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U of A researcher Donna Wilson led the team that studied the views of 1,203 Albertans on assisted suicide, currently illegal in Canada. A majority—77.4 per cent—felt dying adults should have the right to end their life early.
Citation preview
The public’s viewpoint on the right to hastened death in Alberta, Canada:
findings from a population survey study
Donna M. Wilson RN PhD Professor1, Stephen Birch DPhil Professor
2, Rod MacLeod PhD FAChPM Professor3,
Nurin Dhanji RN BScN Research Assistant1, Jane Osei-Waree MN Student Research Assistant
1 and Joachim Cohen
PhD Professor4
1Faculty of Nursing, University of Alberta, Edmonton, AB, Canada, 2Department of Clinical Epidemiology and
Biostatistics, Centre for Health Economics and Policy Analysis, McMaster University, Hamilton, ON, Canada,3Department of General Practice and Primary Health Care, School of Population Health, University of Auckland,
Auckland, New Zealand and 4End-of-Life Care Research Group, Ghent University & Vrije Universiteit, Brussels,
Belgium
Accepted for publication 22 August 2012
CorrespondenceDonna M. WilsonFaculty of Nursing, University ofAlberta, Edmonton, ABCanada T6G 1C9Tel.: (780) 492 5574Fax: (780) 492 2551E-mail: [email protected]
What is known about this topic
• Few population surveys or opinionpolls have been conducted and pub-lished so as to provide readily avail-able and credible information onpublic views of assisted suicide andeuthanasia.
• Legislation permitting euthanasiaand ⁄ or assisted suicide has come toexist in a growing number ofcountries.
• Assisted suicide and euthanasiaremain highly controversial.
What this paper adds
• This population-based surveyrevealed majority public support forthe right to hastened death in oneprovince of Canada.
AbstractA research study was conducted to determine public opinion in Alberta,
a Canadian province, on the controversial topic of death hastening.
Questions on the right to hastened death, end-of-life plans and end-of-life experiences were included in the Population Research Laboratory’s
annual 2010 health-care telephone survey, with 1203 adults providing
results relatively representative of Albertans. Of all 1203, 72.6% said yes
to the question: ‘Should dying adults be able to request and get help
from others to end their life early, in other words, this is a request for
assisted suicide’? Among all who provided an answer, 36.8% indicated
‘yes, every competent adult should have this right’ and 40.6% indicated
‘yes, but it should be allowed only in certain cases or situations’. Over50% of respondents in all but one socio-demographic population sub-
group (Religious-other) were supportive of the right to hastened death.
However, multinomial regression analysis revealed that the experiences
of deciding to euthanise a pet ⁄ animal and developing or planning to
develop an advance directive predicted support, while self-reported reli-
giosity predicted non-support. Finding majority public support for death
hastening suggests that legalisation could potentially occur in the future;
but with this policy first requiring a careful consideration of the modelof assisted suicide or euthanasia that best protects people who are highly
vulnerable to despair and suffering near the end of life.
Keywords: assisted suicide, euthanasia, hastened death, population survey,
public opinion poll
• However, approximately one half ofall those in favour of the right tohastened death indicated that itshould be allowed in only certainsituations.
• Majority public support suggestslegalisation could occur in thefuture; a public policy first requir-ing a careful consideration of themodel of assisted suicide and ⁄ oreuthanasia that best protects peoplewho are highly vulnerable to des-pair and suffering near the end oflife.
Assisted suicide and euthanasia cannot be performed legally in Canada.However, ongoing discussion of decriminalising death hastening has
occurred since Sue Rodriguez’ 1992–1993 request to the Supreme Court of
Canada for help in ending her life with amyotrophic lateral sclerosis
(ALS) at a time of her choosing. The narrow (5–4) ruling against her dem-
onstrated much legal, if not also societal, support at that time for her posi-
tion. It is ironic that although the Criminal Code was not amended then to
permit death hastening, Sue Rodriguez was widely reported as having
been euthanised and the person or persons who ended her life were neverprosecuted. Other cases of hastened death have since occurred in Canada,
but few have been charged with what Mullock (2010) identified as a
‘criminally compassionate’ offence. With the exception of Robert Latimer
who was recently released from prison after serving a 10-year sentence for
200 ª 2012 Blackwell Publishing Ltd
Health and Social Care in the Community (2013) 21(2), 200–208 doi: 10.1111/hsc.12007
euthanising his daughter who had a disability, convic-tions for death hastening are almost non-
existent in Canada. Currently, a number of Canadians
are petitioning for the right to have death hastening
assistance, with a Supreme Court judge in the prov-
ince of British Columbia (BC) having ruled on June
15, 2012 that the Criminal Code prohibition on assisted
suicide violates the rights of people who cannot com-
mit suicide without assistance (2012 BCSC 886 Carterv. Canada). This ruling was immediately suspended
for 1 year to permit the Federal Government to
respond, although one petitioner received permission
to obtain assisted suicide after certain conditions have
been met. In addition, the Select Committee on Dying
with Dignity, a group initiated by the National Assem-
bly of Quebec 2010 (the government for the largely
francophone province of Quebec) has recently releasedtheir report on the open inquiry held in 2010–2011 to
gain public and professional viewpoints on legalising
hastened death in that province. This report contains
12 recommendations to improve access to and quality
of palliative care, and 12 recommendations for assisted
suicide and euthanasia to occur without sanction in
the province. Specifically, recommendation 13 states
(after translation into English), ‘the Committee recom-mends that relevant legislation be amended to recog-
nize medical aid in dying as appropriate end-of-life
care if the request made by the person meets the fol-
lowing criteria...’ (Dying with Dignity 2012, p. 1). This
report and the BC Supreme Court ruling have gener-
ated much discussion across Canada.
