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Building a comprehensive, population-based
child development monitoring system
www.childdevelopmentmonitoring.net www.earlylearning.ubc.ca
“Owen & Mzee: The true story of a remarkable friendship”
Dolinoy, Weidman, & Jirtle, 2007
Identical genes, but different prenatal diet
Waterland & Jirtle, 2003
Restricted diet: More obesity More diabetes More cancers
Fagen & Fagen, 2004
Play & brain size across speciesSocial play
Relative size of brain regions withsocio-cognitive, motor, emotional, & visual functions
Lewis, 2003
Play & brain size across speciesSocial play
Relative size of brain regions withsocio-cognitive, motor, emotional, & visual functions
Lewis, 2003
Play & brain size across speciesSocial play
Relative size of brain regions withsocio-cognitive, motor, emotional, & visual functions
Lewis, 2003
Fertile Minds
From birth, a baby’s brain cells proliferate wildly, making connections that may shape a lifetime of experience. The first three years are critical.
February 3, 1997
2nd Decade
3rd/4th Decade
5th/6th
DecadeOld Age
School Failure
Teen Pregnancy
Criminality
Obesity
Elevated Blood Pressure
Depression
Coronary Heart Disease
Diabetes
Premature Aging
Memory Loss
The long reach of early experience….
'Fair Society Healthy Lives’http://www.instituteofhealthequity.org/projects/fair-society-healthy-lives-the-marmot-review
Vision & goalsToward a longitudinal ECD monitoring system
EDI
Context factors
EDI
Context factors
EDIMDI MDI
Context factors
EDIMDI MDI
Medical records
Educational assessments
Context factors
EDIMDI MDITDI
CHEQ
Medical records
Educational assessments
Toddler Development
Instrument
Key milestones
“Getting it right at 18 months: In support of an enhanced well-baby visit”
• R Williams, J Clinton; Canadian Paediatric Society , Early Years Task Force
• Paediatr Child Health 2011; 16(10):647-50
Enhanced 18-month well-baby visit
• Ontario, Canadahttp://www.children.gov.on.ca/htdocs/English/topics/earlychildhood/health/enhanced_18-month.aspx
Provincial government provides funding
Nipissing District Developmental Screenhttp://www.ndds.ca/international/
Rourke Baby Recordhttp://www.rourkebabyrecord.ca
Components of a platform• Short questionnaire filled out by parents• Universal access – voluntary participation• Practical benefits to practitioners and families (e.g.,
context-specific feedback; referral to resources)• Easy to implement for parents and professionals• Inexpensive• Secure and privacy protected (confidential)• Person-specific linkages to other data sources• Aggregate-able for geo-spatial neighborhood mapping• Scientifically valid (i.e., predictive)
Work to date
Forum for Early Child Development Monitoring– Expert consultation– Literature review– Analyses of longitudinal studies
• (e.g., ELDEQ; ASQ data)– Focus groups with parents and ECD professionals
Constructs on TDI pilot version– Developmental milestones– Child-parent/adult at home interaction– Social play, outdoor play, screen time– Sleep, nutrition, dental care, family doctor, immunization– Child care and access barriers– Community child-family resources and access barriers– Neighborhood safety, residential stability, interactions– Social support for parent/caregiver– Family dynamics (e.g., family functioning)– Parenting beliefs and practices (e.g., parental impact,
competence)– Parental well-being and mental health– Demographic & socioeconomic background questions
Pilot sites
TrailKamloopsRevelstokeEast KootenayComoxVancouver Powell RiverFraser Region
Trail• Main contact: Christy Anderson – Executive Director, Family Action Network;
Member of IRESN • TDI implementation set to start end of October• Ongoing TDI collection through various early years organizations:
– Strong Start Programs; Aboriginal Family Gathering Program; Columbia Basin Alliance for Literacy
Kamloops• Main contact: Judy Treherne – Consultant, Make Children First; Member of IRESN• TDI implementation to start early November• Early Years Centre will serve as centre for coordination and distribution of TDI• Additional locations interested in/committed to TDI implementation:
– Children’s Therapy & Family Resource Centre; Interior Community Services; School District #73 Strong Start programs; Lii Michif Otipemisiwak Family and Community Services; Secwepemc Child and Family Services; Kamloops Aboriginal Friendship Society; Q’wemtsin Health Society; Interior Health Public Health (Baby Clinics, Speech & Dental); Thompson Rivers University, ECE Program, Infant Toddler program
Revelstoke• Main contact: Tracy Spannier – Early Years Coordinator, Revelstoke Early Years Centre• TDI implementation set to start at community event on November 19th • Additional implementation sites include:
– Public Health; Revelstoke Child Care Society; Revelstoke Speech & Language Clinic; Strong Start, Revelstoke Leap Land, Columbia Basin Alliance for Literacy
East Kootenay• Main contact: Gina Panattoni – Regional Manager, Children First/Success by Six • Interest expressed by four communities to partner in pilot implementation
– Cranbrook, Ktunaxa Nation, Kimberly, Fernie• Specific implementation locations, dates, and details TBD
Comox• Main contact: Joanne Schroeder – Executive Director, Comox Valley Child Development
Association• TDI implementation to start January 2017• Four key agencies to facilitate TDI implementation:
– Public Health; School District #71; Family Services; Comox Valley Child Development Association
Vancouver• Main contact: Susan Conley – Regional Manager, Public Health, Perinatal & Early
Childhood; Radhika Bhagat – Manager, Public Health • TDI implementation to start January 2017• TDI collection to be facilitated by PHNs in community health centres (CHC)
Powell River• Main contact: Rita John – Early Learning Coordinator, School District #47• TDI implementation to start in November and be co-coordinated between SD47 and
Public Health• Proposed implementation sites include:
– Powell River CHC Baby Clinics, School District #47 Strong Start Programs
Fraser Region• Main contact: Sherry Sinclair – Executive Director, BC Association of Family Resource
Programs• Interest expressed in partnering for pilot implementation• Implementation locations, dates, and details TBD