Social Media for Diabetes:

Step Up to the Genius Bar

To Patti Geil, RD, CDE, AADE 2013 Annual Meeting Chair!

http://www.flickr.com/photos/jenosaur/4051305996/

Schedule

• 1:00 – Introduction• 1:15 – Presentation• 2:30 – Break, table assignments• 2:45 – Genius Bar - this is you!• 4:00 – Up and Coming• 4:15 – Q&A

Amy TenderichEditor-in-Chief of DiabetesMine.comwww.diabetesmine.comOne of the world’s Top 20 Health Blogs

Diabetes advocate, Book author@DiabetesMine@AmyDBMine

Facebook.com/DiabetesMine

Welcome!

• Twitter Hashtag– #AADE13GENIUS

• So… Why Are You Here?

What Are YourSocial Media Goals?

Three Social Media “Buckets”– Patient Social Media (to support your patients)

- what are patients doing online and why does it matter?

Your Provider SM Presence - engaging with your patients online

Professional Development - your online reputation/resume/peer networking/business opportunities

–

–

Technology Adds Value!

• More Tools to Succeed• Access to a Wealth of Data

= More Proactive Diabetes Care… for you and your patients!

Manny HernandezDiabetes Advocate

President, Diabetes Hands Foundationwww.DiabetesHandsFoundation.org

Social Strategy Consultant

@askmanny @diabetesHF

STATE OF THE UNION

offering, getting support

http://epatientdave.com/2012/10/18/see-you-in-the-library.-yes-that-library

increasing knowledge

making a differencehttp://bigbluetest.org

1997 2002 2007 20120

5

10

15

20

25

30

25.8

Millions of people (Dx with di-abetes) in the US

http://www.diabetes.org/for-media/2013/annual-costs-of-diabetes-2013.htmlhttp://www.cdc.gov/media/pressrel/2010/r101022.html

“2050: 1 in 3

US adults

could have

diabetes”

Cost of diabetes in the US

1997 2002 2007 2012$0

$50

$100

$150

$200

$250

$300

$245

US$ Billions $245 billion

= GDP (2012)

= Combined

revenue

(2012)

http://www.diabetes.org/for-media/2013/annual-costs-of-diabetes-2013.html

People on Facebook who “like” diabetes mellitus

Likes0

500,000

1,000,000

1,500,000

2,000,000

2,500,000

3,000,000

230,000

2,416,060in the US alone!

20112013

Registered members in 3 online communities

Members (DiabetesDaily.com, TuDiabetes.org, EsTuDi-abetes.org)

0

20,000

40,000

60,000

80,000

100,000

120,000

140,000

160,000

180,000+66%

20112013

Participants in Diabetes Blog Week

Blogs0

50

100

150

200

250

+48%

20102013

Last 12 months: a crowdsourced view

• #DSMA goes international:– #GBDOC: Wednesdays, 9pm GMT– #OzDOC: Tuesday 8.30 AEDT

http://www.tudiabetes.org/profiles/blogs/the-state-of-the-diabetes-union

Last 12 months: a crowdsourced view

• Google Hangout enabled:– 60+ Live Interviews on TuDiabetes/EsTuDiabetes– Diabetes Hope Conference

http://www.tudiabetes.org/profiles/blogs/the-state-of-the-diabetes-union

Last 12 months: a crowdsourced view

• DOC still disproportionately T1D– We need to find ways of being more inclusive and

supportive of the majority of PWD who have T2.– The Type 2 Experience:

• http://thetype2experience.com/

http://www.tudiabetes.org/profiles/blogs/the-state-of-the-diabetes-union

Last 12 months: a crowdsourced view

• Self correction is key: – To earn respect from medical professionals– To address misinformation from patients– To identify and reject quackery

http://diabetesadvocates.org

Website: hopewarshaw.com

Facebook(like): eathealthylivewell

Twitter: @hopewarshaw

Blog: hopewarshaw.com/blog

PATIENTS AND SOCIAL MEDIA: THE RESEARCH

“Humans have fundamental need for support and social connections.” Edwin Fisher, PhD, Global Director,

Professor UNC School of Public Health

peersforprogress.org

Value of Online e-patient Communities• Concepts IDed by PWD and HCPs fit broadly within

definition of peer support.1 • Plus…

– Ongoing social and emotional support– Feeling supported, giving support– Self reflection– Connection and interaction with peers– Sense of community

1. Gilbert, K., Dodson, S., Gill, M. & McKenzie, R. Online communities are valued by people with type 1 diabetes for peer support: How well do health professionals understand this? Diabetes Spectrum. 2012;25(3), 180-191.