Canada is not the only country wrestling with the
issue of what to do when people ask for help to commitsuicide (i.e. assisted suicide) or ask for hastened death
when they can no longer commit aided or unaided sui-
cide (i.e. euthanasia). Clearly, there are people who seek
assisted suicide and euthanasia including those who tra-
vel to Switzerland as ‘suicide tourists’. There is consider-
able complexity in legislating and conducting hastened
death, however, as illustrated by the Australian situation.
In 1995, the Northern Territory government in that coun-try passed the Rights of the Terminally Ill Act, which sanc-
tioned ‘the right of a terminally ill person to request
assistance from a medically qualified person to voluntar-
ily terminate his or her life in a humane manner’. The
Act was quickly overturned by the Federal Government
(Law Council of Australia 2008) and no replacement Act
has been passed since. Hastened death is legally prac-
tised now in Switzerland, the Netherlands, Belgium,Luxembourg, and three American states (i.e. Oregon,
Washington, Montana); although with some differences
in decisional criteria and mandated death-hastening pro-
cesses (Burkhardt et al. 2006, Cohen et al. 2006). One
would expect public support to have been a prerequisite
in these jurisdictions for hastened death legalisation. Todate, no population-based polling of Canadians on the
topic of hastened death has been done and the results
published for open discussion purposes. Evidence is
needed to guide discussion and inform policy. In this
study, we assessed public opinion on the right to has-
tened death in Alberta, a Canadian province with
around 3.6 million citizens. We also examined which
socio-demographic factors and end-of-life experienceswere systematically associated with support for or
against the right to hastened death.
Research methods
Survey design
The University of Alberta’s Population Research Labora-
tory was commissioned to include a series of end-of-life
questions in their 2010 spring ⁄ summer random-digit-
dialling telephone survey, with a University of Alberta
research ethics committee approving this survey in
advance. The end-of-life questions were developed by
an international research team after a review of the litera-
ture, and the questions were piloted locally with 20experts in survey design. Minor changes were then made
to enhance public understanding of the questions and
their potential answer choices. The sampling plan for
gaining information representative of all adults living in
Alberta included: (i) a minimum of 1200 participants (the
Population Research Laboratory for population represen-
tation normally surveys this number of participants, hav-
ing determined that it is an appropriate number, hencethis number was set), (ii) proportional geographical rep-
resentation; with 1 ⁄3 of the 1200 expected respondents,
respectively, to be from the Edmonton metropolitan area,
the Calgary metropolitan area, or all other rural and
urban areas combined, (iii) equal numbers of men and
women in each of the three regions, (iv) one respondent
per household, with these numbers obtained through a
computer-generated random digit-dialling system usinglisted non-business telephone numbers for the province,
and (v) multiple call-backs or quota substitutions after
participation refusals or 14 call-backs that did not find
anyone at home. In May through July 2010, a total of
1203 anonymous adult volunteers were identified as eli-
gible and took part in the study. Each subject had been
read a script that informed them they were being asked
to take part in a research study, but they could decline toparticipate, and they could answer all or some of the
questions without repercussions. Persons who were inel-
igible to participate in the study were those who
reported they were younger than 18 years of age or a
non-resident of Alberta, as well as those who were
unwilling or unable to respond to the questions. The
Public support
ª 2012 Blackwell Publishing Ltd 201
obtained sample was representative for the total popula-tion of Alberta in terms of area of residence, gender,
being legally married or not and number of children in
the household. Albertans under 45 years of age were
underrepresented (see Table 1).
Measures
The main outcome measure used in this study was the
question on hastened death, formulated as follows:
‘Should dying adults be able to request and get help
from others to end their life early, in other words, this
is a request for assisted suicide’? Respondents could
decline to answer the question or answer yes, every
competent adult should have this right; yes, but itshould be allowed only in certain cases or situations; or
no. Information was also collected on the respondents’
gender, age, number of children in the household, edu-
cational attainment, marital status, household and indi-
vidual income (grouped into four categories),
occupation (dichotomised to health professionals or all
other occupations), working or non-working ⁄ retired,
religious affiliation, political affiliation and preferred
place of death. Religious affiliation was based on twoquestions, one asking about the religious denomination
of the respondent (19 possible categories and a category
‘other’ with a possibility to specify) and another asking
whether the respondent considers himself or herself to
be a religious person (answer possibilities on a scale
from 1, ‘strongly disagree’ to 7, ‘strongly agree’ to the
question ‘I consider myself to be a religious person’).
