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WELCOME
mICF Collaborative
WORKSHOP 19 & 10 October 2014
Barcelona, Spain
@MatiesIPE
#mICF
Successful consensus-based
partnerships develop solid
trust relationships
Get to know one person
1. Write your friend’s name on top
of flipchart paper
2. Stick photo to paper
3. Summarise answers on flipchart
paper
4. Paste flipchart paper to wall
5. Present your colleague to rest of
the group
NAME,
City, Country
What are
you doing
here?
PHOTO
ANSWERS
Get to know
one person
Human beings, not human doings
1. Name, Town, Country
2. Your family
3. Greatest childhood memory
4. Worst thing from high school
5. Fondest experience at university (probably
out of class)
6. One thing that nobody here will know /
guess about you?
7. What motivated you to be here?
8. What are your expectations? What would
you like to get out of this workshop?
9. What valuable contributions would you
hope to make towards the mICF
collaborative?
NAME,
City, Country
What are
you doing
here?
PHOTO
ANSWERS
Human beings,
not human
doings
What are you doing here?
1. What motivated you to be here?
2. What are your expectations?
What would you like to get out
of this workshop?
3. What valuable contributions
would you hope to make
towards the mICF collaborative?
NAME,
City, Country
What are
you doing
here?
PHOTO
ANSWERS
Get to know
one person
Around your tables
In common*
Unique 1
Unique 2
Unique 3
Unique 4
Unique 5
Unique 6
* Not common sense things in
common, e.g. gender, married,
single, country.
Break for 30 minutes
@MatiesIPE
#mICF
Getting on the
same page
@MatiesIPE
#mICF
Getting on the same page
ICF: conception, gestation, birth and early
life
ICF Spring: Part of the health revolution
mHealth:
[Mobile environment — ICF participation]
= disability motivation for the mICF
mICF cell to embryo: 5 to 200 nuclei in 12
months
Pulling yourcell together: What on earth are
you doing here in BarCellona?
ICF: conception, gestation, birth
and early life
Philip Wood – International Classifications of Impairments, Disability and Handicap (ICIDH) 1981
Disability movement – challenging the medical model
Development and pilot testing alpha and beta versions between 1995 and 2001
Involvement of many countries, statistical agencies, government officials, disabled peoples organisations and health professionals
Major changes
Linear to multidimensional
Inclusion of the environment
Neutral
ICF: conception, gestation,
birth and early life
2001 Endorsement by the
World Health Assembly
Range of resources to
support implementation
ICF Checklist
WHO-DAS
ICF Core sets
Core curriculum
ICF practical manual
ICF eLearning (under
development)
ICF may be used:
as a statistical tool – in the collection and recording of data (e.g. in population studies and surveys or in management information systems);
as a research tool – to measure outcomes, quality of life or environmental factors;
as a clinical tool – in needs assessment, matching treatments with specific conditions, vocational assessment, rehabilitation and outcome evaluation;
as a social policy tool – in social security planning, compensation systems and policy design and implementation;
as an educational tool – in curriculum design and to raise awareness and undertake social action.
In search of a common language and approach
A statistical, research, clinical,
social policy and educational tool
to:
• Provide scientific basis
• Common language
• Permit comparison
• Systematic coding scheme
Underpins interprofessional education
and collaborative practice (IPECP)
ICF conceptual model
Health condition / disorder /
disease
Body function
& structure
(Impairment)
Activities
(Limitations)Participation
(Restriction)
Personal
factors
Environmental
factorsContextual
factors
ICF Spring: Part of the
health revolution
Back then…
• Introduction of basic sciences in medical curricula
• Doubling of human lifespan1910
100 years later…
Lancet December 2010
Health professionals have made huge contributions
to health and socio-economic development over the
past century, but we cannot carry out 21st century
health reforms with outdated or inadequate
competencies….
