Tokyo,Japan - musashino-higashi.org › mrshore.files › Eng. Mr. Shore Presentation.pdfbuild better mutual understanding, fulfillment, and productivity. Successful self-advocacy

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LIFE ON AND SLIGHTLY TO THELIFE ON AND SLIGHTLY TO THERIGHT OF THE AUTISM SPECTRUMRIGHT OF THE AUTISM SPECTRUM

January 27, 2005

Musashino Higashi Gakuen

Tokyo,Japan

PRESENTED BY

Stephen M. [email protected] M

www.AutismAsperger.net

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Loss of speech&

Tantrums

Environmental withdrawal

Spinning

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Where oh where did this Autism

come from?

Oh where oh where can it be?

With mysteries cut long and eye

contact cut short?

Oh where oh where can it be from?

There is no conclusive

evidence as to the cause(s) of autism

(Rapin, 1997).

Rapin, I. (1997). Classification and causal issues in autism. In J. Cohen and F. Volkmar (eds.) Handbook of autism and pervasive

developmental disorders, (2nd ed). P. New York: John Wiley.

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W H A T I S A U T I S M ?

A complex developmental disability that typically appears during the first three years of life. Autism Spectrum Disorder results from a neurological condition that affects the functioning of the brain.

Social interactionCommunication (but no significant clinical delay)Repetitive motions and restricted interests

Anything that interferes with the central nervous system getting the needed information from the environment.

OOPS!!!!!WHAT ABOUT SENSORY INTEGRATION ISSUES?

ASA(2003)

DSMIV-TR (2000)

Miller(2000)

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I N N E R A N D O U T E R S E N S E S

Sight

Hearing Tactile

TasteSmell

Vestibular(Inner ear)

Proprioceptive(Muscles &

joints)

S E N S O R Y V I O L A T I O N S

• Fluorescent

lights

• Haircuts

• Bland foods• Kissing

Dad

- Coffee and

beard

• Chirping bir

ds

• Ticking clocks

Vestibular: Hypo —> Spinning/Hyper —> Gravitational InsecurityProprioceptive: Deep pressure, Under mattresses, Weighted blankets

Love airplanes but they mess w/Vest & Prop sensesBrave little kids

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S E L F S T I M U L A T O R Y B E H A V I O R

Better Definition

Self-regulatory behavior

Official Definition

Repetitive nonfunctional behavior

Most adults have learned socially acceptable stims

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��T H E A U T I S M S P E C T R U MSevere Moderate Light

Increasing Variability of Presentation

Kanner’s PDD-NOS HFA/ASRosenn, D. (1997). “Rosenn wedge”. From Aspergers: What we have learned in the ‘90s conference in Westboro, MA. Used with permission

T w i c e E x c e p t i o n a l i t y

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T H E A U T I S M S P E C T R U MA Closer look at my placement on the Autism Spectrum

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A CLOSER LOOK AT MY PLACEMENT ON THE AUTISM SPECTRUM

Typical develop-mentTurn over at 8 daysRapid physical and motor develop-ment

Autism bomb hitsWithdrawal from environmentTantrums

Putnam evaluation of atypical development, strong autistic tendencies & psychoticEarly intervention from parents who refute recommendations for removal from home

Enter PutnamCondition improves to “neurotic”The wonderful world of watch motorsEcholalia and return of speechEating baby food

Kinder-garten Social & academic difficultiesDiscovered making a mess of myself while eating BBQ chicken wingsLoved cats but dogs…Yikes bikes!

Cracking rocksSpecial interests in astronomy and weatherTeacher concerns for reading and math difficulties

Concern about dropping the letter “e.”My friend says “he feels like a pizza” and I argue with him that he does not look like a pizza and probably does not feel like one either

Middle and high schoolFinally getting it together but still often in left fieldDiscovering the band roomTime to focus more on people and not their bicycles

CollegeMore friendsDatingOthers really do think differentlyUtopia!

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AGE 0 1.5 2.5 4 6 8 10 13 19E

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A CLOSER LOOK AT MY PLACEMENT ON THE AUTISM SPECTRUM — 0

Typical development

Turn over at 8 days

Rapid physical and motor development

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AGE 0 1.5 2.5 4 6 8 10 13 19

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A CLOSER LOOK AT MY PLACEMENT ON THE AUTISM SPECTRUM — 1.5

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AGE 0 1.5 2.5 4 6 8 10 13 19

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Autism dragon hits

Withdrawal from environment

Tantrums

Slide 11

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A CLOSER LOOK AT MY PLACEMENT ON THE AUTISM SPECTRUM — 2.5



Putnam evaluation of atypical development, strong autistic tendencies & psychotic

Early intervention from parents who refute recommendations for removal from home

Home-based EI emphasizing music, movement, SI, narration, and imitation.

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AGE 0 1.5 2.5 4 6 8 10 13 19

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Zone of Intention (Miller)

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L I M I T E D S P H E R E S O F R E A L I T Y

The Miller Umwelt Assessment Scales examines the unique way in which each child with autism experiences reality. Observation reveals the manner in which the child reacts or fails to react to different parts of a situation.