Is There Proof (aka research) Social Media Improves Outcomes?

When PWD Engage in Social Media do they: • Have better metabolic control?• Experience fewer acute, chronic

complications?• Feel more supported? Less isolated?• Experience less depression and more

emotional wellbeing? http://www.npr.org/blogs/health/2012/12/03/166241115/social-media-helps-diabetes-patients-and-drugmakers-connect (12/3/12)

Jury is still out, but research is being conducted and is accumulating.

We’ve Entered Era of e-patient• Definition electronic patient:

– Patients/caregivers equipped, enabled, empowered, and engaged in their health care due to availability of Internet health info: “Internet has revolutionized communication, access to information, and knowledge… [An] outcome…is democratization of health knowledge: removing it from the sole purview of clinicians to the shared purview of consumers.”

– “Peer-to-peer healthcare is a way for people to do what they have always done – lend a hand, lend an ear, lend advice – but at internet speed and at internet scale.”1

– ACA IDs patient engagement as an integral component of quality in ACOs and PCMH2,3

1. Fox, Susannah. “Medicine 2.0: Peer-to-peer healthcare.” www.pewinternet.org/. 18 Sept. 2011. Web. 10 Apr. 2012. 2. James J: Patient engagement. Health Affairs. 2013 (February). http://www.healthaffairs.org/healthpolicybriefs/brief.php?brief_id=86

(Summary of findings from February 2013 issue of Health Affairs.) 3. U.S. Department of Health and Human Services. Affordable Care Act to improve quality of care for people with Medicare. 2011. Available

at: http://www.hhs.gov/news/press/2011pres/03/20110331a.html.)

Areas of e-patient Research: General, Diabetes-specific

Two buckets:• e-patient/PWD to e-patient/PWD

– Informal: Ex diabeticconnect.com, Twitter/Twitter chats

– Formal: peer support program

• e-patient/PWD to HCP– Individual’s HCPs (using technology)– HCP as online coach for program– General HCP content expert online

A Bit of Research IS Published

• Patients made more informed treatment decisions, managed symptoms more effectively, and coped with side effects of treatments by participating in the patientslikeme.com website.1

• Participating in an online support group resulted in improvements in medical decision making, personal empowerment, and positive behavioral outcomes.2

1. Wicks P, Massagli M, Frost J, et al. Sharing health data for better outcomes on PatientsLikeMe. J Med Internet Res 2008;12(2). Available at: http://www.jmir.org/2010/2/e19/.

2. Barak A, Boniel-Nissim M, Suler J. Fostering empowerment in online support groups. Computers in Human Behavior 2008; 24:1867-83.

Further Research on e-patient

“A newly developing partnership may open the doors to a broader concept of wisdom as well, one in which the patient is not simply a consumer of the clinician’s wisdom but in which collective wisdom is enhanced by an exchange of knowledge. Further study on both the safety and quality of the e-patient experience is needed, as well as evidence of improved health

outcomes resulting from e-patient engagement.”1

1. Gee PM, Greenwood D. et al. Exploration of the e-patient phenomenon in nursing informatics. Nursing Outlook. 2012; 60(4).

