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North Texas Giving Day 2017 SEPTEMBER 2017
INSIDE
Since 1978, DAPS has been impacting and improving the lives of those affected by Parkinson’s disease.
We couldn’t do it without your support!
On Thursday, September 14, DAPS will join with more than 2,500 other local nonprofits in the online giving event called North Texas Giving Day (NTGD). Created by Communities Foundation of Texas in 2009, NTGD was one of the first—and now the largest—community-wide giving events in the world.
Last year, $37 million was raised on NTGD through more than 142,000 gifts benefiting 2,518 nonprofits. Donations to Dallas Area Parkinsonism Society and bonus funds earned totaled more than $26,000 on that day.This year for the first time, not all giving will occur on one day. We will be able to schedule donations online starting at 8:00 a.m. on Thursday, September 7. Scheduled donations will be processed on Thursday, September 14, and you will receive a receipt at that time. From September 7–14, volunteers will be available at some exercise locations to help people schedule gifts. You can also call the DAPS office at 972-620-7600 for help in scheduling your gift. We will be available in the DAPS office 7am–7pm on North Texas Giving Day (Thursday, September 14)—stop by or give us a call!The only way to donate to DAPS for North Texas Giving Day is to go to bit.ly/DAPS-NTGD2017 or go to NorthTexasGivingDay.org and search for DAPS. Do not donate through the DAPS website; that will not count. Communities Foundation of Texas, sponsor of North Texas Giving Day, awards prize money in part based upon the number of unique donors (repeat donations by an individual do not count). Donations of any amount are appreciated, but a minimum donation of $25 is required to qualify for certain prizes. Thanks to a matching gift fund created by the DAPS Board of Directors & Staff and Cindy Weatherall, up to $2,500 of your donations will be matched dollar for dollar. In 2016, nonprofits who had their own matching funds raised almost 20% more than those who did not have matching funds. If you’d like to contribute to our matching funds pool, please contact Mike Miles at 972-620-7600.
Thank you for your support!
powered by
9.14.17
Septemberannualkickoff
meeting
Monday
September 11, 20171:00 p.m.speakers:
Dr. Aashoo MentreddiDr. Nirav Pavasia
Neurology Consultants of Dallas
See Page 2 for speaker bios.
topic:Parkinson’s Q & A
An ice cream social will follow the meeting.
6370 LBJ Freeway Suite 170
Dallas, TX 75240(972) 620-7600
www.daps.us
keep moving symposium 3vizient community day 3
moving day 2017 3
parkinson’s news 4 honors, memorials, donations 5executive director’s message 6
new exercise classes 6group schedules 7
calendar of events 8
University ParkUnited Methodist Church
4024 Caruth Blvd (at Preston)Dallas, TX 75225
PAGE 2 • DAPS • SEPTEMBER 2017
Dr. Aashoo Mentreddi is a movement specialist at Neurology Consultants of Dallas’ Merit Drive & Addison locations. She specializes in Parkinson’s disease and other movement disorders including dystonia, chorea, tics and tremors.
Dr. Mentreddi has always had a deep interest in the complexity of neurological diseases, especially since her father was also a neurologist. She took a special interest in movement disorders during her training after seeing the specialty care required of patients, and it has been a passion for her ever since.
When out of the office, she enjoys traveling to new countries with her husband and spending time with friends and family, especially her niece and nephew.
Dr. Nirav Pavasia is a movement disorders specialist at Neurology Consultants of Dallas’ Merit Drive location. He specializes in Parkinson’s disease and other movement disorders including essential tremor, dystonia, etc. Dr. Pavasia has a special interest in programming DBS treatment and helping patients lead a healthy, educated life while living with a movement disorder.
When not sporting his white coat, he enjoys spending time with his amazing wife and trying new restaurants in the area.
SEPTEMBER KICKOFF SPEAKERS:Dr. Aashoo Mentreddi and Dr. Nirav Pavasia
Following the meeting, instead of the usual snacks,
there will be ice cream with all the fixings for sundaes!
