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Learning Disability and Dementia: The Importance of Relearning Practice Karen Watchman Trainer and Consultant Copyright Karen Watchman, 2012

Intellectual disability and dementia - the importance of relearning practice

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Karen Watchman presents part of a recent conference presentation at IASSID World Congress in Halifax, Nova Scotia

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Page 1: Intellectual disability and dementia - the importance of relearning practice

Learning Disability and Dementia: The Importance of Relearning Practice

Karen Watchman

Trainer and Consultant

Copyright Karen Watchman, 2012

Page 2: Intellectual disability and dementia - the importance of relearning practice

Programme

• Introduction to LD

and dementia

• Similarities and

differences

• Relevance to

practice

All images are from ‘Supporting Derek’ resource pack, photographs are actors.

Copyright Karen Watchman, 2012

Page 3: Intellectual disability and dementia - the importance of relearning practice

What is different?

• Age

• Diagnosis

• Progression

• Communication

• Family situation

• Where people live

Copyright Karen Watchman, 2012

Page 4: Intellectual disability and dementia - the importance of relearning practice

What is not different?

• Need for support

• Need for information

• Interventions

• Consider medication

• Need to keep active

• Terminal condition

• Need for pain

detection

Copyright Karen Watchman, 2012

Page 5: Intellectual disability and dementia - the importance of relearning practice

Early changes identified

• Loss of daily living

skills

• Difficulty with kerbs

• General inactivity

• Loss of sociability

• Increased irritability

• Loss of hobbies

previously enjoyed

• Stop spontaneous

communication

• Confusion

• Loss of

comprehension

• Increased walking for

no obvious reason

• Short term memory

loss (shown in

different ways)

Copyright Karen Watchman, 2012

Page 6: Intellectual disability and dementia - the importance of relearning practice

Diagnosis

• Diagnosis difficult

• Typical tests not suitable

• Some assessment tools

• Baseline assessments

• Diagnosis or explanation

not always shared with

person with LD

Copyright Karen Watchman, 2012

Page 7: Intellectual disability and dementia - the importance of relearning practice

Misdiagnosis

• Other physical

conditions

• Undiagnosed pain

• Emotional or grief

• Social

• Effects of

medication

Copyright Karen Watchman, 2012

Page 8: Intellectual disability and dementia - the importance of relearning practice

Communication

• Not always

verbal

• Importance of

body language

• Touch

• Pictorial

• Knowledge of

past history

important

• Communication

with the person

• Sound of silence

Copyright Karen Watchman, 2012

Page 9: Intellectual disability and dementia - the importance of relearning practice

Communication

• Importance of pictorial communication

• Importance of appropriate touch and affection

• Individual preferences

• Importance of silence

• Beware of under or over estimating ability

• Environmental impact

• Knowledge of previous communication strategies

• Implications of lack of shared diagnosis

Copyright Karen Watchman, 2012

Page 10: Intellectual disability and dementia - the importance of relearning practice

Recommendations for relearning practice

• Sharing some information about the diagnosis as an ongoing process

• Training – specialist and general

• Crossover of training between LD and dementia services

• Revise long term goals – still person centred if not independent living

• Location of care?

• Intellectual disability services to coordinate care (not older peoples services)

• Role of people with ID and dementia as experts?

• Future inclusion in research and policy

• Adapting and individualising communication

Copyright Karen Watchman, 2012

Page 11: Intellectual disability and dementia - the importance of relearning practice

Contact Details

Karen Watchman

Email: [email protected]

Web: www.learningdisabilityanddementia.org

Twitter: www.twitter.com/karenwatchman

Copyright Karen Watchman, 2012