mICF Barcelona 002 - Welcome and introductions to mICF partnership workshop

WELCOME

mICF Collaborative

WORKSHOP 19 & 10 October 2014

Barcelona, Spain

@MatiesIPE

#mICF

Successful consensus-based

partnerships develop solid

trust relationships

Get to know one person

1. Write your friend’s name on top

of flipchart paper

2. Stick photo to paper

3. Summarise answers on flipchart

paper

4. Paste flipchart paper to wall

5. Present your colleague to rest of

the group

NAME,

City, Country

What are

you doing

here?

PHOTO

ANSWERS

Get to know

one person

Human beings, not human doings

1. Name, Town, Country

2. Your family

3. Greatest childhood memory

4. Worst thing from high school

5. Fondest experience at university (probably

out of class)

6. One thing that nobody here will know /

guess about you?

7. What motivated you to be here?

8. What are your expectations? What would

you like to get out of this workshop?

9. What valuable contributions would you

hope to make towards the mICF

collaborative?

NAME,

City, Country

What are

you doing

here?

PHOTO

ANSWERS

Human beings,

not human

doings

What are you doing here?

1. What motivated you to be here?

2. What are your expectations?

What would you like to get out

of this workshop?

3. What valuable contributions

would you hope to make

towards the mICF collaborative?

NAME,

City, Country

What are

you doing

here?

PHOTO

ANSWERS

Get to know

one person

Around your tables

In common*

Unique 1

Unique 2

Unique 3

Unique 4

Unique 5

Unique 6

* Not common sense things in

common, e.g. gender, married,

single, country.

Break for 30 minutes

@MatiesIPE

#mICF

Getting on the

same page

@MatiesIPE

#mICF

Getting on the same page

ICF: conception, gestation, birth and early

life

ICF Spring: Part of the health revolution

mHealth:

[Mobile environment — ICF participation]

= disability motivation for the mICF

mICF cell to embryo: 5 to 200 nuclei in 12

months

Pulling yourcell together: What on earth are

you doing here in BarCellona?

ICF: conception, gestation, birth

and early life

Philip Wood – International Classifications of Impairments, Disability and Handicap (ICIDH) 1981

Disability movement – challenging the medical model

Development and pilot testing alpha and beta versions between 1995 and 2001

Involvement of many countries, statistical agencies, government officials, disabled peoples organisations and health professionals

Major changes

Linear to multidimensional

Inclusion of the environment

Neutral

ICF: conception, gestation,

birth and early life

2001 Endorsement by the

World Health Assembly

Range of resources to

support implementation

ICF Checklist

WHO-DAS

ICF Core sets

Core curriculum

ICF practical manual

ICF eLearning (under

development)

ICF may be used:

as a statistical tool – in the collection and recording of data (e.g. in population studies and surveys or in management information systems);

as a research tool – to measure outcomes, quality of life or environmental factors;

as a clinical tool – in needs assessment, matching treatments with specific conditions, vocational assessment, rehabilitation and outcome evaluation;

as a social policy tool – in social security planning, compensation systems and policy design and implementation;

as an educational tool – in curriculum design and to raise awareness and undertake social action.

In search of a common language and approach

A statistical, research, clinical,

social policy and educational tool

to:

• Provide scientific basis

• Common language

• Permit comparison

• Systematic coding scheme

Underpins interprofessional education

and collaborative practice (IPECP)

ICF conceptual model

Health condition / disorder /

disease

Body function

& structure

(Impairment)

Activities

(Limitations)Participation

(Restriction)

Personal

factors

Environmental

factorsContextual

factors

ICF Spring: Part of the

health revolution

Back then…

• Introduction of basic sciences in medical curricula

• Doubling of human lifespan1910

100 years later…

Lancet December 2010

Health professionals have made huge contributions

to health and socio-economic development over the

past century, but we cannot carry out 21st century

health reforms with outdated or inadequate

competencies….

That is why we call for a new round of more agile

and rapid adaption of core competencies based on

transnational, multi-professional, and long-term

perspectives to serve the needs of individuals and

populations

What we need, more than just disciplinary

knowledge and skills, is a well-rounded health

professional acting as change agent to address the

health needs of the 21st century

Lancet, Dec. 2010

Transformative

Learning

Interdependence

in

Education

Health Equity

Person-centred Population-based

Locally responsive

Globally connected

Open educational resources

Competency-based

Responsive to rapidly

changing needs

Creative use of IT

VISION

Adapted from: J Frenk, L Chen, ZA Bhutta et al: Health Professionals for a new century: transforming education to

strengthen health systems in an inderdependent world. www.thelancet.com, 2010;376:1923-1958

