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0 Brain Injury Resources

Traumatic Brain Injury Resources · 2017-02-08 · Stroke and Brain Injury Support Group for Survivors Northeast Rehabilitation Hospital 70 Butler Street Salem, NH 03079 1st Wednesday

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Page 1: Traumatic Brain Injury Resources · 2017-02-08 · Stroke and Brain Injury Support Group for Survivors Northeast Rehabilitation Hospital 70 Butler Street Salem, NH 03079 1st Wednesday

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Brain Injury Resources

Page 2: Traumatic Brain Injury Resources · 2017-02-08 · Stroke and Brain Injury Support Group for Survivors Northeast Rehabilitation Hospital 70 Butler Street Salem, NH 03079 1st Wednesday

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Table of Contents National Organization……………………………...2

General Resources…………………………………3

Foundations………......…………………………….4

Support Groups……………………..……....…... 5-8

Magazines/Newsletters…...………….……....…9-10

Books on Tape………………………………..11-12

Research……………………….…………...........13

Assistive Technology……………………..…..14-16

Adaptive Equipment/Recreation & Leisure...…17-20

Traveling………………………………………21-23

Page 3: Traumatic Brain Injury Resources · 2017-02-08 · Stroke and Brain Injury Support Group for Survivors Northeast Rehabilitation Hospital 70 Butler Street Salem, NH 03079 1st Wednesday

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National Organizations Brain Injury Association of NH 109 North State Street, Suite 2 Concord, NH 03301 Info Line: 800-773-8400 National Toll-Free: 800 444 6443 603-225-8400 http://www.bianh.org Brain Injury Association of MA 30 Lyman Street, Suite 10 Westborough, MA 01581 (508) 475-0032 Toll-Free: (800) 242-0030 http://www.biama.org/ Brain Injury Association of ME 60 Western Avenue, Suite 3, Box 221 Augusta, ME 04330 National Toll-Free: 800-444-6443 http://www.biausa.org/maine Brain Injury Association of America 1608 Spring Hill Road, Suite 110 Vienna, VA 22182 (703) 761-0750 www.biausa.org

Page 4: Traumatic Brain Injury Resources · 2017-02-08 · Stroke and Brain Injury Support Group for Survivors Northeast Rehabilitation Hospital 70 Butler Street Salem, NH 03079 1st Wednesday

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General Resources National Resource Center for Traumatic Brain Injury http://www.tbinrc.com/ National Brain Injury Information Center (Affiliated with Brain Injury Association of America) Toll Free: 1-800-444-6443 www.biausa.org/national-brain-injury-information-center Brain Line 2775 South Quincy Street Arlington, VA 22206 (703) 998-2020 www.brainline.org Traumatic Brain Injury 2 Commerce Square 2001 Market Street, Suite 2900 Philadelphia, PA 19103 www.traumaticbraininjury.com

Centre for Neuro Skills 1-800-922-4994 http://www.neuroskills.com

Page 5: Traumatic Brain Injury Resources · 2017-02-08 · Stroke and Brain Injury Support Group for Survivors Northeast Rehabilitation Hospital 70 Butler Street Salem, NH 03079 1st Wednesday

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Foundations The Krempels Brain Injury Foundation 100 Campus Drive, Suite 24 Portsmouth, NH 03801 (603) 570-2026 Community program: (603) 570-2026 x2 http://www.krempelscenter.org/ Brain Trauma Foundation 1999 S. Bascom Avenue Suite 1040 Campbell, CA 95008 (408) 369-9735 https://www.braintrauma.org/contact

Page 6: Traumatic Brain Injury Resources · 2017-02-08 · Stroke and Brain Injury Support Group for Survivors Northeast Rehabilitation Hospital 70 Butler Street Salem, NH 03079 1st Wednesday

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Support Groups Stroke and Brain Injury Support Group for Survivors Northeast Rehabilitation Hospital 70 Butler Street Salem, NH 03079 1st Wednesday of the month 5-6 PM Contact: Jess Anderson, SLP (603) 893-2900 ext. 3218 www.northeastrehab.com Focus: Education and peer support for stroke and brain injury survivors and families Mild Brain Injury Support Group Northeast Rehabilitation Hospital 70 Butler Street Salem, NH 03079 2nd Wednesday of each month from 5-6 PM Contact: Barbra Capobianco, MS, CCC/SLP (603) 893-2900 x3218 www.northeastrehab.com Join the group for support, education, and a time to openly informally share your thoughts, feelings, and experiences. Stroke and Brain Injury Support Group for Survivors Northeast Rehabilitation Hospital at Pease 105 Corporate Drive Portsmouth, NH 03801 Second Monday of each month from 5:00 – 6:00 PM (603) 501-5552 www.northeastrehab.com

