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The UK contribution to the 2nd World Union of Wound Healing Societies Conference Last summer the Union of Wound Healing Societies held its second conference in Paris (July 8-13 2004). We are pleased to reproduce abstracts from invited UK speakers at this important event. We would like to thank the World Union for permission to reproduce these abstracts. These abstracts have not been peer reviewed by the Journal of Tissue Viability and have been reproduced as presented in the conference abstract book. Human costs of pressure ulcers: A review P. Price The development of pressure ulceration is a problem associated with a number of concomitant conditions and a range of symptoms, and although little research has been completed on the impact on everyday life, there is an understandable assumption that it profoundly affects health-related quality of life. Qualitative work has shown that the impact of pressure ulcers is wide ranging, with physical social and financial aspects affected, whilst changes in body image and the loss of independence / control are profound (e.g. Langemo et al 2000). Studies that have used validated health-related quality of life tools (e.g. Clark 2002, Franks et al 2002) have used the Short-Form-36 in conjunction with tests of physical function (such as the Bartel). Franks et al (2002) have shown that whilst there is a negative impact on health- related quality of life for patients with pressure ulceration, this is similar to other patients treated within the community setting with other conditions. Clark (2002), reporting on a cohort of 2,507 patients, has highlighted the difficulties of using generic self-report tools with this patient population. There are a number of challenges that professionals in this area need to consider, for example, as a condition specific tool for pressure ulceration is not available to use alongside generic tools, then it is difficult to assess the impact of new treatments in terms of the direct impact of the patient. Many patients in this group will not be able to complete a self-report of impact on health-related quality of life, which raises the issue of the use of proxy ratings for some patients. In addition to reviewing the current literature, this presentation will raise questions of methodology and ethics that related to this important topic.. VOL 15 NO.2 MAY 2005 Quality of life in patients with chronic leg ulceration P. Price In wound care over the past 10 years there has been a slow but important growth of research in the area of health-related quality of life (HRQoL) as applied to patients with chronic wounds, such that a few review papers are now available that pull together some of the knowledge we have on how the experience of chronic wounds can impact on HRQoL for many patients. This presentation will summarise the research available related to health-related quality of life in patients with chronic venous ulceration. Qualitative and quantitative studies will be presented in order to fully appreciate the range of work that has been completed in this area. Qualitative studies are now available from a number of countries, using a range of qualitative methodologies: the themes that emerge from the studies emphasise that lack of mobility and pain are key experiences for these patients. Quantitative studies have used generic tools, such as the Nottingham Health ProfJe and the SF-36: such studies have indicated that compared to sex and age matched norms, the quality of life of these patients is particularly poor. Data using condition-specific tools is still limited, but appear to confirm that pain, symptom management and fear of recurrence have a profound impact on HRQoL in patients with chronic venous ulceration. Although we have made substantial progress in understanding the everyday experiences of such patients, we have yet to fully incorporate HRQoL into clinical research and clinical audit to demonstrate how treatment options or service delivery can improve HRQoL for these patients. Pyschological problems in post burns scars N. Rumsey Successful recovery from burn injury requires phYSical, occupational and psychosocial rehabilitation. Common psychosocial difficulties include dealing with the aftermath of trauma, functional limitations and dealing with an altered appearance post burn. Distress results from problems incorporating the post burn appearance into the existing self image, and anxieties about the reactions of others. Those affected are troubled by a range 19

The UK contribution to the 2nd World Union of Wound Healing Societies Conference

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The UK contribution to the 2ndWorld Union of Wound HealingSocieties Conference

Last summer the Union ofWound Healing Societies heldits second conference in Paris (July 8-13 2004). We arepleased to reproduce abstracts from invited UK speakersat this important event. We would like to thank the WorldUnion for permission to reproduce these abstracts. Theseabstracts have not been peer reviewed by the Journal ofTissue Viability and have been reproduced as presentedin the conference abstract book.

Human costs of pressure ulcers: A reviewP. PriceThe development of pressure ulceration is a problemassociated with a number of concomitant conditions anda range of symptoms, and although little research hasbeen completed on the impact on everyday life, there isan understandable assumption that it profoundly affectshealth-related quality of life. Qualitative work has shownthat the impact of pressure ulcers is wide ranging, withphysical social and financial aspects affected, whilstchanges in body image and the loss of independence /control are profound (e.g. Langemo et al 2000). Studiesthat have used validated health-related quality of lifetools (e.g. Clark 2002, Franks et al 2002) have used theShort-Form-36 in conjunction with tests of physicalfunction (such as the Bartel). Franks et al (2002) haveshown that whilst there is a negative impact on health­related quality of life for patients with pressureulceration, this is similar to other patients treated withinthe community setting with other conditions. Clark(2002), reporting on a cohort of 2,507 patients, hashighlighted the difficulties of using generic self-reporttools with this patient population. There are a number ofchallenges that professionals in this area need to consider,for example, as a condition specific tool for pressureulceration is not available to use alongside generictools, then it is difficult to assess the impact ofnew treatments in terms of the direct impact of thepatient. Many patients in this group will not be able tocomplete a self-report of impact on health-related qualityof life, which raises the issue of the use of proxy ratingsfor some patients. In addition to reviewing the currentliterature, this presentation will raise questions ofmethodology and ethics that related to this importanttopic..

VOL 15 NO.2 MAY 2005

Quality of life in patients with chronic legulcerationP. PriceIn wound care over the past 10 years there has been aslow but important growth of research in the area ofhealth-related quality of life (HRQoL) as applied topatients with chronic wounds, such that a few reviewpapers are now available that pull together some of theknowledge we have on how the experience of chronicwounds can impact on HRQoL for many patients. Thispresentation will summarise the research available relatedto health-related quality of life in patients with chronicvenous ulceration. Qualitative and quantitative studieswill be presented in order to fully appreciate the range ofwork that has been completed in this area. Qualitativestudies are now available from a number of countries,using a range of qualitative methodologies: the themesthat emerge from the studies emphasise that lack ofmobility and pain are key experiences for these patients.Quantitative studies have used generic tools, such as theNottingham Health ProfJe and the SF-36: such studieshave indicated that compared to sex and age matchednorms, the quality of life of these patients is particularlypoor. Data using condition-specific tools is still limited,but appear to confirm that pain, symptom managementand fear of recurrence have a profound impact onHRQoL in patients with chronic venous ulceration.Although we have made substantial progress inunderstanding the everyday experiences of such patients,we have yet to fully incorporate HRQoL into clinicalresearch and clinical audit to demonstrate how treatmentoptions or service delivery can improve HRQoL for thesepatients.

Pyschological problems in post burnsscarsN. RumseySuccessful recovery from burn injury requires phYSical,occupational and psychosocial rehabilitation. Commonpsychosocial difficulties include dealing with theaftermath of trauma, functional limitations and dealingwith an altered appearance post burn. Distress resultsfrom problems incorporating the post burn appearanceinto the existing self image, and anxieties about thereactions of others. Those affected are troubled by a range

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