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Healthcare and Technology: a difficult marriage
by Beatrice Shepherd, B Spot Consulting Despite the many advances in technology, one of the most important parts of our lives – healthcare – continues to be a cautious and slow adopter. This is not because of the shortage of relevant technologies (quite the contrary, a lot of innovation geared at this space has taken place); rather, it is due to the healthcare industry itself, which is difficult to work with due to its complicated legislation, resistance from healthcare institutions and professionals and the tight funding conditions that most public healthcare institutions are subject to. It is also the case that outside the large-‐scale and traditional IT environment, the healthcare industry lacks a strong collaboration model with the world of technology innovation. Investing in healthcare needs to take a long-‐term perspective and requires great knowledge of the inherent challenges that will be faced. The high tech industry, on the other hand, has little patience. Tech companies, including those that are excited by recent big data opportunities should be warned: it takes a battle to get your teeth into the healthcare sweet spot.
My health records to not belong to me One of my biggest frustrations with healthcare is the fact that my health records do not actually belong to me. Each time we go to a doctor or dentist they keep our records. Every time you go visit a new doctor, a new layer of information about our health is being created and stored somewhere else. In some places it is stored in digital form and in other places it is still handwritten and stored in a paper copy file. There is no exchange of information between healthcare institutions and professionals and there is no tracking system of our state of health. My family and I have lived in 5 different countries over the last 15 years. My 2 kids have been born in 2 different countries and, consequently, many different doctors and clinics have stored our medical records. Thankfully, we are very healthy, but I still went to the trouble of retrieving all those records from past doctors and dentists. Now we have a box of papers at home with our health history that I now need to find the time to sift through and organise. I really wish
I could use software to help me do that for me so that each time I required medical assistance of any sort, the records would be uploaded to any device of my choosing and the analytics capability would use (for example) my medication records to cross reference with new data on that sickness, prevention techniques, availability of healthcare institutions and doctors specialised in that sickness that are near me and so on. To create such a software, or service, is not that difficult from a technical perspective, so why do we still not have it?
Healthcare habits have changed over time Our grandparents´– and even our parents´ -‐ generations were not as “mobile” as we have been. Many of them knew their doctors all their lives and trusted their judgments. While this may still the case in smaller towns and villages, in larger urban areas, this doctor-‐patient intimacy is now practically impossible because of the large volumes of people living in cities, the staffing model that hospitals use, and the constant financial pressure the industry is under which leads to cut-‐backs and staff changes and a greater and greater push for efficiency, sometimes at the expense of quality. While the reality of the healthcare industry varies country by country, we all sometimes end up having to wait for days, or weeks, or months for specific treatments and we do not know who will, in the end, treat us. This change in “the way things are done” means that the responsibility for managing our health (and for keeping our healthcare records in order) falls squarely on us as individuals.
Current legislation complicates matters
The second challenge is legislation. In Europe, because of the data protection act, we have the right to obtain our health records. However, doing so is not so easy in practice. For example, in the UK we need to apply to the health authority, wait for their decision (21 days) and then hope they actually have it stored. Only then do you get another date when you can go get what you need. In my case half of the records that are held at 2 different hospitals in London were never found. What a hassle! There is also the whole issue with storing that information. If we just keep it in a box in the attic then that is fine, but if we want to make good use in order to manage our wellbeing then the problems start. The danger of our health records being stolen (in the digital world) or accidently exposed publicly is real and for companies this is a major legal hurdle and potential embarrassment. I suspect this was the real reason why Google gave up on their idea of Google Health. Google Health was a personal health record service that started in 2008 and was closed down in 2011. The service allowed Google health users to store and manage information including health conditions, drug allergies and lab results. Once entered, Google Health used the information to provide the user with a merged health record. Google Health could import medical and/or drug prescription information from doctors, clinics, etc. Google Health was an opt-‐in service, meaning it could only access medical information volunteered by individuals. It did not retrieve any part of a person's medical records without his or her explicit consent and action. The official reason Google gave for
abandoning the project was the lack of widespread adoption, but the more likely reason was the company´s fear of getting into trouble with the law. The company, which makes money from data about us, probably has figured out that they will not able to protect privacy -‐ think of all the NSA-‐related scandals. So, either people did indeed not trust Google and the service consequently failed to attract enough customers, or Google realised that it was risking too much.