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Manchester Brain Injury Support Group Catholic Medical Center, Unit F200 Manchester, NH 03102 Contact: Bob Viera (603) 663-6662 Greater Salem/Derry Brain Injury Support Group for Survivors, Families and Caregivers 1st Tuesday of the month, 6:30pm-8:00pm Community Crossroads, 8 Commerce Drive Atkinson, NH 03811 Contact: BIANH (603) 225-8400 Granite State Independent Living 3rd Tuesday of the month, 6:30pm-8:00pm, 21 Chenell Drive, Concord, NH 03301 Contact: BIANH (603) 225-8400 Monadnock Pacers 4th Tuesday of the month, 6:00pm-7:30pm DHMC 580 Court Street Keene, NH 03431 Contact: BIANH (603) 225-8400 Lakes Region Community Services 1st Thursday of the month, 6:00pm-7:30pm, 719 Main Street, Laconia, NH 03246 Contact: BIANH (603) 225-8400

Page 8: Traumatic Brain Injury Resources · 2017-02-08 · Stroke and Brain Injury Support Group for Survivors Northeast Rehabilitation Hospital 70 Butler Street Salem, NH 03079 1st Wednesday

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Nashua 1st Wednesday of the month, 6:00pm St. Joseph Hospital (4th floor) Nashua, NH Contact: BIANH (603) 225-8400 Rochester 4th Thursday of the month, 6:00 – 7:30 pm First Church Congregational United Church of Christ, 63 South Main Street Rochester, NH 03867 Contact: BIANH (603) 225-8400 Seacoast 1st Tuesday of the month, 7:00pm North Hampton United Church of Christ 295 Atlantic Avenue North Hampton, NH 03862 Contact: BIANH (603) 225-8400 Boston Acquired Brain Injury Support Group (BABIS) Support group meets monthly at Spaulding Rehabilitation Hospital Boston, MA 300 First Avenue Charleston, MA 02129 Contact: Sally Johnson 617-573-2539 http://www.babis.info/

Page 9: Traumatic Brain Injury Resources · 2017-02-08 · Stroke and Brain Injury Support Group for Survivors Northeast Rehabilitation Hospital 70 Butler Street Salem, NH 03079 1st Wednesday

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Please refer to the Brain Injury Association websites for more locations of support groups:

Brain Injury Association of NH http://www.bianh.org/pdf/SupportGroups.pdf

Brain Injury Association of MA

http://www.biama.org

Brain Injury Association of ME http://www.biausa.org/maine

Page 10: Traumatic Brain Injury Resources · 2017-02-08 · Stroke and Brain Injury Support Group for Survivors Northeast Rehabilitation Hospital 70 Butler Street Salem, NH 03079 1st Wednesday

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Magazines/ Newsletters Brain Injury Journey Magazine 100 Boardwalk Drive, Suite 150 Youngsville, NC 27596 (919) 556-0300 http://www.lapublishing.com/ Wide range of topics for families, survivors, caregivers, and veterans living with a brain injury. Ability Magazine PO Box 10878 Costa Mesa, CA 92627 (714) 854-8700 www.abilitymagazine.com Traumatic Brain Injury Model System: Newsletter http://model.tbinrc.com/newsletters Updates, profiles of regional agencies and faculty, survivor “tips, FAQs, an advice column, events calendar, and a fun activity for people living with a traumatic brain injury. National Resource Center for Traumatic Brain Injury http://www.tbinrc.com/articles Articles regarding brain injuries Brain Injury Association of NH http://bianh.org/newsletters.html BIANH Quarterly Headway Newsletter!

Page 11: Traumatic Brain Injury Resources · 2017-02-08 · Stroke and Brain Injury Support Group for Survivors Northeast Rehabilitation Hospital 70 Butler Street Salem, NH 03079 1st Wednesday

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New Mobility 12034 Queens Boulevard, Suite 320 Kew Gardens, NY 11415 Customer Service: (800) 404-2898 ext. 7203 www.newmobility.com The magazine for active wheelchair users. Active Living Disability Today Network P.O. Box 2660 Niagara Falls, NY 14302 800-725-7136 http://www.disabilitytodaynetwork.com/active-living DT Network is a revolutionary new way to bring our community together to Discover New People, Products and Places. MPower www.mpower-sports.com https://www.facebook.com/mpowersportsrec Mpower Sports and Recreation is a disability sports news network where journalists, photographers and filmmakers can tell the stories of our community.

