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Double donation The Israeli Case study
Ofra Balaban-Kasztelanski M.A.
Chair CHEN Patient fertility Association, IsraelEXCO member of
Fertility Europe
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Non Profit Organizations have an important role in Health
Promotion at the national, European and international level.
While having ministry of health on one side ,
Pharma industry on second side,
professional doctors on third side we need to
look at the forth and most important actor/sector the patients
that are via NGOs that have the most influence in Health
Promotion/coverage needs and laws changing.
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In Israel, the role of NGOs is so important that they keep the
systems working,
like a start of a new law: Embryo donation.
The current situation:To donate an embryo is different
emotionally than egg donation or sperm donation.
We have to keep open mind and prepare a super sensitive law to
make it available.
We know that this is a major step in Israel.
We have the religion boundaries and the emotional ones - but we
need to start.
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We can learn from the Israeli case what can and should be
done.
In Israel, the clinic has to reserve the embryos for 5 years by
law. Now we face a situation that more than 150,000 frozen embryos
are "leftovers". After 5 years the embryosare still in 28IVF units
in Israel.
The situation is close to a disaster. It costs to keep them and
there is no room for all of them.
From time to time we can hear about mistakes that damaged the
embryos or defreeze them by mistake.
We need solution.
A new law that allows the option of embryo donation to another
patient.
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NGOs influence government and Knesset- to change laws for the
benefit of the patients
NGOs
Government
Knesset
Happy patient
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We in CHEN, decided to promote a new law that allowed parents to
sign, that after 5 years, the remaining embryos of their IVF, can
be donated to other patient.
The law is presented to the Ministry of Health and will be
presented to KNESST soon. That means that among other options of
keeping the embryo, defreeze it or donate for research of stem
cells, there will be the an option to donate the embryos to another
patient.
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We in CHEN have already experience of creating a law - the egg
donation law from non-patient donor. So we are the leaders of this
law. The new law will accompanied with a campaign for the members
of KNNESSTT so it should be passing the 3 needed votes. Than the
campaign will be for the doctors and clinics to be sure that the
patients will sign the papers before the IVF treatment started.
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This is a starting point and a plane for the coming
months.
We have all the reasons to believe that it will take a long time,
but, we, as patients association, have to keep it rolling.
We already convince a member of the KNNESSTT to take this law
and to promote it. We already convinces the Ministry of Health to
be our partner and to back it.
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We know that the road is long but must started before a massive
accident will occurred - meaning, wrong treatments in one of the
labs that will "kill" many embryos. It is a sensitive action.
To donate an embryo is different emotionally than egg donation or
sperm donation.
We have to keep open mind and prepare a super sensitive law to make
it available.
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In the European level the European umbrella NGO organizations,
Fertility Europe can do the same with the MEP and the EU Health
commissioner.
In an international level the same Fertility Europe
representatives participate in high level meetings of The EU and
WHO and present the patients voice.
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Thank you
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CHEN PATIENT FERTILITY ASSOCIATION
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25-10-16 07:23:39
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