That is why we call for a new round of more agile
and rapid adaption of core competencies based on
transnational, multi-professional, and long-term
perspectives to serve the needs of individuals and
populations
What we need, more than just disciplinary
knowledge and skills, is a well-rounded health
professional acting as change agent to address the
health needs of the 21st century
Lancet, Dec. 2010
Transformative
Learning
Interdependence
in
Education
Health Equity
Person-centred Population-based
Locally responsive
Globally connected
Open educational resources
Competency-based
Responsive to rapidly
changing needs
Creative use of IT
VISION
Adapted from: J Frenk, L Chen, ZA Bhutta et al: Health Professionals for a new century: transforming education to
strengthen health systems in an inderdependent world. www.thelancet.com, 2010;376:1923-1958
The Lancet Report
Core competencies
Adapted with the permission of CanMEDS © 2005
The ICF Spring
Community-based, person-centred healthcare strategies are central to realising the vision to reach health equity in the 21st
century.1
These strategies are designed to identify ill-health, the determinants of health, and to facilitate improvements in persons’ health and their participation in all areas of life.2
The relevance of the ICF has been demonstrated in community-oriented primary care (COPC) and community-based rehabilitation (CBR), strategies fundamental to health equity.1,2
1 Frenk J, Chen L, Bhutta Z et al. Health Professionals for a new century: transforming education
to strengthen health systems in an interdependent world. Lancet 2010;376:1923-1958.2 Madden R, Dune T, Lukersmith S et al. The relevance of the International Classification of
Functioning, Disability and Health (ICF) in monitoring and evaluating Community-based
Rehabilitation (CBR). Disability and Rehabilitation 2013; Early online: 1-12.
ICF Spring
1st decade of ICF
Coding: Administrators / Statistics
Rehabilitation settings
2nd decade
Integrate ICF into clinical practice: inter- and transprofessional bio-psycho-social-spiritual approach to person-centred management
ICF as catalyst for clinical practice and health systems reform from community care level up
Community care level: 1 million community health workers in Sub-Saharan Africa by 20151
Increasingly mobile phone applications are being used to collect health information to support continuity of care.2
1 Singh P, Sachs, J. 1 million community health workers in Sub-Saharan Africa by 2015. Lancet 2013;
382:363-365.2 Labrique A, Vasudevan K, Kochi E, et al. mHealth innovations as health system strengthening tools: 12
common applications as a visual framework. Global health: Science and Practice 2013;1(2):160-171.
mHealth applications: no ICF
ICF not widely implemented e.g. not leveraging
mobile applications yet
Lack of evidence-based & person-centered care
Inconsistent & inefficient capturing of
contextualized data
Data management complexity: volume, variety,
velocity & veracity
FDRG: Beijing 2013 & London 2014
Aims of mICF
1. assist providers and users of health
services in the front line
to identify a person's problems in terms
of the ICF (functional status and
contextual information), and
2. To investigate the development of a
user-friendly mobile application to
amalgamate ICF-related data centrally.
Aim 1: Objective 1
1. Develop the specifications for the mICF
to enable programmers to develop the
application.
Activities
Requirement survey
Partnership development
Literature review
Workshops: Barcelona
mICF Survey resultsOlaf Kraus de Camargo, Judy Zhuxi Gong
Respondents and Technology
55% health service providers
100% have access to a computer at work
58% use a smart phone for work
33% use a tablet for work
39% use sms for work on a daily basis
89% use email for work on a daily basis
4% – 8% use mobile health applications
As a potential user of the ICF mobile application
(mICF), which option(s) would you prefer to enter
ICF-related data on your device?
34%41%
80%
0%
10%
20%
30%
40%
50%
60%
70%
80%
90%
Type own words select items select items &qualifiers
Data entry
What information would you like to obtain
through the mobile application after
having submitted the data?