We look forward to seeing you!
Dedicated to impacting and improving the lives of those affected by
Parkinson’s disease
Executive DirectorMike Miles
Board of DirectorsChad Swank, Ph.D., PresidentBarbara Glass, Vice President
Ann Heidger, SecretaryGreg Wood, Treasurer
Jim Struble, Advisory Council LiaisonDusty Berry Chick MartinChris Clausen Fred RansdellBentley Foster Terry SpearHarold Kellogg Heather StevensJo Klein Marilyn StewartMary Ellen Malone Bob Vlach
Advisory CouncilSarah Atwood Charlene NoeBen Casey Sandi PautlerCarlie Dorshaw-Moe Joyce SusmanPat Goukler Barbara TaylorShirley Hand Cindy WeatherallGavin Mogan
Medical Advisory BoardShilpa Chitnis, MD, Ph.D.
Richard B. Dewey, Jr., M.D.Richard L. Fulbright, Ph.D.Dwight C. German, Ph.D.R. Malcolm Stewart, M.D.
Gary L. Tunell, M.D.
NewsletterJill Dominguez, Managing EditorPam Michel, Production Editor
The DAPS newsletter is published monthly as an information guide only, and does not serve as legal
or medical advice. We welcome your feedback, contributions or requests. Please send to or contact:
Jill DominguezPhone: 972-620-7600
All submissions must be received by the first of the month preceding publication date
and are subject to editing.
SEPTEMBER 2017 • DAPS • PAGE 3
Dallas Area Parkinsonism Society Symposium 2017Make plans now to attend DAPS’ first annual “Keep Moving” Symposium. This will be a day of fun that focuses on treatments and strategies for living well with Parkinson’s disease.
This symposium is the fulfillment of a dream for DAPS! We are excited to be able to bring this educational opportunity to families facing the challenges of living with Parkinson’s. DAPS is grateful to our generous sponsors, exhibitors, the Symposium Planning Task Force, and all the volunteers who have helped to make this dream come true.
Together we will “Keep Moving!” We will keep moving as individuals realizing the value of exercise and community. We will keep moving as an organization always looking for the best way to serve families living with Parkinson’s disease. We will keep moving as a community that supports each other and the ongoing efforts to discover a cure.
WHEN: October 7, 8:30 AM to 3:00 PMWHERE: Texas Woman’s University
T. Boone Pickens Institute of Health Sciences 5500 Southwestern Medical Ave. Dallas, TX 75235
REGISTER NOW! More info at bit.ly/keepmovinginfo
On Tuesday, October 17, from 11:30 AM to 3:00 PM, DAPS has the opportunity to participate in a Vizient Community Day. Vizient is a healthcare company that works with academic medical centers, community hospitals, and other health care providers. Community Day is a volunteer program where Vizient employees spend a day with non-profit organizations, and DAPS is excited to be one of the hosts this year. As a host, DAPS can provide a learning environment for participants to gain a better understanding of Parkinson’s disease and to spotlight DAPS’ offerings.
This is a wonderful way to increase DAPS awareness in the community. It also draws new sponsors, donors and even new people to volunteer for DAPS. DAPS attendees will team up with Vizient employees to share the day. The event will be at University Park United Methodist Church.There is no charge to attend and lunch will be provided.
For more information, please contact Jo Klein at [email protected]. Register online at daps.us/vizient.
Come out to help us make this a successful event!
2nd Annual DFW WalkNovember 4, 2017
at Globe Life Park
Register at:
MovingDayDFW.org
Moving Day®, a walk for Parkinson’s, is a fun and inspiring fundraising event that unites families, friends and communities in the fight against Parkinson’s disease. This celebration of movement will feature a family-friendly walking course, a kids’ area, food, prizes, a caregivers relaxation tent and a Movement Pavilion featuring yoga, dance, Tai Chi, boxing and more! DAPS will have a table in the Resource Pavilion along with many other organizations and businesses related to Parkinson’s disease.
