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8/13/2019 Symptom Journal Nov.'11-Jun.'12
1/23
Nov 1, 2011
Had an extremely painful headache with burning sensation throughout my neck and head. I felt
like I was floating then lost my hearing and got a really loud ringing sound. Started to get starry
so I sat down and tried to breathe my way through then I got really nauseas and threw up. I
continued to have a headache throughout the day.
Nov 2
Things started having a bitter taste kind of like licking a rubber band ball. Have a very faint
sense of smell.
Nov 4
Change in taste everything has a rancid taste to the point it makes me throw up when I eat
Nov 14-20
I have had massive headaches throughout the whole week. Monday and Tuesday were actuallypretty good I felt like myself for most of those two days. I didn't do anything different than usual.Wednesday I woke up with a headache and it just continually got worse throughout the day. I
took Advil and Benadryl but I just seemed to get tired which made the headache worse. I seemed
to hit a peak and the headaches haven't gone away or gotten better and it's Sunday. I'm sonauseas and completely exhausted I have zero energy to do anything. I tried babysitting all week
and there is no way I could have done it without help. I just can't do simple things like I use to. I
practically made myself miserable Saturday after deep cleaning the house. I got super nauseas
got really hot and my headache increased.
Nov 21
I had a headache throughout the day and was just extremely tired. Around 7pm I started feelingreally nauseas and was throwing up. I was throwing up throughout the night. I woke up with a
really bad headache and felt nauseas if I was up and walking around. I was still extremely tired
still throwing up with a low grade fever all day fluctuating between; 100.6-101.5. I've lost 7 lbs.
since Sunday.
Nov 23
I still had a low grade fever and headache had a little more energy than the past two days.
Nov 27
I had a bad headache throughout the day and just kind of ignored it. I've felt feverish but I'mcold. I want to be able to do things so I put on a good front. Took my temp tonight and have a
low grade fever of 100
Nov 28
I have a sharp piercing pain on the right side of my back. It's kind of by my ribs. It's been hurting
all day. Towards the end of the night it would feel like something was piercing thru my back to
the right side of my stomach.
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Nov 29
Ive had thesame sharp pain all day long it hurt it pierced to my stomach still. The pain goes
away when I push on my back but when I let go it hurts pretty badly. Sometimes the pain is so
bad it feels like itstaking my breath away. I had a low grade fever of 99.7 tonight.
Nov 30
I have the same pain today, no fever. Im drinking lots of cranberry juice. It's very tender where
the piercing feeling is so I try not to touch or have anything rub against it.
Dec 2
I woke up feeling like I had gotten zero hrs. of sleep. I felt hot and had a headache had a fever of
101.2. I took Tylenol for my headache and fever. I have just been dragging throughout the day.
Im extremely tired, more than usual with a temp of 99.8 as of 10:09 pm
Dec 6
I woke up and my eyes were bloodshot. I had a pretty bad headache but it got better throughout
the day. My kidneys still hurt especially when I urinate. I have a temp of 99.0
Dec 29
I kind of just felt weird all day.. Really tired so I slept a lot of the day. Was just at home taking it
easy... I was walking back into the living room and just passed out. I didn't feel it coming on at
all. I fell face first and hit my head pretty hard had a huge goose egg on my head and threw up
right after coming completely to. Had a painful headache the rest of the night and woke up a few
times in the night.
Dec 30
Just tired throughout the day. Had a headache and my head is still really bruised. My cheekbones
feel like someone's hit them with a bat they're very tender. Went to bed about 940 and after lying
down for a few minutes it just felt like everything I looked at was shaking. Everything rushed upand I'm guessing I either passed out or blacked out I couldn't really tell because I was lying in
bed.
Jan 2, 2012
I started having some sharp shooting pain on my left side by my rib cage. It hurt to touch and just
hurt throughout the whole day
Jan 3
Same sharp piercing pain on the left side. No fever or unusual warmth on the area but it is much
tenderer to touch. It hurts to stand and sit straight. I can't lay flat on my back because it is
painful. Sometimes the piercing is so intense it causes me to gasp and bend over. I did begin tohave a low grade fever of 100.1 at 745 pm right before going to bed. I'm just really hot and
uncomfortable. Dr suggested gas-x to see if that will ease the pain and I've taken 4 so far today
and there has been no change in severity or lessened pain.
8/13/2019 Symptom Journal Nov.'11-Jun.'12
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Jan 5
Pretty normal day. Left side didn't hurt as bad. Had a weird symptom throughout the day. I didn't
know if it was blacking out or just blanking. I would be into a conversation at one point and the
next I just had a blank state and couldn't remember anything we were talking about. It kind of
felt like a jolt went through me and I came to and realized I just missed out on part of the
conversation or lesson.
