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IMPACT OF SOCIAL MEDIA
ON PATIENT INFORMATION
PROVISION NETWORKING
AND COMMUNICATION
GREATER MANCHESTER KIDNEY
INFORMATION NETWORK (GMKIN)
Dr Cristina Vasilica Twitter cristinavas GMKINet
Prof Paula Ormandy Twitter p_ormandy
Rob Finnigan Twitter finnigr
GMKIN
GMKIN components
Online peer to peer support network
Facebook (closed community) 333 members
- central route to GMKIN resources
- support mechanism and info provision
GMKIN Platform 205 blogs 464 comments
514 news 48775 pageviews 14881 visitors - source of information
- patients generated information
Twitter 4468 tweets 942 ff - used by patients to follow practitioners engage in conversations
- least preferred platform for patients
What makes GMKIN different
Recognises talent
What makes GMKIN different
Local
What makes GMKIN different
Friendship trust
What makes GMKIN different
Peer stories (blogs)
Impact
Longitudinal study
Satisfaction of info
Case study Jennie
Female (27) pre-dialysis In employment Proficient with IT (after blogging
on GMKIN has decided to do own blogging platform Cycling and involved
with outdoor activities
[goal] lsquoThe biggest goal is to show other people that is possible that
even if you are suffering from illness you can still get out there and
still do thingsrsquo
[occasional use] lsquoOnly when I am feeling a little unwell or a bit tired or
a bit fed up then it helps to go and have a look at itrsquo
[info] lsquoI take anti-inflammatories so it is bad for kidneyhellipbut they never tell
you why so I found out hellipreading the post it is best not to take themrsquo(
Health outcomes
Case study John
Male (45) on dialysis diabetic reported struggling with depression
Employed initially struggled with the use of IT but now finds a way
around Joined GMKIN because it is convenient and can get a voice
Received an Ipad to access GMKIN
[Outcome]
lsquoDepression you get when you are alone and when you are thinking
too much I used to do 13 hours before even when I was on dialysis
then you I used to go there and nothing you can do and you just
think about house about social life and you get depressed But now
[] through GMKIN got involved [local events research]rsquo
1113088 lsquoBefore I did not even use my phone [] I upgraded my phone as
well I think I have upgraded my lifersquo
Social outcomes
Case study Don
Male (58) on dialysis for 35 years and diabetic Unemployed Low IT
skills Wanting to improve at using technology
Has received an Ipad to gain access
[goal] lsquoI expected to be a silver surferrsquo
[applied for job] lsquoI applied for 2 jobs one of them I had to write
things down like an email interview I did not get the job though [] It
was good experience I never done that beforersquo
What GMKIN did for my mum
lsquoGMKIN was the first time she had been given a lifeline that
let her deal with all her difficulties ndash not just her life with CKD
but also her eating disorders and depression ndash on her own
terms She found it much easier to share and confide in the other
members of GMKIN once she had built up a bit of trust and many
of them became very close friends As her best friend I know that
the friends she made as part of GMKIN made the last few years
of her life infinitely less painful and I believe they
contributed to her eating regular meals again (something she
hadnrsquot done for at least a decade) I only wish she had been
able to find that support network earlier in her life
GMKIN is the only thing I ever saw that had a lasting positive
effect on herrsquo
Clinicianrsquos view
lsquoGMKIN has been a fantastic advance in enabling
communication with renal patients across Greater
Manchester It has provided an invaluable forum in which
patients can express their views learn what others are thinking
and to gain advice on how to deal with issues
It provides an excellent platform to inform renal patients about
ongoing local research opportunities and this can only benefit the
research teams and patients themselvesrsquo
Professor Philip Kalra consultant nephrologist
Peoplersquos voices
Brian Egerton GMKIN Contributor
Peoplersquos voices
Rob Finnigan GMKIN Manager
GMKIN success
bull Contribution to knowledgepolicy impact - national guidance
on public involvement using social media
httpwwwinvoorgukwp-contentuploads2014119982-
Social-Media-Guide-WEBpdf
bull Innovation Champion award for best use of social media at
the NHS Health Education England Adult Learnersrsquo Week
Awards
bull Winning the best poster 3 times (Renal AssociationBritish
Renal Society [BRS] 2014 BRS Annual Conference 2015
EDTNA ERCA UK Seminar October 2015)
GMKIN
GMKIN components
Online peer to peer support network
Facebook (closed community) 333 members
- central route to GMKIN resources
- support mechanism and info provision
GMKIN Platform 205 blogs 464 comments
514 news 48775 pageviews 14881 visitors - source of information
- patients generated information
Twitter 4468 tweets 942 ff - used by patients to follow practitioners engage in conversations
- least preferred platform for patients
What makes GMKIN different
Recognises talent
What makes GMKIN different
Local
What makes GMKIN different
Friendship trust
What makes GMKIN different
Peer stories (blogs)
Impact
Longitudinal study
Satisfaction of info
Case study Jennie
Female (27) pre-dialysis In employment Proficient with IT (after blogging
on GMKIN has decided to do own blogging platform Cycling and involved
with outdoor activities
[goal] lsquoThe biggest goal is to show other people that is possible that
even if you are suffering from illness you can still get out there and
still do thingsrsquo
[occasional use] lsquoOnly when I am feeling a little unwell or a bit tired or