74%
55%
84%
39% 36%
4%
0%
10%
20%
30%
40%
50%
60%
70%
80%
90%
reportavailable
immediatelyfor end-user
reportavailable
immediatelyfor multiple
users
updatable,show change
over time
provideautomaticsuggestions(algorithm)
report onaggregated
data
Other
Output
Summary
22%
78%
Have you ever used or are you aware of any computer or mobile phone applications to capture
data based on the ICF?
Yes
No
Free Text – accessibility
No cell phone access at work nor WiFi
Our organization is not currently using or
allowing use of mobile devices.
Free Text – confidentiality
Be careful to ensure you are protecting confidentiality & allowing for consideration of individual's context vs. contributing to a 'one size' fits all for health care provision!
We typically do user-centreddesign/research focused on inclusive solutions - and often need to collect data on personal abilities/disabilities. Since it is research the ethics parts are always important - generally we have to promise not to have the computer connected to the internet when treating personal data...
Free Text – technical
Please consider the benefits of htlm5 of
some other cross-platform foundation, for
usability on Apple devices and well as
internet browsers on pc's and laptops.
Need for ICF based clinical measures may
be included. Among those who use ICF,
limitations of ICF and their opinions how
these shortcomings can be overcome may
be added.
Free Text -philosophyI am less enthusiastic about an app that is for clinicians and
clinical services. I think it will take too long for the services
to adopt it, and then it will mean all the info will be held by
the service (data protection blah bla blah).
I think an app like this would be a real opportunity to move
the power to the patients' hands - they hold the record and
they control who can access the info. They are the master
user owner of their information.
If a clinician requests a report the patient may then provide
it if they so wish. And because it is the ICF it gives the
patient the legitimacy that what they are doing is WHO
sanctioned - clinicians cannot just ignore the app and the
info in it.
So: 1) develop the app to patients 2) promote and train
clinicians in asking for the app info from patients (NOT the
old way: develop the app for clinicians, persuade patients to
complete info)
Collaborators
65
49
58
25
15
10
10
20
30
40
50
60
70
Researchprotocol
Lit. Rev. Needsassessment
Grant writing Admin Funding
Responses
Collaborators
18
10
14
0
5
10
15
20
Systems architecture Algorithm Development Coding (Android)
Responses
Collaborators
120
57
0
20
40
60
80
100
120
140
Usability testing Patient/client researcher
Responses
Software expertise
12
58
43
0
10
20
30
40
50
Android Data Synch Systems/Database Usability
Responses
Software expertise
13 12
21
0
5
10
15
20
25
ICF Applications mHealth Apps Health Informatics
Responses
Android
Charlotte Magnusson,
Sweden
Regina Ekblom, Finland
Alakananda Banerjee,
India
Petronella Msomi, South
Africa
Lindsay Young, France
Marina Lambou, Cyprus
Jenni Tolonen, Finland
Fiona Campbell, Canada
Lizelle Schonken, South
Africa
Jean-Jaques Detraux,
Belgium
AbdulRahman Khodr,
Canada
Sriram Iyengar, USA
Koji Tanaka, Japan
Wynand Coetzer, South
Africa
Data Synchronisation
Ephrem Negash, Ethiopia
Qiu Zhuoying, China
Jenni Tolonen, Finland
Tom Smeh, Canada
Beenish Chaudhry, USA
Wynand Coetzer, South Africa
Systems integration /Databases
Ephrem Negash, Ethiopia
Qui Zhuoying, China
Nihad Almasri, Jordan
Patricia Nilda Soliz Sanchez, USA
Jennifer Gabrielle, USA
Koji Tanaka, Japan
Tom Smeh, Canada
Wynand Coetzer, South Africa
