This is Me! Spring 2016 Edition

7/25/2019 This is Me! Spring 2016 Edition

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SPRING 2016

is a Shinegroup for anyone between the ages of

11 and 18 who has Spina Bifida and/or Hydrocephalus.

This Is Me...

A Golden Year ahead!2016 is ShinesGolden Anniversaryyear! Weve been

around for 50 years, first as ASBAH and then asShine

Well be celebrating all year and officially launching this

Spring, so keep an eye out on the ShineFacebook, thewebsite (www.shinecharity.org.uk), This Is Meand more!

A New Year!Its a New Year, and a new beginning so here are some fun

ways to get healthy and active this year, whether you make

a New Years resolution or not!

Fancy an activechallenge for 2016?Exercise can help keep you in shape. It helps

to boost circulation, keeps your muscles strong

and, if you regularly use a wheelchair, it can

reduce the risk of pressure sores. There are

loads of ways to keep in shape, including sports.

It can help to set yourself a fitness goal.

Aim for something you can achieve:

Do a 5K in your wheelchair - lots of 5K races are wheelchair-

friendly. Its an achievable distance and a great opportunity

to train for strength and endurance!

Complete the Great North Run - this half marathon is in

September, giving you nearly 9 months to train. Shine hascharity places in the main event (minimum age 17) if you

want to raise funds too!

Take part in a TribalSeries event - these are fully accessible

mass-participation events designed for people of all abilities

who have a disability. Choose from ParaTri (complete alone

or as part of a team), ParaSwim, or ParaRun/Push.

For more information on how to get active, to find an event,

or for active challenge fundraising ideas, contact Cheyenne on

01733 421307 or email [email protected]

Can I play sports ifI have Hydrocephalus?If you have Hydrocephalus, and have a shunt, you

may worry about whether your shunt will be damaged

through exercise. In fact, shunts are difficult to break ordislodge and most sports and activities should be fine.

Here are a few tips to help:

It may be wise to avoid high contact sports where

players are grabbed around the neck such as judo

or rugby, or where it is likely youll get hit hard

in your stomach

Non-contact sports like rounders, track events,

cross-country running and tennis should be fine

Swimming is an excellent all round sport! If you have

Spina Bifida you may not notice that your legs are

getting cold, so dont stay in the water for too long

Dont hang upside down (eg from wall bars) for

any length of time

If you have an LP (lumbar peritoneal) shunt, avoid

twisting, as in aerobics and some dance, or sports

where you need to twist at the waist, such as golf

Follow the safety advice for your sport. Wear helmets

for anything where injury to the head may occur

such as horse riding, skateboarding, cycling, climbing,

and canoeing

Contact Shineor your GP or Neurosurgeon if you

have any questions

Kaela says...I have just started going back to wheelchair basketball

and it is really good fun. I dont use my wheelchair very

often at home so basketball is a great way for me to

build upper body strength. My arms ache a bit after a two

hour session but this gets better the more I go. I love the

fact that at wheelchair basketball I can go at the same speed

as everyone else and everyone is treated equally. I also

love swimming. This is a great sport for someone with Spina

Bifida. My legs dont work well in water but I am a strong

swimmer and am good at all the strokes, using mostly my

arms. My favourites are front crawl and breaststroke.

Imogen says...I love cheerleading, swimming and trampoline

lessons. Trampolining is the most amazing thing

ever. Im looking forward to being in a cheerleading

show with my cousin and friends

Get yourself Wheely Fit!Here are some handy contacts for wheelchair sports:

www.getkidsgoing.com www.parasport.org.uk

www.wheelpower.org.uk www.efds.co.uk/


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Are you drinking enough?

Shine Summer

Rez

You cant survive without water. It makes

up over half your body and is vital for

you to work well. So drinking water is

important. It doesnt have any caloriesand (tap water) is free and if you

drink enough water, it can make

your skin look great too!

Here Shines Health Development

Officer, Robin Barnatt, gives us

a few tips about staying healthy.

Drinking enough is something

that all of us need to keep an eye

on in hot weather or if weve been

physically active.

Here are some tipsfor staying hydrated:1. Keep a bottle of water with you

during the day, so its within easy

reach. That will also help to remind

you to drink

2. Drink little and often (try to drink

up to two 1L bottles every day

if you can)

3. Drink water before, during, and

after exercise

4. Limit how many other types of drinkyou have such as smoothies, juice,

squash and fizzy drinks, as they

may contain lots of sugar which

isnt good for you, and choose low

calorie versions with no added

sugar on the label.

Dont get dehydratedIf you dont drink enough you may

become dehydrated. Dehydration

can be very serious and even lead to

kidney problems, because your body

stops getting rid of waste products, and

can affect the balance of your salts

and sugars. If you have Spina Bifida

its especially important to keep well

hydrated.

One way to tell if you are dehydrated is

the number of times you go to the loo

and the colour of the urine it should

be pale yellow. If you dont need to go

as often as usual, or you only pass a

small amount each time and its dark incolour, its likely that youre dehydrated.