The political orientation of the respondent was gainedby the question: ‘If an election were held today, how
would you vote federally’? The question about the
respondent’s preferred place of death was asked as
such: ‘Where would you choose to spend your last days
of life’? The respondents could answer: hospital, hos-
pice, nursing home, own home, home of a relative or
friend and other as options.
Statistical analyses
Univariate statistics were used to describe views on theright to request and receive hastened death assistance.
Kruskal–Wallis tests were used to evaluate bivariate
associations between the acceptance of assistance in
dying and all independent variables. This test is used for
comparing ordinal variables for two or more groups.
With the outcome variable (acceptance of hastening
death) being ordinal (no, conditional yes, yes) rather than
nominal, the Kruskal–Wallis test was deemed moreappropriate than the Pearson chi square test. Statistical
significance was set at P < 0.05. All independent vari-
ables were considered candidates for construction of a
multinomial logistic regression with the hastening death
variable as the dependent variable (no as the reference
category vs. yes and conditional yes). A stepwise proce-
dure was used to select the variables, with only the sta-
tistically significant (P < 0.05) covariates allowed to stayin the final logistic regression models. Nagelkerke
pseudo-R2 was used to evaluate the variance explained
by the model. SPSS version 19.0 was used for all statisti-
cal computations.
Findings
A total of 1203 respondents participated in the survey,
50.3% of whom were women, 19% 60 years or older,
67.2% in a household without children, 71.8% with some
post secondary education and 28.5% not married
(Table 1). In response to the primary research question
of interest: Should dying adults be able to request andget help from others to end their life early; 72.6% replied
yes, 21.3% replied no, and 1.6% declined to answer and
4.6% answered ‘don’t know’. The data from all people
who did not answer this question or answered ‘don’t
know’ were removed from analysis and among the
Table 1 Socio-demographic characteristics of sample, as com-
pared with available population statistics for the Province of
Alberta
Sample Population* P-value (v2)‡
Area
Metropolitan Edmonton 33.3 31.8 0.26
Metropolitan Calgary 33.3 33.3 >0.99
Other Alberta 33.4 34.9 0.28
Gender
Male 49.7 49.6 0.95
Female 50.3 50.4 0.95
Age
18–24 5.8 13.9 <0.001
25–34 12.7 20.1 <0.001
35–44 17.2 20.2 0.01
45–54 22.9 19.7 0.01
55–64 22.5 12.5 <0.001
65+ 19.0 13.6 <0.001
Legal marital status
Not married 34.9 35.6 0.61
Married 65.1 64.4 0.61
Children in household
No children 67.2 69.5 0.08
1 or more 32.8 30.5 0.08
*Statistics based on census 2011 for area and for gender, age,
marital status, and number of children in household on census
2006 (as not yet available in census 2011); all percentages
calculated for population aged 18 and over. Statistics consulted
at http://www.statcan.gc.ca.‡P-value calculated through chi square test comparing sample
and population distributions for each presented category vs. all
others.
D. M. Wilson et al.
202 ª 2012 Blackwell Publishing Ltd
Table 2 Socio-demographic characteristics of the sample and their views of hastened death
Number in sample (Column percentage) Yes*% Yes conditionally*% No*% P-value‡
Total 1203 (100) 36.8 40.6 22.7
Area*
Edmonton metropolitan area 401 (33.3) 39.6 34.2 26.1 0.830
Calgary metropolitan area 400 (33.3) 35.8 44.6 19.6
Other Alberta 402 (33.4) 34.9 42.8 22.3
Gender* 0.290
Male 598 (49.7) 37.3 41.9 20.8
Female 605 (50.3) 36.1 39.6 24.3
Age group*
18–24 68 (5.8) 40.9 39.4 19.7 0.026
25–34 148 (12.7) 34.6 41.2 24.3
35–44 200 (17.2) 34.9 47.4 17.7
45–54 267 (22.9) 42.3 39.4 18.3
55–64 262 (22.5) 36.9 41.6 21.6
65+ 221 (19.0) 31.7 35.6 32.7
Household size
Number of children* 0.097
0 806 (67.2) 38.1 39.4 22.5
1 138 (11.5) 39.3 40.7 20.0
2 171 (14.2) 31.4 50.3 18.2
3 or more 84 (7.0) 29.5 34.6 35.9
Education* 0.004
Less than high school 97 (8.1) 27.3 33.0 39.8
Completed high school 240 (20.1) 38.5 42.0 19.5
Post secondary 859 (71.8) 37.4 41.1 21.5
Marital status* 0.230
Married or common law relationship 856 (71.5) 35.7 40.9 23.4
Not married 342 (28.5) 39.0 40.6 20.4
