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NOFAS-CIFASD January 8, 2014

Webinar Slides: Edward Riley: CIFASD

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Page 1: Webinar Slides: Edward Riley: CIFASD

NOFAS-CIFASD

January 8, 2014

Page 2: Webinar Slides: Edward Riley: CIFASD

Goal: to present both published and unpublished information and data from CIFASD research projects to diverse audiences

l  In-person presentations n medical and allied health professionals and

students n educators and school administrators n  lay audiences including the public at-large

l  Multi-media channels n published findings to the media and, upon

request, to national and state policymakers and public officials

l 

Page 3: Webinar Slides: Edward Riley: CIFASD

Spring 2013

l  Workshop for the Missouri Drug Court Annual Conference.

l  Plenary for the Indiana Perinatal Task Force conference.

l  Two-day FASD knowledge and skills training for healthcare professionals from the White Earth Reservation, MN.

l  Keynote for an FASD Conference in Anchorage, AK. l  Three-hour workshop for healthcare providers in

Richmond, VA for the Virginia Department of Health and Human Services.

Page 4: Webinar Slides: Edward Riley: CIFASD

Summer 2013

l  Grand Rounds for the behavioral psychologists and residents of the Johns Hopkins Kennedy Krieger Institute in Baltimore, MD.

l  Presented CIFASD research update to 25 NOFAS affiliates at the 2013 NOFAS Affiliate Network Summit.

l  Provided a keynote at a community FASD conference for a group of health care providers, social workers, and foster care staff in Omaha, Nebraska.

l  Provided keynote on FASD and two workshops on FASD and Empowering Women (FASD Prevention) for the Minnesota American Indian Substance Abuse Conference held at the Fond du Lac reservation.

Page 5: Webinar Slides: Edward Riley: CIFASD

Summer 2013

l Workshop for the staff from Crossroads Treatment Center, a large addiction center in Fairfax County, Virginia.

l Presented to the Caron Treatment Centers clinical leadership team to discuss addressing FASD assessment and diagnosis and modification of care within their national network.

Page 6: Webinar Slides: Edward Riley: CIFASD

Fall 2013 l  Webinar, “Families Living with FASD” for the National Arc

Healthmeet. l  Conducted an interview for the international Living with FASD

2013 Summit. l  Presented at the University of California, San Diego event to

commemorate the work of Dr. Ken Jones and the 40th year milestone of the first FAS paper in U.S. medical literature.

l  Plenary: The NOFAS Experience: 25 Years of Policy, Media and Prevention at the 40th Anniversary of FAS conference in Atlantic City, New Jersey.

l  Presented two oral presentations and one panel at the First International Prevention of FASD Conference in Edmonton, Alberta, Canada.

l  Tom presented at “Fetal Alcohol Spectrum Disorders: Developing Practical Supports 2013 Summit” in Little Rock, Arkansas.

Page 7: Webinar Slides: Edward Riley: CIFASD

Fall 2013 l  Presented to a delegation of visiting government

leaders, public health officials, and physicians visiting Washington, D.C. from Guangzhou Municipality in China.

l  Two Grand Rounds and workshop to the medical staff at the Dayton Children’s Hospital in Dayton, Ohio.

l  Presented to the Georgetown University pre-med disease prevention and health promotion class.

l  Presented to the staff from the Father McKenna Center, a drop-in homeless center and addiction services for men in Washington, D.C.

l  Plenary for the Virginia Juvenile Justice Conference, Charlotte, VA.

l 

Page 8: Webinar Slides: Edward Riley: CIFASD

NOFAS Webinar Series 2013-14

l Kicked off webinar series in November n (introduction to NOFAS, series/ Resiliency

in Families Living with FASD)

n Ed Riley-December

n January 15th, 2pm EST

Page 9: Webinar Slides: Edward Riley: CIFASD

Future Training/Presentations l Kathy Mitchell serving on the

International Expert Committee to plan the UBC 6th International Conference on FASD (March 4-7 2015).

l Abstracts were submitted and accepted for a panel presentation at the UBC FASD Conference on Adolescents and Adults (April 9-12, 2014).

Page 10: Webinar Slides: Edward Riley: CIFASD

Meetings with Policymakers

Discussed CIFASD with staff serving the following lawmakers: l  Senator Tim Johnson (D-SD) l  Senator Lisa Murkowski (R-AK) l  Senator Lamar Alexander (R-TN) l  Senator Mark Begich (D-AK) l  Patty Murray (D-WA) l  Barbara Boxer (D-CA) l  Mary Landrieu (D-LA) l  Ron Johnson (R-WI) l  Tom Coburn (R-OK) l  Sherrod Brown (D-OH) l  Tom Harkin (D-IA) l  Representative Eric Cantor (R-VA). l  Representative Don Young (R-AK) l  Frank Pallone (D-NJ) l  Jim Moran (D-VA) l  Senator Dick Durbin (D-IL) l  Governor John Kasich (R-OH) l  House of Representatives Energy and Commerce Committee, Health Subcommittee l  State lawmakers in Texas, Virginia, Maryland and Illinois l  Senate Appropriations Committee, Health Subcommittee

Page 11: Webinar Slides: Edward Riley: CIFASD

NOFAS Dissemination of CIFASD News and Findings l NOFAS Weekly Roundup l Social Media (Facebook, Twitter, YouTube, LinkedIn) l Presentations and Meetings l nofas.org

Page 12: Webinar Slides: Edward Riley: CIFASD

Opportunities for CIFSAD Scientists l Video Segment l Media Releases l Media Training l Access to FASD constituents l Outreach countering media coverage

condoning light prenatal alcohol use