Joyce Lee, MD, MPH Doctor as Designer Twitter: @joyclee

@healthbyus

Medical Doctor, Maker Designer?

I have no ties to any pharmaceutical companies

Social Media/Web Editor

of JAMA Pediatrics

Associate Professor School of Medicine/

Public Health

My academic Identity:

I have no formal training as a designer

Folk in black turtlenecks and designer glasses working on small

things like the iWatch

This is a medical designer

“A pediatric endocrinologist who spends her days seeing patients in

clinic and writing grants & papers that no one will ever read?”

This is a medical designer?

No black turtleneck?

No designer glasses?

Design = Change

Part 1: A Personal Design Experiment

“B”

#design #fail

#lazytigermother

700+ students & 40 teachers

“ T w o v i d e o s r e c e n t l y impressed me with their use of illustration and narration to educate an audience about health…What interests me is how approachab le and i n f o r m a t i v e t h e y a r e , regardless of the production value.” -@SusannahFox

#designsuccess #proudtigermother

1683 views!

http://ihavefoodallergies.tumblr.com

B’s Trilogy Part 2: Ingredients and Food Handling

B’s Trilogy Part 3: Asthma

DESIGN

FAIL

Design Insights

about the Production of Health and the Future

of Medicine

We were

experts

We were

makers

We were

collaborators

Patient as

expert maker

collaborator #futureofhealthcare

Part #2 of the journey:

“Learning to design is learning to see”

-Oliver Reichenstein

#design #suckiness

The needle

is opposite

to the cap,

which is

counter-

intuitive

Design Flaw #1

>15,000 Unintentional injections from Epi-Pens in the US

between 1994-2007

There were

0

500

1000

1500

2000

2500

3000

< 6 yrs 6-12 yrs 18-64 yrs

Total

13-17 yrs >64 yrs

Unintentional Injections with Epinephrine auto-injectors

Simons, 2010

Greenberg, 2010

“Despite instructions rendered on the package insert, a large number of health care professionals including nurses, paramedics, and physicians inadvertently self-inject while attempting to administer the EpiPen to patients. One recent report chronicles a 6-year experience at a single US poison center that fielded 365 epinephrine injections to the hand.”

Trained health care providers can’t even use the pen properly!

Life or

death is

stressful!

Don’t make

me think!

Design Flaw #2

It’s an awkward

size, &

doesn’t fit in your

pockets

Design Flaw #3

Whoa the

cap &

needle are

at the

same end!

It

tells you

what to

do!

“Bad Design Causes Injury”

“Good Design Saves Lives!”

Design Insight

It’s thinner

and

shorter &

fits in your

pocket!

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And it

reminds me

when to

refill

“Aesthetics Do Matter for Health”

Design Insight

It was designed by patients!

“patients frequently do not understand how and when to use [the epi-pen].”

Sicherer, 2011

In medicine, we often blame the patient

“patients frequently do not understand how and when to use [the epi-pen].”

Sicherer, 2011

But is it a patient problem or is it a design problem?

Design

flaw:

The needle

is opposite

to the cap

“Children had only used their EpiPen device in 29% of recurrent anaphylaxis reactions. This is perhaps unsurprising because a fear of needles/injections is common”

Sicherer, 2011

In medicine, we often blame the patient

“Children had only used their EpiPen device in 29% of recurrent anaphylaxis reactions. This is perhaps unsurprising because a fear of needles/injections is common”

Sicherer, 2011

But is it a patient problem or is it a design problem?

Design

Flaw: It’s confusing to

use in a

scary

emergency

“patients often forget [the device], allow it to expire”

Sicherer, 2011

In medicine, we often blame the patient

But is it a patient problem or is it a design problem?

“patients often forget [the device],

allow it to expire”

Sicherer, 2011

Design

Flaw:It’s too long & wide

& where’s the app to

go w/it?

Patient problems are really

design problems

Joyce Lee, MD Medical Designer

Fix the design, and it’s no longer the

patient’s problem

Joyce Lee, MD Medical Designer

Let patients and caregivers design, and they will

fix the problem!

The Nightscout Project

75% of children fail to achieve

recommended blood sugar goals in Type 1 Diabetes

75% of healthcare providers/

systems fail to help children achieve recommended blood

sugar goals in Type 1 Diabetes

Part #3 of the Journey

#polarvortex

Applying Design Thinking to Healthcare

Curricular collaborations

Design Workshops

Human-Centered Design Thinking

User-Centered Problem Solving

Patient-Centered Design Thinking

Participatory Problem Solving

Empathy Prototype Define Ideate Test

Empathy Understand a problem

before solving it

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Define Patient-defined problem

Ideate Collaborative, creative

brainstorming

Prototype Sketch, draw, glue, code

Test Iterative Feedback from User

Design My Diabetes Solution

#diabeticons

Diabetesevangelist.com

@jakiebones & @TheTrevorTorres

“A” & @robokittycat

Maker Movement

Do It Yourself (DIY)

Learning by Doing

Peer-to-Peer

“The essential democratization of the technology has

happened; once you put the tools in the hands of

everybody, it liberates the ideas and creativity of so many

people”

-Chris Anderson

Maker Movement

Participatory Design =

DIY = Expert

Learning by doing = Maker

Peer-to-Peer = Collaborator

We #makehealth

Design = A Distraction

A critical tool for the creation of health

Expert “Doctors are

experts, not patients  

 

#cultureofhealthcare

“Only certified health professionals should be creating health”  

 

Maker

#cultureofhealthcare

“Health is created doctor

TO patient”  

Collaborator #cultureofhealthcare

The Secret Life of Medical Devices

Hacking Diabetes Workshop

Resident Signout Deserves

Great Design

MD to Patient Passive Solitary

Patient to Patient Active

Collaborative

“Don't cry” (said the boy to his mom)

#waitingwaitingwaiting

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