24
MS Family Day at the Ballpark NMSS Tampa Office Open House MS Service Day MS Kids Camp MS CONNECTION MID FLORIDA CHAPTER MOVING TOWARD A WORLD FREE OF MS | WINTER 2012 PRESIDENT’S MESSAGE: HOPE…A World Free of MS” This oftentimes invisible disease, multiple sclerosis, manifests itself daily in the activities of thousands of people who come together, unified in an extraordinary way, under the umbrella of a common cause, to bring HOPE to one another. Recently, I attended a Roundtable discussion in Atlanta with the Society’s CEO, Cyndi Zagieboylo, and members of the Southeast Region Management Team. Minutes before the meeting was to begin, I approached Cyndi to exchange greetings and felt flattered when she commented on the lapel pin I was wearing. I had purchased several of the pins from one of our Self-Help Group leaders in early December at Day of Discovery – our Chapter’s largest client/family event. Like Cyndi, the pin, a small orange and gold ribbon-like ornament with the word HOPE written on it, caught my eye. As I was returning to take my seat to wait for the meeting to begin, I instinctively turned back around, approached Cyndi again, removed the pin from my black and white jacket and placed it on hers while saying “There’s always HOPE.” At that moment, this word took on a much deeper meaning for me. As I began to reflect on the occurrences of the past year – a year characterized by strength, courage, endurance, reliance, confidence and boldness at all levels and in all facets of the organization – I knew with certainty that our HOPE for a cure for MS would one day be fulfilled. HOPE puts us in gear while changing what we value, how we view ourselves and those around us. It gives us power to live courageously, brings us peace and joy and affects what we do with our lives. It directs the way we spend our time, use our talents and share our treasures. This past year – fiscal year 2012 – in the Mid Florida Chapter, thousands of people joined together as they did throughout the Society, to give their best to further the efforts of our mission believing in their hearts too that “There’s always HOPE.” The Chapter’s results in fiscal year 2012 were amazing. A growing Board and thousands of volunteers and event participants hoping for success, persevered throughout the year to ANNUAL REPORT CONTINUED ON PAGE 2 INSIDE THIS ISSUE Walk MS Page 9 Bike MS Page 11 Upcoming Programs Page 14 Annual Report Page 17 WINTER/SPRING 2013 ISSUE & Chapter Leadership: At the Annual Meeting & Research Symposium, the Mid Florida Chapter elected a new Board of Trustees. The following slate of officers was approved:

Winter/Spring 2013 MS Connection - National Multiple Sclerosis

  • Upload
    others

  • View
    5

  • Download
    0

Embed Size (px)

Citation preview

Page 1: Winter/Spring 2013 MS Connection - National Multiple Sclerosis

• MS Family Day at the Ballpark • NMSS Tampa Office Open House • MS Service Day • MS Kids Camp

INSIDE THIS ISSUE

MS CONNECTIONMID FLORIDA CHAPTER

MOVING TOWARD A WORLD FREE OF MS | WINTER 2012

“PRESIDENT’S MESSAGE: HOPE…A World Free of MS”

This oftentimes invisible disease, multiple sclerosis, manifests itself daily in the activities of thousands of people who come together, unified in an extraordinary way, under the umbrella of a common cause, to bring HOPE to one another.

Recently, I attended a Roundtable discussion in Atlanta with the Society’s CEO, Cyndi Zagieboylo, and members of the Southeast Region Management Team. Minutes before the meeting was to begin, I approached Cyndi to exchange greetings and felt flattered when she commented on the lapel pin I was wearing. I had purchased several of the pins from one of our Self-Help Group leaders in early December at Day of Discovery – our Chapter’s largest client/family event. Like Cyndi, the pin, a small orange and gold ribbon-like ornament with the word HOPE written on it, caught my eye.

As I was returning to take my seat to wait for the meeting to begin, I instinctively turned back around, approached Cyndi again, removed the

pin from my black and white jacket and placed it on hers while saying “There’s always HOPE.” At that moment, this word took on a much deeper meaning for me. As I began to reflect on the occurrences of the past year – a year characterized by strength, courage, endurance, reliance, confidence and boldness at all levels and in all facets of the organization – I knew with certainty that our HOPE for a cure for MS would one day be fulfilled.

HOPE puts us in gear while changing what we value, how we view ourselves and those around us. It gives us power to live courageously, brings us peace and joy and affects what we do with our lives. It directs the way we spend our time, use our talents and share our treasures. This past year – fiscal year 2012 – in the Mid Florida Chapter, thousands of people joined together as they did throughout the Society, to give their best to further the efforts of our mission believing in their hearts too that “There’s always HOPE.”

The Chapter’s results in fiscal year 2012 were amazing. A growing Board and thousands of volunteers and event participants hoping for success, persevered throughout the year to

ANNUAL REPORT

CONTINUED ON PAGE 2INSIDE THIS ISSUE

MS CONNECTIONMID FLORIDA CHAPTER

MOVING TOWARD A WORLD FREE OF MS | WINTER 2011

Walk MSPage 9

Bike MSPage 11

Upcoming ProgramsPage 14

Annual ReportPage 17

WINTER/SPRING 2013 ISSUE &

Chapter Leadership:

At the Annual Meeting & Research Symposium, the Mid Florida Chapter elected a new Board of Trustees. The following slate of officers was approved:

Page 2: Winter/Spring 2013 MS Connection - National Multiple Sclerosis

2 JOIN THE MOVEMENT: nationalMSsociety.org

© 2013National Multiple Sclerosis Society, Mid Florida Chapter

1-800-344-4867Publication of the National MultipleSclerosis Society

Mid Florida Chapter2701 Maitland Center Pkwy. Suite 100Maitland, FL 32751

Tampa Office4919 Memorial Hwy., Suite 103Tampa, FL 33634

Carroll FranklinChapter President

Heather CarelliDevelopment Manager

Gabriela CasadoDevelopment Manager

Patricia ChuckPrograms & Services Manager

Linda GurianPrograms & Services Coordinator

Mary HealeyDevelopment Manager

Lisa OsborneAdministrative Assistant

Mike RobertsonDevelopment Coordinator

Lisa RomeroOperations Director

Stephanie WalgamottCommunity Outreach Manager

MID FlORIDA CHAPTER INFO: bring needed resources to support our mission through fundraising, administrative and program related activities. Walk MS, which was held in eight locations throughout our twenty-three county service area, realized an 18% growth rate over FY11 and brought recognition to the Chapter as one of only three chapters in the country to meet or exceed Walk MS revenue growth.

Two events celebrated milestone years in FY12. The 20th anniversary of the Pro Am Golf Tournament offered a relaxing day of golf for both new attendees and veteran teams at Falcon’s Fire Golf Club in Kissimmee. The tournament’s committee focused on everyone having a grand time while fundraising for the mission: To drive research for a cure and address the challenges of everyone affected by MS. During the Saturday evening banquet and program at the Chapter’s largest mass market event, Bike MS: The Citrus Tour, the support of top fundraisers, top teams and all of those who contributed to the event’s success for the past twenty-five years, was applauded. Post event survey results indicated that Bike MS 2012 was by far the best one ever – even with threatening weather looming overhead during the entire weekend.