ENVIRONMENTAL AWARENESSMost Less Least

www.millermethod.org

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Enter Putnam

Condition improves to “neurotic”

The wonderful world of watch motors

Echolalia and return of speech

Eating baby food

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AGE 0 1.5 2.5 4 6 8 10 13 19

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S Self Awareness

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Kindergarten

Social & academic difficulties

Discovered making a mess of myself while eating BBQ chicken wings

Loved cats but dogs…

Yikes bikes!

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AGE 0 1.5 2.5 4 6 8 10 13 19

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Cracking rocks

Special interests in astronomy and weather

Teacher concerns for reading and math difficulties

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AGE 0 1.5 2.5 4 6 8 10 13 19

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S Interests and Strengths

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S P E C I A L I N T E R E S T S

An interest of such great intensity that it interferes with daily functioning1.

1. Attwood, A. (1998). Aspergers Syndrome. London: Jessica Kingsley Publishers.

2. Shore, S. (2001). Beyond the wall: Personal experiences with autism and Asperger Syndrome. Shawnee Mission, KS: Autism Asperger Publishing Company.

S O M E S P E C I A L I N T E R E S T S2

airplanes astronomy bicycles earthquakesmedicine chemistry mechanics electricityelectronics computers hardware toolspsychology music rocks geologygeography locks cats dinosaurswatches shiatsu yoga autism

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Concern about dropping the letter “e.”

My friend says “he feels like a pizza” and I argue with him that he does not look like a pizza and probably does not feel like one either

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AGE 0 1.5 2.5 4 6 8 10 13 19

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S Literal Thought

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THE HIDDEN CURRICULUM - LEGAL SYSTEMDebbaubt, D. (2001). Autism, Advocates, and Law Enforcement Professionals

Route 9 — Speed Limit 55

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H O L D T H E D O O R P L E A S E ?

Laura Jekel, 12/2000

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AGE 0 1.5 2.5 4 6 8 10 13 19

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Interests, Relationships &

Community

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CollegeMore friendsDatingOthers really do think differentlyUtopia!

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AGE 0 1.5 2.5 4 6 8 10 13 19E

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Paradigm shift from being advocated for

to advocating for one’s self

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S E L F - A D V O C A C Y D E F I N E D

Self-advocacy involves knowing when and how to approach others in order to

negotiate desired goals, and in order to build better mutual understanding, fulfillment, and productivity.

Successful self-advocacy often involves an amount of disclosure about oneself that carries some degree of risk, in order to reach a subsequent goal of better mutual understanding.

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LIVING IN TODAY‘S WORLD

REALITY CHECK

Most people are busy with living

Most people are not in the mindset of

accommodating people with differences

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A.S.Univ

M A J O R K E Y——>S U P P O R TFamily

FriendsSchool

Other

M a k i n g C o l l e g e R i g h t

Interconnection is Vital

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SOME STEPS FOR A SUCCESSFUL COLLEGE EXPERIENCE

Coursework • Part time? • Full time?• Accommodations?

Living• Dorm? • Home?

- Single?

Organization • Aides- Carbon-based- Silicon-based

Social• Friends

- Parties- Appropriateness

A.SUniv

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M a k i n g C o l l e g e R i g h t (Cont.)A C C O M M O D A T I O N S W O R K S H E E T

Visually over stimulating, gets lost in all the words.

1. Only one question per page.2. Two sheets of paper to cover

distracting verbiage.

Perception of 60Hz cycling due to visual sensitivity

Explore alternate lighting, sit next to window, wear baseball cap in class.

Taking tests with multiple questions per page.

Unable to concentrate under fluorescent lights.

Scheduling long term assignments.

Poor executive function.

Regularly meet with professor (perhaps once a week) to keep on target with lengthy assignments.

Name: Any Student School: Any State College

Counselor: Unnamed Somebody Date: August 15, 2007

Challenge Cause Suggested Accommodation

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W H A T I S I T L I K ET O H A V E A U T I S M ?

Let us find out...

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S P E A K I N G A S A C O G N I T I V E T A S K

Two kinds of of tasks

1. Associative — Multi-tasking — Background

2. Cognitive — Singular — Foreground

Adapted from: Lavoie, R. (1989). Understanding Learning Disabilities: How difficult can this be? (Videotape) Greenwich, CT: Peter Rosen Productions.

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Associative — Multi-tasking — Background

• Drive and talk

• Walk and chew gum

• Listen and take notes

• Talk and make eye contact

• Decode nonverbal cues


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Now… Let’s tell a story in a round-robin fashion

Instructions:

All you need to do is relate your sentence to the previous person’s sentence.

Associative — Multi-tasking — Background


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Cognitive — Singular — Foreground

• Driving for the first time

• Arithmetic in another language

• For many with autism:

- Listen and take notes

- Talk and make eye contact

- Decode nonverbal cues


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Now… Let’s tell a story in a round-robin fashion again EXCEPT

• This time… no words can contain the letter “n”

- No “n” at the beginning, middle, or end

Cognitive — Singular — Foreground


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Tokyo,Japan - musashino-higashi.org › mrshore.files › Eng. Mr. Shore Presentation.pdfbuild better mutual understanding, fulfillment, and productivity. Successful self-advocacy