Jan 6
Just a bad headache and really fatigued otherwise a good normal feeling day.
Jan 7
I woke up with a headache. It progressively got worse throughout the day. I was really fatigued
and my body just ached. When I got home I just went to bed
Jan 8
I woke up with a lot of pain in my legs hips and feet. It hurt to walk. It felt like pins and needlesin my feet. I had a really bad pounding headache all day. I took some alieve and Benadryl and
that kind of took the edge off everything so I could sleep. I kept getting really hot throughout the
day like sweaty hot. It was only 70 deg. in the house. It aches when I breathe right in my lung rib
cage area.
Jan 9
Still in a lot of pain but now it's in my upper body too. It still aches when I breathe. My headacheisn't quite as bad but it's still there. My pain from a few days earlier in the left side is now on the
right side. Had a low grade fever. Tried taking a nap throughout the day but I just hurt too bad to
be comfortable enough to sleep. It's starting to hurt more and more to walk. The sensation ofwalking on a bed of nails is getting more intense. My head hurts a lot worse tonight then it did
this morning.
Jan 10
Didn't sleep much last night because my legs hurt so badly. No improvement on the pain but I
didn't really have a headache. I had a low grade fever of 100.
Jan 11
Was up till 4 in the morning because of the pain. I feel really hot and have a bad headache. Hurts
really bad to walk.
I've kind of been nauseas all day
Jan 12
Small headache legs are still really sore and the tingling in my feet is worse. Sometimes I have
periods where I can't feel them at all. Still have a low grade fever 99.7
8/13/2019 Symptom Journal Nov.'11-Jun.'12
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Jan 13
I woke up with no headache and went to school for half a day. It's still almost unbearable to
walk. The tingling feels like I'm stepping on needles and it hurts when people squeeze my toes
and feet. I was sitting watching a movie and all of a sudden it felt like I'd been shocked. It was
like a jolt or something started in my chest then shot across my collar bone. It causes me to jumpand gasp because it hurts. I can count 3 previous times this has happened. My reaction causes
people to think I'm reacting to them hitting me or something when I haven't. After it happens I
have a rapid heart rate.
Jan 14
Woke up with a minor headache. Everything still hurts. Extremely fatigues and weak. Have afever of 100.6. Headache got worse throughout the day and so did leg pain. At 1030 pm. I think I
passed out I kind of had a hard time remembering where I was and who the friend I was texting
was. Headache is worse after and the tingling in my feet was much worse but eased up after
about 30 min. I just felt kind of like I had a brain fog for like 15 min after coming to. I didn't hit
my head on anything besides the floor. This is the first time Ivebeen confused after coming to.My abdominal pain is still there but isn't constant like before.
Jan 15
Woke up with a headache and pain in my legs as usual. Lasted through the day and just
intensified through the night.
Jan 16
Woke up with a bad headache and true to sleep it off for the most part. My legs were hurting
really bad all day. At about 3 I got really nauseated and just ache. and it just drained all the
energy out of me so I slept till 7. When I woke up and started walking my right foot hurt morethan my left with the tingling sensation. But my left knee and hip hurt more like the bones would
clash together when I walked. My legs constantly feel like they are on fire and my muscle are
being ripped apart when I walk. I have a low grade fever of 99.8. Nauseas all through the night
throwing up and diarrhea.... Lovely...
Jan 17
My headache wasn't too bad today do it already started off as a better day. The pain in my legs
hasn't improved any. Went to the doctor and did a bunch of tests to see where to go next. I'm still
carrying a low grade fever.
Jan 18
I went to school today but was not feeling good at all. I woke up with a burning headache a fever
and very nauseas. The nausea didn't go away at all. I tried eating but it just made me even sicker.
I was extremely fatigued and practically fell into bed when I got home from school.
Jan 19
8/13/2019 Symptom Journal Nov.'11-Jun.'12
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Didn't go to school today because that burning headache is still around and my legs are hurting
and aching pretty bad. My spine has also been hurting for the past few weeks. It's not a pulled
muscle feeling its like when I touch my spine or lean against something it is really tender andbruised feeling. Today my rib cage area and lungs really hurt when I breathe and are just aching.
Fever of 99.8
Jan 20
When I woke up for school it felt like my whole body was on fire. My bone ached my head was
pounding and I had a fever of 100.1. I took some Tylenol and went back to bed for like a hr. and
the pain had lessened. I went to school to take finals. I had a massive headache and my body justached everywhere. The pain in my legs was more intense than everywhere else. I noticed all my
bones just feel bruised when I touch them. Sometimes my skin is just really sensitive when
someone or something touches or brushes against it. I went to a friendshouse and she just
squeezed my leg just messing around being fun and I didn't expect it to hurt so badly. It neverbothered me before but when she squeezes my leg this time it almost put me to tears. It wasn't
even hard I know that. It's just weird.
