IDF Presentation to 2011 Roche Social Media Summit

The Global Diabetes Epidemic: The Role of IDF

International Diabetes Federation

Isabella PlatonHead of Communications

Roche Bloggers Meeting, San Diego23 June 2011

The Global Diabetes Epidemic: The Role of IDF

Who we are andwhat we do

The Global Diabetes Epidemic: The Role of IDF

Promoting diabetes care, prevention and a cure worldwide

Mission

The Global Diabetes Epidemic: The Role of IDF

A Vibrant Federation

220+ member associations in 160+ countries

2 million+ members

USD 750 million combined income

7 regional offices

The Global Diabetes Epidemic: The Role of IDF

A GLOBAL epidemic out of control

The Global Diabetes Epidemic: The Role of IDF

million have diabetes

The Global Diabetes Epidemic: The Role of IDF

in developing countries

out of

The Global Diabetes Epidemic: The Role of IDF

million within a generation

The Global Diabetes Epidemic: The Role of IDF

million deaths a year

The Global Diabetes Epidemic: The Role of IDF

billion in healthcare spendingglobally

The Global Diabetes Epidemic: The Role of IDF

An epidemic in IDF’s North America & Caribbean

Region

The Global Diabetes Epidemic: The Role of IDF

Number of people with diabetes

Top 10 Number of People with Diabetes (20-79 years) 2010, 2030

The Global Diabetes Epidemic: The Role of IDF

deaths a year300,000

The Global Diabetes Epidemic: The Role of IDF

global spending

The Global Diabetes Epidemic: The Role of IDF

Fighting to stem the spiralling diabetes epidemic

activities

The Global Diabetes Epidemic: The Role of IDF

roles of IDF Global

The Global Diabetes Epidemic: The Role of IDF

Global advocacy & campaigning

The Global Diabetes Epidemic: The Role of IDF

Global voice for people with diabetes

UN Resolution 61/225 on Diabetes – 2006

“recognized diabetes as a chronic, debilitating and costly disease associated with major complications that pose severe risks for families, countries and

the entire world”

The Global Diabetes Epidemic: The Role of IDF

Global voice of diabetes in NCD Alliance

Four NGO federations with 900 associations in 170 countries

Formed in January 2009

The Global Diabetes Epidemic: The Role of IDF

World Diabetes Day

• Over 800 global monuments bathed in blue

• Extensive grassroots participation

• Global and regional media coverage

• Significant involvement online

The Global Diabetes Epidemic: The Role of IDF

Case study: WDD in China

• Chinese Diabetes Society launching large scale diabetes awareness campaign

• Press conference held in the Great Hall of the People, Tiananmen Square, Beijing

• A special event at the Great Wall

• Over 20 landmarks and monuments lit up in blue

• Blue circle pins distributed

The Global Diabetes Epidemic: The Role of IDF

Gathering the evidence

The Global Diabetes Epidemic: The Role of IDF

IDF Diabetes Atlas 4th Edition

The Global Diabetes Epidemic: The Role of IDF

Health Economics

• Diabetes Social and Economic Impact Studies:

- China - Kazakhstan- Africa

• Economic evaluation of IDF programmes

• Working with WHO on innovative resourcing for NCDs in low- and middle-income countries

The Global Diabetes Epidemic: The Role of IDF

Policy Research

The Global Diabetes Epidemic: The Role of IDF

BRIDGES & D-STaRT

Aims to identify, test and publish practical solutions to improve outcomes for people with diabetes throughout the world

Supports the development of projects in low- and middle-income countries (LMCs) which have less exposure to international funding.

The Global Diabetes Epidemic: The Role of IDF

Best practice projects

The Global Diabetes Epidemic: The Role of IDF

Diabetes Education

• Building networks:Centers of Education, D-Net

• Supporting development of the global health workforce for diabetesthrough training programmes, tools and publications

• Evaluation and Advocacy

The Global Diabetes Epidemic: The Role of IDF

IDF Task Forces:Expert Volunteers

• Convenes world class expert task forces to set global standards and pilot best practice in diabetes advocacy, care and education

• For example, recently launched Guide to National Diabetes Programmes

The Global Diabetes Epidemic: The Role of IDF

Global guidelines & advice

The Global Diabetes Epidemic: The Role of IDF

The Global Diabetes Epidemic: The Role of IDF

Humanitarian programmes

The Global Diabetes Epidemic: The Role of IDF

The IDF Life for a Child Programme

The Global Diabetes Epidemic: The Role of IDF

Convening the global diabetes community

The Global Diabetes Epidemic: The Role of IDF

The World Diabetes CongressDubai, 4-8 December 2011

• Why Dubai? Strategic location – one of the hotspots of global diabetes epidemic

• Objective – Political engagement –follow-up to UN Summit

• Scope – 12,000 participants

• New for 2011!– Global Diabetes Forum – political

event– Programme themes – health systems,

global challenges in health, NCDs

The Global Diabetes Epidemic: The Role of IDF

COMMUNICATION CHANNELS

World Diabetes Day

Newsletter NEW! Website Social Media

NEW! Multimedia

The Global Diabetes Epidemic: The Role of IDFWorld Diabetes Day

CALLS TO ACTIONNEW: PARTICIPATIVE VIDEO

The Global Diabetes Epidemic: The Role of IDFWorld Diabetes Day

OUTREACH

ELECTRONIC CLICK CAMPAIGN

The Global Diabetes Epidemic: The Role of IDFWorld Diabetes Day

OUTREACHMember AssociationsBloggersMedia

• Press releases• Alerts• Articles

Social MediaBCC ChampionsAligned organisations

5th Edition

The Global Diabetes Epidemic: The Role of IDF

UN Summit on NCDs:87 Days To Go

Update on the UN High-Level Summit on NCDs

19-20 September 2011

The Global Diabetes Epidemic: The Role of IDF

Two Years On: The NCD Alliance“A Special Political Asset” – Peter Piot, Former Head of UNAIDS