The first DFW Moving Day last year was a blast and this year’s will be bigger and better. Teams are forming now! You don’t want to miss it!
For more information, email Debbie Nathan at [email protected].
Community Day
PAGE 4 • DAPS • SEPTEMBER 2017
Ian Andersen Sarah Atwood Larry & Jana Barker Dusty & Angela Berry Laura Boyle Shirley Brouillette Edna Buentipo John & Wanda Call Larry Christensen Christian Clausen Bruce & Janiece Crozier Linda Dieringer Jill Dominguez Raul Dominguez Rosemary & William Edwards Bentley & Iris Foster Barbara Glass Barry & Pat Goukler Ann Heidger Geri & Harold Kellogg Jo & Bert Klein Leon & Marilyn Levin Chip & Ginny Melara Brenda & Billy Merriman Pam & Matt Michel
Donna Miles Mike Miles Carlie Moe Susan Norvell Tom & Ceil Pajda Sandi Pautler Jon Peacock Fred Ransdell Sandra Rodriguez Holly Scott Robyn & Bud Seitzler Janis & Terry Spear Marilyn Stewart Jim Struble Joyce Susman Chad Swank Linda & Mike Swanson Robyn Seitzler Leslie & Brad Tarkington Kyle Wayne Thomason John & Ruth Walker Cindy Weatherall Diana & Bill Winkelmann Sharon & Greg Wood
GEMs are donors whoGive Every Month.
Our GEMs are very valuable!
Sign up on the DAPS website.
On August 1, 2017, the Parkinson’s Foundation announced its launch of a podcast series, “Substantial Matters: Life and Science of Parkinson’s,” available for listeners to stream online or download. Hosted by Dan Keller, Ph.D., a new 15-minute episode airs every other week featuring interviews with Parkinson’s experts.
“As part of the Parkinson’s Foundation’s mission to ensure that all people living with Parkinson’s obtain the care and support they need, the new podcast highlights the latest research and findings while providing practical advice from Parkinson’s experts to help people with Parkinson’s live better lives today,” Keller said.
The podcast, designed for easy, on-the-go listening, provides information for people living with the disease, their caregivers and families, health care professionals, and anyone interested in learning more about the disease. All episodes are archived on www.parkinson.org/podcast.
Upcoming episodes will focus on a range of Parkinson’s topics including: mental health, genetics, driving, marriage, and family relationships. The first five episodes feature the following topics and experts:
• “Early Warning Signs of Parkinson’s,” with Michael S. Okun, M.D., medical director of the Parkinson’s Foundation
Parkinson’s News...
Reprinted with permission from the National Parkinson Foundation’s website, www.parkinson.org.
• “The Parkinson’s Foundation’s Role in Improving Standards of Care,” with Peter Schmidt, Ph.D.
• “The Benefits of Exercise for People with Parkinson’s,” with Bas Bloem, M.D., Ph.D.
• “The Importance of Good Nutrition for People with Parkinson’s,” with Bas Bloem, M.D., Ph.D.
• “How to Manage Parkinson’s ‘Off’ Time,” with Irene Malaty, M.D.
“Recognizing that Parkinson’s is not a one-size-fits-all disease and people can live decades after diagnosis, the Parkinson’s Foundation provides free resources in a variety of formats, including our new podcast series,” Dr. Okun said. “In order to ensure the best quality of life, each patient needs uniquely customized strategies for short- and for the long-term treatment and care, as well as how they learn about their disease and learn to live with it.”
The public may submit suggestions for podcast topics at: www.parkinson.org/feedback. They may subscribe, stream or download podcasts at: iTunes, Google Play, TuneIn (Amazon Echo), RSS feed.