Income (household)* 0.025
<$50,000 149 (16.5) 31.9 40.6 27.5
$50 000–99 999 280 (31.1) 34.8 40.1 25.1
$100 000–$150 000 257 (28.5) 38.5 42.9 18.6
>$150 000 216 (23.9) 40.6 44.1 15.3
Work*
Health-care 89 (7.4) 29.6 45.7 24.7 0.240
Other sector 1114 (93.6) 37.2 40.4 22.4
Political affiliation* 0.019
Liberal 130 (11.5) 41.4 44.5 14.1
Conservative 532 (47.1) 31.8 42.9 25.2
New democratic party 54 (4.8) 42.6 40.7 16.7
Green party 56 (5.0) 42.9 42.9 14.3
Other 357 (31.6) 39.8 35.9 24.3
Religious affiliation and religiosity* <0.001
No religious denomination 325 (28.1) 54.5 38.3 7.1
Religious Catholic 163 (14.1) 17.2 47.8 35.0
Religious Protestant 164 (14.2) 21.9 38.1 40.0
Religious other� 148 (12.8) 26.4 29.3 44.3
Not religious Catholic 142 (12.2) 40.0 46.7 13.3
Not religious Protestant 133 (11.4) 42.7 46.8 10.5
Not religious other denomination 83 (7.2) 33.8 40.5 25.7
Location of death preference* 0.268
Hospital ⁄ nursing home 97 (8.6) 40.7 31.9 27.5
Hospice 165 (14.6) 35.0 42.5 22.5
Home ⁄ home of another 786 (69.8) 35.1 42.6 22.3
Other 78 (6.9) 45.3 40.0 14.7
*Numbers of categories within a variable might not add up to total because of missing values. Missing cases were lower than 5% except for income
(25.2%) and political affiliation (6.2%) and preferred place of death (6.5%). 1.6% of respondents did not answer to the question on hastening death;
4.6% responded ‘don’t know ⁄ not sure’. These are not considered in the analyses. Further evaluation of these missing cases (i.e. no answer and
don’t know) showed no significant differences for all variables in the percentage of missing cases except for age (only the group aged 65 and older
had more missing cases, i.e. 9%) and political affiliation (green party: 0%, Liberal: 1.8%, New Democrat: 1.8%, Conservative 5.5%, other 7.6%).‡P-value assessed by Kruskal–Wallis, a non-parametric test. A P-value <0.05 denotes a statistically significant difference in acceptance of
assistance in dying between the different categories of the independent variables.�This category ‘religious-other’ comprises amongst others, Christians for whom none of the listed denominations applied (52%), as well as
Muslims (9%), Hindus (4%) and Jews (3%).
Public support
ª 2012 Blackwell Publishing Ltd 203
remaining 1129 respondents, 36.8% indicated ‘yes, everycompetent adult should have this right’, 40.6% indicated
‘yes, but it should be allowed only in certain cases or sit-
uations’, and 22.6% indicated ‘no’. Table 2 illustrates rel-
atively few socio-demographic differences among
respondents regarding this hastened death right; over
50% in all but one sub-group (Religious-other) were in
favour or conditionally in favour of the right to hastened
death. However, significant differences in support werefound between age cohorts. Furthermore, less support
for hastened death was found among Albertans with
lower income and lower educational attainment, and
also among those with a conservative political affiliation
and those with a strong religious affiliation. Only 34 peo-
ple indicated having North American Aboriginal ances-
tors (2.9% of the sample). Their answers did not differ
significantly from those of non-Aboriginals (Aboriginalpersons indicated: 44.1% yes, 35.3% yes, conditionally
and 20.6% no; whereas non-Aboriginals, respectively,
answered: 36.2%, 40.9%, and 22.9%).
Table 3 presents information oriented to the respon-
dents’ previous personal experiences with death and
dying; with this information gathered as it was hypoth-
esised that select lived experiences could influence has-
tened death opinions. Of all respondents, 95% hadexperienced the death of a close friend or relative; 70%
had an experience of deciding to euthanise a pet ⁄ animal;51% had looked after a dying person; 44% had devel-
oped or planned to develop an advance directive or liv-
ing will; and 27% had been involved in a decision to stop
or not to start a life-supporting treatment. As shown,
the experience of deciding to euthanise a pet or another
animal, the experience of having prepared or made plans
to prepare an advance directive, and the experience of
deciding to stop or not start life-supporting treatment fora family member or friend were significant for a higher
level of unconditional support for the right to hastened
death.
