Welcome

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State / Regional Participation

• Alabama• Arizona• Florida• Louisiana• New York• Tennessee• Wisconsin

• Arkansas• California• Georgia• Maryland• Oklahoma• Texas• National Organizations

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Participating Organizations

• AHRQ• AAMC• The Bogatin Law Firm, PLC • Davis Wright Tremaine LLP• eHealth Initiative• Intel Corporation• Iowa Foundation for Medical

Care• Markle Foundation• My Health Choice• Regenstrief Institute• St. Jude Children Research

Hospital

• AHIMA• Avalere Health, LLC• CIGNA Government Services• DHHS/ONC• HCA• Internet2• Johnson and Johnson• Medical Banking Project• National Governors Association• Shared Health• Vanderbilt University• Woolley & Associates

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5©2006, Vanderbilt University

The Discussion

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7©2006, Vanderbilt University

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10©2006, Vanderbilt University

What We Learned from Our December Workshop

• Confidentiality and privacy are critical concerns• Differences of opinion are striking• There is a need for education across all sectors• There is no quick fix to the issues• Principles are essential• Some practices are widely held, some are controversial• Establishing trust is difficult, but achievable• Data-sharing agreements are essential for early adoption

in at least settings

11©2006, Vanderbilt University

12©2006, Vanderbilt University

Create a sense of a “virtual Community”Declare expectations from workshop

Identify major issues that must be addressed through the framework

Develop a set of principles and a common policy framework as basis for action

Explore the issues through case studies and discussionDevelop an initial set of responses to issues

Discuss as a group

Develop an attendee-specific approach for creating appropriatepolicies and agreements that address these issues and enable

data-exchange to take place

Approach

Day 1

Day 2

Ground Rules

Tom Lloyd