Ymchwil cynhwysol: llwybr y Q-As Inclusive research: the Q-As way?

Ymchwil cynhwysol gyda phobl ag anableddau dysgu: troedio llwybr yr Holiad-Uron.

Inclusive research with people with learning disabilities: the Question-Aires way.

Ruth Wyn Williams

Darlithydd y Coleg Cymraeg Cenedlaethol ym maes nyrsio a nyrsio anabledd dysgu,Ysgol Gwyddorau Gofal Iechyd,Prifysgol Bangor. Coleg Cymraeg Cenedlaethol lecturer in nursing and learning disability nursing,School of Healthcare Science,Bangor University.

r.w.williams@bangor.ac.uk

13 dewis neu gontinwwm? 3 choices or a continuum? Ymchwil gyfranogolYmchwil rhyddfreiniolYmchwil cynhwysolParticipatory researchEmancipatory researchInclusive research

2Ymchwil cynhwysol Inclusive researchmust address issues which really matter to people with learning disabilities, and which ultimately leads to improved lives for them,

must access and represent their views and experiences, and reflect

that people with learning disabilities need to be treated with respect by the research community (Walmsley & Johnson, 2003: 16).

3Tystiolaeth:ymchwil cynhwysol Evidence: inclusive researchCwestiynau ymchwil perthnasol

Dulliau casglu data pwrpasol

Dadansoddiad cynhwysfawr or data

Lledaenu canfyddiadau'r astudiaeth yn well

Relevant research questions

Appropriate data collection methods

Comprehensive analysis of data Better dissemination of study findings(Garbutt et al. 2009;Tuffrey-Wijne & Butler 2009; Bigby & Frawley 2010; Kramer et al. 2010; Turk et al. 2012; OBrien et al. 2014).

4Y neges graidd Core message

Dim amdanom hebddon5

Y dechrau The start

Pwy di pwy / Whos who

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Sialens / ChallengesAmser i sefydlu a meithrin ymddiriedaeth a pherthnasoedd gwaith effeithiol. Cyflogi? Ystyriaethau ymarferol fel sicrhau hygyrchedd (yn gorfforol ac o ran mynediad i wybodaeth) Mae ymchwil cyfranogol yn gofyn am lawer o amser os am sicrhau cyfranogiad gweithredol. Addasu systemau - rl weithredol yn y broses Pwy syn elwa?

Time, Payment, Practical issues, Active contribution=Time, Adapt, Whos benefit? 8

Meddwl am y cwestiwn mawrThinking about the big question

Independent livingHealth

Choices, being listened toIechydByw yn annibynnolDewisiadau, Gwrandawiad 9

Bwytan iach

Healthy eating 10

Debbie

11Llwyddiannau Success

Cyd weithio HyderBlaenoriaethuAelodau newyddCyflwynoCwrs hawdd i ddarllenDarllen papurau ymchwilHunaniaeth grpWorking togetherConfidencePrioritiesNew membersConference presentationEasy read courseRead research papersBecome a group / identity

12Sialensiau ChallengesYmrwymiadYmchwilDysgu gan eraillArddangos ein gwaithCyflwyniadDylanwadu eraillDweud wrth bobl be da ni yn ei wneudCommitmentResearchLearn from othersShow what weve donePresentationInfluence othersTell others about us13

SuccessChallengesHopesMottoCommitmentResearchLearn from othersShow what weve donePresentationInfluence othersTell others about us

Working togetherConfidencePrioritiesNew membersConference presentationEasy read courseRead research papersBecome a group / identityAchieve our aimsMove on upLearn about healthy eating

It doesnt matter whether we have a disability we are all different and everyone needs to be accepted for who we are inside and out

Keep going / smileQuestion-AiresMay 2013

Holiad-Uron Question-Aires14

Arwyddeiriaur Holiad-Uron The Question-Aires mottoIt doesnt matter whether we have a disability we are all different and everyone needs to be accepted for who we are inside and out

Keep going/smile15

Ymchwil cynhwysol gyda phobl ag anableddau dysgu: troedio llwybr yr Holiad-Uron.

Inclusive research with people with learning disabilities: the Question-Aires way.

Ruth Wyn Williams

Darlithydd y Coleg Cymraeg Cenedlaethol ym maes nyrsio a nyrsio anabledd dysgu,Ysgol Gwyddorau Gofal Iechyd,Prifysgol Bangor. Coleg Cymraeg Cenedlaethol lecturer in nursing and learning disability nursing,School of Healthcare Science,Bangor University.

r.w.williams@bangor.ac.uk

16Diolch am wrando / Thank you for listeningCyfeiriadau / ReferencesBigby C. & Frawley P. (2010) Reflections on doing research in the Making Life Good in the Community study. Journal of Intellectual & Developmental Disability 35, 5361.Garbutt R., Tattersall J., Dunn J. & Boycott-Garnett R. (2009) Accessible article: involving people with learning disabilities in research. British Journal of Learning Disabilities 38, 2134.Kramer J. M., Kramer J. C., Garcia-Iriarte E. & Hammel J. (2010) Following through to the end: the use of inclusive strategies to analyse and interpret data in participatory action research with individuals with intellectual disabilities. Journal of Applied Research in Intellectual Disabilities 24, 263273.OBrien P., McConkey R. & Garca-Iriarte. (2014) Co-researching with people who have intellectual disabilities: insights from a national survey. Journal of Applied Research in Intellectual Disabilities 27, 6575Tuffrey-Wijne I. & Butler G. (2009) Co-researching with people with learning disabilities: an experience of involvement in qualitative data analysis. Health Expectation 13, 174184.Turk V., Leer G., Burchell S., Khattram S., Corney R. & Rowlands G. (2012) Adults with intellectual disabilities and their careers as researchers and participants in RCT. Journal of Applied Research in Intellectual Disabilities 25, 110.Walmsley, J. & Johnson, K. (2003). Inclusive research with people with learning disabilities: Past, present and futures. London: Jessica Kingsley.Wenger E. (1998) Communities of Practice: Learning, Meaning and Identity. Cambridge University Press, Cambridge

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