The Lancet Report

Core competencies

Adapted with the permission of CanMEDS © 2005

The ICF Spring

Community-based, person-centred healthcare strategies are central to realising the vision to reach health equity in the 21st

century.1

These strategies are designed to identify ill-health, the determinants of health, and to facilitate improvements in persons’ health and their participation in all areas of life.2

The relevance of the ICF has been demonstrated in community-oriented primary care (COPC) and community-based rehabilitation (CBR), strategies fundamental to health equity.1,2

1 Frenk J, Chen L, Bhutta Z et al. Health Professionals for a new century: transforming education

to strengthen health systems in an interdependent world. Lancet 2010;376:1923-1958.2 Madden R, Dune T, Lukersmith S et al. The relevance of the International Classification of

Functioning, Disability and Health (ICF) in monitoring and evaluating Community-based

Rehabilitation (CBR). Disability and Rehabilitation 2013; Early online: 1-12.

ICF Spring

1st decade of ICF

Coding: Administrators / Statistics

Rehabilitation settings

2nd decade

Integrate ICF into clinical practice: inter- and transprofessional bio-psycho-social-spiritual approach to person-centred management

ICF as catalyst for clinical practice and health systems reform from community care level up

Community care level: 1 million community health workers in Sub-Saharan Africa by 20151

Increasingly mobile phone applications are being used to collect health information to support continuity of care.2

1 Singh P, Sachs, J. 1 million community health workers in Sub-Saharan Africa by 2015. Lancet 2013;

382:363-365.2 Labrique A, Vasudevan K, Kochi E, et al. mHealth innovations as health system strengthening tools: 12

common applications as a visual framework. Global health: Science and Practice 2013;1(2):160-171.

mHealth applications: no ICF

ICF not widely implemented e.g. not leveraging

mobile applications yet

Lack of evidence-based & person-centered care

Inconsistent & inefficient capturing of

contextualized data

Data management complexity: volume, variety,

velocity & veracity

FDRG: Beijing 2013 & London 2014

Aims of mICF

1. assist providers and users of health

services in the front line

to identify a person's problems in terms

of the ICF (functional status and

contextual information), and

2. To investigate the development of a

user-friendly mobile application to

amalgamate ICF-related data centrally.

Aim 1: Objective 1

1. Develop the specifications for the mICF

to enable programmers to develop the

application.

Activities

Requirement survey

Partnership development

Literature review

Workshops: Barcelona

mICF Survey resultsOlaf Kraus de Camargo, Judy Zhuxi Gong

Respondents and Technology

55% health service providers

100% have access to a computer at work

58% use a smart phone for work

33% use a tablet for work

39% use sms for work on a daily basis

89% use email for work on a daily basis

4% – 8% use mobile health applications

As a potential user of the ICF mobile application

(mICF), which option(s) would you prefer to enter

ICF-related data on your device?

34%41%

80%

0%

10%

20%

30%

40%

50%

60%

70%

80%

90%

Type own words select items select items &qualifiers

Data entry

What information would you like to obtain

through the mobile application after

having submitted the data?

74%

55%

84%

39% 36%

4%

0%

10%

20%

30%

40%

50%

60%

70%

80%

90%

reportavailable

immediatelyfor end-user

reportavailable

immediatelyfor multiple

users

updatable,show change

over time

provideautomaticsuggestions(algorithm)

report onaggregated

data

Other

Output

Summary

22%

78%

Have you ever used or are you aware of any computer or mobile phone applications to capture

data based on the ICF?

Yes

No

Free Text – accessibility

No cell phone access at work nor WiFi

Our organization is not currently using or

allowing use of mobile devices.

Free Text – confidentiality

Be careful to ensure you are protecting confidentiality & allowing for consideration of individual's context vs. contributing to a 'one size' fits all for health care provision!

We typically do user-centreddesign/research focused on inclusive solutions - and often need to collect data on personal abilities/disabilities. Since it is research the ethics parts are always important - generally we have to promise not to have the computer connected to the internet when treating personal data...

Free Text – technical

Please consider the benefits of htlm5 of

some other cross-platform foundation, for

usability on Apple devices and well as

internet browsers on pc's and laptops.

Need for ICF based clinical measures may

be included. Among those who use ICF,

limitations of ICF and their opinions how

these shortcomings can be overcome may

be added.

Free Text -philosophyI am less enthusiastic about an app that is for clinicians and

clinical services. I think it will take too long for the services

to adopt it, and then it will mean all the info will be held by

the service (data protection blah bla blah).

I think an app like this would be a real opportunity to move

the power to the patients' hands - they hold the record and

they control who can access the info. They are the master

user owner of their information.

If a clinician requests a report the patient may then provide

it if they so wish. And because it is the ICF it gives the

patient the legitimacy that what they are doing is WHO

sanctioned - clinicians cannot just ignore the app and the

info in it.

