IDF Presentation to 2011 Roche Social Media Summit

The Global Diabetes Epidemic: The Role of IDF

International Diabetes Federation

Isabella PlatonHead of Communications

Roche Bloggers Meeting, San Diego23 June 2011


Who we are andwhat we do


Promoting diabetes care, prevention and a cure worldwide

Mission


A Vibrant Federation

220+ member associations in 160+ countries

2 million+ members

USD 750 million combined income

7 regional offices


A GLOBAL epidemic out of control


million have diabetes


in developing countries

out of


million within a generation


million deaths a year


billion in healthcare spendingglobally


An epidemic in IDF’s North America & Caribbean

Region


Number of people with diabetes

Top 10 Number of People with Diabetes (20-79 years) 2010, 2030


deaths a year300,000


global spending


Fighting to stem the spiralling diabetes epidemic

activities


roles of IDF Global


Global advocacy & campaigning


Global voice for people with diabetes

UN Resolution 61/225 on Diabetes – 2006

“recognized diabetes as a chronic, debilitating and costly disease associated with major complications that pose severe risks for families, countries and

the entire world”


Global voice of diabetes in NCD Alliance

Four NGO federations with 900 associations in 170 countries

Formed in January 2009


World Diabetes Day

• Over 800 global monuments bathed in blue

• Extensive grassroots participation

• Global and regional media coverage

• Significant involvement online


Case study: WDD in China

• Chinese Diabetes Society launching large scale diabetes awareness campaign

• Press conference held in the Great Hall of the People, Tiananmen Square, Beijing

• A special event at the Great Wall

• Over 20 landmarks and monuments lit up in blue

• Blue circle pins distributed


Gathering the evidence


IDF Diabetes Atlas 4th Edition


Health Economics

• Diabetes Social and Economic Impact Studies:

- China - Kazakhstan- Africa

• Economic evaluation of IDF programmes

• Working with WHO on innovative resourcing for NCDs in low- and middle-income countries


Policy Research


BRIDGES & D-STaRT

Aims to identify, test and publish practical solutions to improve outcomes for people with diabetes throughout the world

Supports the development of projects in low- and middle-income countries (LMCs) which have less exposure to international funding.


Best practice projects


Diabetes Education

• Building networks:Centers of Education, D-Net

• Supporting development of the global health workforce for diabetesthrough training programmes, tools and publications

• Evaluation and Advocacy


IDF Task Forces:Expert Volunteers

• Convenes world class expert task forces to set global standards and pilot best practice in diabetes advocacy, care and education

• For example, recently launched Guide to National Diabetes Programmes


Global guidelines & advice



Humanitarian programmes


The IDF Life for a Child Programme


Convening the global diabetes community


The World Diabetes CongressDubai, 4-8 December 2011

• Why Dubai? Strategic location – one of the hotspots of global diabetes epidemic

• Objective – Political engagement –follow-up to UN Summit

• Scope – 12,000 participants

• New for 2011!– Global Diabetes Forum – political

event– Programme themes – health systems,

global challenges in health, NCDs


COMMUNICATION CHANNELS

World Diabetes Day

Newsletter NEW! Website Social Media

NEW! Multimedia

The Global Diabetes Epidemic: The Role of IDFWorld Diabetes Day

CALLS TO ACTIONNEW: PARTICIPATIVE VIDEO


OUTREACH

ELECTRONIC CLICK CAMPAIGN


OUTREACHMember AssociationsBloggersMedia

• Press releases• Alerts• Articles

Social MediaBCC ChampionsAligned organisations

5th Edition


UN Summit on NCDs:87 Days To Go

Update on the UN High-Level Summit on NCDs

19-20 September 2011


Two Years On: The NCD Alliance“A Special Political Asset” – Peter Piot, Former Head of UNAIDS

• Four Federations• UN Summit Partners: 7 major NGOs• Private Sector Supporters: 9 major companies• Common Interest Group (CIG): 350 NGOs• Local and Regional NCD Alliances: 24 worldwide• Allies: WHO, PAHO, WEF, Lancet, governments…

