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Doctors + Patients X Data Sharing = REAL Health Care Reform Casey Quinlan Professional Rabble-rouser

Information is the cure

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Want to heal healthcare? Open data is the cure. Communication will lead to collaboration will lead to transformation.

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Page 1: Information is the cure

Doctors + Patients

X Data Sharing =

REAL Health Care Reform Casey Quinlan

Professional Rabble-rouser

Page 2: Information is the cure

The gift no one wants...

Page 3: Information is the cure

drawingon the rightside...

can keepyou fromlosing your****

Page 4: Information is the cure

any patientcanrelate...right?(and we areall patients)

Page 5: Information is the cure

If they’re not using sharp objects, they’re making us wait.

And wait. And wait...

Page 6: Information is the cure

I’m on record:

I’m willing to

get one of

these if it

means NO

MORE FORMS

Page 7: Information is the cure

Here’s a revolutionary

idea:Let patients**

help!

**the most under-used resource in

health care

Page 8: Information is the cure

“Gimme my damn data.”

E-patient Dave

deBronkart

Page 9: Information is the cure

Why can’t they both access the

same patient data?

Page 10: Information is the cure

If doctors andpatients could

freely exchange information and data,

who knows what might happen?

Page 11: Information is the cure

HIPAA gets blamed for

the information blockage …but that’s a

cop-out.

Page 12: Information is the cure

This is what happens with

a paternalisticapproach.

Empower the patient!

Page 13: Information is the cure

patient

current health care delivery system

Page 14: Information is the cure

To survive your trip through the health care car wash,

stay inside the car by asking questions.

And demanding real answers.Participate fully.

Live - or die - by the decisions you make.

Own your health care byowning your data!

Page 15: Information is the cure

Annual health care spend in the US:

$2.3 Trillion-with-a-T**2008 number 2014 = +$3 T

Page 16: Information is the cure

Our current conundrum?We want cutting-edge care,

we want second, even third opinions, we bitch about $100 co-pays, we want to never have a bad

outcome. Oh, and by the way, we don’t want to

pay for it.**

**Is this perception, or reality?

It’s both.

Page 17: Information is the cure

Transparency on provider cost is essential.

Put it on the practice’s web site.Even its Facebook Fan page.

No, I’m not kidding.

Page 18: Information is the cure

talk

listen

learn

act

Page 19: Information is the cure

INFORMATION IS

POWER

SHARING IT IS THE

REVOLUTION

Page 20: Information is the cure

patient

doctorshospitals

designatedcare-givers

payers

outpatient facilities

nirvana = Information!

Page 21: Information is the cure

There is a glimmer of hope on the horizon:

ParticipatoryMedicine.org

Page 22: Information is the cure

Wanna know more?

Ask me.

Page 23: Information is the cure

Information will cure us

all!