a bit fed up then it helps to go and have a look at itrsquo
[info] lsquoI take anti-inflammatories so it is bad for kidneyhellipbut they never tell
you why so I found out hellipreading the post it is best not to take themrsquo(
Health outcomes
Case study John
Male (45) on dialysis diabetic reported struggling with depression
Employed initially struggled with the use of IT but now finds a way
around Joined GMKIN because it is convenient and can get a voice
Received an Ipad to access GMKIN
[Outcome]
lsquoDepression you get when you are alone and when you are thinking
too much I used to do 13 hours before even when I was on dialysis
then you I used to go there and nothing you can do and you just
think about house about social life and you get depressed But now
[] through GMKIN got involved [local events research]rsquo
1113088 lsquoBefore I did not even use my phone [] I upgraded my phone as
well I think I have upgraded my lifersquo
Social outcomes
Case study Don
Male (58) on dialysis for 35 years and diabetic Unemployed Low IT
skills Wanting to improve at using technology
Has received an Ipad to gain access
[goal] lsquoI expected to be a silver surferrsquo
[applied for job] lsquoI applied for 2 jobs one of them I had to write
things down like an email interview I did not get the job though [] It
was good experience I never done that beforersquo
What GMKIN did for my mum
lsquoGMKIN was the first time she had been given a lifeline that
let her deal with all her difficulties ndash not just her life with CKD
but also her eating disorders and depression ndash on her own
terms She found it much easier to share and confide in the other
members of GMKIN once she had built up a bit of trust and many
of them became very close friends As her best friend I know that
the friends she made as part of GMKIN made the last few years
of her life infinitely less painful and I believe they
contributed to her eating regular meals again (something she
hadnrsquot done for at least a decade) I only wish she had been
able to find that support network earlier in her life
GMKIN is the only thing I ever saw that had a lasting positive
effect on herrsquo
Clinicianrsquos view
lsquoGMKIN has been a fantastic advance in enabling
communication with renal patients across Greater
Manchester It has provided an invaluable forum in which
patients can express their views learn what others are thinking
and to gain advice on how to deal with issues
It provides an excellent platform to inform renal patients about
ongoing local research opportunities and this can only benefit the
research teams and patients themselvesrsquo
Professor Philip Kalra consultant nephrologist
Peoplersquos voices
Brian Egerton GMKIN Contributor
Peoplersquos voices
Rob Finnigan GMKIN Manager
GMKIN success
bull Contribution to knowledgepolicy impact - national guidance
on public involvement using social media
httpwwwinvoorgukwp-contentuploads2014119982-
Social-Media-Guide-WEBpdf
bull Innovation Champion award for best use of social media at
the NHS Health Education England Adult Learnersrsquo Week
Awards
bull Winning the best poster 3 times (Renal AssociationBritish
Renal Society [BRS] 2014 BRS Annual Conference 2015
EDTNA ERCA UK Seminar October 2015)
GMKIN components
Online peer to peer support network
Facebook (closed community) 333 members
- central route to GMKIN resources
- support mechanism and info provision
GMKIN Platform 205 blogs 464 comments
514 news 48775 pageviews 14881 visitors - source of information
- patients generated information
Twitter 4468 tweets 942 ff - used by patients to follow practitioners engage in conversations
- least preferred platform for patients
What makes GMKIN different
Recognises talent
What makes GMKIN different
Local
What makes GMKIN different
Friendship trust
What makes GMKIN different
Peer stories (blogs)
Impact
Longitudinal study
Satisfaction of info
Case study Jennie
Female (27) pre-dialysis In employment Proficient with IT (after blogging
on GMKIN has decided to do own blogging platform Cycling and involved
with outdoor activities
[goal] lsquoThe biggest goal is to show other people that is possible that
even if you are suffering from illness you can still get out there and
still do thingsrsquo
[occasional use] lsquoOnly when I am feeling a little unwell or a bit tired or
a bit fed up then it helps to go and have a look at itrsquo
[info] lsquoI take anti-inflammatories so it is bad for kidneyhellipbut they never tell
you why so I found out hellipreading the post it is best not to take themrsquo(
Health outcomes
Case study John
Male (45) on dialysis diabetic reported struggling with depression
Employed initially struggled with the use of IT but now finds a way
around Joined GMKIN because it is convenient and can get a voice
Received an Ipad to access GMKIN
[Outcome]
lsquoDepression you get when you are alone and when you are thinking
too much I used to do 13 hours before even when I was on dialysis
then you I used to go there and nothing you can do and you just
think about house about social life and you get depressed But now
[] through GMKIN got involved [local events research]rsquo
1113088 lsquoBefore I did not even use my phone [] I upgraded my phone as
well I think I have upgraded my lifersquo
Social outcomes
Case study Don
Male (58) on dialysis for 35 years and diabetic Unemployed Low IT
skills Wanting to improve at using technology
Has received an Ipad to gain access
[goal] lsquoI expected to be a silver surferrsquo
[applied for job] lsquoI applied for 2 jobs one of them I had to write
things down like an email interview I did not get the job though [] It
was good experience I never done that beforersquo
What GMKIN did for my mum