We have built an NCD civil society movement with diabetes visible and leading


• NCDs are on the global agenda• Government level discussions / statements: national

consultations, WHO regional consultations, Moscow Ministerial Conference, Commonwealth Health Ministers Meeting, WHA

• Evidence: WHO Global Status Report May 2011• What works: WHO, Lancet Priority Actions, Commonwealth

Good Practice Case Studies…

One Year On From Historic Vote:Significant Progress


• Established our NCDA asks – Proposed Outcomes Document• High profile events and speaking roles – Moscow, Commonwealth

WHA…• Building the case for action:

– Joined forces with The Lancet – 2 influential papers– NCDA working groups policy papers: women, tobacco, children

• Strengthened civil society role in Summit – Civil Society Task Force• Mobilised MAs – advocacy alerts, CIG calls, website

The Last 3 Months:Activities and Impact


The NCD Alliance’s vision for success

Launched in April

34 ‘Asks’


PREVENTION• Accelerate implementation of Framework

Convention on Tobacco Control (FCTC)

• Reduce dietary salt, sugar, trans-fats and harmful use of alcohol

• Implement strategies to encourage physical activity

TREATMENT• Strengthen health systems through integration of

NCD prevention and treatment

• Increase access to affordable, quality-assured essential medicines and technologies to prevent and treat cancer, cardiovascular disease, chronic respiratory disease and diabetes, including vaccines and palliative care.

LEADERSHIP AND INTERNATIONAL CO-OPERATION• Establish an NCDs Partnership, linked to WHO, to coordinate follow up action with member states, other UN

and multilateral agencies, foundations, NGOs and private sector

• Commit to a whole-of-government response through costed national plans for NCD prevention and treatment

• Increase national and international resources for NCD prevention and treatment

• Include NCDs in global health and development goals after 2015

MONITORING, REPORTING AND ACCOUNTABILITY• Establish a high level Accountability Commission on NCDs with cross sector representation to monitor

Summit commitments

Pocket Proposed Outcomes Document


Civil Society Hearing - June 16th, New YorkIP3

Slide 46

IP3 UPDATE FROM CTSFIsabella Platon, 6/17/2011


Civil Society Hearing – 16 June

• 400 NGOs and 90 Missions present• 3 panels (aligned with Summit round tables):

- Scale of the challenge- Solutions at the national and local level- International cooperation

• Each panel had 1 VIP, 1 Member State and 3 Civil society speakers• Outputs:

– Timing allows messages to directly input into Summit Draft Outcomes Document – negotiations underway

– Summary of Hearing prepared by WHO and Office President UN General Assembly will be an official UN document for the Summit


Saturday 17th and Sunday 18th am:• NGO Briefing and solidarity meeting

Sunday 18th pm: • ‘NCD Carnival’ to celebrate NCD Summit (part of Wellness Week)

Monday 19th and Tuesday 20th (until 15:00pm):• UN Summit on NCDs

- Side Events - IDF, NCD Alliance, and many others- Tight Security – very few NGOs admitted. Numbers unknown- Last Minute Lobbying – Outcomes Document text

UN Summit on NCDsWhat Will Happen in New York


• Two determinants of success:– What is written in the final Outcomes Document– Who is there to commit to it, i.e. Heads of State / Government

• Secure attendance of Heads of State / Government:- Work with NCD Alliance colleagues – joint lobbying

• Influence Outcomes Document:- Find out who is drafting/advising at national level / New York - Use IDF Advocacy Toolkit, Pocket POD, crafted language we will provide- Act before parliaments recess – critical - Work in regional / political blocs

• Feedback country-level intelligence to IDF – who is going, positions etc. • Share good practice / what works in diabetes

Call to Action: 87 Days To Go


Summary

• The world has changed – NCDs are on the agenda• We need to keep stressing:

– We know what to do for diabetes– That prevention and treatment are both essential– Linkages/comorbidities of diabetes/TB/CVD/maternal

health etc– Doing nothing will come at a cost – excellent long term

investment– Appeal to the “head, heart and pocket”


Thank you!

2011: Our generation’s chance to change the future

Health & Medicine

IDF Presentation to 2011 Roche Social Media Summit