SEPTEMBER 2017 • DAPS • PAGE 5
Memorials • Honors • DonationsJuly 2017
In memory of Charles ReedFrom: Lisa Beckemeier Mike & Donna Miles Candace Owens Porter Reed
In memory of Leo DagleyFrom: Richard & Rita Doelling Raul & Jill Dominguez Brenda & Billy Merriman Mike & Donna Miles Ron & Breezy Rock Cindy Weatherall
In memory of Nancy Engel JonesFrom: Dolores E Bennett
In memory of Craig WilsonFrom: Brenda & Billy Merriman
In memory of John HoneycuttFrom: Cindy Weatherall
In memory of Billy McDonaldFrom: Cindy Weatherall
In honor of Charles SterlingFrom: Jim & Woo Woo Struble
In honor of Dr. Kenneth CooperFrom: Jim & Woo Woo Struble
In honor of Harlan CrowFrom: Jim Struble
Support for Dance for PD® ClassesFrom: Larry & Jana Barker David & Pat McElwain Mr. & Mrs. Charles Reed Sadie Tellez Esther & Willie Thomas
2017 Non-Event FundraiserFrom: Bob & Dottie Vlach
Donation to DAPSFrom: Annabelle Catterall Jo Anna Evans Sharon & David Saller Paul Salzberger Susan & Charles Sterling Anonymous attendees at July Jubilee Anonymous through Network for Good Fish City Grill for June First Tuesday Shakers and Movers LLC DAPS @ Hunters Glen (Plano) DAPS @ Preston Hollow (Dallas) DAPS @ Trinity (Duncanville)
About Memorials, Honors, and Donations
Flowers fade within days. Memorial tributes to DAPS have a lasting effect, funding our more than 25 Parkinson’s exercise, speech, and support groups and education programs.
Your generous donations will be listed in our DAPS newsletter. Both you and your honoree will receive letters of acknowledgement and thanks, but the dollar amount will be included in your letter only for tax purposes.
Send these special tributes to the DAPS office, with instructions regarding who the donation is in honor of or in memory of and who should be recognized as the donor.
You may also make memorial donations at www.daps.us. Just click the Honors & Memorials button on the right side.
PAGE 6 • DAPS • SEPTEMBER 2017
The Love Behind the Labor
I recall reading that if you line up all the cars in the USA bumper to bumper, it must be Labor Day. As I think of DAPS and Labor Day, I cannot help but think of all the labor that goes into making the wheels of DAPS keep turning. I want to celebrate the work that is done by all of our DAPS volunteers and paid staff. I’ve heard more than once that DAPS gets more done with limited resources than any other nonprofit.
Sophocles said, “Without labor nothing prospers.” We often think of material or financial gain when we think of prospering. But prosper also means to flourish physically, grow strong, and be successful. DAPS is prospering. We are growing and we are succeeding in fulfilling our mission. We are achieving our stated mission of impacting and improving the lives of those affected by Parkinson’s disease.
We are successful because, for the DAPS office staff, paid group leaders, and volunteers, their service to DAPS is a labor of love. Every day and at every activity, I see our people going the extra mile. I hope that you will join me in looking for opportunities to say “thank you” to the dedicated and hardworking DAPS team. Say thank you to Jill in the office, the facilitators at each of the DAPS locations, the exercise leaders, the support group leaders, the DAPS Newsletter Team, the Board of Directors, the Advisory Council, our PD Pals, the Programs Committee, and the small army of volunteers that roll up their sleeves and help in the office and behind the scenes in so many ways at each one of our locations and at every activity. Look closely and, if you haven’t already, you will see the love behind the labor.
A message from Mike Miles
Executive Director
DAPS is excited to announce that we have received a grant from the Parkinson Foundation that will allow us to add an exercise class two days a week at the DAPS McKinney location (St. Gabriel the Archangel Church, 110 St Gabriel Way, McKinney, TX 75071), beginning on September 5, 2017. Classes will be led by Emily Schmehl every Tuesday and by Alice Buttner every Friday starting at 10:00 a.m. both days. The DAPS McKinney Parkinson’s Support Group will meet immediately after the exercise class on the third Tuesday of each month. Email [email protected] or call 972-347-5342 for more information.