So: 1) develop the app to patients 2) promote and train

clinicians in asking for the app info from patients (NOT the

old way: develop the app for clinicians, persuade patients to

complete info)

Collaborators

65

49

58

25

15

10

10

20

30

40

50

60

70

Researchprotocol

Lit. Rev. Needsassessment

Grant writing Admin Funding

Responses

Collaborators

18

10

14

0

5

10

15

20

Systems architecture Algorithm Development Coding (Android)

Responses

Collaborators

120

57

0

20

40

60

80

100

120

140

Usability testing Patient/client researcher

Responses

Software expertise

12

58

43

0

10

20

30

40

50

Android Data Synch Systems/Database Usability

Responses

Software expertise

13 12

21

0

5

10

15

20

25

ICF Applications mHealth Apps Health Informatics

Responses

Android

Charlotte Magnusson,

Sweden

Regina Ekblom, Finland

Alakananda Banerjee,

India

Petronella Msomi, South

Africa

Lindsay Young, France

Marina Lambou, Cyprus

Jenni Tolonen, Finland

Fiona Campbell, Canada

Lizelle Schonken, South

Africa

Jean-Jaques Detraux,

Belgium

AbdulRahman Khodr,

Canada

Sriram Iyengar, USA

Koji Tanaka, Japan

Wynand Coetzer, South

Africa

Data Synchronisation

Ephrem Negash, Ethiopia

Qiu Zhuoying, China

Jenni Tolonen, Finland

Tom Smeh, Canada

Beenish Chaudhry, USA

Wynand Coetzer, South Africa

Systems integration /Databases


Qui Zhuoying, China

Nihad Almasri, Jordan

Patricia Nilda Soliz Sanchez, USA

Jennifer Gabrielle, USA

Koji Tanaka, Japan

Tom Smeh, Canada

Wynand Coetzer, South Africa


ICF Applications

Nicole Iten, Switzerland

Anabela Correia Martins,

Portugal


India

Andrea Glaessel,

Switzerland

Catarina Grande, Portugal

Qiu Zhuoying, China

Kwok Ng, Finland

Patricia Nilda Soliz

Sanchez, USA

Heike Philippi, Germany

Jean-Jaques Detraux,

France

Martinet, France

Kimmo Vuotila, Finland

Juan Ignacio Gómez

Iruretagoyena, Spain

mHealth Applications

Jadwiga Pražag, Poland

Cornie Scheffer, South Africa


Qiu Zhuoying, China

Jaana Lentovaara, Finland

Patricia Nilda SolizSanchez, USA

Riikka Marttinen,

Finland

Patricia Heyn, USA

Beenish Chaudhry,

USA

Maaz Shaikh, UK

Sriram Iyengar, USA


India

Wynand Coetzer,

South Africa

Health Informatics

Regina Ekblom, Finland

Frank Schiedel, Germany

Hanne Melchiorsen, Denmark


Qiu Zhuoying, China

Kristen Maisano, USA

Bronwyn Hemsley, Australia

Nihad Almasri, Jordan

Claudine Auger, Canada

Jaana Lentovaara, Finland

Patricia Nilda Soliz Sanchez, USA

Jennifer Gabrielle, USA

Timo-Juhani Lappalainen, Finland

Sirpa Puusti, Finland

Arna Harōardóttir, Iceland

Mary-Ann Kaukinen, Finland

Amédé Gogovor, CanadaAnn

Geu Hwan, South Korea


Maaz Shaikh, UK

Sriram Iyengar, USA

Literature review

Patricia Saleeby is coordinating the

literature review

It will be dealt with in a breakaway

session.

FDRG: Beijing 2013 & London 2014

Aims of mICF

1. assist providers and users of health

services in the front line

to identify a person's problems in terms

of the ICF (functional status and

contextual information), and

2. To investigate the development of a

user-friendly mobile application to

amalgamate ICF-related data centrally.

Aim 1: Objective 1

1. Develop the specifications for the mICF

to enable programmers to develop the

application.

Activities

Requirement survey

Partnership development

Literature review

Workshops: Barcelona

Aim 1: Objective 2

2. Provide a means for providers and users of

health services to collect and transfer ICF-

related information to facilitate the

continuity of care

Activities

Agile and iterative developing of mICF

application

Develop and test Mininum Viable Product

(MVP)

to develop a first product/service with

the minimum effort and minimum cost

that is still really useful

Aims 2: Objectives and Activities

To investigate the development of a user-

friendly mobile application to amalgamate

ICF-related data centrally

1. Convey information securely between

service

2. Ensure a sustainable and cost-effective

platform

3. Facilitate administration and reporting

4. Providing person-centred feedback to

inform shared decision-making

Mobile ICF enhanced with

Big Data Analytics

Private and Confidential Copyright Novolibri 2014

It is envisaged that the mICF

will

ensure accurate and efficient capture of

functional status and contextual information,

convey information securely between service

providers in different service settings,

facilitate clinical decision-making by making

person-centred data readily available,

facilitate administration and reporting

through the aggregation of the data and

minimise the need for repeat data collection.

