Volume 6, Issue 4 Page 1

P I E D M O N T D O W N P I E D M O N T D O W N P I E D M O N T D O W N P I E D M O N T D O W N

S Y N D R O M E S U P P O R TS Y N D R O M E S U P P O R T S Y N D R O M E S U P P O R TS Y N D R O M E S U P P O R T

N E T W O R KN E T W O R KN E T W O R KN E T W O R K PDSSN NEWS P A G E 3V O L U M E 6 , I S S U E 4

U P C O M I N G E V E N T S

• 9/28—BUDDY WALK

2013!

• 9/22—NCBC #2, 3:30

• 9/23—Dine out @ChickFil

A– Hanes Mall –T-shirt

pick up

• 9/24 DADS, 6:30 Fox &

Hound

• 9/25 Dine Out+ T-shirt

pick up –Fox & Hound

• 9/25—NCBC #1, 7-8 p.m.;

NCBC #3, 6:30-8:30

• 9/26—Exceptional Fami-

lies

• 9/29—NCBC #2, 3:30

• 10/2—NCBC #1, 7-8 p.m.;

NCBC #3, 6:30-8:30

• 10/3—5:30 I/DD Advisory,

CenterPoint

• 10/6—NCBC#2, 3:30

• 10/9—NCBC #1, 7-8 p.m.

NCBC #3, 6:30-8:30

• 10/10 Local Collaborative

Team, 3:30—5, TSCS

• 10/13—NCBC #2, 3:30

• 10/14—CFAC, 5:30

• 10/16—NCBC #1, 7-8 p.m.

NCBC #3, 6:30-8:30

• 10/18—Friday Socialites,

Miller Park Rec., 7-9 p.m.

• 10/20—NCBC #2, 3:30

• 10/21—LNO, 7 p.m.-

Midtown-Dessertery

• 10/23—NCBC #1, 7-8

p.m.; NCBC #3, 6:30-8:30

• 10/24—Exceptional Fami-

lies

• 10/27—NCBC #2, 3:30

• 10/29—DADS—6:30 Fox

& Hound Bar and Grill, Thruway.

• 10/30—NCBC #1, 7-8

p.m.; NCBC #3, 6:30-8:30

• For Nov & Dec, see

www.pdssn.org Calendar.

September 28th, 9am-12:30pm, West Forsyth High School

You won’t want to miss it! Featuring Live Music by Big Bang Boom and Magic by Captain Jim! Other fun activities include: inflatables; games; face painting; train rides; fire truck; food; talent show; raffle; and more! The optional Fun Walk (one lap around the football field) is for everyone of all ages and abilities. Join us for this fun event - rain or shine! Here are some highlights from our upcoming event:

All Food, Beverages, Entertainment, And Activities Are Included In Your Registration!

Individuals with Down Syndrome Register for Free!

Items for Sale at the Event: The following items will be on sale at the walk: • PDSSN Annual Memberships - $10/household/year (at the PDSSN Information Table) • Down Syndrome Awareness Ribbons and Buttons - $1.00 each• Down Syndrome Awareness Magnets - $5.00 each• Girl Time Nails - $5.00• Nitro Fill—$20.00 ($40.00 Value) See page 10 for details• Extra 2013 Buddy Walk T-Shirts - $10.00 each• Raffle Tickets – Two categories: $1/ticket and $5/ticket. ( See the separate article about the

raffle later in the newsletter)

The Votes Are In! Thanks to everyone who voted on the t-shirt color and on the team fundraising incen-tive prize:

• T-shirt Color – Our t-shirt color for this year is a beautiful sapphire blue.• Team Fundraising Incentive Prize – Great Wolf Lodge 2 Night Getaway

Dine Out / Buddy Walk T-Shirt Pick Up Nights: Raffle tickets are available for sale at both Dine Out events.

• Sept. 23rd – Chick-fil-A, 924 Hanes Mall Blvd, Winston-Salem.• Sept. 25th – Fox and Hound Bar & Grill, 367 Lower Mall Drive, Thruway Shopping Center, Win-

ston-Salem.

