Identity & Health in a Digital World (Emory)

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Identity & Health in a Digital WorldDeborah Gonzalez, Esq.Global Health & Humanitarian SummitEmory, April, 2013

Welcome & Overview

Digital IdentityDigital HealthDigital Global Health ConcernsSolutions & Lessons Learned

Digital IdentityExcerpt from the report: Digital Identity Matters (2010)

Our relationship with the Internet is changing. Mobile devices, wireless connectivity, and our increasing virtual presence across multiple social media services have all but collapsed the boundary between being online or offline.

The Context

Together the virtual and the real form the seamless space in which many of us live out our daily lives. We fashion the self through social interaction, community and network affiliations, and here come to construct our identities as well as interpret the identity of others.

http://www.pontydysgu.org/2010/06/digital-identity-matters/

Digital Identity

Beyond the Physical,But based on the Physical.

Defining Identity: Digital

A set of data that uniquely describes a person or thing and contains information about the subjects relationships to other entities.

http://en.wikipedia.org/wiki/Digital_identity

Defining Identity: DigitalDigital Identity Elements:

Authentication ElementsID #, IP address, email address, user name, password, etc.DataIdentifiersPhotographs, avatars, logo, images, etc.Digital TracesContributions to blogs, links, etc.

Source: CRIM & Quebec Government

Digital Health

Health 2.0E-HealthWireless WellnessDigital DiagnosisTele-health

Digital Health v Health Technology

Technology in terms of equipmentInformation Storage (patient records)Physical Innovations: robotic limbs

Digital Healths 8 Convergent Elements

Wireless Sensors and Devices Genomics (A, C, G, T = digital) Social Networking Mobile Connectivity and Bandwidth Imaging Health Information Systems The Internet Computing Power and the Data Universe

Dr. Eric Topol, "The Creative Destruction of Medicine: How the Digital Revolution Will Create Better Health Care"

Digital Global Health ConcernsAccess to InformationKnowledgeExperts

Obstacles to AccessCost ($$)TechnologyCommunications Channels

Digital Global Health ConcernsDiseasePromote HealthPreventive MeasuresPrevent International Spread

Lifestyle ConditionsDiabetes and obesityMental illnessInternet Addiction/Facebook PsychologySubstance abuse/use disorders, including tobacco useInjuries

Digital Global Health ConcernsGenetic ConcernsBio-PiracyClinical TrialsGenetic Discrimination

Insurance CoverageBig DataPrivacy

Solutions & Lessons LearnedHealth Technology & Digital Products$14 Billion MarketApps & Mobile Health MarketWearable Sensors/Feedback TechnologyMonitoring Apps for Preventive HealthcareGamification (Motivation, Fitness)Virtual Treatments/Cross-cultural Medical TeamsRobots

Solutions & Lessons LearnedHealth Technology & Digital ProductsPatient IndependenceAccessibility for the Disabled

Social as Holistic Health HelperCommunities as ResourceCommunities of Support

Solutions & Lessons LearnedHealth & Technology RegulationGenetic Information Nondiscrimination ActHITECH Act (technology breaches)HIPPA (privacy)Health Information Technology for Economic and Clinical Health AcElectronic Health Records RulePatient Safety Rules/Bill of Rights

Solutions & Lessons LearnedHealth & Technology Regulation (Intl)United Nations Institute for Training & Research (UNITAR)World Health Organization1948 Universal Declaration of Human Rights (Right to Health)Connection between Health & Human RightsInternational & Global Health Institutes

Q&A

Thank You!

Deborah Gonzalez, Esq.Law2sm, [email protected]@law2sm.com