lsquoGMKIN was the first time she had been given a lifeline that
let her deal with all her difficulties ndash not just her life with CKD
but also her eating disorders and depression ndash on her own
terms She found it much easier to share and confide in the other
members of GMKIN once she had built up a bit of trust and many
of them became very close friends As her best friend I know that
the friends she made as part of GMKIN made the last few years
of her life infinitely less painful and I believe they
contributed to her eating regular meals again (something she
hadnrsquot done for at least a decade) I only wish she had been
able to find that support network earlier in her life
GMKIN is the only thing I ever saw that had a lasting positive
effect on herrsquo
Clinicianrsquos view
lsquoGMKIN has been a fantastic advance in enabling
communication with renal patients across Greater
Manchester It has provided an invaluable forum in which
patients can express their views learn what others are thinking
and to gain advice on how to deal with issues
It provides an excellent platform to inform renal patients about
ongoing local research opportunities and this can only benefit the
research teams and patients themselvesrsquo
Professor Philip Kalra consultant nephrologist
Peoplersquos voices
Brian Egerton GMKIN Contributor
Peoplersquos voices
Rob Finnigan GMKIN Manager
GMKIN success
bull Contribution to knowledgepolicy impact - national guidance
on public involvement using social media
httpwwwinvoorgukwp-contentuploads2014119982-
Social-Media-Guide-WEBpdf
bull Innovation Champion award for best use of social media at
the NHS Health Education England Adult Learnersrsquo Week
Awards
bull Winning the best poster 3 times (Renal AssociationBritish
Renal Society [BRS] 2014 BRS Annual Conference 2015
EDTNA ERCA UK Seminar October 2015)
What makes GMKIN different
Recognises talent
What makes GMKIN different
Local
What makes GMKIN different
Friendship trust
What makes GMKIN different
Peer stories (blogs)
Impact
Longitudinal study
Satisfaction of info
Case study Jennie
Female (27) pre-dialysis In employment Proficient with IT (after blogging
on GMKIN has decided to do own blogging platform Cycling and involved
with outdoor activities
[goal] lsquoThe biggest goal is to show other people that is possible that
even if you are suffering from illness you can still get out there and
still do thingsrsquo
[occasional use] lsquoOnly when I am feeling a little unwell or a bit tired or
a bit fed up then it helps to go and have a look at itrsquo
[info] lsquoI take anti-inflammatories so it is bad for kidneyhellipbut they never tell
you why so I found out hellipreading the post it is best not to take themrsquo(
Health outcomes
Case study John
Male (45) on dialysis diabetic reported struggling with depression
Employed initially struggled with the use of IT but now finds a way
around Joined GMKIN because it is convenient and can get a voice
Received an Ipad to access GMKIN
[Outcome]
lsquoDepression you get when you are alone and when you are thinking
too much I used to do 13 hours before even when I was on dialysis
then you I used to go there and nothing you can do and you just
think about house about social life and you get depressed But now
[] through GMKIN got involved [local events research]rsquo
1113088 lsquoBefore I did not even use my phone [] I upgraded my phone as
well I think I have upgraded my lifersquo
Social outcomes
Case study Don
Male (58) on dialysis for 35 years and diabetic Unemployed Low IT
skills Wanting to improve at using technology
Has received an Ipad to gain access
[goal] lsquoI expected to be a silver surferrsquo
[applied for job] lsquoI applied for 2 jobs one of them I had to write
things down like an email interview I did not get the job though [] It
was good experience I never done that beforersquo
What GMKIN did for my mum
lsquoGMKIN was the first time she had been given a lifeline that
let her deal with all her difficulties ndash not just her life with CKD
but also her eating disorders and depression ndash on her own
terms She found it much easier to share and confide in the other
members of GMKIN once she had built up a bit of trust and many
of them became very close friends As her best friend I know that
the friends she made as part of GMKIN made the last few years
of her life infinitely less painful and I believe they
contributed to her eating regular meals again (something she
hadnrsquot done for at least a decade) I only wish she had been
able to find that support network earlier in her life
GMKIN is the only thing I ever saw that had a lasting positive
effect on herrsquo
Clinicianrsquos view
lsquoGMKIN has been a fantastic advance in enabling
communication with renal patients across Greater
Manchester It has provided an invaluable forum in which
patients can express their views learn what others are thinking
and to gain advice on how to deal with issues
It provides an excellent platform to inform renal patients about
ongoing local research opportunities and this can only benefit the
research teams and patients themselvesrsquo
Professor Philip Kalra consultant nephrologist
Peoplersquos voices
Brian Egerton GMKIN Contributor
Peoplersquos voices
Rob Finnigan GMKIN Manager
GMKIN success
bull Contribution to knowledgepolicy impact - national guidance
on public involvement using social media
httpwwwinvoorgukwp-contentuploads2014119982-
Social-Media-Guide-WEBpdf
bull Innovation Champion award for best use of social media at
the NHS Health Education England Adult Learnersrsquo Week
Awards
bull Winning the best poster 3 times (Renal AssociationBritish
Renal Society [BRS] 2014 BRS Annual Conference 2015
EDTNA ERCA UK Seminar October 2015)
