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2018 Online KT Conference: Engaging Ways to Engage Stakeholders Hosted by AIR’s Center on KTDRR November 5, 7, and 9, 2018

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Lost in Translation: How to Manage Multiple Stakeholders and Communicate Research Effectively

in an Era of Competing Facts

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Contents

• Introduction

• Ingredients of effective engagement

• Engagement and enlightened self-interest

• Case study: the Communications and Video Accessibility Act (CVAA)

• Navigating a diverse stakeholder landscape

• Keys to successful stakeholder interaction: “The Double A” vs. “Double Trouble”

• Case study: Cancer Resource Center of the Finger Lakes

• Q&A

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Introduction

Chief of Staff: U.S. Senate and House of Representatives 20-Year Veteran: Capitol Hill Management Consultant: PwC Co-Founder: Non-Profit Organization Founder: Bayer Strategic Consulting

With President Obama, Boston MA

Cornell University, Guest Lecturer, Science Policy Bootcamp, 2018

Chief Advocacy Trainer, March for Science, Washington, DC, 2018

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The Ingredients of Effective Engagement

This

Relationship-Building

Listening First

Knowing Your Audience

Inspiring

Seeking Feedback

Collaborating

Not This

Box-Checking

Preaching

Running on Autopilot

Droning

Plowing Ahead

Dictating

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Engagement and Enlightened Self-Interest

•Review panels include patient advocates

•Government funders recognize public’s right to know

•Two-way communication can deliver new information and knowledge

•Exposure to real-world impacts may motivate doctoral students

Not just “nice to have”…

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Engagement and Enlightened Self-Interest: Case Study

•At 20th anniversary of ADA, accessible “on-ramps” to Internet, communication devices and services were major roadblock

•AFB, NFB, NAD, Perkins School, Gulf War veteran “humanized” issue

•"Your data is not your story - it’s a character in your story.”

Stakeholders can add credibility, emotion to data-driven findings

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Navigating a Diverse Stakeholder Landscape

• Funders

• Administrators

• Peers/collaborators

• Doctoral Students/Postdocs

• Patient advocates

Each stakeholder has particular interests and a sphere of influence:

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Consider stakeholders your customers:

• Organize into categories

• Research, address interests of each category

• Calibrate messaging according to specifics of stakeholder segment

• Validate approach with trusted member of each category, if practicable

Navigating a Diverse Stakeholder Landscape

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Transparency

Active listening

Navigating a Diverse Stakeholder Landscape: 5 Key Success Factors

Authenticity

Empathy

Humility

“The Double A”:

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• Mismatch of expectations

• The “illusion of inclusion”

Navigating a Diverse Stakeholder Landscape: 2 Landmines

“Double Trouble”:

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• Non-profit in Tompkins County, NY funded by Cornell grant, donations

• Provides full range of support for cancer patients

Scientist - Patient Engagement

Organization

Case Study: Cancer Resource Center of the Finger Lakes

• Monthly seminars with Cornell cancer researchers, patients

• “The patient-researcher partnership transformed our research”

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Questions?

mark.bayer@bayerstrategic.com

https://linkedin.com/in/markdanielbayer

@BayerStrategic

https://bayerstrategic.com

Bayer Strategic Consulting

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Disclaimer The contents of this presentation were developed under grant number 90DPKT0001 from the National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR). NIDILRR is a Center within the Administration for Community Living (ACL), Department of Health and Human Services (HHS). The contents of this presentation do not necessarily represent the policy of NIDILRR, ACL, HHS, and you should not assume endorsement by the Federal Government.

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