In FY12, besides the revenue brought in through annual activities, individual gifts and “Do It Yourself” fundraisers, the Chapter was blessed with two unexpected legacy gifts from thoughtful individuals, who, during their lifetimes, believed as we do today, that “There’s always HOPE.” With their generosity, came the anticipation that one day there would be more treatment options for those moving their lives forward with multiple sclerosis and, of course, one day, a cure. How pleased and excited they would both be if they knew that the year in which their gifts were bestowed, 2012, was also the year that marked the FDA’s approval of the second oral disease modifying drug, Aubagio, used in the treatment of MS.

2 JOIN THE MOVEMENT: nationalMSsociety.org

© 2013National Multiple Sclerosis Society, Mid Florida Chapter

CONTINUED FROM COVER

Edited by Stephanie Walgamott

Page 3: Winter/Spring 2013 MS Connection - National Multiple Sclerosis

CONTINUED FROM COVER

These legacy gifts were like “manna from heaven.” While unexpected, they were received in a year in which several of our events came in below what we had anticipated when setting the FY12 budget. They allowed the Chapter to finish the year with a surplus of nearly $400,000. They also afforded us the opportunity to participate more fully in the research efforts that will one day bring about a cure. In September, the Mid Florida Board of Trustees voted to make an Honor Roll allocation of $150,000, to fund important work of the Society’s research scientists.

At the FY12 Research Symposium and Annual Conference held at the Morsani Center at the University of South Florida’s Medical School in Tampa, the Chapter recognized the year’s Mission Award winners – Patty Bobyrk, Russ Buhite, Dr. Peter Dunne, Ande Felder, Friends of Hope, Cathy Kerns, Kevin Kelley, Karon Lewis, Kathy Klein, Amanda Foens, Sam’s Club, Ernie Lashlee and Team Rockwell – and applauded their efforts on behalf of the nearly 70,000 individuals in Central Florida we serve. Their accomplishments, which took dedication and hard work to achieve, gave a voice to the words “There’s always HOPE.”

Additionally, three volunteers – all involved in the work of MS Self-Help Groups – Jeff Hamilton, Judy Heath and Joe Renshaw – were inducted into the National Volunteer Hall of Fame and honored by CEO, Cyndi Zagieboylo at the Society Leadership Conference in Dallas in November. The work of all three has brought untold benefits to hundreds of individuals impacted by MS. Their anticipation of one day knowing there will be a cure for MS gives us confidence in our pursuit to work that much harder in support of our mission.

During FY12, we tipped our hats while saying “thank you” and “may we meet again” to those

who chose to contribute elsewhere – staff and Board members, event participants and volunteers – and we welcomed so many otherswho joined the Chapter to share their time, unique talents and treasures to achieve a world free of MS. While honoring and acknowledging the contributions of those who have left, we welcome the involvement of those who have joined us. Every individual, who at one time or another crosses the threshold of the Mid Florida Chapter, leaves an indelible mark.

With yet another year behind us, I want to thank each of you who has worked alongside us and envisioned, as we have, with confidence and expectation, a world free of MS. As we continue to work together, there’s one phrase to remember: “There’s always HOPE.”

www.nationalMSsociety.org/msactivist.

JOIN THE MOVEMENT: nationalMSsociety.org 3

Page 4: Winter/Spring 2013 MS Connection - National Multiple Sclerosis

money matters

Working and ssdiBy Kris EricKson

Many people with Ms who have or who are considering applying for ssDi (social security Disability insurance) worry that they will lose their benefits if they return to work, even part-time. The possibility of losing benefits is a scary prospect, especially if it took a long time to get approved for ssDi. However, with some knowledge and preparation, people with Ms should be able to work and maintain their benefits.

Working While applying if you’re working and considering applying for ssDi, it’s essential to understand what Substantial Gainful Activity (sGA) is first.

Basically, sGA is the maximum amount someone can earn before being denied benefits. According to sGA rules, in 2012 you can make no more than $1,010 (or $1,690 for the legally blind)per month while applying for ssDi. if you are making more money than that, your application will automatically be denied.

Another important thing to know is that symptoms you list in your ssDi application as impediments to work should not be the same symptoms you’ve learned to accommodate successfully in your current job. For example, if someone submits an application listing gait and walking issues compounded by bladder incontinence, but uses a scooter to get around and self-catherization to handle incontinence on the job, then that will conflict with his or her ssDi application.

Call your loCal Wipaif you are already receiving ssDi benefits and are considering returning to work, contact a Work incentive Planning and Assistance program (WiPA) first.

WiPAs are nonprofit organizations with staff trained in ssDi and work issues. They can help educate people who are receiving ssDi on how to return to the work force while maintaining benefits. Visit www.ssa.gov/work/WIPA.html and click the “service Provider Directory” for a listing of WiPA programs by state. or contact an Ms navigator® at 1-800-344-4867, who will refer you to our closest WiPA program.

4 JOIN THE MOVEMENT: nationalMSsociety.org

Page 5: Winter/Spring 2013 MS Connection - National Multiple Sclerosis

tiCket to WorkMost recipients of ssDi also receive in the mail a “ticket” from the Ticket to Work program. The program, intended to remove the barriers between work and benefits, is completely voluntary and consists of employment networks made up of public and private organizations. These include the Department of Vocational rehabilitation, private employers, and individuals working together to help prepare beneficiaries to re-enter the workforce.

After receiving the ticket, the next step is to take it to an Employment network, usually a vocational rehab and/or career services agency or organization. A directory of networks can be found at www.ssa.gov/work. The network will work with you on your specific employment goals. For more information on the Ticket to Work program, visit www.yourtickettowork.com or call 1-866-968-7842.

trial Work periodonce a person awarded ssDi returns to work, a Trial Work Period (TWP) begins automatically. TWPs allow people to test their ability to work and still be considered disabled by the social security Administration (ssA). Any month in which a person’s work income comes out to more than $720 counts as a TWP month. TWPs last for nine months (which are not necessarily consecutive) in a rolling 60-month period of work. Visit www.ssa.gov/OACT/COLA/twp.html for more information about the TWP.

if you have been earning at or above the sGA amount set by the ssA, benefits will stop after the TWP ends. However, they can restart within 36 months if your income falls below the sGA or if you lose your job and continue to meet the criteria of disability. However, do not navigate these requirements alone — call an Ms navigator or contact our local WiPA if you suspect you are earning more than the sGA, or have other questions.

think about What you Want to get out of your Work experienCe before starting a job. this Will help you better prepare for suCCessfully Combining Work and ssdi benefits.

Why WorkFinally, think about what you want to get out of your work experience before starting a job. Are you trying to go back to work full time and get off ssDi entirely? or do you want to work part time to help supplement your income on a long-term basis? The answers to these questions will help you decide what your employment future can look like, and better prepare you for successfully combining work and ssDi benefits. n

Kris Erickson is the health insurance manager for the society.

JOIN THE MOVEMENT: nationalMSsociety.org 5

Page 6: Winter/Spring 2013 MS Connection - National Multiple Sclerosis

NEWLY DIAGNOSED

ChECk up ON YOur hEALth

When I think of my health, multiple sclerosis dominates my thoughts. I run through my inventory of symptoms that are acting up and medications that are causing side effects. Usually, it’s only when I have something like a cold or a stomach virus that it occurs to me that there is more to my physical health than my MS.