Variables entered into the multinomial logistic regres-
sion analysis were as follows: age group, income, educa-
tional attainment, political affiliation, religious affiliation,
decisional experience of euthanising a pet ⁄ animal, deci-
sional experience with life-supporting treatments andhaving or planning an advance directive. The model was
built up stepwise, starting with age and gradually
expanding the model with additional variables. Non-
significant variables (P < 0.05) were removed from the
model. This resulted in a final model with three factors:
religious affiliation, experience of euthanising a pet ⁄animal and having or planning an advance directive
(Table 4). Answering yes instead of no to the question ofsupport for hastened death was significantly less likely
Table 3 Comparisons of data from key research question (should dying adults be able to request and get help from others to end their
life early?) and other end-of-life questions
Total N* (%) Yes N* (%)
Yes, conditionally
N* (%) No N* (%) P-value‡
Experience of euthanising a pet ⁄ animal <0.001
Yes 842 (70.4) 307 (38.8) 334 (42.2) 151 (19.1)
No 354 (29.6) 105 (31.6) 122 (36.7) 105 (31.6)
Experienced death of a close friend
or family member
0.254
Yes 1140 (94.9) 389 (36.3) 438 (40.9) 244 (22.8)
No 61 (5.1) 25 (44.6) 20 (35.7) 11 (19.6)
Have looked after a dying person 0.883
Yes 610 (50.7) 220 (38.1) 215 (37.3) 142 (24.5)
No 592 (49.3) 195 (35.4) 243 (44.1) 113 (20.5)
Had been involved in a decision to stop or not
start life-supporting treatment
0.014
Yes 326 (27.3) 133 (43.3) 112 (36.5) 62 (20.2)
No 870 (72.7) 282 (34.5) 344 (42.1) 191 (23.4)
Have an advance directive ⁄ living will, or planning one 0.023
Yes, have one now 516 (43.6) 197 (40.3) 189 (38.7) 103 (21.1)
No, but planning one 499 (42.1) 169 (35.9) 202 (42.9) 100 (21.2)
No 169 (14.3) 46 (29.9) 62 (40.3) 46 (29.9)
*Numbers of categories within a variable might not add up to the total because of missing values. 1.6% of respondents did not answer
the question on hastening death; 4.6% responded ‘don’t know ⁄ not sure’. These are not considered in the analyses. Further evaluation
of these missing cases (i.e. no answer and don’t know) showed no significant differences for all variables in the percentage of missing
cases.‡P-value assessed by Kruskal–Wallis, a non-parametric test. A P-value <0.05 denotes a statistically significant difference in
acceptance of assistance in dying between the different categories of the independent variables.
D. M. Wilson et al.
204 ª 2012 Blackwell Publishing Ltd
among respondents who reported a religion affiliation ascompared with those who indicated they did not belong
to any religious group, with those labelling themselves
religious Catholics (OR: 0.06, 95% CI: 0.03–0.11), religious
Protestants (OR: 0.06, 95% CI: 0.03–0.12), or religious in
any other religious denomination (OR: 0.08, 95% CI:
0.04–0.14) least likely to answer yes instead of no. Catho-
lics and Protestants who did not describe themselves as
religious were not significantly less likely to support theright to hastened death in certain cases or circumstances
than their non-religious counterparts. People with the
decisional experience of euthanising a pet or animal
were more likely to generally favour the right to has-
tened death (OR: 1.72, 95% CI: 1.18–2.51) and favour it in
certain cases or circumstances (OR: 1.78, 95% CI: 1.25–
2.53) as compared to people with no such experience.
Respondents with an advance directive or plans todevelop one were significantly more likely than respon-
dents with no advance directive to generally support the
right to hastened death instead of not supporting it (OR:
1.91, 95% CI: 1.12–3.26). However, those with an advance
directive or plans to develop one did not differ signifi-
cantly from those who did not have one in terms of
accepting the right to hastened death in certain cases or
circumstances vs. not accepting it (i.e. conditionalyes vs. no).
Discussion
This survey revealed majority support among a rela-
tively representative sample of adult Albertans for the
right to hastened death. As public opinion does change,often gradually over time, but sometimes rapidly in
response to a major development such as a highly publi-
cised event or issue, it will be important to repeat this
study in the future to determine if this finding of major-
ity support continues, fades, or increases over time. In
addition, it is important to recognise that this finding of
majority support cannot be generalised outside of
Alberta although past published studies across Canadahave similarly indicated considerable (often majority)
support among various health-care professional and citi-
zen groups for legalised death hastening (Kinsella &
Verhoef 1993, Verhoef & Kinsella 1993, 1996, Ogden &
Young 1998, Young & Ogden 1998, Marcoux et al. 2007,
Wilson et al. 2007). This finding of majority support can-
not also be generalised to other countries, including
countries that are similar to Canada in that they are highincome, and with ageing populations and high rates of
chronic illness. Regardless, this finding of majority sup-
port should be of considerable interest and relevance to
many individuals and groups both in and outside of
Alberta. This finding may help to explain the growing
number of petitions for legalising hastened death by
Canadians, the growing voice of death-hastening sup-
portive groups in Canada, and also the recent SupremeCourt ruling and the government report that recom-
mended legitimising assisted suicide and ⁄or euthanasia
(2012 BCSC 886 Carter v. Canada, Dying with Dignity
2012).