New Team Fundraising Incentive Prize – Great Wolf Lodge Getaway Package! New this year: For every $500 your team raises, your name will be entered into a drawing for a Great Wolf Lodge 2 Night Getaway (which includes water park passes for up to 6 people)! (Example - Raise $2000, earn 4 chances to win the prize.) The winner will be determined by money received as of midnight on September 26th. There’s still plenty of time to fundraise and build your team. Anyone can still win! Click here to visit our website to learn about fun fundraising ideas and tips.

Click Here to Register for the Buddy Walk or to Donate Today!

Volume 6, Issue 4 Page 2

BUDDY WALK INFORMATION, continued

Team Awards: We'll present 5 Team awards at the walk. There's a maximum of one award per team. Results will be determined by registered walkers and money received as of midnight on September 26th. These are the award categories:

• Most registered members by a first time team • Most money raised by a first time team • Most registered members by a returning team • Most money raised by a returning team • Most spirit demonstrated at the walk

Announcing Our New Provider Agency Challenge! The agency that raises the most money and the agency with the most registered walkers by noon on September 26th will each: earn an award; be recognized from the Buddy Walk stage; and be featured in our newsletter. There's a maximum of 1 award per team. These are the award categories:

• Most money raised• Most registered members

If you have questions, please don't hesitate to contact us:

• Melinda Gentry: BuddyWalk.pdssn@gmail.com or call (336) 714-9120• Dana Alley: Dana.pdssn@gmail.com or call (336) 480-8871

All the best,

Melinda and DanaMelinda and DanaMelinda and DanaMelinda and Dana

Click Here to Register for the Buddy Walk or to Donate Today!

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P D S S N N E W S

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P D S S N N E W S

Items Needed for Buddy Walk—Can You Help?

HO

LID

AY

S

IT’S A PARTY! RESERVE THE DATE!

WE KNOW YOU DON’T WANT TO THINK ABOUT IT, BUT BE-FORE YOU KNOW IT, THANKSGIVING WILL BE HERE, AND THEN ALL THOSE SPECIAL HOLI-DAYS WILL BE UPON US. BEFORE IT GETS TOO CRAZY, WE HOPE YOU’LL PUT DECEMBER 12th ON YOUR CALENDAR FOR THE PDSSN HOLIDAY PARTY!

IT WILL BE HELD AT FOX AND HOUND. PDSSN WILL BE PROVIDING THE FREE FOOD, THANKS TO OUR FRIENDS AT FOX AND HOUND WHO HAVE BEEN SO GENEROUS WITH OUR ORGANIZATION.

PLEASE PLAN TO BE THERE! WE’LL BE SENDING OUT EMAILS AS TO TIME, & TO GET A HEAD COUNT BEFORE THE EVENT, BUT GO PUT THAT DATE ON YOUR CALENDAR NOW!

AR

E A

-CO

MIN

G!

VOLUNTEERS! Each time you help with a PDSSN project, facilitate a book club, solicit a donation for the Buddy Walk, help out at a No Limits II dance, attend a BW Planning meeting, visit with a family with a new baby who has Down syndrome, spend time on the phone with a parent….. Well, you get the idea, right? Every time you do something that represents or benefits PDSSN and our families, it would be great if you would log in those minutes or hours! Go to www.pdssn.org/join-us/volunteers-record-your-hours/. When PDSSN applies for grants, these hours are considered “in-kind” currency, and demonstrate that our members are active!

Do you have a shade canopy or a generator we could borrow for the Buddy Walk? If you do, we would really appreciate it! Please click here if you can loan us a canopy or a generator and complete the very short form on our website (only 5 questions). Thank you!

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OUR GOOD FRIENDS AT THE CDSA ARE READY FOR BW-13!

“THE BEST PORTIONS OF A GOOD MAN’S LIFE: HIS LITTLE, NAMELESS, UNREMEMBERED ACTS OF KINDNESS AND LOVE.”