Unfair as it might seem, people with MS are subject to the same health problems as people who are not living with the disease. We have the same lifestyle and aging issues. We have to consider preventive care for things like heart disease, high blood pressure and cholesterol as we age. Women need to get mammograms and pap smears on a regular basis. We need to keep up with immunizations, as well as visits to dentists and eye doctors. (Visit www.nationalMSsociety.org/ preventivecare for preventive care recommendations.)

There are also special risks that we have that are directly or indirectly related to our MS, such as:

• Osteoporosis: People with MS are more likely to have osteoporosis (loss of bone density). This is due to a number of factors, including limited mobility, low levels of vitamin D (which is essential for calcium absorption) and excessive use of corticosteroids (for instance, many Solu-Medrol courses over a short period of time). Your doctor can order a bone scan to test for osteoporosis.

• Depression: Depression can be a primary symptom of MS. It can also be indirectly caused by the losses and unpredictability of MS. Your neurologist or general practitioner should be able to refer you to a psycholo-gist or psychiatrist to treat your depression, preferably one with experience treating patients with MS.

• Vitamin deficiencies: People with MS tend to have low levels or deficiencies of vitamin D and vitamin B12. Ask your general prac-titioner about tests and a treatment plan if needed.

Make an appointment to see your regular doctor and get the rest of yourself checked out. The last thing that any of us needs is additional health problems that could have been caught early or prevented by taking action.

Diagnosed with MS in 2003, Julie Stachowiak, PhD, is the author of The Multiple Sclerosis Manifesto and www.ms.about.com. Originally published at blog.nationalMSsociety.org.

6 JOIN THE MOVEMENT: nationalMSsociety.org

Page 7: Winter/Spring 2013 MS Connection - National Multiple Sclerosis

Living with ms

Commit to eat weLLTake control of your health, starting with a commitment to eat well. Here are some suggestions for how to do that from the Can Do MS staff and Andrea Glenn, a Society volunteer diagnosed with MS in 2003.

• Eatthreemealseverydayandalways have breakfast. People who skip meals tend to overeat later.

• Make healthy snacks and mealsahead of time so you don’t give in to temptations.

• Eatmorevegetablesandthreepiecesoffruitevery day. Add leafy dark greens to your lunch. Snack on raw fruit and vegetables such as carrots, apples or celery.

• Beawareofportion size.Many restaurantmeals are large enough to feed two people. Take half home for lunch the next day, or split an entrée with someone else.

• Eatwholegrainssuchasbrownrice,wholegrain bread and whole grain cereals.

• Enjoy a couple of low-fat dairy products every day, such as 1% milk or yogurt.

• Useoliveoilorcanolaoil(inmoderation).• Readfood labelsandpayspecialattention

to saturated fats and trans fats. • Drinkplentyofwater—it’scaloriefree!• Enlist a friendor familymember to share

your goals for better eating. It helps to be accountable to someone else.

• Keep a food diary. Writing down every-thing you eat will help you better evaluate whether you’ve improved your food habits.

nutrition tips for managing fatigue• Have a small snack every few hours to

refuel. Pair a protein (low-fat cheese, 1 tablespoon of peanut butter, handful of almonds)withafruit.

• Shrinkmealsandeatmorefrequently.Forexample, save half your lunch and eat the rest three hours later.

• Asmallproteinsnackintheafternoon,suchas a cheese stick or peanut butter, can help you be more alert.

• Avoidlargeportionsanddesserts.Bothwillincrease fatigue.

• Avoid too much caffeine. It can lead to restless sleep and increased anxiety.

Visit www.nationalMSsociety.org/diet for links to recent research, recipes and articles, brochures, videos and more.

OriginallypublishedintheNewYorkCity- Southern New York Chapter’s MS Connection.

JOIN THE MOVEMENT: nationalMSsociety.org 7

Page 8: Winter/Spring 2013 MS Connection - National Multiple Sclerosis

FPO

REGISTER & START FUNDRAISING TODAY!

mid�oridaMSwalks.orgor 407.478.8882

03.07.13Tampa Lowry Park Zoo5:00 PM - 8:00 PM

03.09.13Ormond Beach Rockefeller Gardens Parkat The Casements8:00 AM - 12:00 PM

Sarasota

Lakewood Ranchon Main Street 8:00 AM - 12:00 PM

03. 16.13Brevard The Church at Viera8:00 AM - 12:00 PM

Pinellas

Largo Central Park8:00 AM - 12:00 PM

Lady Lake

The Villages Polo Fields8:00 AM - 12:00 PM

04.07.13Orlando Baldwin Parkat Harbor Park8:00 AM - 12:00 PM

Mid Florida ChapterWalk 2013

THANK YOU TO OUR 2013 SPONSORS!

WALK MS: 2013DOLLAR BY DOLLAR, WALK MS IS CHANGING LIVES.

8 JOIN THE MOVEMENT: nationalMSsociety.org

Page 9: Winter/Spring 2013 MS Connection - National Multiple Sclerosis

Family Time At Walk MSby Stephanie Walgamott

For many families across the country, Walk MS is a fun opportunity to come together and rally behind the National MS Society’s mission. This is certainly true for the Correia family, who has been supporting Walk MS in their community for the past three years. Amanda, who was diagnosed with MS in 2005, and daughters Anastasia (16) and Elena (15), volunteer for Tampa Walk MS by assisting with parking, set-up, registration, clean-up and everything else that must be done to put on the event. In addition, Amanda is a member of the Tampa Walk MS Committee and the team captain of the “MS Warriors.”

“We participate in Walk MS to show our gratitude to the people who come out and raise money for the research that’s helped me so much. Without it, I wouldn’t be doing what I’m doing today,” says Amanda. She is referring to the research that led to the development of Gilenya, which she has been taking for four years. “For a while, I wasn’t doing very well. I had a bad relapse and developed an

intolerance for different drugs. Then I got on a clinical trial for Gilenya, and it took about a year, but I’m doing fine now- no cane and no limp. It’s the right drug for me right now,” Amanda continues. When asked what her favorite part about Walk MS is, Amanda reveals, “It’s the people. Seeing everyone gather from all stages of life with MS. Everyone there has such a positive outlook, like tomorrow could be the day they find a cure.”

The participants’ positive outlook has helped Tampa Walk MS grow into one of the largest Walk MS events in Mid Florida. This year, Tampa Walk MS will be trying a new format by moving to a Thursday evening (March 7). “At first I was surprised it was going to be on Thursday,” says Amanda, “but then I talked to a lot of people who are so busy on the weekends, so this might work better for their schedules. It’s exciting; it’s different. My girls and I are really looking forward to it.”

For more information on Walk MS, and to register to walk, volunteer or donate, please

visit www.walkms.org.

JOIN THE MOVEMENT: nationalMSsociety.org 9

Page 10: Winter/Spring 2013 MS Connection - National Multiple Sclerosis

Register Today:BIKEMS.ORG OR 800.344.4867

BIKE MS: THE CITRUS TOUR » APRIL 20-21, 2013 » 2 DAYS » 175 MILES

THANK YOU TO OUR SPONSORS:

bike tocreate a worldfree of MS

10 JOIN THE MOVEMENT: nationalMSsociety.org

Page 11: Winter/Spring 2013 MS Connection - National Multiple Sclerosis

“Sometimes it’s difficult to be positive, but you’ve got

to believe there’s going to be a cure. I give myself a

lecture every morning.” –Ernie Lashlee

Ernie Lashlee is no stranger to the world of multiple sclerosis. He was diagnosed at age 50 in 2007 and has been educating himself and others about the disease ever since. He is, however, relatively new to the world of Bike MS.