Jan 21
I woke up with a really bad headache and a low grade fever of 99.3. I was really hot and it was
only 70 in the house. My body continues to ache and I am just extremely fatigued.
Jan 22
I woke up extremely nauseas with a headache and just aches everywhere still. My bones still feel
bruised. The fun, light, punching when messing around feels like a full on slug and is extremely
painful. I haven't been punched recently but a couple weeks ago I can't remember if I logged it soI'm putting it now. People know not to punch me because it's extremely painful. Today I barely
hit my hand on the door and immediately after I had kind what looked like a blood blister, itwasn't way bad. But little things like that are excruciating to me and it's really frustrating becauseit's part of life, getting bumped a little. I surprisingly didn't have a fever today just extremely
fatigued as usual and anxious for the test results tomorrow.
Jan 22
Had a really bad headache and leg pains. I was extremely nauseas all day. When I see eat or
smell food it intensifies.
Jan 24
Had a bad headache. Leg pains aren't as bad joint wise. It's more muscle pains. It still feels likethey're being ripped apart. The aches and sharp pains are starting to work their way up my body
my arms chest hands and back are constantly aching and burning.
Jan 25
My headaches keep intensifying since I've been off the amitriptyline. My spine and rib cagehave really been hurting the past few weeks and won't go away. It hurts to breathe and my skin
around the areas is really sensitive. I haventwritten this down as a symptom before because I
8/13/2019 Symptom Journal Nov.'11-Jun.'12
6/23
just figured it was normal. Ivebeen losing a lot of hair in the shower and when I comb my hair.
I had three people ask me if I had my hair cut or thinned. Neither had happened since the end of
June. My hair has only grown about an inch and half since.
Jan 27
Today was actually a pretty good day. My headache was minimal. My muscle weren't aching toobadly until the end of the day which later made it difficult to sleep buy all in all it was a great
day.
Jan 28
I woke up feeling fine just really tired. As I got ready for the day my headache came and
worsened and my nausea and muscle aches were pretty high. I continued throughout the day and
my headache seemed to lessen but the nausea and muscle aches were intense all throughout the
day.
Jan 29
Today wasn't too bad definitely had muscle aches and a headache and was extremely fatigued. I
got my feet zoned to see if that would help with anything. About 30 min after I was done I got
really sick. And continued to be sick throughout the night.
Jan 30
I woke up extremely nauseas throwing up occasionally my muscle pains were the worst they'veever been. I tried sleeping most of the day and went on a mile walk to see if that would help. The
fresh air was nice but nothing else seemed to change.
Jan 31
I went to school and was feeling a lot better since the nausea was very minimal. My muscle pain
worsened throughout the day. My muscles became stuff and my skin was burning so I left school
at about 11 am.
Feb 1, 2012
Woke up really stiff and sore. Kind of moved around and slowly got ready for the day. I'm not so
stuff now but my headache has intensified and I'm itchy everywhere and my skin just feels like
its on fire. It was a pretty good day otherwise
Feb 2
Woke up with a massive headache about a 9. Took 4 Advil and 2 Benadryl. Went to school and
it seemed to lessen. Then about lunchtime my muscle were really aching about an 8 and my
headache came back just as bad as the morning. I didn't have anything to take so I just say as still
as possible for the rest of the day at school.
Feb 3
8/13/2019 Symptom Journal Nov.'11-Jun.'12
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It was a pretty good day. My muscles were really sore about a 7 but were manageable. I went out
to dinner with my friend and my body just didn't feel quite right. When we got up to leave I
could barely feel from my waist to my knees. I was really weak feeling and wobbly I constantlylost balance throughout the night and my friend kept asking if I was drink or something because I
couldn't stand or walk without losing my balance.
Feb, 4
I woke up with weak legs still but I could feel then better. I had a pretty bad headache about an 8
so I just took it easy for the day. Muscle aches just continued and I continue to be extremely
sensitive to touch. My sister just barely poked my chest and it was really painful and the next day
it felt really bruised. You couldn't see the bruise but I felt it.
Feb 5
Pretty good day. I was really tired and muscles aches and headaches were about the same asyesterday. The top of my knees were really sore when I straightened my legs. It felt like there
was a thumb tack right up under the bone and just made it really painful to walk. I iced my knees
for a while and through the night.
Feb 6
My knees don't have the same sensation as yesterday it's on the sides now. My rib cage and back
area are really tender and bruised feeling and I just have a small headache so far. My headaches
continue to be minimal throughout the day but my muscle aches increased and were about a 7.
