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No Fire Alarm scheduled todayIf Alarm rings please make your way safely to the EXIT, a member of the hotel staff will direct you to the meeting point
FREE WiFi is available to all delegatesConference name: NHS2Password 123KLJJoin us live on Twitter#NHSThinkCarer
http://www.nhsiq.nhs.uk/improvement-programmes/experience-of-care/commitment-for-carers.aspx All refreshments during the day will be served in the foyer outside Booker & Turner Suites
Hearing Loop available
Photographs will be taken during the meeting
Philippa Russell,
Chair,
Standing Commission on Carers
E-mail: [email protected]
Better Outcomes for Carers and those they support - Developing Commitment to Carers across the NHS and Social Care
‘Recognised, valued and supported’ – WELCOME to an ambitious day committed to improving outcomes for carers. Our aims are:- To improve understanding of the health service
responsibilities towards carers as set out in the Mandate and the Carers Strategy Refresh.
To recognise and value carers’ voices and expertise.
To determine the health service’s role in supporting carers.
Identifying the barriers which prevent optimum support for carers.
Reaching a consensus on next steps to improve carers’ experience and support and agreeing commitments to achieve these goals..
‘Caring is not a career choice – we are here because we care but it’s hard sometimes. Remember there is usually a family behind the patient! Use us, respect us or lose us!’ [Family Carer, 2013]
Understanding 2lst Century carers - WHO cares? [Office for National Statistics, 2012, Carers UK, 2013]
5.4 million carers in England 500,000 dementia carers [9 million expected by 2037]
Greatest rise in those providing 20 hours or more a week (now 2.1 million people]
Numbers of carers providing 50 hours or more care a week [now 1,360,000 people].
74% of carers report impact on their own physical health, 94% on their mental health.
Developing commitments to carers: the background to this event
A survey of carers’ own views on their relationships with the health services.
Blogs and a webinar – and tweeting!
Raising the profile of carers as partners across the health services – and some key messages about what carers want.
Between October and November 2013 NHS Improving Quality ran a survey of carers in the U.K.
CARERS RESPONDED AND TOOK THE SURVEY
1
4 142
44
85 215 carers undertaking the survey were aged 30 to 65
Average carer looks after
3001.4 people
Majority of carers made aware of survey from: 1. Support groups (65) 2. Twitter (56) 3. Charities (54)
The majority of carers looked after:
1. Children (97) 2. Parents (94) 3. Spouses (79)
“Help me help the people I care for”carers feel they have had no help sign-posting them to relevant information and advice
95 that did have help mainly got it from charities and / or support groups
198
Out-of-Hours
Doctors/Paramedics
GPDistrict Nurses
Social Worker
Malcolm &Barbara
Consultant Continence Adviser
Speech & Language Adviser
Dietician
CommunityDentist
OccupationalTherapist
Equipment Service
PhysiotherapistAlternating
Mattress technician
Wheelchair Service
Oxygen serviceDirect
PaymentsTeam; Rowan
Org.
Alzheimer’sSoc outreach
worker
Care team2 live-in carers (alternating weekly)Replacement carer[Some night nursing – Health]Emergency carers & Barbara
Managing the Web of Care
(Last 7 yrs)
DementiaAdvisoryNurse?
Family Carers – no longer a ‘secret army’ but expert partners within a new NHS and social care system!
‘Resilience – a new metric for primary care and indeed the new NHS? There is more to medicine than medication. Let’s design and incentivise the promotion of individual carer, family, patient and whole family resilience for better health.’
[Dr Trevor Thompson (University of Bristol), Society for Academic Primary CareConference, 2012]
NHS England Savoy conference
Domain 2• “Enhancing the quality of life for people
with long-term conditions.
Dr Martin McShaneDirector – Domain 2 12
What the people we serve want wants….
Person centred coordinated care“My care is planned with people who work together to understand me and my carer(s), put me in control, co-ordinate and deliver services to achieve my best outcomes”
Communication
Information
Decision-making
Care planning
Transitions
My goals/outcomes
Emergencies
14
What’s the job?
Safe
What do we mean by high quality care?
GoodPatient
Experience Clinically Effective
Our Mission is: High Quality Care for All- now and for
future generations
How will we measure success?
Reducing premature
mortality
Treating people in a safe environment &
protecting them from avoidable harm
Ensuring people
have a positive experience of
treatment and care
Enhancing quality of life
for people with long term conditions
Helping people to
recover from episodes
of ill Health or following injuryWhat will
my care look and feel like?
I will feelin control of
managing my own condition(s)
I will feel supported
to keep healthy and spot any problems
at an early stage
My care and treatment
will be organised around me as
a person
I will feel my safety is everyone’s paramount concern, but if things
do go wrong people will be
honest with
me
My preferences
will be listened to and the feedback I provide will be acted
upon
I will always
be treated with compassion, dignity and
respect
I will get the best possible treatment in the most
appropriate setting and be fully supported to
recover
17
Organisational & clinical processes
Plan
Study
DoAct
Engaged, informed
individuals & carers
Commissioning
Person-centred,
coordinated care
Health & care
professionals
committed to
partnership working
Culture devours strategy…
Needs (met or unmet)
Mindsets and beliefs
Values
Individual behaviours
What we seeand attemptto address
What we don’t
see and don’t
know how to
address
SOURCE: Scott Keller and Colin Price, ‘Performance and Health: An evidence-based approach to transformingyour organisation’, 2010.
Spend time on the professions,
politics and public
Final thought
The good physician treats the disease; the great physician treats the patient who has the disease.
William Osler 19
NHS Improving Quality and NHS England
Group Activity 1
What are we currently doing to support carers?
NHS Improving Quality and NHS England
Group Activity 2What are the barriers to improving:
(a) Health services supporting the carer as an individual?
(b) Health services supporting the individual to care for another/multiple people?
NHS Improving Quality and NHS England
Group Activity 3
What are the priorities for NHS England/healthcare?