Other signs include: having a headache,

feeling tired and weak, mood swings

and dry lips. Drinking more water

should help to sort this but if you are

worried talk to your GP or pharmacist.

lts extra important for people with

Hydrocephalus to make sure they

remember to drink enough.

Do a Wee check...

How dehydrated are you?

A quick way to test how well you

are hydrated is to check the colour

of your urine.

Hello, my name is Daniella

and I am part of the Shine

Youth Council.

I just wanted to tell you guys

about the Summer Rez. It was

the best holiday because I made

so many new friends and did

some really fun activities, includingarchery, swimming, different crafts

and meeting goats! For any of you

who are wondering whether or not

you should go, do it because no

matter how anxious you are it will

be something you wont regret!

Yes - we really did meet

some goats!

Can dogs play too?

Is it a rat or a mouse?

Very pale

yellow or no colour

Too much cut backon the water a little.

Pale yellow

Youre doing well.

Keep it up!

Mid yellow

Normal, but maybe drink a

little more to get back on track.

Dark yellow/orangeYou could be dehydrated.

Drink some water now.


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Eat Yourself Healthy!Here are a couple of Healthy recipes that you might like to try in the New Year

Vegetable ChilliServes 4

You will need:

1 dessertspoon of vegetable oil

1 onion, chopped

1 courgette, sliced

1 red pepper, chopped

410g tin chopped tomatoes

210g tin kidney beans, drained

1 tablespoon tomato puree

2 teaspoons chilli powder

1 teaspoon paprika

1. In a saucepan cook the onions

for 5 minutes until soft.

2.Add the courgette and pepper

and cook for a further 5 minutes.

3.Add the chopped tomatoes, tomato

puree, chilli powder, paprika and kidney

beans and simmer for 20 minutes. Stir

occasionally. Make sure you taste your

chilli as you might like to add some

more chilli powder to make it hotter.

4. Serve with rice.

Cheery Chips!Serves 4

Cut four medium size potatoes into half,

then into quarters and then into wedges.

Place them on a baking tray and drizzle

over some vegetable oil, then sprinkle

with garlic salt and paprika. Cook in

the oven at 200C or Gas No. 6 for 25

minutes until crispy. Turn the chips over

halfway through cooking.

Makes 24 biscuits

You will need:

100g soft brown sugar

100g golden caster sugar

100g butter, softened

1 egg

1 teaspoon vanilla extract

225g plain flour

140g milk chocolate, melted

85g white chocolate chips

85g plain chocolate chips

1. Turn oven on to Gas No. 6 / 200C.

2. Line two baking trays with baking

parchment.

3. Mix together the sugars and butter

with a wooden spoon.

4.Add the egg, vanilla extract, flour

and half the melted chocolate.

Mix well to form a dough.

5. Stir in the white and plain

chocolate chips.

6. Use a tablespoon to scoop out balls

of dough and place them on the

baking tray. Leave enough space

between the balls for them to spread.

7. Bake in the oven for 8 9 minutes

until golden but still soft to touch.8. When firm and cool, place on a

cooling rack and drizzle over the

remaining melted chocolate.

Enjoy!!

Rowans Triple Chocolate Cookies(OK, not quite so healthy but a yummy treat!)


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Youth Council

What do YOU want

from This Is Me?

The last Shine Youth Councilweekend was held in

October at the Zinc Arts Centre in Essex. We had a

very busy weekend discussing the role of the YouthCouncil, what TIM members want from Shineand

how this can be incorporated into Shines plans

for the future, and a session on peer mentoring.

The weekend finished with an information session

on the history of Hydrocephalus and shunts, and the

opportunity to see a shunt. Two of the main issues

discussed were how TIM members can make contact

with one another, especially those that are too young to

be on the TIM Facebook page and how those already

on Facebook can be encouraged to contribute.

It was agreed that we would try to put TIM members

in contact with one another by e-mail or letter. Includedwith this newsletter is a form for you to complete if you

would like to do this. Please remember that if you are

under sixteen your parent/carer will need to sign the

form too. If you are on the ShineTIM Facebook page,

look out for some new things happening Daniella has

set up Book Club and Rowan is uploading a weekly

song. Please dont be shy, we would love to see more

members joining the Facebook group! It is a closed

group, so no one outside of the page can see your

comments, and it is monitored by Shinestaff who

can provide support with any issues you may have.

Angela Bailey

Would you like an interactive website?

Do you want downloadable leaflets on teen topics or paper copies?

If we held information days what areas would you like covered -education, independent living skills, good mental health, continence issues....?

What sort of social events would you like?

Please e-mail your thoughts and suggestions [email protected]

Registered Charity no 249338 www.shinecharity.org.uk 01733 555988

Many thanks for the generous

support from the ScottishPowerFoundation which has helped us to

develop the Shine Youth Council.

Documents

This is Me! Spring 2016 Edition