Beenish Chaudhry, USA
ICF Applications
Nicole Iten, Switzerland
Anabela Correia Martins,
Portugal
Alakananda Banerjee,
India
Andrea Glaessel,
Switzerland
Catarina Grande, Portugal
Qiu Zhuoying, China
Kwok Ng, Finland
Patricia Nilda Soliz
Sanchez, USA
Heike Philippi, Germany
Jean-Jaques Detraux,
France
Martinet, France
Kimmo Vuotila, Finland
Juan Ignacio Gómez
Iruretagoyena, Spain
mHealth Applications
Jadwiga Pražag, Poland
Cornie Scheffer, South Africa
Ephrem Negash, Ethiopia
Qiu Zhuoying, China
Jaana Lentovaara, Finland
Patricia Nilda SolizSanchez, USA
Riikka Marttinen,
Finland
Patricia Heyn, USA
Beenish Chaudhry,
USA
Maaz Shaikh, UK
Sriram Iyengar, USA
Alakananda Banerjee,
India
Wynand Coetzer,
South Africa
Health Informatics
Regina Ekblom, Finland
Frank Schiedel, Germany
Hanne Melchiorsen, Denmark
Ephrem Negash, Ethiopia
Qiu Zhuoying, China
Kristen Maisano, USA
Bronwyn Hemsley, Australia
Nihad Almasri, Jordan
Claudine Auger, Canada
Jaana Lentovaara, Finland
Patricia Nilda Soliz Sanchez, USA
Jennifer Gabrielle, USA
Timo-Juhani Lappalainen, Finland
Sirpa Puusti, Finland
Arna Harōardóttir, Iceland
Mary-Ann Kaukinen, Finland
Amédé Gogovor, CanadaAnn
Geu Hwan, South Korea
Beenish Chaudhry, USA
Maaz Shaikh, UK
Sriram Iyengar, USA
Literature review
Patricia Saleeby is coordinating the
literature review
It will be dealt with in a breakaway
session.
FDRG: Beijing 2013 & London 2014
Aims of mICF
1. assist providers and users of health
services in the front line
to identify a person's problems in terms
of the ICF (functional status and
contextual information), and
2. To investigate the development of a
user-friendly mobile application to
amalgamate ICF-related data centrally.
Aim 1: Objective 1
1. Develop the specifications for the mICF
to enable programmers to develop the
application.
Activities
Requirement survey
Partnership development
Literature review
Workshops: Barcelona
Aim 1: Objective 2
2. Provide a means for providers and users of
health services to collect and transfer ICF-
related information to facilitate the
continuity of care
Activities
Agile and iterative developing of mICF
application
Develop and test Mininum Viable Product
(MVP)
to develop a first product/service with
the minimum effort and minimum cost
that is still really useful
Aims 2: Objectives and Activities
To investigate the development of a user-
friendly mobile application to amalgamate
ICF-related data centrally
1. Convey information securely between
service
2. Ensure a sustainable and cost-effective
platform
3. Facilitate administration and reporting
4. Providing person-centred feedback to
inform shared decision-making
Mobile ICF enhanced with
Big Data Analytics
Private and Confidential Copyright Novolibri 2014
It is envisaged that the mICF
will
ensure accurate and efficient capture of
functional status and contextual information,
convey information securely between service
providers in different service settings,
facilitate clinical decision-making by making
person-centred data readily available,
facilitate administration and reporting
through the aggregation of the data and
minimise the need for repeat data collection.
The envisaged benefits of the
mICF would be to:
Empower providers and users of health and
related services
Enable continuity of care
Capture the interactions between ICF
components to facilitate
Understanding of the complexity of interactions
between health and contextual factors
Person-centred decision-making and goal
setting
Interprofessional and transprofessional
collaborative practice
Amalgamate data to help strengthen systems.