• Four Federations• UN Summit Partners: 7 major NGOs• Private Sector Supporters: 9 major companies• Common Interest Group (CIG): 350 NGOs• Local and Regional NCD Alliances: 24 worldwide• Allies: WHO, PAHO, WEF, Lancet, governments…

We have built an NCD civil society movement with diabetes visible and leading

The Global Diabetes Epidemic: The Role of IDF

• NCDs are on the global agenda• Government level discussions / statements: national

consultations, WHO regional consultations, Moscow Ministerial Conference, Commonwealth Health Ministers Meeting, WHA

• Evidence: WHO Global Status Report May 2011• What works: WHO, Lancet Priority Actions, Commonwealth

Good Practice Case Studies…

One Year On From Historic Vote:Significant Progress

The Global Diabetes Epidemic: The Role of IDF

• Established our NCDA asks – Proposed Outcomes Document• High profile events and speaking roles – Moscow, Commonwealth

WHA…• Building the case for action:

– Joined forces with The Lancet – 2 influential papers– NCDA working groups policy papers: women, tobacco, children

• Strengthened civil society role in Summit – Civil Society Task Force• Mobilised MAs – advocacy alerts, CIG calls, website

The Last 3 Months:Activities and Impact

The Global Diabetes Epidemic: The Role of IDF

The NCD Alliance’s vision for success

Launched in April

34 ‘Asks’

The Global Diabetes Epidemic: The Role of IDF

PREVENTION• Accelerate implementation of Framework

Convention on Tobacco Control (FCTC)

• Reduce dietary salt, sugar, trans-fats and harmful use of alcohol

• Implement strategies to encourage physical activity

TREATMENT• Strengthen health systems through integration of

NCD prevention and treatment

• Increase access to affordable, quality-assured essential medicines and technologies to prevent and treat cancer, cardiovascular disease, chronic respiratory disease and diabetes, including vaccines and palliative care.

LEADERSHIP AND INTERNATIONAL CO-OPERATION• Establish an NCDs Partnership, linked to WHO, to coordinate follow up action with member states, other UN

and multilateral agencies, foundations, NGOs and private sector

• Commit to a whole-of-government response through costed national plans for NCD prevention and treatment

• Increase national and international resources for NCD prevention and treatment

• Include NCDs in global health and development goals after 2015

MONITORING, REPORTING AND ACCOUNTABILITY• Establish a high level Accountability Commission on NCDs with cross sector representation to monitor

Summit commitments

Pocket Proposed Outcomes Document

The Global Diabetes Epidemic: The Role of IDF

Civil Society Hearing - June 16th, New YorkIP3

Slide 46

IP3 UPDATE FROM CTSFIsabella Platon, 6/17/2011

The Global Diabetes Epidemic: The Role of IDF

Civil Society Hearing – 16 June

• 400 NGOs and 90 Missions present• 3 panels (aligned with Summit round tables):

- Scale of the challenge- Solutions at the national and local level- International cooperation

• Each panel had 1 VIP, 1 Member State and 3 Civil society speakers• Outputs:

– Timing allows messages to directly input into Summit Draft Outcomes Document – negotiations underway

– Summary of Hearing prepared by WHO and Office President UN General Assembly will be an official UN document for the Summit

The Global Diabetes Epidemic: The Role of IDF

Saturday 17th and Sunday 18th am:• NGO Briefing and solidarity meeting

Sunday 18th pm: • ‘NCD Carnival’ to celebrate NCD Summit (part of Wellness Week)

Monday 19th and Tuesday 20th (until 15:00pm):• UN Summit on NCDs

- Side Events - IDF, NCD Alliance, and many others- Tight Security – very few NGOs admitted. Numbers unknown- Last Minute Lobbying – Outcomes Document text

UN Summit on NCDsWhat Will Happen in New York

The Global Diabetes Epidemic: The Role of IDF

• Two determinants of success:– What is written in the final Outcomes Document– Who is there to commit to it, i.e. Heads of State / Government

• Secure attendance of Heads of State / Government:- Work with NCD Alliance colleagues – joint lobbying

• Influence Outcomes Document:- Find out who is drafting/advising at national level / New York - Use IDF Advocacy Toolkit, Pocket POD, crafted language we will provide- Act before parliaments recess – critical - Work in regional / political blocs

• Feedback country-level intelligence to IDF – who is going, positions etc. • Share good practice / what works in diabetes

Call to Action: 87 Days To Go

The Global Diabetes Epidemic: The Role of IDF

Summary

• The world has changed – NCDs are on the agenda• We need to keep stressing:

– We know what to do for diabetes– That prevention and treatment are both essential– Linkages/comorbidities of diabetes/TB/CVD/maternal

health etc– Doing nothing will come at a cost – excellent long term

investment– Appeal to the “head, heart and pocket”

The Global Diabetes Epidemic: The Role of IDF

Thank you!

2011: Our generation’s chance to change the future