What makes GMKIN different
Local
What makes GMKIN different
Friendship trust
What makes GMKIN different
Peer stories (blogs)
Impact
Longitudinal study
Satisfaction of info
Case study Jennie
Female (27) pre-dialysis In employment Proficient with IT (after blogging
on GMKIN has decided to do own blogging platform Cycling and involved
with outdoor activities
[goal] lsquoThe biggest goal is to show other people that is possible that
even if you are suffering from illness you can still get out there and
still do thingsrsquo
[occasional use] lsquoOnly when I am feeling a little unwell or a bit tired or
a bit fed up then it helps to go and have a look at itrsquo
[info] lsquoI take anti-inflammatories so it is bad for kidneyhellipbut they never tell
you why so I found out hellipreading the post it is best not to take themrsquo(
Health outcomes
Case study John
Male (45) on dialysis diabetic reported struggling with depression
Employed initially struggled with the use of IT but now finds a way
around Joined GMKIN because it is convenient and can get a voice
Received an Ipad to access GMKIN
[Outcome]
lsquoDepression you get when you are alone and when you are thinking
too much I used to do 13 hours before even when I was on dialysis
then you I used to go there and nothing you can do and you just
think about house about social life and you get depressed But now
[] through GMKIN got involved [local events research]rsquo
1113088 lsquoBefore I did not even use my phone [] I upgraded my phone as
well I think I have upgraded my lifersquo
Social outcomes
Case study Don
Male (58) on dialysis for 35 years and diabetic Unemployed Low IT
skills Wanting to improve at using technology
Has received an Ipad to gain access
[goal] lsquoI expected to be a silver surferrsquo
[applied for job] lsquoI applied for 2 jobs one of them I had to write
things down like an email interview I did not get the job though [] It
was good experience I never done that beforersquo
What GMKIN did for my mum
lsquoGMKIN was the first time she had been given a lifeline that
let her deal with all her difficulties ndash not just her life with CKD
but also her eating disorders and depression ndash on her own
terms She found it much easier to share and confide in the other
members of GMKIN once she had built up a bit of trust and many
of them became very close friends As her best friend I know that
the friends she made as part of GMKIN made the last few years
of her life infinitely less painful and I believe they
contributed to her eating regular meals again (something she
hadnrsquot done for at least a decade) I only wish she had been
able to find that support network earlier in her life
GMKIN is the only thing I ever saw that had a lasting positive
effect on herrsquo
Clinicianrsquos view
lsquoGMKIN has been a fantastic advance in enabling
communication with renal patients across Greater
Manchester It has provided an invaluable forum in which
patients can express their views learn what others are thinking
and to gain advice on how to deal with issues
It provides an excellent platform to inform renal patients about
ongoing local research opportunities and this can only benefit the
research teams and patients themselvesrsquo
Professor Philip Kalra consultant nephrologist
Peoplersquos voices
Brian Egerton GMKIN Contributor
Peoplersquos voices
Rob Finnigan GMKIN Manager
GMKIN success
bull Contribution to knowledgepolicy impact - national guidance
on public involvement using social media
httpwwwinvoorgukwp-contentuploads2014119982-
Social-Media-Guide-WEBpdf
bull Innovation Champion award for best use of social media at
the NHS Health Education England Adult Learnersrsquo Week
Awards
bull Winning the best poster 3 times (Renal AssociationBritish
Renal Society [BRS] 2014 BRS Annual Conference 2015
EDTNA ERCA UK Seminar October 2015)
What makes GMKIN different
Friendship trust
What makes GMKIN different
Peer stories (blogs)
Impact
Longitudinal study
Satisfaction of info
Case study Jennie
Female (27) pre-dialysis In employment Proficient with IT (after blogging
on GMKIN has decided to do own blogging platform Cycling and involved
with outdoor activities
[goal] lsquoThe biggest goal is to show other people that is possible that
even if you are suffering from illness you can still get out there and
still do thingsrsquo
[occasional use] lsquoOnly when I am feeling a little unwell or a bit tired or
a bit fed up then it helps to go and have a look at itrsquo
[info] lsquoI take anti-inflammatories so it is bad for kidneyhellipbut they never tell
you why so I found out hellipreading the post it is best not to take themrsquo(
Health outcomes
Case study John
Male (45) on dialysis diabetic reported struggling with depression
Employed initially struggled with the use of IT but now finds a way
around Joined GMKIN because it is convenient and can get a voice
Received an Ipad to access GMKIN
[Outcome]
lsquoDepression you get when you are alone and when you are thinking
too much I used to do 13 hours before even when I was on dialysis
then you I used to go there and nothing you can do and you just
think about house about social life and you get depressed But now
[] through GMKIN got involved [local events research]rsquo
1113088 lsquoBefore I did not even use my phone [] I upgraded my phone as
well I think I have upgraded my lifersquo
Social outcomes
Case study Don
Male (58) on dialysis for 35 years and diabetic Unemployed Low IT
skills Wanting to improve at using technology
Has received an Ipad to gain access
[goal] lsquoI expected to be a silver surferrsquo
[applied for job] lsquoI applied for 2 jobs one of them I had to write
things down like an email interview I did not get the job though [] It