- William Wordsworth

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LIFE WITH A SUPERHERO!Editor’s Note: I had the privilege to review this book a few days ago. Ms. Hulings has given us an auto-graphed copy for our Buddy Walk Raffle. It is a treasure of a book! You know how you sometimes read a story and wish you had the gift to write that clearly and with such humor and compassion? That’s the experi-ence of reading this book. It reflects the life that many of you have lived and are still living—and you will love it. If you don’t get it in our raffle, consider buying the hardcover or e-version. You won’t be disappointed — even for a minute! - Chris Kelsey

LIFE WITH A SUPERHERO: Raising Michael Who Has Down Syndrome By Kathryn U. Hulings

This powerful, funny and heartwarming story begins over twenty years ago in a small Israeli town, where a desperate mother told a remarkable lie. She told her friends and family that her newborn child had died. That lie became the catalyst for the unfolding truth of the adoption of that same baby—Michael —who is, in fact, very much alive and now twenty-two years old. He also has Down Syndrome.

When Kathryn Hulings adopted Michael as an infant, she could not have known that he would save her life when she became gravely ill and was left forever physically compromised. Her story delights in how Michael’s life and hers, while both marked by difference and challenge, are forever intertwined in celebration and laughter. With candor and a sense of humor, LIFE WITH A SUPERHERO wraps itself around the raucous joy of Michael’s existence with his four older siblings who play hard and love big; how Kathryn and her husband, Jim, utilize unconventional techniques in raising kids; the romance between Michael and his fian-cée, Casey; the power of dance in Michael's life as an equalizing and enthralling force; the staggering potential and creativity of those who are differently-abled; and the mind-blowing politics of how Kathryn navigated school systems and societal attitudes that at times fought to keep Michael excluded from the lives of kids deemed “normal.”

Kathryn’s compelling, hysterical narrative highlights the rich, colorful story of Michael’s childhood: from showing up in his 7th grade social studies class dressed like Spiderman to calling 911 when his girlfriend breaks his heart. Through it all, LIFE WITH A SUPERHERO shows readers the experience of motherhood in extraordinary circumstances —sometimes with success, some-times with dismal failure — as Michael grows from a baby to an amazing young man.

KATHRYN U. HULINGS is a mother and writer who has called Fort Collins, Colorado, her home for over thirty years. While rais-ing her family of five kids with her husband, Jim, Kathryn worked as an advocate for children with special needs, served as a community volunteer, earned a BA in English from Colorado State University, and subsequently taught 8th grade Language Arts at a local middle school. Kathryn returned to school to get an MA in English/Creative Nonfiction, also from CSU, where she is now an adjunct faculty member teaching composition and literature courses. When not teaching, parenting, or playing with her three dogs, Kathryn can be found writing prose, poetry, essays and screenplays. For more information on Kathryn and LIFE WITH A SUPERHERO, please visit LifeWithASuperHero.com.

“…from the first page, this memoir that reads like a novel brims with characters who sometimes struggle mightily yet in the end perform lionhearted feats almost every day, year after year—from adoptive mom Kathryn Hulings to her husband Jim and their biological kids to inspired teachers of many kinds. By turns hilarious and heartbreaking, Kathryn Hulings' debut book is a moving portrayal of family and community dedication and love.”— John Calderazzo, Author (RISING FIRE: VOLCANOES, OUR INNER LIVES).

LIFE WITH A SUPERHERO NOW AVAILABLE: Amazon.com BarnesAndNoble.com LifeWithASuperHero.com UNTPress.unt.edu/ Ebook 978-1-57441-537-7

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We are now several months in since the establishment of the Piedmont D.A.D.S. (Dads Appreciating Down Syndrome) community group and things are progressing well. The PDSSN D.A.D.S. works in conjunction with the local PDSSN group, but is specifically intended for fathers of children who happen to have Down syndrome. The Piedmont D.A.D.S. group currently meets at 6:30 P.M. on the last Tuesday of each month at the Fox and Hound Bar and Grill in the Thruway Shopping Center, 367 Lower Mall Drive, Winston-Salem, NC.