In 2010, Ernie was invited by an acquaintance, Waylon Morris, to join Team Rockwell and ride in Bike MS: The Citrus Tour. To Morris’s surprise, Ernie replied, “Sure, sounds fun, and I have MS.”

Since then, Ernie has had quite the “ride.” Prior to 2010, he hadn’t been on a bicycle in 15 years! He started cycling regularly and lost 30 pounds, which has made his neurologist very happy.

Riding To Beat MSby Stephanie Walgamott

“Dr. Arora thanks me profusely for exercising, and he’s really encouraging. He actually does triathlons himself and sponsors me in Bike MS every year,” says Ernie. Besides his improved physical fitness, Ernie has had tremendous success fundraising for the event. In 2011, he was the second place individual fundraiser with more than $16,000 to his credit, and in 2012, he was the top individual fundraiser bringing in more than $40,000.

The secret to Ernie’s success? “I always keep in contact with everyone I meet. It’s amazing who donates- people from high school, college, work. One vendor I worked with three years ago sponsored me. He said ‘I’m unemployed now, but I’m with you to beat MS,’ and he donated $50. It’s powerful.” Ernie also credits his success to a positive attitude. He feels lucky to have “a lot of positive influences by a lot of positive people” in his life. His favorite part of Bike MS is meeting and talking with all the other cyclists. “Some are totally stunned when I tell them I have MS. They can’t believe that I can be out here on the route with MS, and that’s my chance to educate them about the disease. It’s opportunities like that that make you know we can beat this,” says Ernie. Ernie Lashlee lives in North Redington Beach and is a member of the Mid Florida Chapter Board of Trustees. The 2013 Bike MS: The Citrus Tour is coming up on April 20 and 21. For more information and to ride, volunteer or donate, visit www.bikems.org.

bike tocreate a worldfree of MS

JOIN THE MOVEMENT: nationalMSsociety.org 11

Page 12: Winter/Spring 2013 MS Connection - National Multiple Sclerosis

In December, the Mid Florida Chapter introduced a teen essay contest to engage teens who are impacted by MS and provide an opportunity for them to express themselves. Elena Correia wrote the winning essay. Elena is 15 and lives in Tampa. Thank you Elena for sharing your story and congratulations on winning the essay contest and a Fuji mountain bike.

How has MS impacted me you may ask? This is a very great question but it is not a one sided answer. My mom has been diagnosed with MS for almost 8 years but had trouble for 4 years prior. My mom adopted my sister and I from Russia when she was diagnosed just 6 months later with MS, so you could say I only know my mom with MS. My sister, Anastasia, was 7 and I was 6 and here is my story about my mom and her MS and how one day, she will be MS free.

In the beginning, it was no fairytale. MS had mademy mom very tired and sad, because she couldn’t keep up with my sister and I when we went anywhere, like a theme park unless she was in a wheel chair. For more than a year my mom had to walk with a cane, because her legs would always hurt and she walked with a limp. When I was little, and we would go to the store all the other kids would look at my mom and say, “What’s wrong with her mommy?” In fact I would get embarrassed. My mom had to take shots all the time that left her bruised and sometimes really sick afterwards to help. Because she wasn’t able to do much, my mom had gained lots of weight. My mom also had to have nurses come to our house and give her IVs which would always concern me because sometimes she would have to keep the IVs in for days. My mom is an amazing person and I don’t think this was a burden on her, I think it

HOW HAS MS AFFECTED MY LIFE by Elena Correia

12 JOIN THE MOVEMENT: nationalMSsociety.org

Page 13: Winter/Spring 2013 MS Connection - National Multiple Sclerosis

was a challenge that she was given and she knew that she could beat it. As time went on, my mom kept on getting better and better. She was even put in a clinical trial for Gelinya and in amazement, I watched my mom get stronger a little bit every day. My mom got to the point where she could work out and we could have more fun going places, especially theme parks.

Now, my mom is as healthy as she was before she was diagnosed. For the past three years, my mom, sister, and I, have ridden in the MS Citrus Tour, where we ride 100 miles in two days. Another sign of improvement was last February where we all finished a half marathon. My mom has lost over forty pounds and can do just what any normal person can do sometimes more, like 85 mile bike ride in one day. Now it is my sister and I that try to keep up with her biking. I try to do as much as I can to help my mom. I even fundraise at school to help raise money to find a cure. For the past two years, I have sold chocolate bars at school, volunteered at MS Walk and MS Bike. Last year I made over 100 dollars. About 2 months ago I made a video on a tricycle, promoting the Citrus Tour and posted it on my team page and on Facebook. Right now I am trying to get on the Ellen Degeneres show. I wrote her a letter telling her about my mom and her MS.

I also sent her my video on the tricycle. My mom has definitely improved and just keeps on improving. I know my mom is different, I find that special and I’m not embarrassed by MS anymore. I love riding bikes with my mom now. Her MS makes her different from other moms but I think that is what makes her awesome though. None of my friend’s mom takes them to train and ride 100 miles on a bike, and I love that special time with just my sister and mom.

This is my story of how MS has affected my life like I said before, it isn’t a one sided answer. There is a down-side and there is an upside. By the way my mom is doing, I know she will keep improving and even one day defeat MS! My mom is a fighter, she doesn’t give up! And with the help of technology the

National MS Society maybe soon she will no longer have to take medication or be tired all the time. My mom is a fighter and will always keep on fighting and through her fight with MS she has truly inspired me that anything is possible and has shown me the true face of hope.

CONTINUED FROM “HOW HAS MS AFFECTED MY LIFE”

JOIN THE MOVEMENT: nationalMSsociety.org 13

Page 14: Winter/Spring 2013 MS Connection - National Multiple Sclerosis

Upcoming Programs • MS Family Day at the Ballpark It’s Grapefruit League Season! Join us for a fun afternoon ballgame and a chance to help raise awareness about MS on Wednesday, March 20 at 1:05 PM as the Baltimore Orioles take on the Toronto Blue Jays at Ed Smith Stadium in Sarasota. Tickets are only $18 each and can be purchased at www.nationalmssociety.org/flc or by calling 1-800-344-4867. Don’t forget to wear your orange! • NMSS Tampa Office Open House MS Awareness Week is March 11-17, and you’re invited to celebrate with us at the Tampa Office Open House on Wednesday, March 13 from 4:00-7:00 PM. There will be refreshments, vendors, networking, and the opportunity to learn about the Chapter’s programs, services, events and ways to get involved. The office is located at 4919 Memorial Highway, Suite 103, Tampa, FL 33634. To RSVP, please call 1-800-344-4867.

• MS Service Day This Spring/Summer, the Mid Florida Chapter will be helping to spruce up the yards, paint the exteriors, garden or assist with other out door chores at the homes of two people living with MS. If you live in Brevard or Citrus County and would like your home to be considered, or would like to volunteer to help, please contact [email protected]. In the future, the Chapter plans to expand this program to more areas.

• MS Kids Camp Children ages 7 to 12 are invited to attend MS Kids Camp at Camp Immokalee May 3 to 5. Registation opens March18. For more information, call 1-800-344-4867.