was good experience I never done that beforersquo
What GMKIN did for my mum
lsquoGMKIN was the first time she had been given a lifeline that
let her deal with all her difficulties ndash not just her life with CKD
but also her eating disorders and depression ndash on her own
terms She found it much easier to share and confide in the other
members of GMKIN once she had built up a bit of trust and many
of them became very close friends As her best friend I know that
the friends she made as part of GMKIN made the last few years
of her life infinitely less painful and I believe they
contributed to her eating regular meals again (something she
hadnrsquot done for at least a decade) I only wish she had been
able to find that support network earlier in her life
GMKIN is the only thing I ever saw that had a lasting positive
effect on herrsquo
Clinicianrsquos view
lsquoGMKIN has been a fantastic advance in enabling
communication with renal patients across Greater
Manchester It has provided an invaluable forum in which
patients can express their views learn what others are thinking
and to gain advice on how to deal with issues
It provides an excellent platform to inform renal patients about
ongoing local research opportunities and this can only benefit the
research teams and patients themselvesrsquo
Professor Philip Kalra consultant nephrologist
Peoplersquos voices
Brian Egerton GMKIN Contributor
Peoplersquos voices
Rob Finnigan GMKIN Manager
GMKIN success
bull Contribution to knowledgepolicy impact - national guidance
on public involvement using social media
httpwwwinvoorgukwp-contentuploads2014119982-
Social-Media-Guide-WEBpdf
bull Innovation Champion award for best use of social media at
the NHS Health Education England Adult Learnersrsquo Week
Awards
bull Winning the best poster 3 times (Renal AssociationBritish
Renal Society [BRS] 2014 BRS Annual Conference 2015
EDTNA ERCA UK Seminar October 2015)
What makes GMKIN different
Peer stories (blogs)
Impact
Longitudinal study
Satisfaction of info
Case study Jennie
Female (27) pre-dialysis In employment Proficient with IT (after blogging
on GMKIN has decided to do own blogging platform Cycling and involved
with outdoor activities
[goal] lsquoThe biggest goal is to show other people that is possible that
even if you are suffering from illness you can still get out there and
still do thingsrsquo
[occasional use] lsquoOnly when I am feeling a little unwell or a bit tired or
a bit fed up then it helps to go and have a look at itrsquo
[info] lsquoI take anti-inflammatories so it is bad for kidneyhellipbut they never tell
you why so I found out hellipreading the post it is best not to take themrsquo(
Health outcomes
Case study John
Male (45) on dialysis diabetic reported struggling with depression
Employed initially struggled with the use of IT but now finds a way
around Joined GMKIN because it is convenient and can get a voice
Received an Ipad to access GMKIN
[Outcome]
lsquoDepression you get when you are alone and when you are thinking
too much I used to do 13 hours before even when I was on dialysis
then you I used to go there and nothing you can do and you just
think about house about social life and you get depressed But now
[] through GMKIN got involved [local events research]rsquo
1113088 lsquoBefore I did not even use my phone [] I upgraded my phone as
well I think I have upgraded my lifersquo
Social outcomes
Case study Don
Male (58) on dialysis for 35 years and diabetic Unemployed Low IT
skills Wanting to improve at using technology
Has received an Ipad to gain access
[goal] lsquoI expected to be a silver surferrsquo
[applied for job] lsquoI applied for 2 jobs one of them I had to write
things down like an email interview I did not get the job though [] It
was good experience I never done that beforersquo
What GMKIN did for my mum
lsquoGMKIN was the first time she had been given a lifeline that
let her deal with all her difficulties ndash not just her life with CKD
but also her eating disorders and depression ndash on her own
terms She found it much easier to share and confide in the other
members of GMKIN once she had built up a bit of trust and many
of them became very close friends As her best friend I know that
the friends she made as part of GMKIN made the last few years
of her life infinitely less painful and I believe they
contributed to her eating regular meals again (something she
hadnrsquot done for at least a decade) I only wish she had been
able to find that support network earlier in her life
GMKIN is the only thing I ever saw that had a lasting positive
effect on herrsquo
Clinicianrsquos view
lsquoGMKIN has been a fantastic advance in enabling
communication with renal patients across Greater
Manchester It has provided an invaluable forum in which
patients can express their views learn what others are thinking
and to gain advice on how to deal with issues
It provides an excellent platform to inform renal patients about
ongoing local research opportunities and this can only benefit the
research teams and patients themselvesrsquo
Professor Philip Kalra consultant nephrologist
Peoplersquos voices
Brian Egerton GMKIN Contributor
Peoplersquos voices
Rob Finnigan GMKIN Manager
GMKIN success
bull Contribution to knowledgepolicy impact - national guidance
on public involvement using social media
httpwwwinvoorgukwp-contentuploads2014119982-
Social-Media-Guide-WEBpdf
bull Innovation Champion award for best use of social media at
the NHS Health Education England Adult Learnersrsquo Week
Awards
bull Winning the best poster 3 times (Renal AssociationBritish
Renal Society [BRS] 2014 BRS Annual Conference 2015
EDTNA ERCA UK Seminar October 2015)
Impact
Longitudinal study
Satisfaction of info