However, some limitations exist with this telephone
survey. As affluent individuals and households are more
likely to have more phones than socially deprived indi-
viduals and households, this telephone survey is biasedin favour of more affluent persons ⁄households. In addi-
tion, this survey did not determine why such a high level
of public support for the right to hastened death exists
among Albertans. It is possible that the social value of
compassion for ill people, which is thought to have cre-
ated and since maintained a universal publicly funded
health-care system in Canada (Wilson & Keiser 1996,
Wilson & Ross Kerr 1998), could be a factor. Majoritysupport for hastened death could also demonstrate, as
argued by Northcott & Wilson (2008) that death and
dying are no longer socially taboo subjects; with death
having moved beyond a ‘failure to rescue’ to being per-
ceived more often as an inescapable event at the end of a
long life or long illness. In Canada, <10% of deaths now
Table 4 Findings of multinomial logistic regression to evaluate
factors associated with support for hastened death (‘no’ as ref-
erence category)
Yes, but only in
certain cases
or situations Yes
OR (95% CI) OR (95% CI)
Religious affiliation
and religiosity
Not religious Reference
category
Reference
category
Religious – Catholic 0.24 (0.13–0.43) 0.06 (0.03–0.11)
Religious – Protestant 0.17 (0.09)0.30) 0.06 (0.03–0.12)
Religious – other 0.12 (0.07–0.23) 0.08 (0.04–0.14)
Non-religious Catholic 0.63 (0.31–1.30) 0.37 (0.18–0.76)
Non-religious Protestant 0.72 (0.33–1.55) 0.42 (0.20–0.92)
Non-religious other 0.28 (0.13–0.59) 0.16 (0.07–0.34)
Euthanised pet ⁄ animal
Yes 1.78 (1.25–2.53) 1.72 (1.18–2.51)
No Reference
category
Reference
category
Has an advance directive
or is planning one
Yes 1.23 (0.75–2.02) 1.91 (1.12–3.26)
No, but planning one 1.44 (0.89–2.35) 1.69 (0.99–2.88)
No Reference
category
Reference
category
Pseudo R2 (Nagelkerke): 19.5%. Bold signifies significant
differences with reference category.
Public support
ª 2012 Blackwell Publishing Ltd 205
are sudden and unexpected, with over 90% occurring atthe end of a long illness and also typically at the end of
a long life (Wilson et al. 2011). Emanuel et al. (2000)
argued that the public is becoming more supportive of
hastened death because of the increasingly common
and open practices of treatment withholding and with-
drawal. Growing interest in human rights could also be
a factor, with Canada’s 1982 Charter of Rights and Free-
doms having had 30 years of public exposure. Further-more, widespread death anxiety among the Alberta
public could be a factor, as death anxiety has been
shown to contribute to support for hastened death
(Bowling et al. 2010).
It was surprising that few differences in death hasten-
ing support were found among the surveyed groups, as
over 50% of persons in all but one sub-group (Religious-
Other) were in favour or conditionally in favour of theright to hastened death when asked directly: ‘Should
dying adults be able to request and get help from others
to end their life early, in other words, this is a request for
assisted suicide’? ‘Religious-Other’ persons comprised of
Muslims, Hindus, Buddhists and other minority reli-
gious groups. These are people with important diverse
cultural perspectives, with previous studies having
already shown considerable culture-based differences inend-of-life customs and expectations (Thomas et al.2008). However, not enough is known about minority
views on hastened death. In Canada, for instance, little if
anything is known about Aboriginal peoples’ views on
hastened death, and it cannot be assumed that there will
be a single shared viewpoint among all First Nation per-
sons. This survey, which involved 34 people, who indi-
cated North American Aboriginal ancestors did not findany significant differences between their viewpoints on
the right to hastened death as compared to those of non-
Aboriginals. The majority in both sub-groups were in
favour of the right to hastened death. Regardless, our
survey highlights the need for minority studies, a partic-
ularly urgent consideration as global migration is contin-
uing to diversify the population of Canada and many
other countries.The analysis only found self-identified religiosity was
a factor for non-support of the right to hastened death,
while having had experience in relation to euthanising a
pet or another animal, and having an advance directive
or plans for one were factors influencing support for the
right to hastened death. This is not the first study to find
religiosity influences health-care decision-making or
decisions (Cohen et al. 2008, Stempsey 2010). Decliningreligious affiliation, a trend already pronounced and
expected to continue in Canada and many other high-
income countries (Clark & Schellenberg 2008), could
therefore be a factor for ongoing increased interest in or
demand for hastened death.
It is also understandable that the experience ofdeciding to end and perhaps directly participating in
terminating a pet or another animal’s life would predict
death-hastening support. Pets are sometimes as impor-
tant as family members and friends; they may also be a
substitute for them (Adrian et al. 2009). Hastening the
death of a pet would typically constitute a very signifi-
cant event for all involved persons. However, pet eutha-
nasia is not likely to be a frequent life experience, butanimal deaths are common for farmers and ranchers.