AADE Session: The e-Patient Revolution, Personal Health Records and Diabetes Self-Management Support, Deborah Greenwood and Perry Gee, Date: Wednesday, 2:00 PM - 3:30 PM, Rm: 118

DIABETES SOCIAL MEDIA: PROFESSIONAL DEVELOPMENT

Develop Your Profession or Practice Online

• Learn • Connect• Shareand Grow…

Learn Online…

Skills, Knowledge:Webinars/lectures-a-plenty • free or fee, realtime or on demand,

CE or non CE)– Associations: AADE, DCE, SurroundHealth– Corporate or Trade association sponsored– Interviews: diabetesmedtalk

Connect and Share Online…• Member-based organizations:

– AADE: myAADEnetwork, member blogs – DCE list serv

• Diabetes/HCP professional communities:– PRESENTdiabetes.com (eTalk)

• Social media: – Twitter (Wed night RDchat) (@AADEdiabetes)– Facebook with colleagues, associations– LinkedIn with individuals, join groups– Google+

Tool/Handout: Connect YOUR Clients to the DOC

Web version with links, downloadable/printable version available at: http://www.hopewarshaw.com/connectdiabetes

Grow…Practice, Business, Career Online

• Promote your practice, org• Promote, sell your products • Seek career opportunities

ENGAGEMENT GUIDELINES: DO’S & DON’TS

David EdelmanCo-Founder, Diabetes Daily

diabetesdaily.comfacebook.com/diabetesdaily

Email Me!david@diabetesdaily.com

#1: Focus on Your Goal

#2: Be Authentic

• Use your name• Use your face, not a logo• Speak colloquially, not like a newspaper or journal• Smile

#3: Observe Before Participating

#4: Don’t Be Boring!

#5: Get Smart About Self-Promotion

• Be a giver, not a taker• People like to promote those who promote

them. • Links, retweets, and kind words are

inexpensive but enormously valuable. Everyone up here has groomed supporters by helping their peers become successful.

#6: Be Consistent

• Post often, but not too often. • Use auto-scheduling tools like Hootsuite

(Twitter/Facebook/Google+), Scheduled Posts (WordPress), Facebook Scheduled Posts to improve consistency.

“Consistency is far better than rare moments of greatness”

- Scott Ginsberg, Author

#7: Learn What Works

• How Tos• Top 10 Lists• Motivational quotes• Affirmations• Little known facts• Highlighting Heroes• Good v Evil

#8: Respect Ownership

• Always give credit to the source of your ideas.• Don’t quote more than 2 or 3 paragraphs

without making it a new work through significant commentary. This is the respectful, moral and legal approach.1. Quote a paragraph2. Add your own commentary3. Return to Step 1

#9: Save Time, Re-Purpose Content

• Write a great article with 10 steps to better diabetes management? Each step can become a Facebook post or tweet.

• Always be on the look out for facts, anecdotes and experiences that excite you. Jot down notes and quickly add to your schedule post queue.

#10: Monitor What People Say About You

• Use Google Alerts to get emailed when someone writes about you or one of your social media channels. – Thank those that promote you.– Intervene when someone says something

inaccurate. – Get insight into how people view you online.

#11: Experiment... And Learn!

DE’S USING SOCIAL MEDIA

Build Your Program/Practice• Kit McKinney, RD, CDE• G.E.T. Diabetes Education, LLC East TX

• Why?– Gets biz name out– Broad reach, nearly no cost– Quick, easy, do in my “spare time”– Fits demographics of my clients

(older), they use Facebook

Promote Products and Services • Gary Scheiner, MS, CDE (aka

Diabetes Educator of 2013)• Integrated Diabetes Services

Wynnewood, PA• Business owner, consulting, entrepreneur

• Why?– Learn: stay abreast of research and technology

happenings– Engage clients: more are web savvy and turn to

Internet for info – Provide: be a resource for accurate/appropriate info– Market: supply content to blogs and websites to

increase exposure, credibility and extend reach beyond your zip code

Conduct Research

• Michelle Litchman, NP– Clinician, Salt Lake City, UT

• Why? – Social media enthusiast and e-patient

supporter– Working on PhD in Nursing

• Thesis:“A Multidimensional Analysis of Peer-to-Peer Health and Apomediation Theory in a Diabetes Online Community”

Be Entrepreneurial

• Jill Weisenberger, RD, CDE • Jill Weisenberger Health

Communications, LLC• Freelance writer, author,

consultant, entrepreneur• Why?