Case study Jennie
Female (27) pre-dialysis In employment Proficient with IT (after blogging
on GMKIN has decided to do own blogging platform Cycling and involved
with outdoor activities
[goal] lsquoThe biggest goal is to show other people that is possible that
even if you are suffering from illness you can still get out there and
still do thingsrsquo
[occasional use] lsquoOnly when I am feeling a little unwell or a bit tired or
a bit fed up then it helps to go and have a look at itrsquo
[info] lsquoI take anti-inflammatories so it is bad for kidneyhellipbut they never tell
you why so I found out hellipreading the post it is best not to take themrsquo(
Health outcomes
Case study John
Male (45) on dialysis diabetic reported struggling with depression
Employed initially struggled with the use of IT but now finds a way
around Joined GMKIN because it is convenient and can get a voice
Received an Ipad to access GMKIN
[Outcome]
lsquoDepression you get when you are alone and when you are thinking
too much I used to do 13 hours before even when I was on dialysis
then you I used to go there and nothing you can do and you just
think about house about social life and you get depressed But now
[] through GMKIN got involved [local events research]rsquo
1113088 lsquoBefore I did not even use my phone [] I upgraded my phone as
well I think I have upgraded my lifersquo
Social outcomes
Case study Don
Male (58) on dialysis for 35 years and diabetic Unemployed Low IT
skills Wanting to improve at using technology
Has received an Ipad to gain access
[goal] lsquoI expected to be a silver surferrsquo
[applied for job] lsquoI applied for 2 jobs one of them I had to write
things down like an email interview I did not get the job though [] It
was good experience I never done that beforersquo
What GMKIN did for my mum
lsquoGMKIN was the first time she had been given a lifeline that
let her deal with all her difficulties ndash not just her life with CKD
but also her eating disorders and depression ndash on her own
terms She found it much easier to share and confide in the other
members of GMKIN once she had built up a bit of trust and many
of them became very close friends As her best friend I know that
the friends she made as part of GMKIN made the last few years
of her life infinitely less painful and I believe they
contributed to her eating regular meals again (something she
hadnrsquot done for at least a decade) I only wish she had been
able to find that support network earlier in her life
GMKIN is the only thing I ever saw that had a lasting positive
effect on herrsquo
Clinicianrsquos view
lsquoGMKIN has been a fantastic advance in enabling
communication with renal patients across Greater
Manchester It has provided an invaluable forum in which
patients can express their views learn what others are thinking
and to gain advice on how to deal with issues
It provides an excellent platform to inform renal patients about
ongoing local research opportunities and this can only benefit the
research teams and patients themselvesrsquo
Professor Philip Kalra consultant nephrologist
Peoplersquos voices
Brian Egerton GMKIN Contributor
Peoplersquos voices
Rob Finnigan GMKIN Manager
GMKIN success
bull Contribution to knowledgepolicy impact - national guidance
on public involvement using social media
httpwwwinvoorgukwp-contentuploads2014119982-
Social-Media-Guide-WEBpdf
bull Innovation Champion award for best use of social media at
the NHS Health Education England Adult Learnersrsquo Week
Awards
bull Winning the best poster 3 times (Renal AssociationBritish
Renal Society [BRS] 2014 BRS Annual Conference 2015
EDTNA ERCA UK Seminar October 2015)
Satisfaction of info
Case study Jennie
Female (27) pre-dialysis In employment Proficient with IT (after blogging
on GMKIN has decided to do own blogging platform Cycling and involved
with outdoor activities
[goal] lsquoThe biggest goal is to show other people that is possible that
even if you are suffering from illness you can still get out there and
still do thingsrsquo
[occasional use] lsquoOnly when I am feeling a little unwell or a bit tired or
a bit fed up then it helps to go and have a look at itrsquo
[info] lsquoI take anti-inflammatories so it is bad for kidneyhellipbut they never tell
you why so I found out hellipreading the post it is best not to take themrsquo(
Health outcomes
Case study John
Male (45) on dialysis diabetic reported struggling with depression
Employed initially struggled with the use of IT but now finds a way
around Joined GMKIN because it is convenient and can get a voice
Received an Ipad to access GMKIN
[Outcome]
lsquoDepression you get when you are alone and when you are thinking
too much I used to do 13 hours before even when I was on dialysis
then you I used to go there and nothing you can do and you just
think about house about social life and you get depressed But now
[] through GMKIN got involved [local events research]rsquo
1113088 lsquoBefore I did not even use my phone [] I upgraded my phone as
well I think I have upgraded my lifersquo
Social outcomes
Case study Don
Male (58) on dialysis for 35 years and diabetic Unemployed Low IT
skills Wanting to improve at using technology
Has received an Ipad to gain access
[goal] lsquoI expected to be a silver surferrsquo
[applied for job] lsquoI applied for 2 jobs one of them I had to write
things down like an email interview I did not get the job though [] It
was good experience I never done that beforersquo
What GMKIN did for my mum
lsquoGMKIN was the first time she had been given a lifeline that
let her deal with all her difficulties ndash not just her life with CKD
but also her eating disorders and depression ndash on her own