The 3 foundational pillars of D.A.D.S. are Support, Action and Fellowship. We share stories and experi-ences and we brag, learn and grow with other fathers of children with Down syndrome who truly under-stand. We will be inviting speakers to discuss medical, educational, financial, social, and any other issues that affect our children’s lives. We also look forward to planning some great events for the fathers and their families. Attendance has started to increase at our meetings which allow us to have even more relevant discussions about our children. There is a currently a lot of activity and work happening to make the Buddy Walk a huge success and to promote the D.A.D.S group at the event.

Since our D.A.D.S. group is still new and many people do not know we even exist, it is important to spread the word and encourage all people, not just DADS, to like our Facebook page and get familiar with our group. Getting the word out about our group is essential so everyone knows we exist and what we do, es-pecially new families of a special needs child. DADS often have different feelings and ways of dealing with things. It is important that we let new fathers know about our group and what we can offer. We also have a closed group on Facebook now for discussions between members of the D.A.D.S. group. Please visit the PDSSN D.A.D.S. website, http://pdssn.org/programs-3/d-a-d-s/

Don’t forget to us on Facebook to stay current on all the latest happenings. (here is the link to the Facebook page https://www.facebook.com/DADS.Piedmont) If you’d like more information about our D.A.D.S. group, please contact: Quincy Harvey, D.A.D.S. Director, qlharvey@tahotech.com or 336-403-0128 or Scott Duquette, D.A.D.S. Communication, smduquette@gmail.com or 704-981-1364

- Scott Duquette

Next DADS Group Meetings:(Always at Fox & Hound, 6:30 p.m.)

September 24thOctober 29th

November 26th

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We will be selling raffle tickets at t-shirt pick up nights (from 6pm-7:30pm on 9/23 at Chick-fil-A Hanes Mall Blvd and 9/25 at Fox and Hound Bar & Grill) and at the Walk. We are very grateful to all the companies who donated items to our raffle.

Mega Raffle Items: 1 ticket for $5; or 5 tickets for $20◾Walt Disney World - 4 complimentary One-Day

Park Hopper passes to the Magic Kingdom® Park, Epcot®, Disney's Hollywood Studios®, or Disney's Animal Kingdom®, valued at $516.00 (passes are valid for two years from the dated issued)

◾I/DD Advisory Committee - iPad 2 ◾Mary-Ellen Klinepeter - Buddy Walk Commemora- tive Quilt

◾Tanger Outlets Mebane - fresh water pearlnecklace, valued at $295

◾Chestnut Ridge—1 hour trail ride for four people,plus two shirts, $20 to spend at the camp store,

and fishing and hiking at the campgrounds. –In Eflon,

NC valued at $275– Donated by Move with me PT

********************************************

Popular Raffle Items: 1 ticket for $1◾The Portrait Gallery, Clemmons - $100 gift certifi- cate◾Champion - 3 gift bags of apparel. The retail value of each bag is around $100

◾Commercial Cleaning - Auto Detailing Gift Certifi- cate ($100 value)◾Irvin Roberts Salon and Day Spa - hair cut & style donated from Erica Moorefield ($120 value)

◾Progressive Image - Aveda Gift Basket ($100 value)◾Whole Foods - two $25 gift cards ◾Trader Joe's - gift basket ◾Fresh Market - two $25 gift cards ◾J Butlers - $25 gift card ◾River Birch - $25 gift card ◾Tavern - $25 gift card ◾River Ridge Taphouse - $25 gift card◾Milner's - $25 gift card

◾Bleu Restaurant & Bar - $50 gift card ◾Vincenzo's - Dinner for Two with salad, lasagna, tea or coffee, and a slice of cheesecake for

dessert ◾Bonefish Grill - $25 gift card ◾Village Tavern – 2 gift cards at $25 each ◾Willow’s Bistro - $25 Gift Card ◾AMF Major League Lanes - family passes ◾Children's Museum of Winston-Salem - 4 admis- sion tickets (total value $28)◾Adventure Landing - gift passes ◾The Grand Theatre 18 - 4 movie passes ◾C3 Fitness, Clemmons - 4 week small group training session (2 days/wk) value $112

◾Hip Chics Boutique, Clemmons - Gift Basket ◾"Why Are You Looking At Me?: I Just Have Down Syndrome" - Paperback book signed by the author, Lisa Tompkins, and her daughter, Lynette.

