Resident

Page 7: Advocacy Strategies: Managed Care Gwen Orlowski Central Jersey Legal Services gorlowski@lsnj.org

Managed Long-Term Services and Supports

“MLTSS”

Page 8: Advocacy Strategies: Managed Care Gwen Orlowski Central Jersey Legal Services gorlowski@lsnj.org

MLTSS

LTSS Delivery System = Managed Care

• Managed Care → Other Health Care Services (i.e. PCP, Acute, Behavioral Health)

• Case or Care Management is Key

• Mechanisms include:– 1915(c) HCBS waivers combined with 1915(b) waivers– 1115 Demonstration Waivers– 1115 Demonstration Waivers with 1915(c) HCBS Waivers

Page 9: Advocacy Strategies: Managed Care Gwen Orlowski Central Jersey Legal Services gorlowski@lsnj.org

MLTSS can includes:

Institutional Services

Nursing Home

HCBS

Assisted Living Adult DayPersonal Care AssistantHome-Delivered MealsPERSHome Modifications

Page 10: Advocacy Strategies: Managed Care Gwen Orlowski Central Jersey Legal Services gorlowski@lsnj.org

Why or Why NotManaged Care?

Purported Benefits

• Stability in state budgets• Better care coordination• Ability to offer

supplemental benefits• Fewer silos• Better quality control

Arguments Against

• Incentive to deny or reduce services

• State trying to relieve itself of responsibility

• MCOs are not culturally attuned to Medicaid protections

• Not accountable to private citizens (i.e. claims of proprietary protections)

Page 11: Advocacy Strategies: Managed Care Gwen Orlowski Central Jersey Legal Services gorlowski@lsnj.org

MLTSS: Common Problems• Inadequate or inappropriate service plans

– Including reductions/terminations during transition to MLTSS

• Cost thresholds for HCBS– Sometimes also for nursing facility services.

• Caregiver are “forced” to provide services– Natural supports should be voluntary

• Poor assessment tools– Often developed by MCO and applied contrary to law

Page 12: Advocacy Strategies: Managed Care Gwen Orlowski Central Jersey Legal Services gorlowski@lsnj.org

MLTSS in New Jersey

Page 13: Advocacy Strategies: Managed Care Gwen Orlowski Central Jersey Legal Services gorlowski@lsnj.org

MLTSS: New Jersey’s Experience• 1115 Comprehensive Waiver: CMS approved October 2, 2012

– Includes MLTSS among other changes to Medicaid program

• Implementation of MLTSS was delayed until July 1, 2014

– MLTSS Steering Committee

– 4 Workgroups (i.e. Assessment to Appeals and Quality Measures)

• Four 1915(c) HCBS waivers were transitioned into MLTSS

– 12,000 waiver recipients were reassessed in 1st 6 months

– No prohibition or state review of adverse service changes

– Weak data reporting requirements in STC

Page 14: Advocacy Strategies: Managed Care Gwen Orlowski Central Jersey Legal Services gorlowski@lsnj.org

MLTSS: New Jersey’s Experience• New PCA Functional Assessment Tool

– New PCA tool wasn’t implemented until Jan. 1, 2015

– Lack of transparency around tool initially

– Summer 2015: State webinar to advocate/families

• Grievances, Appeals, and Access to State Fair Hearings

– Standardized Notice of Action. . .but!!!

– Continuation of Services until outcome in MCO Appeals (automatic)

and in Fair Hearings (must be requested)

– VERY CONFUSING 3 stage appeal process

• Strong Special Terms and Conditions and Contract Provisions

Page 15: Advocacy Strategies: Managed Care Gwen Orlowski Central Jersey Legal Services gorlowski@lsnj.org

!Transparency!• CMS Waiver Approval

Process• Research Goals - §1115• Contract → Website• Reporting requirements

– Quarterly Public Reports (Kansas)

• Track Appeals and FHs• Track reductions and

terminations in 1st year

• Capitated Rates and Cost Cap Thresholds

• Amounts paid to providers

• Standardized Assessments and criteria for service authorizations

• Quality Measures and Performance

Page 16: Advocacy Strategies: Managed Care Gwen Orlowski Central Jersey Legal Services gorlowski@lsnj.org

Consumer Advocacy Strategies

Using Person-Centered Planning Rules and the Appeals/Fair Hearings

Processes to Win

Page 17: Advocacy Strategies: Managed Care Gwen Orlowski Central Jersey Legal Services gorlowski@lsnj.org

2014 Person Centered Planning Rules

• Rules are part of the Centers for Medicare and Medicaid (CMS) 2014 HCBS settings rule

• HCBS Settings Rule → State Transition Plans– Up to 5 years

• PCP rules → Effective March 17, 2014• PCP rules apply to*:– 1915(c) HCBS waivers and 1115 demonstration waivers– 1915(i) state plan HCBS benefits*1915(k) Community First Choice → 2012 PCP rules

Page 18: Advocacy Strategies: Managed Care Gwen Orlowski Central Jersey Legal Services gorlowski@lsnj.org