LOCAL PROGRAMS

14 JOIN THE MOVEMENT: nationalMSsociety.org

Spring Educational Teleconference Series: The Spectrum of MS Dial-in and learn about MS-related topics from home for free. The teleconferences are led by experts and include a question & answer session. Each teleconference begins at 6:30 PM and ends at 7:30 PM. To register, visit www.nationalmssociety.org/flc or call 1-800-344-4867. • “Below the Belt: Bladder and Bowel Issues in MS.” Wednesday, April 17, 2013• “Multiple Sclerosis, Sex and Intimacy.” Thursday, March 9, 2013• ”Improving Independence in Progressive MS.” Wednesday, June 6, 2013 Stay tuned for more info on other upcoming programs including MS Teen Expression, Family Night at the Tampa Rays and more!

Page 15: Winter/Spring 2013 MS Connection - National Multiple Sclerosis

Recent Programs Day of Discovery

The Mid Florida Chapter conquered SeaWorld Orlando on December 2 for the 2012 Day of Discovery. 600 guests enjoyed vendors and breakfast, and then had their biggest MS-related questions answered by a panel of medical professionals. Afterwards, everyone enjoyed a sunny day in the park, festively decorated for the holidays.

MS Family Night at the Orlando MagicFamily and friends alike dazzled in their best ORANGE wear and delighted in an evening at the Amway Center watching the Orlando Magic ALMOST beat the Toronto Raptors on January 24. Congrats to Joe Crisman for being our “Most Orange Fan”!

JOIN THE MOVEMENT: nationalMSsociety.org 15

Page 16: Winter/Spring 2013 MS Connection - National Multiple Sclerosis

MS Awareness Week is right around the corner, and the Mid Florida Chapter has a lot in store! Check out the Chapter’s Facebook page each day during MS Awareness Week for daily activities and a couple surprises.

MS Awareness Activities You Won’t Want to Miss:

All Week: Help the Chapter reach its goal of 2,013 fans by March 17! Invite your friends and family to “like” our page. If the Mid Florida Chapter Facebook page reaches 2,013 fans by March 17, one fan will be selected to receive a Fuji mountain bike!

Tuesday, March 12: Applebee’s Fundraiser at 10 stores across Mid Florida from 4:00-9:00 PM. Get the flyer on the Chapter website or Facebook page.

Wednesday, March 13: Open House at the Tampa Office from 4:00-7:00 PM. Join us and invite your friends for refreshments, networking, information on Chapter programs, services and events and vendors. RSVP at 1-800-344-4867.

Saturday, March 16: Walk MS in Brevard, Largo, Lady Lake, and Largo. Register at www.midfloridamswalks.org.

Saturday, March 16: Wheelchair Roundup at Orlando Health MS Center from 10:00 AM to 1:00 PM. Bring your chair in for a check-up.

What will you do to promote awareness? There are so many ways we can all help spread awareness about multiple sclerosis and the National MS Society. Here are just a few ideas:

• Display Walk MS and Bike MS posters in your community.

• Use the NMSS logos as your Facebook profile picture

• Wear orange

• Tell your friends and family about MS

• Bring brochures to your doctor’s office

• Host an info table at a community event

• Share your story with your legislator

• Recruit a new person to participate in Walk MS or Bike MS

• Present your story to a class or community organization

• Ask local businesses to display “MS Awareness Week March 11-17” on their marquees and billboards

• Participate in an NMSS program or event

• Be creative! What else can you think of? Share your ideas with us on the Chapter’s Facebook page.

16 JOIN THE MOVEMENT: nationalMSsociety.org

Multiple SclerosisAwareness WeekMarch11-17,2013

Page 17: Winter/Spring 2013 MS Connection - National Multiple Sclerosis

Officers:

Monia Joblin, ChairMonia Joblin is retired from the television industry, where she worked for WGBH-TV in Boston and USA

Networks in New York and Los Angeles. She moved to Sarasota in 2004 to help with the care of her brother, Alan, who has been living with primary progressive MS for 35 years. Monia’s parents established the Alan Buegeleisen Mid Florida Research Fund in 1983. Since her mother’s death in 2007, Monia and her father have continued the work of the fund. Monia has served on the Research Call Committee and the Research Strategic Goal Committee. She joined the Mid Florida Chapter Board of Trustees in 2011 and began serving as Chair in October 2012. Monia’s daughter, Sarah, and grandson, Emmett, live in Somerville, Massachusetts.

Robert Lacey, Vice ChairBob Lacey is the owner of RyChris Contracting Company and serves as the general manager at Gomez

Construction. After his wife Lisa’s diagnosis with MS, Bob and Lisa established the Ryan Todd Lacey Foundation to assist adolescents coping with a parent’s diagnosis of a chronic disease. The Ryan Todd Lacey Foundation was crucial to the development of the Youths Against MS Summit and later the MS Teen Expression, a collaborative program with the South Florida and North Florida Chapters.

Russell Buhite, 2nd Vice ChairA shareholder with the Tampa law firm Marshall, Dennehey, Warner, Coleman and Goggin, Russell Buhite focuses his

practice on life, health and disability insurance

coverage litigation, as well as myriad ERISA matters. Russ has been involved with the Mid-Florida Chapter for 12 years, first serving on the Major Gifts Committee and later as a Board member and Board Chair through 2012. Currently, he serves as Vice Chair. He also represents the Chapter on the Southeast Regional Volunteer Leadership Counsel and is a recent recipient of the Sally Buegeleisen Award. Russ, his wife Pat, and their son, Nick, and live in Temple Terrace. Russ is an avid traveler, reader and baseball fan who roots for his home-town Rays as a season ticket-holder.

Michael Morgan, TreasurerMike Morgan is the manager of purchasing at Universal Orlando. Mike has been invaluable in helping the Mid

Florida Chapter establish relationships with local businesses resulting in in-kind donations of more than $50,000 for the annual Day of Discovery at SeaWorld, an educational and social program for families affected by MS. Mike also leads the Finance Committee for the Chapter.

Ande Felder, SecretaryAnde Felder is a retired school teacher who began her work with the Mid Florida Chapter when her daughter,

Megan, was diagnosed with MS in 1995. Her family formed a team and has been participating in the Tampa Walk MS ever since. In 2002, Ande created Masquerade of Tampa Bay, a non-profit organization that hosts an annual cocktail event. Over the years, Masquerade has raised over $127,000. As a result of this success, Ande and her family have received many NMSS awards, including Top Fundraiser, Top Fundraising Team and Visionary of the Year. Ande lives in St. Petersburg with her husband, Ben. Their daughters, Jenna and Megan live nearby.

