Quality of Life Tool

Erin Michalak

Associate Professor, Department of Psychiatry, University of

British Columbia, Canada Leader, CREST.BD

QoL in BD publications

Publications referencing QoL as a proportion of publications referencing BD (Scopus database, terms in abstract, title or keywords), past 20 years

Source: Murray G, Michalak EE. Bipolar Disord. 2012;14(8):793-6.

Exponential growth (F (1,18) = 136.76,

p < .001, Adj R2 = .88)

But...

Sheer numbers still small

N for QoLpublications = 140

Vs.

N for symptom measure publications = 1576

Gaps in BD QoL science

- No condition-specific QoL measure

QoL.BD Scale

PHYSICAL

SLEEP

MOOD

COGNITION

LEISURE

SOCIAL

WORK

STUDY

12 Basic Scales

2 Optional Scales(Included in Full QoL.BD

version only)

SPIRITUALITY

FINANCES

HOUSEHOLD

SELF-ESTEEM

INDEPENDENCE

IDENTITY

56-item14 Domain

QoL.BD Scale

Full QoL.BD Version

Gaps in BD QoL science

- Need a web-based version of the QoL.BD

CIHR e-Health Catalyst Collaborators

Principal

Investigators

Principal

Decision-

Makers

Co-Investigators

Dan Bilsker

Victoria Maxwell

Erin Michalak

Greg Murray

Andrew SixsmithMark Lau

Developer

Steven Barnes

Development process

Group Consultation: Clinician workshop

(n=25)

Oct 2012

Group Consultation:Advisory Group & Peer Support

Leaders (n=30)

May & July 2013

July – August 2013

Individual Interviews: Healthcare providers

(n=10)

August 2013

Consultation feedback provided to 7th Floor

Media

September 2013

- 1st prototype developed- Team review & feedback- 2nd prototype developed

October 2013

- QoL Summit Consultation- 3rd prototype development

- Software development

Nov 2013 – Jan 2014

- Video Production- Pilot testing

Feb-March 2014

People with BD and healthcare provider participants, QoL Summit October 2013

Group discussion at QoL Summit 2013

Slider feature allows user to view QoL over time

In terms of research, what are the most important findings from this project?

In terms of KE, what are the most important learnings to share with CREST.BD network members?