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Using linked, rou/nely collected data for health and educa/onal research in school age children.
Johnny Downs – Maudsley BRC, King’s College London and University of Exeter [email protected]
King’s College London (KCL)
SLAM Biomedical Research Centre (BRC) Case Register
South London and Maudsley (SLAM)
Croydon
Lewisham
Lambeth
Southwark .
CAMHS Clinical Records Interac/ve Search (CRIS)
Big Data in CAMHS
Perera et al. BMJ open 2016
Rou/nely collected childhood data in England
Rou/nely collected childhood data in England
Vulnerable Groups
Neurodisability/ Epilepsy
Teenage Pregnancy
Severe asthma
Self harm/suicide
All children admiRed to NHS acute/general hospital trusts in SLAM CAMHS catchment (~280,000 children)
1997
35,426 child and adolescent mental health referrals
2008 2013
Key Outcomes
Mental Health Service use (referral/acceptance rates/
engagement)
MH Diagnoses, treatments and response
CRIS: A data linkage environment for investigating the interface between mental and physical health disorders in children
Rou/nely collected childhood data in England
Defining the purpose
Ethical & legal frameworks
Data governance/technical frameworks
Building trust
Data preparaZon & Matching processes
Cleaning & understanding linkage error
Crea/ng a data linkage for health and educa/onal research in England
Nov 2011 April 2015
Aug 2015
CRIS: A data linkage environment for inves/ga/ng the interface between mental disorders and educa/onal performance
Vulnerable Groups
Special EducaZonal Need
Excluded children
Maltreated (CIN / CPP / LAC)
Persistent absence
All school age children in state maintained schools or alternaZve educaZonal se]ngs in SLAM CAMHS catchment (276,403 children)
1997
35,426 children and adolescent mental health referrals
2008 2013
Key Outcomes
Academic aRainment
MH Diagnosis, treatments and response
School Drop out