Process Get to know one another
Getting on the same page
ICF: Background
mICF: Rationale, Aims, Objectives
10 other electronic applications based on ICF
or of relevance
Determining specifications for Mininum Viable
Product (MVP)
Priorities and action steps
Acknowledgement
This work is based on the research
supported by the National Research
Foundation of South Africa, Stellenbosch
University (South Africa) and McMaster
University (Canada)
DISCUSSION
@MatiesIPE
#mICF
Break
DEMONSTRATION
of other electronic ICF
applications/prototypes
and other relevant mobile
applications
10 minutes
per application
@MatiesIPE
#mICF
Presentations (10 minutes max)
1. eFRHOM (Australia) (Catherine Sykes)
2. SmartTherapy (Portugal) (Anabela Correia Martins)
3. ICF-Train (Europe) (Marie Cuenot)
4. SmartLife (South Korea) (Ann Geu Hwan)
5. Aplication from German group (Olaf Kraus de Camargo)
6. ICANFunction (Canada)(Olaf Kraus de Camargo)
7. Tabwin (Barueri City, in Brazil) (Eduardo Araujo)
8. VAT system: an electronic ICF-based system (Finland) (Heidi Anttila)
9. FABER (Italy) (Lucilla Frattura)
10. guideVue (USA) (Sriram Iyengar)
First Name: Group Group
Name
ZAnabela
1 Catherine B 4
Michele 1 Daniel Cid 4
Olaf 1 Juan Ignacio
Gómez
4
Stefano 1 Jumin 4
Tora 1 Sriram 4
Coen 2 Catherine 5
Diane 2 Chihiro 5
Haejung 2 Eduardo 5
Heidi 2 Ligia Regina 5
Jaume 2 Solvejk 5
Gonda 3 Stéphanie 6
Jaana 3 Joanne 6
Marie 3 Kimmo 6
Patricia 3 Lucilla 6
4 Maite 6
Process Get to know one another
Getting on the same page
ICF: Background
mICF: Rationale, Aims, Objectives
10 other electronic applications based on ICF
or of relevance
Determining specifications for Mininum Viable
Product (MVP)
Priorities and action steps
Minimum Viable Product (MVP)
development and testing To develop a first product/service in the minimum
time with the minimum effort and minimum cost that is still actually useful (viable).
Please remember that the developers of the MVP are engineers and computer scientists. They are absolutely clueless about the application and the use of the MVP. Please give your answers in as much detail as possible. Like Wolfgang Pauli, a famous physicist said: “Assume unlimited intelligance but zero knowledge.” If you assume that the developer will know and that he will make the right choice about the application, you will alomost certainly be disappointed by the result.
Minimum Viable Product (MVP)
development and testing
While it starts with an MVP, the notion is
to quickly and iteratively learn (often
from mistakes), to pivot and adapt as
necessary until the MVP can be expanded
to a full offering. Context is important
from the start.
Process Get to know one another
Getting on the same page
ICF: Background
mICF: Rationale, Aims, Objectives
10 other electronic applications based on ICF
or of relevance
Determining specifications for Mininum Viable
Product (MVP)
Priorities and action steps
Teams
Team: Finalising specification for MVP
Integrating info from workshop
Add what is still needed
Work with other teams and developers
Research facilitation team
Research framework and research questions for
MVP
Protocols, ethical approvals, et.
Generic funding/grant proposal
Liaise with literature and testing teams.
Team: Literature review team
(incl stories)
Determine scope of literature review
Compile stories
Facilitate literature review
Work with research protocol team
Field testing team
Who is willing to test the first MVP? It should
preferably be limited to 2-3 clearly defined
areas with easy access by the developers .
Who would be interested in providing
feedback to the developers of the MVP
software to ensure better future versions?
Where are we going to test the MVP?
What preparation / training is needed ?
Overseee data gathering
Work with developers, specs and research
team
MVP Technical team
Bring developers together or appoint
developers
“Translate” specs for developers
Sort out potential IP (intellectual
property) / licencing or other legal issues.
Oversee developers
Team: Big data
We also need data sets of ICF data to test
the model. Who can provide data for
development/testing/modelling purposes?
Who are willing to help with technical
development? What expertise can be
provided?
Facilitation team?
Bringing things together
Putting the pressure on and render
support
Next meeting
Sign up
Divide into groups
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