Funds for this grant were made possible by our involvement in the Moving Day DFW walk held on November 5, 2016, at Globe Life Park. Moving Day DFW 2016 was a great success with over 700 walkers and a wide variety of exhibits. See page 3 of this newsletter for information on Moving Day DFW 2017.
New Grant Provides Funding for Exercise Classes in McKinney
Tom Thumb Good Neighbor ProgramLink your Tom Thumb Rewards card to the number 3071, and a percentage of what you pay to Tom Thumb will be donated to DAPS!
Kroger Plus Card Community Rewards ProgramLink your Kroger Plus card to DAPS and Kroger donates to DAPS every time you shop!Go to www.krogercommunityrewards.com. Sign up or log in. In your Account Summary, look for Community Rewards. Click Edit and type in our Organization number (80709), and click the button next to Dallas Area Parkinsonism Society. Click Save. Show your Kroger Plus card at the register and DAPS earns cash!
iGive.com The iGive mall includes your favorite stores. Best of all, up to 26% of your purchases are donated to DAPS. Just go to www.iGive.com, sign in or sign up for an account and choose DAPS as your cause. Next time you shop, go to iGive first to sign in, click on your store of choice, and a percentage of your purchase benefits DAPS!
Thank You!
Earn Money ForDAPS
While You Shop!
Title Boxing Club of Allen:300 N Greenville Ave*Boxing for PD:Tue/Thu...10:30–11:30 amWed…8:15–9:15 pmSat…10:15–11:15 am*DAPS member discountInfo: 214-644-2640 or FreeMotionPD.com
Grace Lutheran Church1200 E Hebron Pkwy, CarrolltonGroup Exercise:Wednesday...10:00–11:00 amSpeech Therapy:Wednesday…11:00 am–12:00 noon
Edgemere8523 Thackery St, DallasMove & Stretch:2nd & 4th Tuesday...2:00–3:00 pm
Finley Ewing Cardiovascular & Fitness Center, Studio 35721 Phoenix Dr, Dallas Dance for Movement Disorders:Tue/Thu…2:00–3:15 pm
Grace Presbyterian Village550 E. Ann Arbor Ave, Dallas at the Hillcrest Spa poolSwim Class:2nd & 4th Friday...10:00–11:00 amInfo: 214-376-1701
Lake Pointe Church at White Rock9150 Garland Rd, Dallas Dance for PD®: Wednesday…9:30–10:30 amSpeech Therapy:Wednesday...10:30–11:15 amPartners-in-Care Group:Wednesday...10:15–11:15 am
Preston Hollow UMC6315 Walnut Hill Ln, DallasGroup Exercise:Tue/Thu...10:30–11:30 amSpeech Therapy:Tuesday...11:30 am–12:30 pm
Preston Hollow UMC/Tribe Wellness*South Paws Boxing:Mon/Wed...1:30–2:30 pm*DAPS member discountInfo: 214-702-6559 or [email protected]
Trinity United Methodist Church1302 S Clark Rd, Duncanville Group Exercise:Monday...12:00–1:00 pmNo class last Monday of the monthThursday...2:00–3:00 pmDance for PD®: September 11...10:30–11:30 amSpeech Therapy:Thursday...1:00–1:45 pmPartners-in-Care Group: 3rd Thursday...1:00–2:00 pmSupport Meeting:Last Monday...6:00–8:00 pm
South Garland Baptist Church1330 E Centerville Rd, Garland Group Exercise:Mon/Thu...10:30–11:30 amSpeech Group: Mon/Thu… 9:30–10:15 amPartners-in-Care Group:Thursday...10:30–11:30 am
MacArthur Hills Sr. Living1295 Kinwest Pkwy, Irving/Las ColinasGroup Exercise:Tue/Fri...10:00–11:00 am
Cyclone Indoor Cycling1724 Broad St, Suite 100, Mansfield*WWAP Spin ClassTue/Thu…10:30–11:15 am*Cyclone membership required DAPS member discountInfo: 817-769-2723 or www.cycloneindoorcycling.com
Mesquite Rehabilitation Institute1023 North Belt Line Rd, MesquiteGroup Exercise:Tuesday...10:00–11:00 amSpeech Therapy: Tuesday...9:30–10:00 am
Hunters Glen Baptist Church4001 Custer Rd, Plano Group Exercise:Mon/Thu...9:45–10:45 amSpeech Therapy:Thursday...11:00–11:45 amPartners-in-Care Group:Monday...9:45–10:45 am
Arapaho United Methodist Church1400 W Arapaho Rd, Richardson Group Exercise:Tuesday...10:00–11:00 amFriday...9:45–10:45 am
St. Gabriel the Archangel Church110 St. Gabriel Way, McKinneyGroup Exercise:Tue/Fri...10:00–10:45 amSupport Meeting:3rd Tue...10:45 am
To order the activity book ($25 each) for the Move.Laugh.Connect. classes, call 972-620-7600.