◾"Life with a Superhero" - Hardcovered book signed by the author, Kathryn Hulings

◾Safari Nation, Greensboro - 4 general admission tickets ($40 value)

◾O’Charley’s $25 gift card ◾T.J. Maxx $25 gift card ◾Windsor Jewelers - $125 gift card ◾CVS - $25 gift card for iTunes ◾Plow & Hearth – Gardener’s Hand Scrub and Barrier Cream ($20 value)

◾Plow & Hearth – Wind Chimes ($40 value) ◾SciWorks – Family Admission Pass (total value

$49)

◾Mock Tire – Free Oil Change (2 winners) ◾Old Salem – Two Ticket Vouchers to Old Salem Museums & Gardens (total value $42)

◾South Hill Designs – Down Syndrome AwarenessNecklace

We'll add to the list as we receive donations.

Check back for updates! Visit our website:

http://pdssn.org/buddy-walk/buddy-walk-raffle-items/ Lowe's Home Improvement - Dremel 3000 (Variable Speed Rotary Tool - $65 value).

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GOOD FRIENDSApril Anders comforts Larry Stewart in the photo above. Larry broke his leg a few weeks ago and is re-cuperating at Bermuda Commons. April and her mom went to visit Larry and his mother, Opal. Larry and April are members of the Sunday NCBC Book Club.

Volume 6, Issue 4 Page 11

Thanks To Our Wonderful Sponsors:Platinum Level ($1250 donation):

Anue Battery Tree HanesBrand, Inc. Kohl’s Lamb Foundation of NC Lindley Habilitation Winston-Salem Foundation

Gold Level ($1000 donation):CFAC Charles Hines & Son Novant Health Robinhood Pediatric and Adolescent Medicine Novant Health Twin City Pediatrics

Silver Level ($750 donation):Chick-fil-A Hanes Mall Boulevard Ferree Dinkins Group CPAs, PLLC Fox and Hound Bar and Grill Linus Jones Love That Music Papa Johns Starbucks

Bronze Level ($500 donation):AAR Roofing & Sheet Metal Company Bayada Home Health Care Biscuitville Blue Rhino Bojangles Burke Street Pizza Corning IncorporatedForsyth Printing Company In That Moment Photography Krispy Kreme Move With Me PTPiedmont Triad Anesthesia The Edmunds Group, Inc. The Children’s Home

Nitro fill is a refined nitrogen inflation product that fill will keep your tires inflated better than just plain air. Benefits:

• Increases tire life and fuel efficiently• decreases tire failure by 75%• includes free membership to the NITRO Fill AUTO

CLUB, which includes 24 hour road side assistance, tirerepair and much more!

ALL PROCEEDS WILL GO DIRECTLY TO PDSSN! Visit them at the BUDDY WALK!

Volume 6, Issue 4 Page 12

HOLD YOUR HAT! Yep, you sure do need to hold your hat, because the wind you feel is not just fall approaching! It’s also the breeze created by dozens of fast-moving people preparing for our big event on September 28th! All the behind-the-scenes work makes for both fun and busy days and nights! Special thanks to the Buddy Walk Planning Com-mittee, and the leadership of Melinda Gentry and Da-na Alley. Signs are being made, those cute buttons and bows that are the specialty of Brigette Parsons have been prepared by her and assembled by the good folk at Kohl’s on Hanes Mall Blvd. Awards are being printed, as are photos of raffle items. Ta-bles and chairs are being ordered, as well as cano-pies, and FOOD! (Free this year!) Patronize and thank our sponsors, and look out for folks behind the scenes to give them a pat on the back!

