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Advance care planning

Claire Henry MBE

Chief Executive

National Council for Palliative care

@clairehenry_

@NCPC_tweets

www.ncpc.org.uk

The National Council for

Palliative Care

The umbrella charity for palliative and end of

life care

Our Vision:

Everyone who has palliative care needs or is approaching the end of life, dying or bereaved should receive the high quality care and support they need, where and when they need it.

www.ncpc.org.uk

Influence government policy

Supports all sectors involved in providing, commissioning and all using services

Promotes equity of access to palliative care and good end of life care for all

Develop new approaches to care and support

Dying Matters coalition

Provides practical resources, training and events

The National Council for

Palliative Care

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Context

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• Every minute someone in the UK dies

• Still too may reported cases of poor care

• Wide range of providers of palliative and end of life care

• More older people living longer with multiple conditions

• More will die each year

• 72% say they would like to die at home

• 48% of people die in hospital, 23% die at home, 21% die in care homes,

• 6% die in hospice (ONS 2014)

• However, 82% said that they felt their relatives had died in the right

places

• (VOICES survey 2014)

• Diverse workforce

• As a society we are often uncomfortable discussing dying, death and

bereavement

• The impact of bereavement can be long-lasting

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Inequalities

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Context (2)

• Rising demand

• Variation – 24/7

• Data and outcome measurement

• Austerity and resources

• Priority given to end of life care

• Fragmentation

• Workforce

• Commissioning

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A new National

Commitment

“Our commitment is that every

person nearing the end of their

life should receive attentive,

high quality, compassionate

care, so that their pain is eased,

their spirits lifted and their

wishes for their closing weeks,

days and hours are respected”

Ben Gummer MP

Parliamentary Under-Secretary of State

for Care Quality

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What's important to me

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National Commitment

1. Honest Discussions about your needs and preferences

2. Being able to make informed choices about your care

3. Personalised care plans for everyone to review and

revise with you throughout the duration of your illness

4. The opportunity to share your personalised care plans

with your care professionals

5. The involvement of your family, carers and people who

are important to you in discussions about your care to

the extent you wish

6. Knowing who to contact at any time

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The National Commitment

Some key points• Round the clock access to reassurance, support, advice

and care

• Better training and education on end of life care for

healthcare professionals

• Better community care through local urgent and emergency

care hubs, new care coordinator roles and pilots of community

nursing provision

• Strong support for the Ambitions framework to drive local

change & innovation

• A new suite of metrics on both quality and choice for CCGs

• Partnership working with system partners in the voluntary sector

• Personalised care planning & record-sharing

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www.ncpc.org.uk www.dyingmatters.org

What is Advance care planning?

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Definition of ACP

Advance care planning (ACP) is a voluntary process, in which individuals can

set on record choices about their care and treatment and, in particular, any

advance decision to refuse a treatment in specific circumstances, including

those where they may have lost capacity in future. Under the terms of the

Mental Capacity Act (2005), formal outcomes of advance care planning

might include one or more of the following:

• Advance statements.

• Advance decisions to refuse treatment.

• Lasting power of attorney (LPA)

(Capacity, care planning and advance care planning in life limiting illness A

Guide for Health and Social Care Staff NHS 2011)

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What are the challenges?

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What are the benefits

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How do we move

forward?

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What do we need to do?

www.ncpc.org.uk(Bevan H & Forman S) – 2014 - The new era of thinking and practice in change and

transformation

http://theedge.nhsiq.nhs.uk/wpcontent/uploads/2016/02/nhsiq_white_paper.pdf

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What are we trying to

accomplish?

How will we know that a

change is an improvement?What changes can we make that

will result in the improvements that we seek ?

Model for improvement

Act Plan

Study Do

Aims

Measurements

Interventions

19

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Our ultimate goal

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For more information about either

NCPC or Dying Matters visit

www.ncpc.org.uk

www.dyingmatters.org

8th – 15th May 2017 Dying Matters week

Or call

NCPC - 020 7697 1520

Dying Matters – FREEPHONE - 08000

2144 66

www.dyingmatters.org