NINDS Newsletter National Institute of Neurological Disorders and Stroke Division of Extramural Research 6001 Executive Boulevard, Suite 3309 Bethesda, MD 20892-9531 Toll Free: 1-800-352-9424 (301) 496-5751 http://www.ninds.nih.gov/news_and_events/index.htm

Page 12: Traumatic Brain Injury Resources · 2017-02-08 · Stroke and Brain Injury Support Group for Survivors Northeast Rehabilitation Hospital 70 Butler Street Salem, NH 03079 1st Wednesday

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Book/Magazines on Tape New Hampshire State Library Talking Books 117 Pleasant Street Concord, NH 03301 (603) 271-3429 Toll-free: 1-800-491-4200 https://www.nh.gov/nhsl/talking_books/ Worcester Talking Books for Massachusetts Residents 3 Salem Square Worcester, MA 01608-2015 Toll-free: 1-800-762-0085 http://talkingbook.mywpl.org Perkins Library Perkins School for the Blind 175 North Beacon Street Watertown, MA 02472-2790 http://www.perkinslibrary.org/ Maine State Library Talking Books 64 State House Station Augusta, ME 04333-0064 Toll-free: 1-800-762-7106 http://www.maine.gov/msl/outreach/lbph/ National Library Service for the Blind and Physically Handicapped 1-888-657-7323 http://www.loc.gov/nls/index.html Has information about the free lending services and links to all state agencies.

Page 13: Traumatic Brain Injury Resources · 2017-02-08 · Stroke and Brain Injury Support Group for Survivors Northeast Rehabilitation Hospital 70 Butler Street Salem, NH 03079 1st Wednesday

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Choice Magazine Listening 1-888-724-6423 http://www.choicemagazinelistening.org Free quarterly digital magazine subscription service.

Page 14: Traumatic Brain Injury Resources · 2017-02-08 · Stroke and Brain Injury Support Group for Survivors Northeast Rehabilitation Hospital 70 Butler Street Salem, NH 03079 1st Wednesday

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Research Brain Injury Association of America 1608 Spring Hill Road, Suite 110 Vienna, VA 22182 (703) 761-0750 www.biausa.org Rehabilitation Research Center at Santa Clara Valley Medical Center 751 S Bascom Ave San Jose, CA 95128 (408) 793-6433 http://tbi-sci.org/research.php Rancho Los Amigos National Rehabilitation Center 1-877-RANCHO1 or 1-877-726-2461 www.rancho.org Kessler Foundation 120 Eagle Rock Avenue East Hanover, NJ 07936 973.324.8362 http://kesslerfoundation.org/researchcenter/index.php Centre for Neuro Skills 1-800-922-4994 http://www.neuroskills.com The internet's central source of information, services and products relating to traumatic brain injury, brain injury recovery and post-acute rehabilitation.

Page 15: Traumatic Brain Injury Resources · 2017-02-08 · Stroke and Brain Injury Support Group for Survivors Northeast Rehabilitation Hospital 70 Butler Street Salem, NH 03079 1st Wednesday

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Assistive Technology New England Assistive Technology Center 120 Holcomb Street Hartford, CT 06112 (860) 242-2274 www.neatmarketplace.org Sets the standard in providing education and lifelong learning opportunities to enhance independence and quality of life for people with disabilities. Able Data 103 W. Broad Street, Suite 400 Falls Church, VA 22046 1-800-227-0216 http://www.abledata.com AbleData provides objective information about assistive technology products and rehabilitation equipment. Ability Hub; Assistive Technology Resources http://abilityhub.org/ Ability Hub offers assistive Technology solutions for people with a disability who find operating a computer difficult, maybe even impossible. Affordable Mobility 346 Chester Road PO Box 507 Auburn, NH 03032 (603) 483-5922 http://www.affordablemobility.com Simply the best home and auto mobility dealer in the country.