Research has already indicated that rural Canadians rec-
ognise the dilemma that an animal’s suffering at the
end of life can be ended, but death hastening is not leg-
ally possible in Canada and thus it is not openly avail-
able for dying persons who are suffering near death
(Wilson et al. 2009a). The mechanism here may be that
the experience of having to euthanise a pet or anotheranimal out of reasons of mercy may incite more under-
standing of similar death hastening reasons for human
beings, with this a compassionate response or at least a
demonstration of awareness that a similar level of com-
passion may be needed for humans. It is also important
to note that research is increasingly indicating that life
experiences are major determinants of future action
(Singer et al. 1995, Breitbart et al. 2000, Nissen et al. 2009,Pousset et al. 2009). Experiences such as pet ⁄ animal
euthanasia should begin to be understood as prime
indicators of public opinion and possibly future action
on death hastening.
Conclusion
This study revealed majority support for death hasten-
ing among a relatively representative sample of
Albertans. Over 50% of respondents in all but one
socio-demographic sub-group (Religious-Other) were
fully or conditionally supportive of the right to has-
tened death. The regression model highlighted three
different predictors, however, with the experience of
deciding to euthanise a pet ⁄animal and having or plan-ning to have an advance directive both predicting sup-
port for the right to hastened death, whereas self-
reported religiosity predicted non-support. With the
number of deaths each year expected to increase and
double over the next two to three decades (Wilson
et al. 2009b), many more citizens will likely gain experi-
ence-based insights on death and dying. These experi-
ences and declining religiosity could contribute torising demand for death hastening legalisation. How-
ever, any such policy should include consideration of
the model that best serves terminally ill persons who
wish to have their death hastened, but one that also
protects dying people as they are highly vulnerable to
despair and other suffering near the end of life.
D. M. Wilson et al.
206 ª 2012 Blackwell Publishing Ltd
Requests for hastened death should never be a resultof absent or low quality palliative care.
Acknowledgements
The authors would like to acknowledge the Popula-
tion Research Laboratory for their excellent survey
work and CIHR funding (Institutes of CancerResearch and Health Services and Policy Research)
from a 5-year ICE grant #HOA-80057: ‘Timely Access
and Seamless Transitions in Rural Palliative ⁄ End-of-
Life Care’, awarded to Allison Williams and Donna
Wilson.
References
Adrian J.A., Deliramich A.N. & Frueh B.C. (2009) Compli-cated grief and posttraumatic stress disorder in humans’response to the death of pets ⁄ animals. Bulletin of theMenninger Clinic 73 (3), 176–187.
Bowling A., Illiffe S., Kessel A. & Higginson I.J. (2010) Fearof dying in an ethnically diverse society: cross-sectionalstudies of people aged 65+ in Britain. Postgraduate Medi-cal Journal 86, 197–202.
Breitbart W., Rosenfeld B., Pessin H. et al. (2000) Depres-sion, hopelessness, and desire for hastened death in ter-minally ill patients with cancer. Journal of AmericanMedical Association 284 (22), 2907–2911.
Burkhardt S., La Harpe R., Harding T.W. & Sobel J. (2006)Euthanasia and assisted suicide: comparison of legalaspects in Switzerland and other countries. Medicine,Science & the Law 46 (4), 287–294.
Clark W. & Schellenberg G. (2008). Who’s religious?[WWW document]. URL http://www.statcan.gc.ca/pub/11-008-x/2006001/9181-eng.htm#decline (accessedon 12 ⁄ 7 ⁄ 2012)
Cohen J., Marcoux I., Bilsen J., Deboosere P., Wal G.V.D. &Deliens L. (2006) European public acceptance of euthana-sia: socio-demographic and cultural factors associatedwith the acceptance of euthanasia in 33 European coun-tries. Social Science and Medicine 63, 743–756.
Cohen J., Van Delden J., Mortier F. et al. (2008). Influenceof physicians’ life-stance on attitudes towards end-of-lifedecisions and actual end-of-life decision-making in sixcountries. Journal of Medical Ethics 34: 247–253.
Dying with Dignity (2012). Recommendations of theQuebec report on dying with dignity [WWW docu-ment]. URL http://www.dyingwithdignity.ca/2012/03/29/recommendations-of-the-quebec-report-on-dying-with-dignity.php (accessed on 12 ⁄ 7 ⁄ 2012)
Emanuel E.J., Fairclough D.L. & Emanuel L.L. (2000) Atti-tudes and desires related to euthanasia and physician-assisted suicide among terminally ill patients and theircaregivers. Journal of American Medical Association 284(19), 2460–2468.
