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Systemic advocacy - What works? Jim Simpson [email protected]

Systemic advocacy - What works? Jim Simpson [email protected] [email protected]

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Systemic advocacy -

What works?

Jim Simpson [email protected]

One current campaign

An assessment item in Medicare A joint campaign of CIDs and

AADDM

What’s your aim?

Work from the goal to the options for getting there?Goal - Better health for people with

intellectual disabilitiesOptions – Lots! Most useful are ones

that will make a big contribution to the goal and appeal to the decision makers.

Medicare item

Pros Evidence it will

work In line with

developments in Medicare and internationally

A valuable signal

Cons Uncertainty of

eligible population Uncertainty of

take-up rate

Getting on the agenda

Initial lack of receptiveness in the Department.

Sought a meeting with the Minister – CID in Canberra, parent in his electorate.

Can anyone help you get a meeting?

You’ve got about half an hour!

A crisp presentation

Keep to the essential points A clear, straight forward message One or two pages – bullet points Think about your audience – Will

s/he like anecdotes or data? Etc A man focused on practical chunks of reform.

What to cover

Who you are – we represent lots of voters, we know what we’re talking about

The problem – People with intellectual disabilities are in poor health

Why its like this – Communication barriers, five minute consultations

The evidence – Research and our experience Some options for solutions What you are seeking – Something s/he can

say “Yes” to. Anything from a dialogue to specific action, eg the Medicare item

What will help win him– Cost savings etc

To put a specific proposal?

Pros Serves up a solution A concrete election

promise

A good middle ground -

Cons What if they don’t like

it? There might be an

option they like better

Use the specific as an option for action, not the only option

So what happened with Tony?

It resonated with himWe sought - an election commitmentWe gathered support including AHCRAWe got - an acknowledgment of the

problem and a commitment to look at it and other options. A valuable step forward!

After the election

We met with the Minister’s adviser – very important people

The Minister sought advice from the GPs

The RACGP emerged as a champion A joint budget proposal 2005 –

detailed rationale, specification, costing

We gathered support

Australian Association on Developmental Disability MedicineAustralian Consumers AssociationAustralian Council of Social ServiceAustralian Federation of Disability OrganisationsAustralian Medical AssociationAustralian Psychological SocietyAustralian Society of Special Care in DentistryAustralasian Society for the Study of Intellectual DisabilityDietitians Association of AustraliaDown Syndrome Australia NetworkHuman Rights and Equal Opportunity CommissionNational Council on Intellectual DisabilityNational Ethnic Disability AllianceRoyal Australian College of General PractitionersSaint Vincent de Paul Society National Council

But we didn’t quite get there

Instead, the Department to look at it closely.

Time to work with the Department There issues? Respond. Adjust the

proposal. Try to see senior people

Gather more support

Keep talking to the Minister’s office.

So, bringing it together

Who are the key decision makers – eg Minister, Director-General, Premier, How can you get to them?

Who else do you need to have on side? Eg ministerial advisers, departments.

Whose support will help? In the disability sector, outside – avoid a narrow support base.

Who might oppose you? Can you avoid this?

Opposition, minor parties?

Think “interests” and options, not just positions

EgOur position – A Medicare assessment item

Our interests: Better health care Regular health assessments

Options Nurse based assessments Salaried doctors Use of other Medicare items?

Decision maker’s interests

Eg: Better lives for people with disabilities Consistency with govt policy, political philosophy Contain costs A practical solution I can say yes to! Avoid conflict with important groups Kudos Votes What flows from their personality/background?

Ask open questions, “Why?”, “What are your thoughts?”

Ask yourself, “What will appeal to them”? “What might worry them?”

A good outcome

Best available alternative Satisfies interests, especially ours! Amongst many options Legitimacy – measured objectively

eg based on research about what works, best practice

Compliance prone commitments Builds relationships

But never sell your soul

Be true to principles of advocacy: On the side of people with disabilities Vigorous action Fidelity to people with disabilities

And so, for example, you might advocate sweeping reform while also advocating some practical initial priorities.

Build a strong coalition

Consult with your constituency, and report back

Fact sheets, discussion papers Go looking for valuable allies Email groups Letter writing campaigns Position statements Media

Is the time ripe?

Consider this when deciding what issues to concentrate on

BUT, never underestimate the power of

persistence and flexibility

Will we get there with Medicare?

Yes!!!!!!!!!!!!

References

Fisher R, Kopelman E,& Schneider A (1994) Beyond Machiavelli, Tools for Coping with Conflict. Harvard University Press

Fisher R & Uri W (1982) Getting to Yes – Negotiating Agreement Without Giving In. Arrow Books, London

Ury W (1991) Getting Past No – Negotiating with Difficult People. Century Business, London