Page 16: Traumatic Brain Injury Resources · 2017-02-08 · Stroke and Brain Injury Support Group for Survivors Northeast Rehabilitation Hospital 70 Butler Street Salem, NH 03079 1st Wednesday

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All-Ways Accessible 128 Hall St, Suite F Concord, NH 03301 1-800-684-0270 www.awalifts.com All-Ways Accessible, Inc. specializes in the sale, installation and service of residential home elevators, Stiltz, limited use limited application elevators (L.U.L.A), vertical wheelchair lifts, stair lifts, dumbwaiters, material handling lifts, patient lifts, and modular ramps. Assistive Technology in NH (AT in NH) University of New Hampshire Institute on Disability 10 West Edge Drive, Suite 101 Durham, NH 03824 (603) 862-4320 or -855-374-9969 www.atinnh.org AT in NH has two main focuses; Training, Education and Outreach: AT Trainings, Classes, and Workshops and AT Policy and Assistive Technology Services: Equipment Demonstrations, Loans and Refurbishing/Recycling Crotched Mountain ATECH Services 57 Regional Drive, Suite 7 Concord, NH 03301 (603) 226-2900 www.crotchedmountain.org As the largest and most comprehensive provider of assistive technology services in New Hampshire, Crotched Mountain ATECH Services offers creative options for people of all ages and abilities.

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Ride-Away 54 Wentworth Avenue Londonderry, NH 03053 (603) 210-4480 www.ride-away.com Ride-Away® is one of the largest wheelchair van dealers in the United States because we offer the industry's best service and product selection.

Page 18: Traumatic Brain Injury Resources · 2017-02-08 · Stroke and Brain Injury Support Group for Survivors Northeast Rehabilitation Hospital 70 Butler Street Salem, NH 03079 1st Wednesday

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Adaptive Equipment/Recreation & Leisure Crotched Mountain, Refurbished Equipment Marketplace 57 Regional Drive, Suite 7 Concord, NH. 03301 (603)-226-2900 www.shoprem.com Centralized depository of previously owned assistive technologies that have been donated, refurbished, and made available for purchase to individuals and dealers throughout New Hampshire. Northeast Passage 107 Hewitt Hall. UNH Durham, NH 03824 603-862-0070 http://www.nepassage.org Explore health, wellness, access, sports and recreation with Northeast Passage, serving individuals with disabilities, their friends, families and communities. AbilityPLUS P.O. Box 253 Waterville Valley, NH 03850 1-800-287-8415 Ext. 104 http://www.abilityplus.org Dedicated to helping disabled people of all abilities realize their dreams of inclusion through adaptive skiing and other recreation opportunities. Crotched Mountain Rehabilitation Center Wheelchair Seating and Mobility Clinic 1 Verney Drive Greenfield, NH 03047 (603) 226-2900 www.crotchedmountain.org Offering a lifelong alliance to people with disabilities.

Page 19: Traumatic Brain Injury Resources · 2017-02-08 · Stroke and Brain Injury Support Group for Survivors Northeast Rehabilitation Hospital 70 Butler Street Salem, NH 03079 1st Wednesday

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UpReach 153 Paige Hill Road PO Box 355 Goffstown, NH 03045 (603) 497-5367 http://www.upreachtrc.org/ Equestrian center therapeutic riding program. The White Mountain Adaptive Ski School, Loon Mountain 60 Loon Mountain Road Lincoln, NH 03251 (603) 745-6281 ext. 5663 http://www.loonmtn.com/book/camps/new-england-disabled-sports Dedicated to providing ski instruction and adaptive equipment to adults, teens and children with physical and cognitive disabilities. Bretton Woods Adaptive Ski Program 99 Ski Area Road Bretton Woods, NH 03575 (603)-278-3398 http://brettonwoods.com/activities/adaptive/overview Serves the whole family, making it possible for everyone to enjoy the thrill of skiing regardless of disability New England Handicapped Sports Association [NEHSA] P.O. Box 2135 Newbury, NH 03255-2135 603-763-9158 www.nehsa.org NEHSA bears witness to the triumph of the human spirit by helping people with disabilities and their families enrich their lives through adaptive sports, recreation and social activities.

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Massachusetts Department of Conservation and Recreation 251 Causeway Street, Suite 900 Boston, MA 02114-2104 (617) 626-1250 http://www.mass.gov/eea/agencies/dcr/ The Department of Conservation and Recreation's Universal Access Program is dedicated to providing outdoor recreation opportunities in Massachusetts State Parks for visitors of all abilities. King Pine Adaptive Ski Program 1251 Eaton Road, Route 153 East Madison, NH 03849 (603) 367-8896 ext. 273 https://www.kingpine.com/lessons/adaptive Programs offered are Adaptive Ski Program at King Pine Ski Area, Therapeutic Riding Program, Adaptive Biking, Children's Tennis. Equipment available for use - by reservation in lesson programs: Mono Ski, Bi Ski, Dual Ski, Three Track, Four Track, Slider-Glider, Two Track Adaptive - Children's Starter Tennis Equipment. Outdoor Explorations 98 Winchester Street Medford, MA 02155 (781) 395-4999 www.nchpad.org/Directories/Programs/7991/Outdoor~Explorations Outdoor Explorations is the hero of anyone with a disability looking for an outdoor experience. Waypoint Adventure 453 Concord Avenue Lexington, MA 02421 (781) 325-7980 www.waypointadventure.org Help youth and adults with disabilities discover their purpose, talents and strengths through the transforming power of adventure.

