Zalau_caregivers day Taiwan 2010

8/8/2019 Zalau _caregivers day Taiwan 2010

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Small chronical of the

caregivers conferences/ caregiversday

1.

IPWSO President

2004 - 2008

2005 - 2006


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1. 2.

2005 - 2006 2006 - 2007

IPWSOConference

in Cluj

Pam

Eisen


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1. 2.

2005 - 2006 2006 - 2007

IPWSO

Conference

in Cluj

Pam

Eisen

3.

First Caregiversconference in

Herne, Germany,

2008

2008


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Small chronic of the


1. 2.

2005 - 2006 2006 - 2007

IPWSO

Conference

in Cluj

Pam

Eisen

3.

First Caregivers

conference in

Herne, Germany,

2008

2008

4.

2009

Caregiversconference in

Herne, Germany,

2009


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1. 2.

2005 - 2006 2006 - 2007

IPWSO

Conference

in Cluj

Pam

Eisen

3.

First Caregivers

conference in

Herne, Germany,

2008

2008

4.

2009

Caregivers

conference in

Herne, Germany,

2009

5.

Caregivers day

in Taiwan

2010


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The caregivers day in Taiwan hadtwo Parts

I. Examples

II. Standards and Guidelines


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I. Examples

1. Presentation of an Example of Living - Jackie Mallow (USA

2. Presentation of an Example of Living - Lisa Boman (Sweden)

3. Presentation of an Example of Living - Yoshiro Kato, Hitomi Furukawa,

Takayuki Kido, Yasunobu

Yamada (Japan)

4. Presentation of an Example of Living - Norbert Hdebeck-Stuntebeck(Germany)

5. Presentation of an Example of Work - Patrice Carroll (USA)

6. Presentation of an Example of Work - Hubert Soyer (Germany)

7. Presentation of an Example of Therapy The Norwegian Model

Marianne Lindmark (Norway)

8. Presentation of an Example of Therapy Language Therapy & Development

- Larry Genstil (Israel)


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II. Standards and Guidelines

1. Environmental Structure of Living - Mary K. Ziccardi (USA)2. Interpersonal Relationships - Janice Forster (USA)

3. Communication between Parents & Caregivers- Jackie Mallow

(USA)

4. Fitness Sports Motivation - Georgina Loughnan(Australia)

5. Environmental Structure of Work - Marguerite Rupnow(USA)

6. Neuropsychological & Cognitive Aspects of Behavior

Management - Hubert Soyer

(Germany)7. Behavior Management - Norbert Hdebeck-

Stuntebeck (Germany)

8. Training for Teachers - B.J. Goff (USA)


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1. Environmental Structure of Living

The shared experiences of professionalcaregivers demonstrate that individuals withPWS are significantly healthier andsuccessful when living in a specialized living

environment.Including: Food security

Diet and exercise

Schedules and routines Meaningful work and activities

Community integration

Competent and committed staff


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2. Interpersonal Relationships

Relationships between: Individual to Individual

Individual to Caregiver

Individual to Family

Individual to Pets

Individual to Community

The work group explored the capacity forand thenature ofthese relationships

The group determined that relationships need to bemanaged because they can be stressful

Keys: help to establish boundaries, manage socialenvironment, recognize need for teams to providesupport


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3. Communication Between

Professional Caregivers and

Parents

The relationship between the family of theindividual with PWS and professional caregivers

should be on mutual respect and trustEstablish by:

Managing expectations from start

Dont blame

Identify problems and seek solutions Respond to questions and concerns promptly

Accept mistakes and seek solutions


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4. Fitness - Sports - Motivation

Establish medical baseline (includingmedical conditions present)

Each individual should have plan to meettheir capability while striving for optimalfitness

Daily routine, use equipment

Important for professional caregivers toparticipate and motivate, and set anexample


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5. Environmental Structure of Work

Typical work providers do not understand the uniquenessof PWS and the supports necessary for individuals to besuccessful

Adapt work to people not people to work

Food security

Provide work opportunities that explore the individualshighest potential of ability

Securing and maintaining meaningful work continues to

be a challenge for the International PWS community It is imperative that people have the opportunity for

meaningful work services


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5. behavior management

Develeopment of a problematic

behavior

1. Feeling of

the caregiver

2. Prevention

3. Handling

4. Reflection


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7. Neuropsychology

Individuals with PWS have certain cognitivestrengths and vulnerabilities

Intervene as early as possible to diminish

impairment Continue to stimulate into adulthood in daily life -

diary, shopping lists, parlor and computer games

Not all is determined by genetics, we can helpdevelop brain functioning

Knowledge of relationship between genetics andenvironment is key to maximizing potential


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8. Training for Teachers

Have education plan but accept the individualityof learning styles

Major concern for teachers is behavior

management Training manual necessary as a practical tool for

schools but this is not to replace face to facetraining

Schools need to adapt to the specialized needsof the individual -visual schedule, shorterassignments, food security,


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More Details and Guidelines

Available


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1. 2.

2005 - 2006 2006 - 2007

IPWSO

Conference

in Cluj

Pam

Eisen

3.

First Caregivers

conference in

Herne, Germany,

2008

2008

4.

Caregivers

conference in

Herne, Germany,

2009

5.

Caregivers day

in Taiwan

2010

2010

6. Caregivers

conference 2012

Caregivers day during

the IPWSO conference 2013


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Main goals of the caregivers

conferences:

Share knowledge

Develop a network of knowledge

Parents

Scientifics

Caregivers


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conferences:

Share knowledge


Parents

Scientifics

Caregivers


22/23


conferences:

Share knowledge


Parents

Scientifics

Caregivers


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IPWSO President2004 - 2008

Documents

Zalau_caregivers day Taiwan 2010