“Mapping lung cancer diagnostic pathways: a qualitative study of interviews with lung cancer patients and their caregivers” Ms Sarah York, Dr Nicole Rankin, Ms Michelle Lai, Prof Phyllis Butow, Prof David Barnes, Dr Rob Zielinski, Dr Emily Stone, Prof Tim Shaw

Sydney Catalyst Translational Cancer Research Centre,University of Sydney

Adapted from Canadian Institutes of Health Research

Knowledge to Action (KTA)

Evidence to practice gaps

Priority setting Process mapping

Pathways to diagnosisTimely diagnosis and referral for treatment

Lung Cancer Pathways - Literature

• 3 main routes to lung cancer diagnosis: primary care, emergency department or incidental finding

• UK study: 61% via primary care, 23% via ED and 11% incidental findings (Barrett & Hamilton, 2008)

• Australian audit: 68% GP, 12% ED (Largey et al, 2013) - Small sample size (n=25)

• Despite complexity, very little Australian data documents patient pathways in lung cancer.

Adapted from Canadian Institutes of Health Research

Knowledge to Action (KTA)

Evidence to practice gaps

Priority setting Process mapping

Pathways to diagnosis

Medical record audit

GP & ED physician interviews

Patient & carer interviews

Pathways to diagnosis preliminary results

Consumer interviews - demographics N = 18Age, mean (range) 63 (39-82 years)Females, n (%) 10 (56%) Males , n (%) 8 (44%)Area of residence

Urban (metro Sydney) 11 (61%)Regional town 7 (39%)

Smoking status, n (%): Non-smoker 6 (33%)Smoker (at time of diagnosis) 3 (17%)Ex-smoker 5 (28%)Did not reveal 4 (22%)

DRAFT

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DRAFT

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Adapted from Canadian Institutes of Health Research

Knowledge to Action (KTA)

Pilot implementation project

Evidence into Practice (T2/T3) Working Group Tim Shaw (Chair)Nicole RankinJane YoungPhyllis ButowKate WhiteLyndal TrevenaDeb McGregor

Collaborating sites

Philip BealeSallie PearsonJane PhillipsJohn SimesPuma SundaresanSarah York

Western NSW LHD: Ruth Jones, Rob Zielinski & teamSt Vincent’s Hospital/Kinghorn: Emily Stone, Alan Spigelman & teamRoyal Prince Alfred Hospital/Lifehouse: David Barnes, Philip Beale & team