Page 21: Traumatic Brain Injury Resources · 2017-02-08 · Stroke and Brain Injury Support Group for Survivors Northeast Rehabilitation Hospital 70 Butler Street Salem, NH 03079 1st Wednesday

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Access Sport America 119 High Street Acton, MA01720 978-264-0985 www.accessportamerica.org/ Inspires higher function and fitness for children and adults of all disabilities through high-challenge sports and training. National Alliance for Accessible Golf One World Golf Place St. Augustine, FL 32092-2724 (904) 940-4204 www.accessgolf.org Couples community programs and resources to enhance opportunities for people with disabilities to become involved in the game of golf. Disabled Sports USA 451 Hungerford Drive, Suite 100 Rockville, Maryland 20850 1-301-217-0960 http://www.disabledsportsusa.org/ Providing adaptive sports opportunities for people with disabilities to develop independence, confidence and fitness through sports.

Page 22: Traumatic Brain Injury Resources · 2017-02-08 · Stroke and Brain Injury Support Group for Survivors Northeast Rehabilitation Hospital 70 Butler Street Salem, NH 03079 1st Wednesday

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Travel Society for Accessible Travel and Hospitality (SATH) 347 5th Avenue, Suite 610 NY, NY 10016 (212) 447-7248 [email protected] www.sath.org Provides information on national and international travel, a variety of travel resources, calendar of events, travel/access tips. Access-ABLE Travel Source PO Box 1796 Wheat Ridge, CO 80034 Phone: 1-303-232-2979 www.access-able.com Accessible Journeys, Inc. Toll Free: 1-800-846-4537 Phone: (610) 521-0339 www.accessiblejourneys.com Medical Travel, Inc. Toll Free: 1-800-308-2503 Phone: (407) 438-8010 www.medicaltravel.org USA Tourist USA Travel Access for the Handicapped 107 Bunker Hill Drive McMurray, PA 15317 1-412-854-0200

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http://www.usatourist.com/english/traveltips/handicapped-travel-tips.html Provides information on transportation access, hotel accommodation access, blind/visually/hearing impaired access. ABLEDATA 8630 Fenton Street, Suite 930 Silver Spring, MD 20910 1-800-227-0216 www.abledata.com Provides information and links to a variety of accessible travel resources, including organizations and news. National Center on Accessibility 501 North Morton Street, Suite 109 Bloomington, IN 47404-3232 1-812-856-4422 www.ncaonline.org Provides information on recreation, parks and tourism nationally. U.S. Department of Transportation 1200 New Jersey Avenue, SE Washington, DC 20590 1-202-366-4000 https://www.transportation.gov/accessibility Provides information on accessible rail and air travel. Comm Trans 792 South Cooper Street Memphis, TN 38104 Toll Free: 1-800-757-7350 www.commtrans.com Disabled Travelers http://www.disabledtravelers.com

Page 24: Traumatic Brain Injury Resources · 2017-02-08 · Stroke and Brain Injury Support Group for Survivors Northeast Rehabilitation Hospital 70 Butler Street Salem, NH 03079 1st Wednesday

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Accessible New England State Parks

New Hampshire http://www.nhstateparks.org/ Information on the accessibility of state parks and beaches. Visit NH Division of Travel and Tourism Development 172 Pembroke Road Concord, NH 03301 http://www.visitnh.gov/ Provides an advanced search engine for accessible attractions. Massachusetts 251 Causeway Street Boston, MA 02114 1-617-626-1250 http://www.mass.gov/eea/agencies/dcr/ Provides a listing of beaches and state parks. Cape Cod Disability Access Directory 1-508-430-0136 www.capecoddisability.org Provides a directory of accessible locations and activities. Maine https://www1.maine.gov/dacf/parks/visitor_accessibility/access_guide.pdf Provides a listing of arts, recreation, sports centers and leisure activities.

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Completed by:

Danielle DeFranzo

University of New Hampshire

Internship: Summer 2014

Updated: Winter 2016