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“e-Patient Dave” deBronkart
Being Heard as Possibility
Generating a Conversation in Medicine for
Partnership with Patients Rochelle Frank, MD
acknowledging the support of Lorin Bacon, NP
The Question: How does one speak
into a predominant network of conversations
in a way that occurs as insight and not as a threat
to be defended against?
2007: My “Incidental Finding” Routine shoulder x-ray, Jan. 2, 2007
“Your shoulder will be fine … but there's something in your lung”
Classic Stage IV, Grade 4
Renal Cell Carcinoma
Illustration on the drug company's
web site
Median Survival: 24 weeks
“My doctor prescribed ACOR” (An online community of my patient peers)
Note: the ACOR group is now at SmartPatients.com
Belgian government’s Google Ad campaign, 2014
http://bit.ly/belgiangoogle
Insulting image from the campaign
showing a man who googled a symptom
and ended up scaring himself,
thinking he had this imaginary disease
Things look different when you shift your perspective
Source: Wikipedia, Copernican Revolution
They might even get way simpler
What could be said that would make any difference?
The question to ask if you want to generate a new conversation:
There really is no point saying anything else – right?
“How can this be, if things are the way
we’ve been trained to think??”
Next: Ask a paradigm-busting question
How can it be
that the most useful and relevant and
up-to-the-minute information
can exist outside of traditional channels?
The one I use:
My answer slide for that question:
(The internet’s “capillaries” have changed how information can flow)
“E” is not a new idea
• Doctor Spock’s Baby and Child Care (1946)
• Our Bodies, Ourselves (1973) “We weren't encouraged to ask questions, but to depend on the so-called experts,” Hawley told Women’s eNews. “Not having a say in our own health care frustrated and angered us. We didn't have the information we needed, so we decided to find it on our own.”
The one I use:
“I don’t know what I said until I know what you
heard”
A lesson from international diplomacy – being responsible for how you’re heard
Answer an unanswerable question in a way they can get
and a new view of life emerges.
The constraints the past imposes on their view of life disappear.
Their experience of being alive can transform.