Intro to DDIntro to DDTextbook: Persons with Moderate & Severe Textbook: Persons with Moderate & Severe DisabilitiesDisabilities
Subjects: Family , Friends & Society: Supporting People with Disabilities (Ch.3)DUE TODAY: Topic Summaries for Project#1 (presentation) and Project #2 (paper or blog)
Family, Friends & SocietyFamily, Friends & Society
Supporting people Is the need for a network of support any
different for people with disabilities? Remember our “circles” exercise?
What and who do we have around us in our lives? Who supports us?
Formal Supports Natural Supports
Formal SupportsFormal Supports
History: used to isolate people While attempting to provide supportPromotes dependence and highlights
difference Purpose: bring together services for
active participation in community and quality of life
Questions: Questions:
What are barriers to participation? How do we combat those barriers? How do we foster inclusion?
Formal SupportsFormal Supports
Civil Rights legislation Government –supported Programs The role of advocacyadvocacy
Americans with Disabilities Americans with Disabilities Act (ADA) Act (ADA) 19901990
A national mandate against discrimination of persons with disabilities in areas such as: Private employmentPublic services and accommodationsTransportationTele communications
Americans with Disabilities Americans with Disabilities Act (ADA)Act (ADA) Level the ‘playing field’ Examples:
Graded sidewalks, wider doorways, placement of facilities such as sinks
Accessible transportation (buses) Fair hiring practices; reasonable
accommodations by employer Telecommunication devices by people who are
deaf
Individuals with Disabilities Individuals with Disabilities Education Act (IDEA) Education Act (IDEA) 19901990
Brown vs. TopekaCivil rights legislation paved way for equal
schooling for all children PA ARC, Mills vs. DC
Free and appropriate public education for all
IDEA mandates all eligible students, regardless of disability- to receive special education to meet their individual needs.
Individuals with Disabilities Individuals with Disabilities Education Act (IDEA)Education Act (IDEA) To receive specialized services student
identified as having 1 of 12 conditions including: MR, Learning disabilities, behavior disorders,
speech/language impairments, vision loss or blindness, hearing loss or deafness, physical impairments, health impairments, autism and TBI
Assessment tools, testing with interdisciplinary team
IEP: Individualized Education Program Early intervention and Pre School programs
School Reform – IDEA 1997To ensure higher expectations for
students with disabilitiesAccountability for states and schools on
how these students are progressing (exclusion from standardized testing)
Alternate assessments on performance standards
Individuals with Disabilities Individuals with Disabilities Education Act (IDEA)Education Act (IDEA)
Government Supported Government Supported Programs Programs Textbook pgs: 52-53Textbook pgs: 52-53
Federally funded programs providing support to people with disabilities
Income SSI – Supplemental Security Income:
basic economic support (work disincentives)
Soc Sec Disability insurance: 18 yrs+
Government Supported Government Supported Programs Programs Health Care
Medicare: national insurance program for elderly and eligible people with disabilities
Nursing home care, physician services, medical supplies, ambulance, outpatient care
Medicaid: payments for health care sercies to eligible residents
Hospital and physician services, treatment, screening
Residential Living ICF: Intermediate Care Facilities
Residential living and other services to people with MR (severe/profound), 24 hour care
HCBS: Home and Community Based Services (Waiver)
Non-institutionalized settings, include home care
Government Supported Government Supported Programs Programs
Employment Vocational Rehabilitation: train people with
disabilities in employment skills, career guidance, supported employment
Coordinated Planning and service delivery: state planning councils, coordinate services of various gov agencies, advocacy systems
Incentives for Employment (1999): addresses barriers preventing people from gainful employment (loss of benefits)
Government Supported Government Supported Programs Programs
Education IDEA: free appropriate education for all
students regardless of disability
Government Supported Government Supported Programs Programs
Advocacy Organizations &Advocacy Organizations & Service Providers Service Providers Formal disability advocacy organizations
such as: The ARC, UCP, ACLD, DDI and othersNYS OPWDD
Strong family and community involvement Strong advocacy for legislative measures Developing concept within society of “self
advocacy” (choice, autonomy)
Natural Supports Natural Supports
Different from formal/structured supports through agencies or organizationsFriendsNuclear family & Extended familyNeighbors, church membersCo-Workers
Natural SupportsNatural Supports
Families History…limit or little support for families from
a financial, clinical or educational standpoint. This has evolved
Agencies offer family counseling and support, family involvement in plans of treatment/service, special needs trusts and future planning
Families serving on Boards and on advocacy and rights committees
Respite care/ Residential Habilitation programs
Assist family in becoming more socially active, reduce feelings of isolation
Natural SupportsNatural Supports
Friendships are important to quality of life
Social relationships increase skills in interaction, coping, love for example
Bonds benefit those who are disabled and those who are not
Integrated classrooms Person first
Community / SocietyCommunity / Society
Beyond just acceptance or tolerance Integration Combating discrimination in many forms Providing people with disabilities access
to things: recreation/leisure activities, doctors, housing, employment
Changing views, beliefs and philosophies
Community / SocietyCommunity / Society
Pg.64 of our text Successful Participation in community life
depends on 3 interrelated factors: 1) competence of individual with training and
support to adapt to societal expectations 2) access to the community’s generic service
system 3) the willingness of community members to
serve as natural supports
Review for Test #1Review for Test #1
Chap 1: Understanding People with DDDefinitions, acronyms, types of disabilities,
IQ levels, labels Chap 2: Valuing People with DD
History, different models Chap 3: Friends, Family Society
Formal supports, Natural Supports, ADA, IDEA, gov programs, integration