Mike Morgan – Treasurer

Russell Buhite – Secretary

Chapter Leadership:At the Annual Meeting & Research Symposium, the Mid Florida Chapter elected a new Board of Trustees. The following slate of officers was approved:

Mike Morgan – Treasurer

Russell Buhite – Secretary

ANNUAL REPORT

JOIN THE MOVEMENT: nationalMSsociety.org 17

Page 18: Winter/Spring 2013 MS Connection - National Multiple Sclerosis

William Bishop

Peter Dunne Board Member Emeritus

Jeff Hamilton

Ernie Lashlee

Cathy Kerns

Stephen McDonald

Joe Raissi

Joe Sierra

John Tucker

Wendy Zehngebot

Chapter Financials:A review of Fiscal Year 2012 financials as presented at the Chapter’s Annual Conference:Income Category Amount PercentageSpecial Events $ 1,300,322 55.0%Memberships,Contributions & Legacies

$ 1,057,733 44.8%

Investment Income $ 4,661 0.2% Total Income: $ 2,362,716

Expense Category Amount PercentageResearch for a Cure $ 494,167 24.6%Local Client &Community Programs & Services $ 997,167 49.7%National Programs $ 268,604 13.4%Fundraising Expense $ 191,823 9.6%Management & General Expense

$ 56,446 2.8%

Total Expenses: $ 2,008,099

Members-At-Large ANNUAL REPORT

 

Income Category Amount Percentage

Special Events 1,300,322$ 55.0%Memberships, Contributions & Legacies 1,057,733$ 44.8%Investment Income 4,661$ 0.2%

Total Income: 2,362,716$

Expense Category Amount Percentage

Research for a Cure 494,167$ 24.6%Local Client and Community Programs and Services 997,059$ 49.7%National Programs 268,604$ 13.4%Fundraising Expense 191,823$ 9.6%Management & General Expense 56,446$ 2.8%

Total Expenses: 2,008,099$

Research for a Cure 24.5%

Local Client and Community Programs

and Services 49.7%

National Programs 13.4%

Fundraising Expense 9.6%

Management & General Expense

2.8%

FY '12 Expenses

Research for a Cure

Local Client and Community Programs and Services

National Programs

Fundraising Expense

Management & General Expense

18 JOIN THE MOVEMENT: nationalMSsociety.org

Page 19: Winter/Spring 2013 MS Connection - National Multiple Sclerosis

Walk MS Fantastic 50 BIKE MS TOP 100FUNDRAISING ELITEANNUAL REPORT

Andrea Felder $13,300Theresa Chau $8,856 Steven Berkovitz $8,637Diana Paver $8,228Debbie Sirkin $8,130Jordan Rhoads $7,805 Larry Focke $6,472 Leslie Cunningham $6,250 Karon Lewis $5,709 Aimee Greenbaum $5,326 Lauren Coup $4,918Patricia Saunders $4,308 Rita Schallenberger $4,301 Kathy Bromberg $3,807 Trish Bennett $3,500Jeffrey Hamilton $3,438Richard Brugge $2,905Richard Giambruno $2,880Rose Bifulco $2,725Betty Spears $2,720Kim Meredith -Hampton $2,640Christopher Bertler $2,565 Steven Gaines $2,475 Lauren Smith $2,430Jeanette Jackson $2,415Jody Rappaport $2,403Susan Struder $2,255Sally Ball $2,150Michele Nichols $2,080 Christine Caraway $2,010 Jeanine Deese $1,935 Cindy Berkovitz $1,910Beth Abernethy $1,800 Debbie Moore $1,760Leslie Bass $1,750 Gerald Guarino $1,735Laura McCarthy $1,695Amanda Morehead $1,648Margaret Dunlap $1,468Alexandra Harney $1,455Alan Winston $1,410Joan Patterson Wimberly $1,405Carol Jones $1,400Michelle Field $1,395Brandy Hardy $1,385Lori Foresman $1,374Chuck Ennis $1,370Clarassa Thomas $1,340Chelsea Erickson $1,337Sara May $1,335

Lashlee Ernie $40,792.20 Esmonde Michael $35,275.77 Eberbach Mark $25,260.00 Romp Bradley $13,700.00 Brooks Kirk $13,250.00 Rippett Brian $10,275.00 Eberbach Renee $10,001.00 Wiessner Alan $7,785.70 Bosshardt Richard $7,275.99 Morris Waylon $5,660.00 Wicker Marion $5,645.00 Prioli Dominic $5,550.00 Stolz Scott $5,375.00 Barone Stephen $5,350.00 Sherwin Marge $5,325.00 ZoellnerDouglas $5,315.00 Hughes Howard $5,275.00 Whittenhall John $5,236.00 Naravulu Venky $5,196.00 Olson Jeffrey $5,100.00 Lizotte Joshua $4,526.73 Torrens Wayne $4,425.00 Fink Robert $4,300.00 Mosholder Laura $4,020.00 Wenke Steve $3,853.00 Wicker George $3,836.00 Martinez Dennis $3,800.00 Rudman Christina $3,800.00 Reiff Andrew $3,425.00 McCoyTony $3,410.04 Krieger Seth $3,400.00 Meehan Janet $3,350.00 Rutberg Sara $3,178.00 Mirek Thomas $3,155.00 Regen Scott $3,101.00 Lomas James $2,821.70 Longmire Jay $2,775.00 Sears Cherrie $2,730.00 Wiessner Dan $2,658.00 Marchiano Anthony $2,600.00 Montanez Felix $2,589.50 Brown Ross $2,540.00 Gauvin Dennis $2,540.00 Sponseller Paul $2,517.19 Eason Barry $2,506.50 Armstrong John $2,398.50 Gallock Paul $2,380.00 Rodriguez Manny $2,200.00 France Karen $2,185.00 Hoehn Terry $2,160.00 Weber Scott $2,155.00 Canter Resa $2,136.00

Foret David $2,125.00 Diaz Ricardo $2,100.00 Harbaugh David $2,078.00 Amshel Craig $2,060.00 Urquhart Stanley $2,050.00 Green Sam $2,040.00 Barr Brian $2,025.00 Obermeier Thomas $2,010.00 Beasley Shannon $2,005.00 Haimowitz Alan $1,982.00 Childers Patrick $1,977.32 Hedman Tom $1,950.00 Ratcliff Jamie $1,932.00 Basquill Ashley $1,925.00 Fischer Terri $1,901.00 Boudreaux Wayne $1,900.00 Peterson Lonnie $1,855.00 McGregor Ann $1,853.00 Porter Gregory $1,845.00 Kauffman Robert $1,837.00 Sullivan Daniel $1,825.00 Correia Amanda $1,815.00 Payne Greg $1,800.00 Stepanski Greg $1,800.00 Seymour Scott $1,792.54 Rutberg Rabbi Arthur $1,784.00 Haslem Neil $1,780.00 Hart Chris $1,775.00 Husselbaugh William $1,750.00 Schwartz Adam $1,726.00 Jackson Vann $1,725.00 Shea Jeffrey $1,717.10 Fritsch Ralph $1,705.00 Martini Joe $1,700.00 Sharp Bruce $1,675.00 Smith Douglas $1,675.00 Brown Steve $1,665.00 Dingman Barry $1,660.00 Moffat Brian $1,657.00 Yudeik Thomas $1,640.00 Stevenson Michael $1,625.00 Cohen Alan $1,623.00 Bennett David $1,620.00 Wetzel Kay $1,605.00 Martini Bill $1,600.00 Perez Ramon $1,595.00 Cohen Joel $1,590.00 Lee Fred $1,585.00 DeThomas Deena $1,555.00 Adler Jack $1,540.00 Whitman Peter $1,530.25 Haslem David $1,506.00

JOIN THE MOVEMENT: nationalMSsociety.org 19

Page 20: Winter/Spring 2013 MS Connection - National Multiple Sclerosis

2011 ALAN BUEGELEISEN MID FLORIDA RESEARCH FUND

$10,000-$24,999Abbott Buegeleisen

$5,000-$9,999Charles GoldAlfred GoldsteinMonia Joblin

$2,500-$4,999Alan HochmanStanley B. Kane

$1,000-$2,499Sharon RosengardenLouis E. LevyDavid BandCharles BarancikMarvin BlackKeith FitzgeraldMark HammerHoward KrafsurHal LibermanRichard B. SlifkaNate St. Germain

