WFH GAP PROGRAM

Alain Weill, WFH PresidentMarch 5, 2017

G L O B A L A L L I A N C E F O R P R O G R E S S ( G A P )

P R O G R A M

• Flagship WFH

healthcare development

project

• Launched in 2003

• Foster partnership

between government,

healthcare providers and

patients

• Develop sustainable

national care programs

• Multi-sponsored

program

2

G A P : 1 0 Y E A R S T R AT E G I C G O A L S ( 2 0 1 3 - 2 0 2 2 )

Second Decade of GAP

Identifying an additional 50,000 people with inherited bleeding disorders by 2022, with 50% of them living in the world’s poorest regions

Results to date

• 30,296 have been identified globally

• Including 6,852 from the poorest countries

3

G A P S E C O N D D E C A D E : C O M P O N E N T S

TIER 1

CONTINUE

SUCCESSFUL

STRATEGY OF GAP

TIER 2

ADVANCE

ACHIEVEMENTS

POST GAP

TIER 3

ASSIST

COUNTRIES WITH

MID-LEVEL

TREATMENT

4

G A P S E C O N D D E C A D E : C O M P O N E N T S

I. Full-GAP Program: Continuation of current GAP working on

all 6 pillars of WFH Development Steps Model

II. Post-GAP Program: Post-GAP countries which would benefit

from additional support in advancing a National Country

Program, building up on GAP Phase 1 achievements or

improving sustainability of Phase 1

III. Mid-Level GAP Program: Intermediate level countries which

need help in moving forward to the next level of care

5

W F H D E V E L O P M E N T M O D E L

A step-by-step process to reach sustainable care across

six distinct but interrelated pillars

Build a strong

national

patient

organization

through

capacity

Improve care

delivery

Improve

medical

expertise and

increase

accurate

laboratory

diagnosis

through

training

Achieve

government

support

through

advocacy

Increase

access to

safe

treatment

products

Track national

demographic

data

6

G A P PA R T I C I PAT I N G C O U N T R I E S : 2 0 0 3 - 2 0 1 6

TOTAL: 26 countries / 31 programs

South Africa

China

Philippines

Russia

Belarus

Moldova

Georgia

Azerbaijan

Armenia

Tunisia

Algeria

Morocco ThailandSyria

Lebanon

Egypt

Jordan

Ecuador

Mexico

Peru

Honduras

Colombia

Brazil

Serbia

Turkey Vietnam

7

G A P O V E R A L L A C H I E V E M E N T S : 2 0 0 3 - 2 0 1 6

81,212 new PWH diagnosed/registered globally (end 2015)

26 countries enrolled; 31 multi-year national bleeding disorder care development plans drawn up

19 GAP MoU signed

29,247 PWH / 4,824 VWD / 3,160 RBD diagnosed in GAP countries

16,449 new patients, family members, and (NMO) board members trained / 23,366 medical professionals trained

Treatment product access: Over 4.642 billion IUs purchased

8

G A P A C H I E V E M E N T S : J A N U A RY - D E C E M B E R 2 0 1 6

Overall Results

12 active countries / closing of GAP South Africa and GAP Moldova (end 2015)

4 new GAP countries in 2016: Vietnam (T1), China(T2), Morocco (T2), and Turkey (T3)

2 GAP MoUs signed (Jordan, Vietnam) and continued discussions and negotiations on other MoUs (Honduras, Serbia)

Continued collaboration following signed MoUs (Algeria, Colombia, Egypt and Morocco)

462 new patients with hemophilia, 157 with VWD, 134with rare clotting factor deficiencies diagnosed / registered in GAP countries

Over 710 million IUs increase in product supply

9

2 0 1 7 G A P C O U N T RY P R O G R A M S

Europe

• Serbia

• Turkey

Middle East

• Egypt

• Jordan

• Morocco

• Tunisia (NEW Tier 2)

Americas

• Colombia

• Honduras

• Brazil

• Uruguay (NEW Tier 3)

TOTAL: 13

Asia

• China

• Vietnam

• Malaysia (NEW

Tier 3)

10

G A P V I E T N A M ( T I E R 1 –F U L L - G A P P R O G R A M )

*Population, Confirmed number of PWH & Factor VIII usage : Global Survey 2014

*GNI per capita & Public Health expenditure: World Bank

• Population (2014): 93,421,835

• GNI per capita (2015): 1,980 (US$)

• Public Health expenditure,(% of GDP)

(2014): 3.8

• Expected number of people with hemophilia /

prevalence: 6,213

• Confirmed number of people with hemophilia

(2014): 2,373

• Factor VIII usage (2014): 0.099 IU per capita

11

G A P M O U S I G N I N G C E R E M O N Y: S E P T E M B E R 2 1 , 2 0 1 6

12

G A P P L A N N I N G V I S I T – F E B R U A RY 1 3 - 1 4 , 2 0 1 7

During February 13-14, 2017, a visit was organized in Vietnam to develop a

detailed action plan for the GAP Program.

13

V I E T N A M D E V E L O P M E N T P L A N : M A I N O B J E C T I V E S

Government support for a

national hemophilia care program

Strengthening exiting network of 7

hemophilia treatment centres

Development of medical expertise of HCPs in selected 7

HTCs

Increase the supplyof factor concentrates and increase factor

concentrates access for patients

Expand NMO and increase its lay

leadership and number of active volunteers

Support development and implementation a

national registry

14

S U P P O R T TO V I E T N A M T H R O U G H O T H E R P R O G R A M S

WFH Humanitarian Aid Program

donations (3 M ius in 2016)

Participation in the WFH Global

NMO Training, international

meetings, and congresses

Vietnam – Ireland HOT Twinning

Program, 2011-2014

Hanoi (NIHBT) – Melbourne (Alfred

Hospital) HTC Twinning Program

2011-2014

Participation in the ASEAN

Hemophilia Network meetings/

workshops

15

Training of healthcare professionals

through WFH IHTC Fellowship

Program

Improve laboratory diagnosis standards

through participation in IEQAS

THANK YOU