• Build reputation, professional brand • Promote accurate diabetes/

nutrition info • Be an advocate for PWD

ETHICAL AND LEGAL ISSUES

Your Institution/Employer? WHOA, NO or GO?

• We asked: If you work for an institution or employer, do they have concerns about you/your program engaging in social media? – If Yes, concerns/hurdles?

• Patient Privacy, confidentiality - HIPPA

• Risks for the institution/employer • Too time consuming for the ROI • Lack of resources (human or

material)

• You responded: – YES, Patient Privacy, confidentiality - HIPPA

Mayo Clinic’s 12 Word Social Media Policy

Don’t Lie, Don’t Pry, Don’t Cheat, Can’t DeleteDon’t Steal, Don’t Reveal

Should You Have Ethical and Legal Concerns about Engaging in Social Media?

Should these STOP YOU from engaging?

Who Has Weighed In?*

http://womma.org

www.ncsbn.org

*See handout with references

Ethical & Legal Guidance*• Look to your professional associations’ code of ethics

– general, specific to social media• Act ethically and within legal bounds of professional

practice– Share research-based content only– Don’t plagiarize without attribution– Don’t “air dirty laundry” about fellow HCPs, associations

• Be transparent/disclose endorsements, sponsorship, advertising – Follow professional association, FTC, other guidance

• Respect people’s/patient’s privacy, confidentiality, think HIPPA– Don’t share: info about patients, encounters; no

disparaging remarks; no photos with patients

*See handout with references

Codes and Badges for Ethical Practice in Social Media to Display

http://www.rds4disclosure.org/

http://www.hon.ch/med.html (Health on the Net Foundation)

http://www.blogwithintegrity.com/

Proceed with Caution and Stay Up-to-Date on Rules of

Engagement

Get Help and Learn More • Challenge = TIME!!! (Time = $$$)

– to learn, to do

• Advice: – Start with 1 platform that best fits needs, goals,

resources (time, money)– Jump in, gain confidence and mastery

• Get a geek to teach or do– Intern or new grad in your profession, social media or

computer training program– Teenager/20-something – yours, neighbor, friend’s

• Learn skills online: – http://www.lynda.com/– Others?

Video of Provider Social Media Panel: http://dd4.us/smpanel

UP AND COMING…

Platforms to Watch• Pinterest – huge online “Pinboard”• Instagram – photo twitter service,

acquired by Facebook April 2012• Twitter Vine – share bitesize video, 6 sec

max• Google+ – social networking via

“circles”

Visual, Addictive…

Pinterest

• Add info here

Mobile Everything

CONNECTING VIA APPS

Diabetes Logging/Coaching Apps

+

Learning Apps

Lifestyle Apps

MyFitnessPal

Lose It!

Action > Rewards!

• 4x/day logbook• Motivation,

education• Cash for iTunes!

KEEPING UP?

How to Keep Up…

1. Remain calm2. Listen, listen, listen3. Search and ask4. Make changes incrementally

Search the Web for “How-To’s”

• Google terms like “tools” and “tutorial”• Medscape has a Social Media Primer for HC

Professionals• On YOUTUBE:

– HootSuite Beginners Tutorial– Top Twitter Tools Exposed& Explained at Lightning Speed!

Future Trends

“Social Technology Powered Care”

• Apps that check in with patients

• Shared medical records accessible from anywhere

• Virtual “meeting places” for patients & providers

New Business Models?

Social Media >> Collaborative Care

• Increased reach & impact (remote areas, fromhome)

• Easy shared access to latest clinical guidelines& research

• Better communication/ coordination: Interface with family members, other providers

Further Reading

• “Is There a Role for Social Technologies inCollaborative Healthcare?”

(American Psychological Association, 2011)

• “Social Media ‘Likes’ Healthcare: From Marketing to Social Business”

(PwC Health Research Institute, 2012)

Assess Your Own Realistic GoalsThree simple questions:

• What do you hope to achieve with social media?– Priorities?

• How much time do you want to/can you commit?– Per day, week, month?– Think when?

• What’s your timeframe?– Specific to each goal?

Q&A (AND THANK YOU!!)