$1-$999Kenneth LempitCarol GlickenhausFredric C. ApterSamuel BrottChristopher Godfrey & Ms. Suzy SayleDavid Gold and Caryn EspoEli GoldbergRebecca Lieberwitz

Saul PuttermanHoward SchneiderMuriel MayersZack AbuzaAndrew HerzNancy C. GodfreyCharlotte IsaacsJoyce Nelson-HansellFrank ShewerJoseph A. WeinbergerWilliam T. MoranAdelaide SegermanRita KrosneyKathy RobbinsRoger BlumJeffrey FrackmanIrwin KatzJoanie KemsleyDavid KeninBruce Moccia and Phil BrentGene NobleRobert SchlangerJody SloanBarbara StruthMichael SvirskyMerrie WartikNorman J. WinstonRobert H. LawrencePhil StevensFrank AmabileHoward JacobsMerle GreenwaldArthur MayersAllen L. ThompsonElinor Zuch

ANNUAL REPORT

20 JOIN THE MOVEMENT: nationalMSsociety.org

HOW DONATIONS ARE USED:

$50 Provides transportation to

a physician or therapist

appointment

$100 Sponsors one hour of

counseling for an MS client

or family member in crisis

$225 Underwrites one child’s

attendance at MS Kids

Camp

$500 Provides a six-week MS

Journey Club workshop for

one family

$1,500 Provides assistance with

home or vehicle

modifications to maintain

independence

$10,000 Funds an educational

symposium to help people

manage the unpredictable

symptoms of MS

Page 21: Winter/Spring 2013 MS Connection - National Multiple Sclerosis

13TOLL FREE NUMBER 1 800 344 4867

LOC

AL N

EWS

ANNUAL GIVING$100,000 & UpMs. Olive KurisMr. Robert J. Devinny

$10,000-$30,000Mr. Melville R. LeviMr. James E. Pettus

$5,000-$9,999Mr. Steven H. KaneRaymond James and Associates, Inc.Mr. Julian BrooksJumbo SportsMS Village People FundraisingMr. Jordan RhoadsMr. Walter KrolmanMr. Waylon MorrisLockheed MartinCoggin Deland HondaMs. Karol A. FossEMD Serono, Inc.The Clarence and Anne Dillon Dunwalke TrustEMD Serono, Inc.

$2,500-$4,999Cardinal HealthPango Sales, Inc.The MS Cure ClassicDr. Mark A. EberbachWilliam and Marie Cooper Family PartnershipGomez ConstructionGTE Federal Credit UnionMs. Trish BennettBayer HealthCare PharmaceuticalsWells Fargo Community Support CampaignMr. Larry E. FockeClearwater Window & Door, Inc.Snow & Associates, Inc.Mr. Rowland Milam

Mr. Trudo LetschertOrange CycleMs. Donna GalloThe William E. Hess & Louise A. Hess Charitable FuBaycare Healthcare

$1,000-$2,499Jules Touch Salon LLCMs. Roberta BennageMrs. Linda GreenfieldDr. Kimberly A. DeanMs. Barbara WertherMr. Gregory L. SmithMrs. Merrilee GerewWal-Mart FoundationMr. Richard A. SaadaMurphy Lighting SystemsThe Glickenhaus FoundationBoard of County Commissioners Polk County, FLMs. Sarah CollinsAetna Foundation, Inc.Mr. Patrick ChildersMs. Christina RudmanKindred HealthcareKnights of the Krewe of Cavaliers, Inc.Punta Gorda Chamber of Commerce, Inc.Mr. William B. HusselbaughMr. W K. SmithMr. Stephen P. LampeMr. Thomas JosapakNorth American Risk ServicesMrs. Sally DavisXerox Corp USAMr. Rodney HicksDillon Transport, Inc.Charla Vail EffronGreenhorne & O’Mara, Inc.Customers Of The Ups StoreMs. Carol JonesKrewe Of Cavaliers

Mr. Gregory MeanaMrs. Kim L. Meredith -HamptonMr. John M. StevensMs. Kimberly V. WilliamsPower Design, Inc.Mr. Rabbi Arthur S. RutbergMr. Ralph S. FritschMs. Joan BrooksMs. Nicole ChouinardMr. Ruben D. BojaniModern Plumbing Industries, Inc.Mr. Robert StoltMr. Fred A. SchulzMs. Cathy W. KernsMrs. Teresa KocerMr. Alvin R. DuniganMr. Martin & Elizabeth RennerMary Bryant ElementarySeaWorld Parks & Ent. Inc.Mr. Christopher T. BertlerMs. Robin ReinaMr. Clark W. Toole IIIMs. Nicole KleinsteuberMr. John A. EasleyMr. Chris HartCardinal Health Foundation, Inc.Ms. Brenda L. HeissMr. James S. VitaleMs. Carol L. DeeverMr. Gerald DonohoeMr. William F. OliverMrs. Rebecca LieberwitzComdataMerrill LynchMr. Bob KroenckeMs. Verna WalkerMs. Nancy BoyerDr. Phillips, Inc.Mr. James R. JohannessenMrs. Barbara F. SirkinMr. Robert SpencerMr. Brian Davis

ANNUAL REPORT

JOIN THE MOVEMENT: nationalMSsociety.org 21

Page 22: Winter/Spring 2013 MS Connection - National Multiple Sclerosis

ANNUAL REPORT

Mrs. Leigh F. BassTropicana Manufacturing CompanyMs. Penny AbramsManningtonMr. Richard MasonMr. Walter SchoenbornMs. Doris D. HarmsMs. Julie I. VogtAmerican Legion Post 3Infrastructure Engineers, Inc.Teva NeuroscienceMr. Kirk BakerHealth FirstMr. Richard W. BurkholderMs. Leslie CunninghamBlue Grace LogisticsMs. Stephanie TaylorMel’s Bgc CorpMs. Janice DartMrs. Tami HolleyAmerican Legion Post 3Mr. Stephen WenkeWool Plumbing SupplyMs. Barbara KenneyDr. Stanley WilliamsMr. Donald BiggerHoughton Mifflin HarcourtMs. Roberta BainumTransfield Services

$500-$999City of OrlandoMr. Mark C. MettsMr. Michael F. Esmonde Sr.Mrs. Barbara GainesNationwide Appraisal Network, LlcMr. Jamie D. RatcliffMr. Alfred J. RuggieroPCS Administration, Inc.Mr. Frank and Susan MorusiewiczSierra Foundation, Inc.Ms. Lisa FederleMs. Carla OneillMs. Teri CirchirilloNational Christian FoundationMs. Lisa A. RichterBengel’s Burgers Ii, Llc