Kinsella T.D. & Verhoef M.J. (1993) Alberta euthanasia sur-vey: 1. Physicians’ opinions about the morality and legal-ization of active euthanasia. Canadian Medical AssociationJournal 148 (11), 1921–1926.
Law Council of Australia (2008). Inquiry into the rights ofthe terminally ill (Euthanasia Laws Repeal) Bill 2008
[WWW document]. URL http://www.lawcoun-cil.asn.au/shadomx/apps/fms/fmsdownload.cfm?file_uuid=6807213F-1C23-CACD-2205-729F871CF170&siteName=lca (accessed on 12 ⁄ 7 ⁄ 2012)
Marcoux I., Mishara B.L. & Durand C. (2007) Confusionbetween euthanasia and other end-of-life decisions: influ-ences on public opinion poll results. Canadian Journal ofPublic Health 98 (3), 235–239.
Mullock A. (2010) Overlooking the criminally compassion-ate: what are the implications of prosecutorial policy onencouraging or assisting suicide? Medical Law Review 18(4), 442–470.
National Assembly of Quebec (2010). Select committee ondying with dignity [WWW document]. URL http://www.assnat.qc.ca/en/actualites-salle-presse/nouvelle/actualite-21205.html (accessed on 12 ⁄ 7 ⁄ 2012)
Nissen R., Gagliese L. & Rodin G. (2009) The desire forhastened death in individuals with advanced cancer: alongitudinal qualitative study. Social Science & Medicine69 (2), 165–171.
Northcott H.C. & Wilson D.M. (2008). Dying and Death inCanada, 2nd edn. Broadview Press, Peterborough, ON.
Ogden R.D. & Young M.G. (1998) Euthanasia and assistedsuicide: a survey of registered social workers in BritishColumbia. British Journal of Social Work 28, 161–175.
Pousset G., Bilsen J., De Wilde J., Deliens L. & Mortier F.(2009) Attitudes of Flemish secondary school studentstowards euthanasia and other end of life decisions inminors. Child: Care, Health and Development 35 (3), 349–356.
Singer P.A., Choudhry S., Armstrong J., Meslin E.M. &Lowry F.H. (1995) Public opinion regarding end of lifedecisions: influence of prognosis, practice and process.Social Science and Medicine 41 (11), 1517–1521.
Stempsey W.E. (2010) The role of religion in the debateabout physician-assisted dying. Medicine, Health Care &Philosophy 13 (4), 383–387.
Thomas R., Wilson D.M., Justice C., Birch S. & Sheps S.(2008) A literature review of preferences for end-of-lifecare in developed countries by individuals with differentcultural affiliations and ethnicity. Journal of Hospice &Palliative Care Nursing 10 (3), 142–163.
Verhoef M.J. & Kinsella T.D. (1993) Alberta euthanasia sur-vey: 2. Physicians’ opinions about the acceptance ofactive euthanasia as a medical act and the reporting ofsuch practice. Canadian Medicine Association Journal 148(11), 1929–1933.
Verhoef M.J. & Kinsella T.D. (1996) Alberta euthanasia sur-vey: 3-year follow-up. Canadian Medicine Association Jour-nal 155 (7), 885–890.
Wilson D.M. & Keiser D.M. (1996) Values and Canadianhealth care: an Alberta exploration. Nursing Ethics 3 (1),9–15.
Wilson D.M. & Ross Kerr J.C. (1998) An exploration ofCanadian social values relative to health care. AmericanJournal of Health Behavior 22 (2), 120–129.
Wilson K.G., Chochinov H., McPherson C.J., Skirko M.G.,Allard P., Chary S. et al. (2007) Desire for euthanasia orphysician-assisted suicide in palliative cancer care. HealthPsychology 26 (3), 314–323.
Wilson D.M., Fillion L., Thomas R., Justice C., Bhardwaj P.& Veillette A. (2009a) The ‘‘good’’ rural death: a reportof an ethnographic study in Alberta, Canada. Journal ofPalliative Care 25 (1), 21–29.
Public support
ª 2012 Blackwell Publishing Ltd 207
Wilson D.M., Truman C., Thomas R., Fainsinger R.,Kovacs-Burns K. & Justice C. (2009b) The rapidly chang-ing location of death in Canada, 1994–2004. Social Science& Medicine 68 (10), 1752–1758.
Wilson D.M., Cohen J., Birch S. et al. (2011) ‘‘No one diesof old age’’: implications for research, practice, and pol-icy. Journal of Palliative Care 27 (2), 148–156.
2012 BCSC 886 Carter v. Canada [WWW document]. URLhttp://www.courts.gov.bc.ca/jdb-txt/SC/12/08/2012BCSC0886.htm (accessed on 15 ⁄ 6 ⁄ 2012)
Young M.G. & Ogden R.D. (1998) End-of-life issues: asurvey of English-speaking Canadian nurses in AIDScare. Journal of Association of Nurses in AIDs Care 9 (2),15–17.
D. M. Wilson et al.
208 ª 2012 Blackwell Publishing Ltd