Spectrum at 25: One agency's story of transformation

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Spectrum Society has tried to be thoughtful about the focus of our supports for 25 years, and this is our story about becoming a learning organization. Originally presented by Susan Stanfield and Ernie Baatz at the InclusionBC 2013 Conference in Vancouver B.C.

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Slide 1

Spectrum Society at 25:One agencys story of transformation1Early influencesWolfensbergerValued social rolesNormative ways and meansLou BrownPre- means neverFunctional skills in real(not simulated) environmentsTASHSpectrum Societys mission is to provide services to people with disabilities that will allow them to function more productively and independently in the community. (1988)Our first mission statement3Deinstitutionalization projects4Integration5One person at a timeBuild on strengths and interestsNormative optionsPaid employmentVolunteer workRecreationAdult educationGeneric resourcesLocal businessesCommunity organizationsRecreation centresColleges6What constitutes quality individualized services? Compliance focusHealth and safetyRisk managementStaff trainingPersonal careNutritionMedicationsBehaviour managementFrom the beginning, our focus has been on providing quality individualized services. Our assumptions about this have changed over the years. Initially, the focus was on health and safety, and consistency.7

Traditional organizational structure8Monitoring and ReportingStaff evaluationsDaily recordingQuarterly reportsOrientation checklistsHealth and safety reportsEmergency drills

Monitoring compliance vs. monitoring quality?9What constitutes quality individualized services?Values focusHire staff with good valuesManagers with good discernmentTraining focusPositive programmingCommunicationTeam-buildingSecond iteration building on earlier focus, moving beyond health and safety 10

Realization that people were surrounded by staff and services11

From Inclusion Press12Others weve learned fromDavid PitonyakJohn LordMichael KendrickPat Fratangelo (OCL)Lyle and Mary Romer (TLC)John OBrien and Connie Lyle-OBrienMary KealyJanet Klees

13

John Lord & Peggy Hutchison,Pathways to Inclusion (2007)14

2007 CLBC Demonstration Project on Building Personal Support Networks15Lessons from this projectEveryone wants relationships;Everyone has something to contribute in relationship;Our traditional program models and hierarchies can get in the way of natural relationships;Putting relationships at the top of the agenda leads to a whole different conversationStrategic Planning10 focus groupsWhats working / not working?2020 visionDifferent methodsPATHFocus groupsInterviewsTeam meetings17Strategic Plan 2010-2013:Commitment to Partnership1.Strengthen the capacity of individuals to develop and tap relationships, networks and community partnerships;2.Shift to a more person-directed approach to service;3.Become recognized as a model of excellence in supporting self governance, locally and beyond;4.Nurture a culture of learning and leadership; 5.Develop a self sustaining social enterprise / business arm of Spectrum

18Spectrum Societys mission is to provide services to people with disabilities that will allow them to function more productively and independently in the community. (1988)

Spectrum Societys mission is to support people with disabilities to experience full citizenship and genuine belonging in community. (2010)What is the difference between the two?19

Shifting the balance of powerFrom service provision to partnershipBetter Networks for Better Lives demonstration projectSmall projects as a vehicle for agency transformation21Lessons from the Better Networks projectSystems can get in the wayWe need to ask better questions Everyone has a right to direct his/her lifeNo news isnt necessarily good news

22Sharing authority (A+B model)Discovery vs. intakeNegotiation eg. Host Agency agreementIndividualized budgetsRecruitment and interviewsScheduling Orientations and trainingAuthentic leadership roles

23What constitutes quality individualized services?Relationship focusBuilding personal support networksSupported decision-makingNatural supports as a first optionThe changing role of supportConnector roleDirection vs. facilitationLatest iteration24

Our first social enterprise25

Our first book26www.101friends.ca

Monthly e-newsletter 27

Training, workshops, facilitation Aaron Johannes, Director of Research, Training and Development at Spectrum 28What were still wondering...Quality individualized services vs. quality of life?Whats the difference? Which should be our focus?Person-centred planning Independent facilitation?Planning for services or planning for life?

29www.spectrumsociety.org

www.101friends.ca