Mr. Barry EasonMs. Anna CampisLake Highland Prep SchoolMs. Barbara A. FitzpatrickMr. Dan N. WiessnerMr. Willie GrimesMs. Patricia L. SaundersMs. Lillian J. San JoseMr. Vann A. JacksonMarion Difiglia MDMr. Sebastian MascaroMr. James P. PepinMrs. Lydia R. ThamesMrs. Maggie A. FeriaMs. Melissa K. WellerMs. Francine M. HudakDr. Jack LongmireTechnomedia SolutionsMs. Michael PhillipsMrs. Donna G. TronuMr. Sam J. GreenMr. Michael PutzeMs. Deborah A. SpearsMr. Jim DaudertMr. Jack DickersonThe Walt Disney Company FoundationMs. Beth BerkobeinMrs. Nancy J. RaimoMr. Ernest N. LashleeDr. Stephen C. SmeachMrs. Lissa StracenerMr. James BarrMrs. Rita M. SchallenbergerMr. Scott L. WeberMs. Tracie TheuneMr. James Lomas Jr.Mrs. Sharon NolesDr. Paul A. KinserMs. Rosa M. OrtizMrs. Amy S. HicksMs. Suzette A. LevyMrs. Lynn H. PuckettMs. Wendy A. MosholderMr. James A. ScottMr. Maurice RaymondMs. Nieves DominguezMr. Ramon Morffi

Mr. Richard CashmanLee BrouilletMr. Richard FletcherMs. Susan McGroganUnited Way of Greater Kansas CityMs. Shirley KarbowskiMs. Angela R. JonesMr. Paul W. SponsellerMs. Donna C. WellerMr. Richard DoudenMs. Tracy MusgraveMs. Sandra CoxGE United Way CampaignMrs. Emilie M. Doyle-PinhoMs. Sherry L. AlbrechtMr. Ronald D. GreeneOracleMs. Mallory BolickMr. Mark LaflammeMs. Cindy HackstaffMr. Robert M. ArceMs. Shirley StollMs. Resa J. CanterMs. Luise K. MartinDr. Richard T. BosshardtMr. Anthony MarchianoMrs. Amanda L. MoreheadMr. Jim M. ObedzinskiMs. Lilah T. RippettMr. John E. WhittenhallMs. Maharanie JosephMrs. Monique PalmaccioMr. John F. Cutter Jr.Mr. Edwin B. CrowMr. Ed BradleyMr. H. L. KeechMr. Gregory S. PayneMr. and Mrs. Sam V. ChiarellaMr. Ronald L. VogtDr. Jared T. KriegerMs. Patricia DerryberryMr. and Mrs. Larry W. Carroll Jr.Ms. Carol A. LynchMr. Lewis M. KlingMr. Peter J. LanghanMs. Robert Newhouse Jr.Dr. Marc D. ShapiroMrs. Ellen Lojinger

22 JOIN THE MOVEMENT: nationalMSsociety.org

Page 23: Winter/Spring 2013 MS Connection - National Multiple Sclerosis

Mrs. Vivianne C. HernandezDr. Michael BassMr. Thomas A. MirekMs. Emily BadgerMs. Molly O’NeillMr. Samuel BrottMrs. Tina E. ReganMs. Carol A. Coile HallinanThe Tarr Charitable Family FoundationMr. William And Elaine Diercksen Sr.Mr. Paul GoddardMrs. Danielle M. LizotteMr. Richard BertenshawMs. Nancy W. RompMerle J. DiminoMr. Christopher C. MurphyMr. Ed PhillipsDr. Ash GhaffariMrs. Sandy GigliettaMr. Thomas W. EverittShawn McCannMr. Mitch ReitmanMr. Chris J. NantistaMrs. Ann G. PetermanMrs. Kathymae GilchristMr. Keith E. BassAjax Paving Industries, Inc. of FloridaMrs. Catherine SlarkMr. Michael KraftWes & Joy SouplyMr. Scott A. ButtrickMobility FreedomMrs. Carol ReeseIncryo Systems, Inc.The Insurance Advantage, Inc.Service Cable ElectricMs. Vera KohnStacy T. ShishimaMr. David G. GoldMs. Tracy ArlettMs. Niki VavlasMs. Carrollyn S. MeehanMs. Christina Williams

Mr. Jay MerchantRegional Medical Center Bayonet PointCentral FL Association of Health UnderwritersMs. Margarete Van AntwerpenMs. Emma CabanasMs. Raquel SpatzierTillie Jennie & Harold Schwartz Foundation, Inc.Mr. Richard C. FloodMr. Anthony CarusoMr. Steve SaylorMr. William J. PtakMs. Clara FerrioloJackson National Life InsuranceMr. Sebring Sierra Jr.Mr. Mark FletcherMr. Stephen J. KnoopMr. Juan A. TapiaMs. Nancy TuroffMs. Nancy JuhnMr. Burton NordstrandMr. Eric E. JohnsonMr. Ronald E. Hill Sr.Mr. Aldo CairoMs. Jacqueline M. MontanaFerrentino Homes, Inc.Mr. Matt BokoskyFloyd & Lopez Builders, Inc. FloydOhio National Equities, Inc.David and Kim DunnMs. Mary FaucherCommunity Credit UnionMr. Christopher GodfreyHernando County Professional Firefighters L-3760MetLifeMr. John SelbachRi, LlcMr. Michael WelkerBromley & Bromley, Inc.Mr. Ronald W. ChapmanMs. Cindy A. FlooreMrs. Ashlie Snelling

Kyle CantelmoMr. Cory SefchickMr. Patrick HarneyWalter J Gatti Foundation, Inc.Mr. Randolph R. SnellArnt MongeMs. Randa PaverMr. Michael C. WordMrs. Paulette BrowningDavidson Landscape & Irrigation, Inc.Mr. Paul A. ManfreyMr. Kenneth C. ThomasFaith DrywallMr. Bruce G. BoudreauMr. Curtis ParisMarshall, Dennehey, Warner, Coleman & GoccinHanna Hancharova H. Primal WearMs. Nancy SolomonWayne & Kathy BushMr. Gordon L. FrankMs. Cindy WilsonAccurate Paper Recycling, Inc.Mr. Gregory P. OrlandoMr. John SchwenkerMs. Donna C. SizemoreMr. Armando CaceresNatures Provider, LlcMr. Michael ComerMedical Executive CommitteeJohn And Cindy DiponioFive Brothers Produce, Inc.The Men Of St. Thomas MoreMetalmaster Machine ShopGeorge Shea, LlcShades Of Gold, IncArh Charity AcctConcord ManagmentBank of America FoundationLeCesse Development Corp.Gap FoundationMr. Bernard DeSena

ANNUAL REPORT

JOIN THE MOVEMENT: nationalMSsociety.org 23

Page 24: Winter/Spring 2013 MS Connection - National Multiple Sclerosis

NON-PROFITORGANIZATION

U.S. POSTAGEPAID

Tampa, FLPermit # 523

Mid-Florida Chapter

4919 Memorial HwySuite 103Tampa, FL 33634

CALL TO ACTION:Studies show that early and ongoing treatment with an FDA-approved therapy can reduce future disease activity and improve quality of life for many people with multiple sclerosis. The National MS Society’s medical advisors recommend that people with MS talk with their health care professionals about using these medications and about effective strategies and treatments to manage symptoms.

If you or someone you know has MS, please contact the National MS Society at nationalMSsociety.org or 1-800-344 -4867 to learn more.

DISCLAIMER:Information provided by the Society is based upon professional advice, published experience and expert opinion. Information provided in response to questions does not constitute therapeutic recommendations or prescriptions. The National Multiple Sclerosis Society recommends that all questions and information be discussed with a personal physician. The Society does not endorse products, services or manufacturers. Such names appear here solely because they are considered valuable information. The Society assumes no liability for the use or contents of any product or service mentioned.

24 JOIN THE MOVEMENT: nationalMSsociety.org