Town North Family YMCARoom MP2 4332 Northaven Rd, Dallas TX 75229Move.Laugh.Connect.:Tue/Thu…1:00–2:00 pmFREE for YMCA and DAPS members
Belmont Village Turtle Creek3535 N. Hall Street, DallasMove.Laugh.Connect.:Friday…1:15 –2:15 pmFREE for DAPS members and Belmont residents
Dallas Area Parkinsonism Society exercise • speech therapy • support groups
SEPTEMBER 2017 • DAPS • PAGE 7
All groups and classes are free of charge to participants unless noted. Dates/times subject to change. See daps.us/groups or call 972-620-7600 for more information.
NEW!
Dallas Area Parkinsonism Society6370 LBJ Freeway, Suite 170Dallas, Texas 75240(972) 620-7600
Non-ProfitOrganization
U.S. POSTAGEPAID
Dallas, TXPermit No. 3255
RETURN SERVICE REQUESTED
daps mckinneyTuesday, September 19 – 10:45 a.m.Speaker: Dr. Aashoo MentreddiTopic: Medications for Parkinson’s Disease
MARK YOUR CALENDAR
daps duncanvilleMonday, September 25 – 6:00 - 8:00 p.m.Speakers: Amber Koustoumbardis, PT
& Linda Zach, OTTopic: Living and Thriving with Parkinson’s Disease
september annual kickoff meeting and ice cream socialMonday, September 11 – 1:00 p.m.Speakers: Dr. Aashoo Mentreddi & Dr. Nirav PavasiaTopic: Parkinson’s Q & A
open board meetingMonday, September 18 – 11:00 a.m.Please call the DAPS office for details.
october general meetingMonday, October 9 – 1:00 p.m. Speaker: Robbie McCullough Topic: The Village Movement
For change of address or corrections, please mark changes on this page and mail to DAPS, or email: [email protected].
facebook.com/daps.us @daps.info
disclaimer: The contents or opinions expressed in this Newsletter are those of the individual writers or presenters and do not constitute an endorsement or approval by DAPS staff. Please consult your personal physician regarding your individual medical problems.
DAPS McKinney meets the 3rd Tuesday of each month at St. Gabriel the Archangel Church, 110 St. Gabriel Way, McKinney, TX 75070. Email [email protected] or call 972-347-5342 for more information.
DAPS Duncanville meets the last Monday of each month at Trinity United Methodist Church, 1302 S. Clark Rd., Duncanville, TX. A snack supper begins at 6 pm & the program follows at 7 pm. Call 972-298-4556 to RSVP.
Unless noted, General Membership Meetings are held at Fellowship Hall–University Park United Methodist Church, 4024 Caruth Blvd., Dallas, TX 75225. For more information, call 972-620-7600.
