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2018 Online KT Conference: Engaging Ways to Engage Stakeholders Hosted by AIR’s Center on KTDRR November 5, 7, and 9, 2018
Copyright © 2018 American Institutes for Research (AIR). All rights reserved. No part of this presentation may be reproduced or transmitted in any form or by any means, electronic or mechanical, including photocopy, recording, or any information storage and retrieval system, without permission in writing from AIR. Submit copyright permissions requests to the AIR Publications Copyright and Permissions Help Desk at [email protected]. Users may need to secure additional permissions from copyright holders whose work AIR included after obtaining permission as noted to reproduce or adapt materials for this presentation. 1
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Lost in Translation: How to Manage Multiple Stakeholders and Communicate Research Effectively
in an Era of Competing Facts
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Contents
• Introduction
• Ingredients of effective engagement
• Engagement and enlightened self-interest
• Case study: the Communications and Video Accessibility Act (CVAA)
• Navigating a diverse stakeholder landscape
• Keys to successful stakeholder interaction: “The Double A” vs. “Double Trouble”
• Case study: Cancer Resource Center of the Finger Lakes
• Q&A
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Introduction
Chief of Staff: U.S. Senate and House of Representatives 20-Year Veteran: Capitol Hill Management Consultant: PwC Co-Founder: Non-Profit Organization Founder: Bayer Strategic Consulting
With President Obama, Boston MA
Cornell University, Guest Lecturer, Science Policy Bootcamp, 2018
Chief Advocacy Trainer, March for Science, Washington, DC, 2018
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The Ingredients of Effective Engagement
This
Relationship-Building
Listening First
Knowing Your Audience
Inspiring
Seeking Feedback
Collaborating
Not This
Box-Checking
Preaching
Running on Autopilot
Droning
Plowing Ahead
Dictating
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Engagement and Enlightened Self-Interest
•Review panels include patient advocates
•Government funders recognize public’s right to know
•Two-way communication can deliver new information and knowledge
•Exposure to real-world impacts may motivate doctoral students
Not just “nice to have”…
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Engagement and Enlightened Self-Interest: Case Study
•At 20th anniversary of ADA, accessible “on-ramps” to Internet, communication devices and services were major roadblock
•AFB, NFB, NAD, Perkins School, Gulf War veteran “humanized” issue
•"Your data is not your story - it’s a character in your story.”
Stakeholders can add credibility, emotion to data-driven findings
**
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Navigating a Diverse Stakeholder Landscape
• Funders
• Administrators
• Peers/collaborators
• Doctoral Students/Postdocs
• Patient advocates
Each stakeholder has particular interests and a sphere of influence:
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Consider stakeholders your customers:
• Organize into categories
• Research, address interests of each category
• Calibrate messaging according to specifics of stakeholder segment
• Validate approach with trusted member of each category, if practicable
Navigating a Diverse Stakeholder Landscape
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Transparency
Active listening
Navigating a Diverse Stakeholder Landscape: 5 Key Success Factors
Authenticity
Empathy
Humility
“The Double A”:
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• Mismatch of expectations
• The “illusion of inclusion”
Navigating a Diverse Stakeholder Landscape: 2 Landmines
“Double Trouble”:
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• Non-profit in Tompkins County, NY funded by Cornell grant, donations
• Provides full range of support for cancer patients
Scientist - Patient Engagement
Organization
Case Study: Cancer Resource Center of the Finger Lakes
• Monthly seminars with Cornell cancer researchers, patients
• “The patient-researcher partnership transformed our research”
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Questions?
https://linkedin.com/in/markdanielbayer
@BayerStrategic
https://bayerstrategic.com
Bayer Strategic Consulting
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Disclaimer The contents of this presentation were developed under grant number 90DPKT0001 from the National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR). NIDILRR is a Center within the Administration for Community Living (ACL), Department of Health and Human Services (HHS). The contents of this presentation do not necessarily represent the policy of NIDILRR, ACL, HHS, and you should not assume endorsement by the Federal Government.
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