Our sponsors are the best!

Volume 6, Issue 4 Page 13

“No joy can equal the joy of serving others.”

-Sai Baba

Click here to learn more

Volume 6, Issue 4 Page 14

Dalton enjoyed his time at the beach again this summer!

DALTON COPE

JEREMY & AUSTIN Jeremy Donohue and Austin Barnhill

had a great time recently at the Special Olympic Bocce qualifier in Burlington!

Looks like Austin’s dad Bruce did, too!

We are sure proud of all of our Spe-cial Olympic athletes!

KAREN LOY

Miss Karen celebrated her 22nd birthday with lots of good friends. Karen invited all the members of her book club and their families, her friends from Special Olympics, dance, piano, and all of her many activities.

Her “guardian angel,” Aunt Nella and Aunt Edna kept the food and festivities going.

It was a happy celebration for this happy young woman! Karen is a member and Assistant Facilitator of the Sunday Book Club. She is em-ployed by Industries for the Blind in Winston-Salem.

Winter issue of PDSSN News will come out in January, 2014. Sent photos & info to ckelsey@triad.rr.com before 12/12!

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Wine from the Piedmont Down Syndrome Support NetworkThe Piedmont Down Syndrome Support Network (PDSSN) has partnered with Grove Winery to produce a PDSSN dry red Merlot, and a semi-sweet white Seyval Blanc. Grove Winery has generously agreed to donate all proceeds from the PDSSN wine sales back to our organization.

Thank you, Grove Winery!

MERLOTThis medium body, dry red wine is made from 100% Merlot with a light American and French oak aging. Aromas of berries and herbs with fla-vors of plum and vanilla roll into a smooth but dry finish. Great to pair with pork, lamb and beef.

$14.99All Proceeds go to PDSSN

SEYVAL BLANCThis slightly sweet, stainless-steel aged white wine is made from 100% Seyval Blanc. The wine offers light citrus aromas with more crisp and re-freshing citrus on the palate. Great to pair with delicate white fish and light salads.

$14.99All Proceeds go to PDSSN

Place your order at—http://grovewinery.com/pdssn_wine.html

Delivery & Ordering Information:

♦ Winston-Salem Pick-Up: Dana Alley will arrange for the wine to be delivered to Winston-Salem. Pleasecontact Dana at Dana.pdssn@gmail.com, or 336-480-8871 to coordinate a pick up time and place.

♦ Greensboro Area Pick-Up: Wine is available for pick up at Grove Winery. Hours: Mondays-Sundayfrom noon to 6 p.m. Address: 7360 Brooks Bridge Road, Gibsonville, NC 27249. Phone: (336) 584-4060.

♦ Instructions: • During the online ordering process, the system will require that you fill in your shipping infor-

mation. That information is needed for billing purposes. If you click the box at the bottom of the shipping information page that says “use same information for billing,” it will save you from needing to input that information when you pay for your order.

• After you click “check out,” the next page will list your shipping options. Select “pick up” and noadditional cost will be added to your order (remember, this is for delivery days after January 2nd.

Shipping Option: If you prefer, you can also choose to have your wine order shipped anywhere for the stated cost.

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Phone: 336-480-8871

E-mail: dana.pdssn@gmail.com

Website: www.pdssn.org

Thanks to so many of you who joined PDSSN at last year’s Buddy Walk! Since Dana became our Executive Director, our membership has tripled! Dues are normally $20 per household per year, but you can save $10 if you join or renew your member-ship when you register for the 2013 Buddy Walk! Click here to visit our fundraising website to get started!

PDSSN PO Box 144 4715 Yadkinville Road Pfafftown, NC 27040

PDSSN is a non-profit organization

Next Dance: December 27, 7-9 p.m.

THE VILLAGE INNClemmons, NC

If you have questions orwant to offer your help,

Contact Gina at gmiller@enrichmentarc.org.

Dance! Dance! Dance!

Piedmont Down Syndrome Support Network

4715 Yadkinville Road, Box 144

Winston-Salem, NC 27040