terms She found it much easier to share and confide in the other
members of GMKIN once she had built up a bit of trust and many
of them became very close friends As her best friend I know that
the friends she made as part of GMKIN made the last few years
of her life infinitely less painful and I believe they
contributed to her eating regular meals again (something she
hadnrsquot done for at least a decade) I only wish she had been
able to find that support network earlier in her life
GMKIN is the only thing I ever saw that had a lasting positive
effect on herrsquo
Clinicianrsquos view
lsquoGMKIN has been a fantastic advance in enabling
communication with renal patients across Greater
Manchester It has provided an invaluable forum in which
patients can express their views learn what others are thinking
and to gain advice on how to deal with issues
It provides an excellent platform to inform renal patients about
ongoing local research opportunities and this can only benefit the
research teams and patients themselvesrsquo
Professor Philip Kalra consultant nephrologist
Peoplersquos voices
Brian Egerton GMKIN Contributor
Peoplersquos voices
Rob Finnigan GMKIN Manager
GMKIN success
bull Contribution to knowledgepolicy impact - national guidance
on public involvement using social media
httpwwwinvoorgukwp-contentuploads2014119982-
Social-Media-Guide-WEBpdf
bull Innovation Champion award for best use of social media at
the NHS Health Education England Adult Learnersrsquo Week
Awards
bull Winning the best poster 3 times (Renal AssociationBritish
Renal Society [BRS] 2014 BRS Annual Conference 2015
EDTNA ERCA UK Seminar October 2015)
Health outcomes
Case study John
Male (45) on dialysis diabetic reported struggling with depression
Employed initially struggled with the use of IT but now finds a way
around Joined GMKIN because it is convenient and can get a voice
Received an Ipad to access GMKIN
[Outcome]
lsquoDepression you get when you are alone and when you are thinking
too much I used to do 13 hours before even when I was on dialysis
then you I used to go there and nothing you can do and you just
think about house about social life and you get depressed But now
[] through GMKIN got involved [local events research]rsquo
1113088 lsquoBefore I did not even use my phone [] I upgraded my phone as
well I think I have upgraded my lifersquo
Social outcomes
Case study Don
Male (58) on dialysis for 35 years and diabetic Unemployed Low IT
skills Wanting to improve at using technology
Has received an Ipad to gain access
[goal] lsquoI expected to be a silver surferrsquo
[applied for job] lsquoI applied for 2 jobs one of them I had to write
things down like an email interview I did not get the job though [] It
was good experience I never done that beforersquo
What GMKIN did for my mum
lsquoGMKIN was the first time she had been given a lifeline that
let her deal with all her difficulties ndash not just her life with CKD
but also her eating disorders and depression ndash on her own
terms She found it much easier to share and confide in the other
members of GMKIN once she had built up a bit of trust and many
of them became very close friends As her best friend I know that
the friends she made as part of GMKIN made the last few years
of her life infinitely less painful and I believe they
contributed to her eating regular meals again (something she
hadnrsquot done for at least a decade) I only wish she had been
able to find that support network earlier in her life
GMKIN is the only thing I ever saw that had a lasting positive
effect on herrsquo
Clinicianrsquos view
lsquoGMKIN has been a fantastic advance in enabling
communication with renal patients across Greater
Manchester It has provided an invaluable forum in which
patients can express their views learn what others are thinking
and to gain advice on how to deal with issues
It provides an excellent platform to inform renal patients about
ongoing local research opportunities and this can only benefit the
research teams and patients themselvesrsquo
Professor Philip Kalra consultant nephrologist
Peoplersquos voices
Brian Egerton GMKIN Contributor
Peoplersquos voices
Rob Finnigan GMKIN Manager
GMKIN success
bull Contribution to knowledgepolicy impact - national guidance
on public involvement using social media
httpwwwinvoorgukwp-contentuploads2014119982-
Social-Media-Guide-WEBpdf
bull Innovation Champion award for best use of social media at
the NHS Health Education England Adult Learnersrsquo Week
Awards
bull Winning the best poster 3 times (Renal AssociationBritish
Renal Society [BRS] 2014 BRS Annual Conference 2015
EDTNA ERCA UK Seminar October 2015)
Social outcomes
Case study Don
Male (58) on dialysis for 35 years and diabetic Unemployed Low IT
skills Wanting to improve at using technology
Has received an Ipad to gain access
[goal] lsquoI expected to be a silver surferrsquo
[applied for job] lsquoI applied for 2 jobs one of them I had to write
things down like an email interview I did not get the job though [] It
was good experience I never done that beforersquo
What GMKIN did for my mum
lsquoGMKIN was the first time she had been given a lifeline that
let her deal with all her difficulties ndash not just her life with CKD
but also her eating disorders and depression ndash on her own
terms She found it much easier to share and confide in the other
members of GMKIN once she had built up a bit of trust and many
of them became very close friends As her best friend I know that
the friends she made as part of GMKIN made the last few years
of her life infinitely less painful and I believe they
contributed to her eating regular meals again (something she
hadnrsquot done for at least a decade) I only wish she had been