Rule in 3 Parts

• The Person Centered Planning Process

• The Person Centered Written Plan

• The Plan is Reviewable and Subject to Change

Page 19: Advocacy Strategies: Managed Care Gwen Orlowski Central Jersey Legal Services gorlowski@lsnj.org

The Planning Process

• Consumer leads the planning process– Must be timely– Occur at times and locations convenient to LTSS consumer– Include people chose by LTSS consumer

• Consumer empowered → informed choices– MCO → Information and Support = Informed

Choice– Must offer informed choices regarding services

and supports• Cultural Competency and Language Access

Page 20: Advocacy Strategies: Managed Care Gwen Orlowski Central Jersey Legal Services gorlowski@lsnj.org

The Written Service Plan

• Must reflect Identified Need & Preferences

– Plan must reflect strengths and preferences

– Plan must reflect goals and desired outcomes

– Services and Supports important to meet needs identified through assessment of functional need

Page 21: Advocacy Strategies: Managed Care Gwen Orlowski Central Jersey Legal Services gorlowski@lsnj.org

Assessment of Functional Need

• Medically Necessary vs Functional Need

• Tool should measure TOTAL need: beware the assessment ≠ service plan

• Advocacy Goal: Standardized, transparent assessment tool that is person-centered in design and in application (i.e. MNChoices incorporates quality of life domains)

Page 22: Advocacy Strategies: Managed Care Gwen Orlowski Central Jersey Legal Services gorlowski@lsnj.org

The Written Service Plan

• Must include Paid & Unpaid Services and Supports, as well as Providers

NOTABLY: Natural Supports are unpaid supports that are provided voluntarily.

Page 23: Advocacy Strategies: Managed Care Gwen Orlowski Central Jersey Legal Services gorlowski@lsnj.org

The Written Service Plan

• Must be finalized and agreed to, with the written informed consent of the LTSS consumer

• But LTSS consumers still have their appeal and fair hearing rights:

Constitutional Due Process Protections

Page 24: Advocacy Strategies: Managed Care Gwen Orlowski Central Jersey Legal Services gorlowski@lsnj.org

Plan is Reviewable & Subject to Change

• At least every 12 months

• When the LTSS consumer’s circumstances change

• At the request of the LTSS consumer

Page 25: Advocacy Strategies: Managed Care Gwen Orlowski Central Jersey Legal Services gorlowski@lsnj.org

Resources:

• “A Right to Person Centered Planning”– http://justiceinaging.org/wp-content/uploads/201

5/04/FINAL_Person-Centered_Apr2015.pdf

• “Q&A: Person Centered Planning Changes”– http://www.healthlaw.org/publications/browse-all

-publications/q-a-person-centered-planning-changes

Page 26: Advocacy Strategies: Managed Care Gwen Orlowski Central Jersey Legal Services gorlowski@lsnj.org

Grievances, Appeals and Fair Hearings

• Did the MCO engage in an ACTION?

– If yes → before, after, instead of, at the same time

Internal MCO Appeal

State Fair Hearing

– If no → MCO grievance (e.g., rudeness by customer service rep)

Page 27: Advocacy Strategies: Managed Care Gwen Orlowski Central Jersey Legal Services gorlowski@lsnj.org

What is an MCO Action?

• Denial or limited authorization of a requested service

• Reduction, suspension, or termination of previously authorized service

• Failure to provide services in a timely manner

MCO must give written NOTICE OF ACTION

Page 28: Advocacy Strategies: Managed Care Gwen Orlowski Central Jersey Legal Services gorlowski@lsnj.org

Right to Continuation of Services

• Right is incorporated into both the Medicare Fair Hearing regulations and the Medicaid Managed Care

• Some issues around “prior authorization” periods (proposed regs may fix)

• State work-a-around: Kansas and New Jersey

Page 29: Advocacy Strategies: Managed Care Gwen Orlowski Central Jersey Legal Services gorlowski@lsnj.org

MCO Appeals

• Right to an expedited appeal

• Right to in-person or in-writing

• Right to case file, including medical records

• Right to introduce evidence & make arguments

Page 30: Advocacy Strategies: Managed Care Gwen Orlowski Central Jersey Legal Services gorlowski@lsnj.org

Medicaid Fair Hearing

• Right to examine Medicaid file

• Right to offer evidence and make legal arguments

• Right to cross-examine witnesses

Page 31: Advocacy Strategies: Managed Care Gwen Orlowski Central Jersey Legal Services gorlowski@lsnj.org

Resources• “What’s in a Notice? How Notices of Action Protect

Consumers in Medicaid Managed Long Term Services and Supports.”– http://justiceinaging.org/wp-content/uploads/2015/02/Advocates-Guide-for-

Notices-in-Medicaid-Managed-LTSS.pdf

• “Medicaid Managed Care Rules: Key Considerations for Aging Advocates.”– http://justiceinaging.org/wp-content/uploads/2015/06/Medicaid-Managed-C

are-Proposed-Rule_Key-Considerations-for-Aging-Advocate

Page 32: Advocacy Strategies: Managed Care Gwen Orlowski Central Jersey Legal Services gorlowski@lsnj.org

Turn it over to Heather -

Thank [email protected]