The envisaged benefits of the

mICF would be to:

Empower providers and users of health and

related services

Enable continuity of care

Capture the interactions between ICF

components to facilitate

Understanding of the complexity of interactions

between health and contextual factors

Person-centred decision-making and goal

setting

Interprofessional and transprofessional

collaborative practice

Amalgamate data to help strengthen systems.

Process Get to know one another


ICF: Background

mICF: Rationale, Aims, Objectives

10 other electronic applications based on ICF

or of relevance

Determining specifications for Mininum Viable

Product (MVP)

Priorities and action steps

Acknowledgement

This work is based on the research

supported by the National Research

Foundation of South Africa, Stellenbosch

University (South Africa) and McMaster

University (Canada)

DISCUSSION

@MatiesIPE

#mICF

Break

DEMONSTRATION

of other electronic ICF

applications/prototypes

and other relevant mobile

applications

10 minutes

per application

@MatiesIPE

#mICF

Presentations (10 minutes max)

1. eFRHOM (Australia) (Catherine Sykes)

2. SmartTherapy (Portugal) (Anabela Correia Martins)

3. ICF-Train (Europe) (Marie Cuenot)

4. SmartLife (South Korea) (Ann Geu Hwan)

5. Aplication from German group (Olaf Kraus de Camargo)

6. ICANFunction (Canada)(Olaf Kraus de Camargo)

7. Tabwin (Barueri City, in Brazil) (Eduardo Araujo)

8. VAT system: an electronic ICF-based system (Finland) (Heidi Anttila)

9. FABER (Italy) (Lucilla Frattura)

10. guideVue (USA) (Sriram Iyengar)

First Name: Group Group

Name

ZAnabela

1 Catherine B 4

Michele 1 Daniel Cid 4

Olaf 1 Juan Ignacio

Gómez

4

Stefano 1 Jumin 4

Tora 1 Sriram 4

Coen 2 Catherine 5

Diane 2 Chihiro 5

Haejung 2 Eduardo 5

Heidi 2 Ligia Regina 5

Jaume 2 Solvejk 5

Gonda 3 Stéphanie 6

Jaana 3 Joanne 6

Marie 3 Kimmo 6

Patricia 3 Lucilla 6

4 Maite 6



ICF: Background



or of relevance


Product (MVP)


Minimum Viable Product (MVP)

development and testing To develop a first product/service in the minimum

time with the minimum effort and minimum cost that is still actually useful (viable).

Please remember that the developers of the MVP are engineers and computer scientists. They are absolutely clueless about the application and the use of the MVP. Please give your answers in as much detail as possible. Like Wolfgang Pauli, a famous physicist said: “Assume unlimited intelligance but zero knowledge.” If you assume that the developer will know and that he will make the right choice about the application, you will alomost certainly be disappointed by the result.

Minimum Viable Product (MVP)

development and testing

While it starts with an MVP, the notion is

to quickly and iteratively learn (often

from mistakes), to pivot and adapt as

necessary until the MVP can be expanded

to a full offering. Context is important

from the start.



ICF: Background



or of relevance


Product (MVP)


Teams

Team: Finalising specification for MVP

Integrating info from workshop

Add what is still needed

Work with other teams and developers

Research facilitation team

Research framework and research questions for

MVP

Protocols, ethical approvals, et.

Generic funding/grant proposal

Liaise with literature and testing teams.

Team: Literature review team

(incl stories)

Determine scope of literature review

Compile stories

Facilitate literature review

Work with research protocol team

Field testing team

Who is willing to test the first MVP? It should

preferably be limited to 2-3 clearly defined

areas with easy access by the developers .

Who would be interested in providing

feedback to the developers of the MVP

software to ensure better future versions?

Where are we going to test the MVP?

What preparation / training is needed ?

Overseee data gathering

Work with developers, specs and research

team

MVP Technical team

Bring developers together or appoint

developers

“Translate” specs for developers

Sort out potential IP (intellectual

property) / licencing or other legal issues.

Oversee developers

Team: Big data

We also need data sets of ICF data to test

the model. Who can provide data for

development/testing/modelling purposes?

Who are willing to help with technical

development? What expertise can be

provided?

Facilitation team?

Bringing things together

Putting the pressure on and render

support

Next meeting

Sign up

Divide into groups