able to find that support network earlier in her life
GMKIN is the only thing I ever saw that had a lasting positive
effect on herrsquo
Clinicianrsquos view
lsquoGMKIN has been a fantastic advance in enabling
communication with renal patients across Greater
Manchester It has provided an invaluable forum in which
patients can express their views learn what others are thinking
and to gain advice on how to deal with issues
It provides an excellent platform to inform renal patients about
ongoing local research opportunities and this can only benefit the
research teams and patients themselvesrsquo
Professor Philip Kalra consultant nephrologist
Peoplersquos voices
Brian Egerton GMKIN Contributor
Peoplersquos voices
Rob Finnigan GMKIN Manager
GMKIN success
bull Contribution to knowledgepolicy impact - national guidance
on public involvement using social media
httpwwwinvoorgukwp-contentuploads2014119982-
Social-Media-Guide-WEBpdf
bull Innovation Champion award for best use of social media at
the NHS Health Education England Adult Learnersrsquo Week
Awards
bull Winning the best poster 3 times (Renal AssociationBritish
Renal Society [BRS] 2014 BRS Annual Conference 2015
EDTNA ERCA UK Seminar October 2015)
What GMKIN did for my mum
lsquoGMKIN was the first time she had been given a lifeline that
let her deal with all her difficulties ndash not just her life with CKD
but also her eating disorders and depression ndash on her own
terms She found it much easier to share and confide in the other
members of GMKIN once she had built up a bit of trust and many
of them became very close friends As her best friend I know that
the friends she made as part of GMKIN made the last few years
of her life infinitely less painful and I believe they
contributed to her eating regular meals again (something she
hadnrsquot done for at least a decade) I only wish she had been
able to find that support network earlier in her life
GMKIN is the only thing I ever saw that had a lasting positive
effect on herrsquo
Clinicianrsquos view
lsquoGMKIN has been a fantastic advance in enabling
communication with renal patients across Greater
Manchester It has provided an invaluable forum in which
patients can express their views learn what others are thinking
and to gain advice on how to deal with issues
It provides an excellent platform to inform renal patients about
ongoing local research opportunities and this can only benefit the
research teams and patients themselvesrsquo
Professor Philip Kalra consultant nephrologist
Peoplersquos voices
Brian Egerton GMKIN Contributor
Peoplersquos voices
Rob Finnigan GMKIN Manager
GMKIN success
bull Contribution to knowledgepolicy impact - national guidance
on public involvement using social media
httpwwwinvoorgukwp-contentuploads2014119982-
Social-Media-Guide-WEBpdf
bull Innovation Champion award for best use of social media at
the NHS Health Education England Adult Learnersrsquo Week
Awards
bull Winning the best poster 3 times (Renal AssociationBritish
Renal Society [BRS] 2014 BRS Annual Conference 2015
EDTNA ERCA UK Seminar October 2015)
Clinicianrsquos view
lsquoGMKIN has been a fantastic advance in enabling
communication with renal patients across Greater
Manchester It has provided an invaluable forum in which
patients can express their views learn what others are thinking
and to gain advice on how to deal with issues
It provides an excellent platform to inform renal patients about
ongoing local research opportunities and this can only benefit the
research teams and patients themselvesrsquo
Professor Philip Kalra consultant nephrologist
Peoplersquos voices
Brian Egerton GMKIN Contributor
Peoplersquos voices
Rob Finnigan GMKIN Manager
GMKIN success
bull Contribution to knowledgepolicy impact - national guidance
on public involvement using social media
httpwwwinvoorgukwp-contentuploads2014119982-
Social-Media-Guide-WEBpdf
bull Innovation Champion award for best use of social media at
the NHS Health Education England Adult Learnersrsquo Week
Awards
bull Winning the best poster 3 times (Renal AssociationBritish
Renal Society [BRS] 2014 BRS Annual Conference 2015
EDTNA ERCA UK Seminar October 2015)
Peoplersquos voices
Brian Egerton GMKIN Contributor
Peoplersquos voices
Rob Finnigan GMKIN Manager
GMKIN success
bull Contribution to knowledgepolicy impact - national guidance
on public involvement using social media
httpwwwinvoorgukwp-contentuploads2014119982-
Social-Media-Guide-WEBpdf
bull Innovation Champion award for best use of social media at
the NHS Health Education England Adult Learnersrsquo Week
Awards
bull Winning the best poster 3 times (Renal AssociationBritish
Renal Society [BRS] 2014 BRS Annual Conference 2015
EDTNA ERCA UK Seminar October 2015)
Peoplersquos voices
Rob Finnigan GMKIN Manager
GMKIN success
bull Contribution to knowledgepolicy impact - national guidance
on public involvement using social media
httpwwwinvoorgukwp-contentuploads2014119982-
Social-Media-Guide-WEBpdf
bull Innovation Champion award for best use of social media at
the NHS Health Education England Adult Learnersrsquo Week
Awards
bull Winning the best poster 3 times (Renal AssociationBritish
Renal Society [BRS] 2014 BRS Annual Conference 2015
EDTNA ERCA UK Seminar October 2015)
GMKIN success
bull Contribution to knowledgepolicy impact - national guidance
on public involvement using social media
httpwwwinvoorgukwp-contentuploads2014119982-
Social-Media-Guide-WEBpdf
bull Innovation Champion award for best use of social media at
the NHS Health Education England Adult Learnersrsquo Week
Awards
bull Winning the best poster 3 times (Renal AssociationBritish
Renal Society [BRS] 2014 BRS Annual Conference 2015
EDTNA ERCA UK Seminar October 2015)