Healthcare is a nightmare for business One very common problem I have faced in my consulting work in the healthcare industry has been the lack of collaboration with other industries, including IT. While technology companies move fast and rapidly create new products, services and solutions, the healthcare industry moves more slowly due to its bureaucracies, legislation and public-‐private tensions. While these industry characteristics are something that the large medical devices, IT and communication solutions and integrator players have learnt to deal with, niche and innovate players are often off the radar screen and unable to get their voices heard. In fact, these inherent challenges, can lead these types of companies to prioritise other industries to focus their technical and commercial efforts on and so it happens to be that the healthcare industry can end up missing out on potentially very interesting and innovate ideas to improve its performance.
Big data breaks through the silence In the last couple of years we have witnessed a massive jump in investment in technology to be used in healthcare. According to Mercom Capital Group, USD 3 billion was invested in big data technologies to be used in healthcare in 2013. That applies to all disciplines from pharma, medical devices to personal healthcare management. There is no doubt that big data has created enormous opportunities to improve healthcare disciplines as well as make lots of money for tech companies. Yet, by way of example, while there are already 100,000 new mobile health apps available, you will need to hold you breath because, on the 23rd of July, Federal Trade Commissioner Julie Brill expressed concern about the way apps on smartphones and mobile devices are collecting sensitive health data, and how some of that information may then be shared with third parties. So this is just the beginning of a long journey for tech companies to bring their innovating health ideas to the market; a market that is protected by its incumbents, which is very emotional because this is not about buying new smartphone but about fiddling with our health and which is highly regulated. Pharma in particular is very aggressive, so if you have an idea that would chop down the number of people taking aspirin, you´d better think twice if you want to start that battle. Theoretically it should be easier to bring innovations to the healthcare industry in the US (compared to Europe) because it is predominantly private. However, reality tells us something else. Anne Wojcicki, the CEO of 3andMe from Silicon Valley, learnt the hard way. For $99, the company could analyse key components
of a person’s DNA from a vial of saliva. The FDA prevented selling that service because by selling consumers a test and health reports that outlined their chances of getting dozens of diseases, plus their likely response to various drugs, 23andMe was effectively selling a medical device and that requires explicit approval. The FDA said 23andMe hadn’t come close to providing enough evidence that its test provides accurate, reliable health assessments. Now, Ms. Wojcicki needs to resolve this issue with the FDA, something that should have been dealt with from the outset and certainly before launching a TV ad campaign.
What business model to apply? The next challenge is with the business model. How to sell it? There is a danger that an app for mobile phones or tablets organising and managing our health records and wellbeing will be misused and marginalised. So, while the service provider route is the fastest way to market, it may not be the most effective. The other option is to take an example from the pharma industry and collaborate with some of the stakeholders listed here: lawmakers, medical professionals, healthcare institutions, the public sector, the insurance industry, other healthcare providers, medical devices players and patients. While this is no doubt a much longer and more complicated route to market, it will surely lead to more sustainable results. Decisions on how to package and price the software and services will be a walk in the park compared to the business model-‐related issues.
Re-‐educating patients Lastly, but not less importantly, there is the need to educate people to be in control of their own health and to use technology for that purpose. We are so used to the current system and to our blind obedience to the healthcare system (“the doctor said …”). This habit is something the pharma companies leverage when promoting their drugs though doctors (in many countries receive bonuses from pharma companies to suggest to their patients to use their products). It will take quite a bit of effort to re-‐educate people, increase awareness and change habits. Again, in order to be more effective it could be done in collaboration with other organisations, especially in the public sector, where there is a strong interest and driver based on the potential for cost savings.
Pioneers are out there already Apart from Google there are dozens of other companies coming up with technology solutions for people to manage their health. One of the latest and most exciting propositions comes from a start-‐up called BaseHealth. This San Francisco-‐based company came up with health-‐management software that integrates diet, exercise, genetic tests, and medical records, then calculates a patient’s risk for more than 40 diseases — including type 2 diabetes, lung cancer, and Alzheimer’s disease — and suggests ways to lower the risk of developing them. Also Apple and Samsung and a growing number of other companies will be offering services to manage our healthcare. While the healthcare industry
may be a nightmare, it is also a potential goldmine for business and hopefully we will eventually have the ability to make choices about robust solutions that are accepted and endorsed by the industry. It is high time to use the technology we already have and use it to keep us improving in an aspect of our life that is fundamentally important: our own and our families’ health. For more information please reach out to [email protected] Follow on Twitter: @BeatriceSpot “Opportunities for technology companies in the healthcare market” presentation free to download will be available in July at www.bspotconsulting.com