Feb 7
Headache is a lot worse today it's about a 6. I'm extremely fatigued and I just hurt all over. Myskin is sensitive to the touch. I'm having a hard time keeping my balance again. I'm bruising
really easy. I barely hit my knee on the table and I immediately bruised. Same with my thigh Ijust barely hit it against a desk and it bruised. Tonight after I showered I began feeling a creepycrawly cooling sensation so I looked at my arms and thighs and I have kind of a splotchy rash up
and down both sides. It's not like hives or anything. But my arms and thighs are the only things
that have it. I haven't taken any new medications or eaten any new foods.
Feb 8
I woke up feeling weird. Something just didn't feel right. I was really tired and achy all day. The
level for head and body was about a consistent 8 all day. The aching isntjust in my muscles
anymore it's in my bones and joints too.
Feb 9
I was really nauseas and my head was really hurting. My legs and everything just hurt today Idon't want to move and sleeping isn't helping much since I'm up after about half an hour because
everything just hurts. I've had really good days about the past week and it seems like it all just
caught up to me. The pain got worse throughout the day and I was shaky. My nausea seemed to
go away then in the middle of the night it got worse and I had a terrible headache.
8/13/2019 Symptom Journal Nov.'11-Jun.'12
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Feb 10
This morning I woke up and I just don't feel right. Everything hurts. I'm extremely nauseas and
am having hot flashes. My head hurts itsabout a 7. It hurts to breathe. It feels like my food
doesn't go all the way down and my diaphragm/ solar plexus region are really tender and I have a
sharp pain there. I'm so uncomfortable. Nothing is helping.
Feb 11
It was an alright day. It's a roller coaster of feelings. I feel completely miserable when I first getup then after all my meds kick in I feel good for about 4 hrs. then I crash again. Even if I take
mess again it doesntseem to help.
Feb 12
Today's a good day besides the pain level in my muscles and joints they're about an 8. My
headache is very minimal and Imjust really tired.
Feb 13
Altogether it was an alright day pain levels werentbad which was a nice change.
Feb 14
Not feeling the best. Extremely tired and nauseas. Leg pain is about a 6. Headache is only a 5
Feb 15
Felt really sick in the middle of the night with a terrible punning headache like a 9. My body justhurt about an 8 I didn't get much sleep and didntgo to school. Went to the dr and got some ideas
on what I might have.
Feb 16
Had an okay morning. Headache and nausea progressively got worse so I went home and slept
for 5 hrs.
Feb 17
It was a pretty good day. I had a date. I had a headache about a 6.5 but tried to ignore it. I didn't
really have any body pain.
Feb 18
Woke up super nauseas sweaty and a massive headache of about an 8.5. It stayed the same all
day and none of my meds were helping. My whole body ached all day at an8.
Feb 19
Today wasn't too bad just had a constant headache at about a 6. My body aches were minimal
about a 4.
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Feb 20
Woke up miserable hot and sore. I'm super nauseas my skin is really sensitive. My head is
pounding about an 8. My body aches are about an 8.5. Meds aren't helping today.
Feb 21
Not a great day. I was really sick till about noon which my mess started to kick in about then.
Pain levels for headaches and body pain were both a solid 9 till noon then it went down to about
a 6. I had a low grade fever after school of 99.6. I continue to lose weight I'm 120 with all
clothes on. (Sweatshirt, jeans, shoes)
Feb 22
Today was pretty good. I had no leg pain and no headache.
Feb 23
Today was the same as yesterday.
Feb 24
Today was great also. Just a minor headache and nausea
Feb 25
I woke up with a really bad headache and nausea about a 7. It went away then I took a nap and
when I woke up my nausea was gone but I was really sore particularly in my joints. I think it's
because I was out in the cold a lot of the day.
Feb 26
Today I woke up feeling pretty good just exhausted and a little sore. I went snowmobiling and no
pain seemed to increase during or after.
Feb 27
I'm just tired today and a little stiff from snowmobiling yesterday.
Feb 28
Today I'm extremely exhausted with an awful headache nausea and joint pain. They're all 9. I
kept getting light headed and tunnel vision and really bad chest pain. I took medication and the
pain lessened.
Feb 29
I didn't go to school because I was extremely fatigued nauseas and had a terrible headache
March 1, 2012
I felt a lot better today after resting yesterday. Still have a headache and nauseas buy not as bad
8/13/2019 Symptom Journal Nov.'11-Jun.'12
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March 2
I feel pretty good today. No pain at all
March 3
I kind of have a headache today and super nauseas but otherwise I'm feeling good
March 4
I think I jumped out of bed to fast this morning because I got the ringing in the ears and starryvision feeling right before I faint so I laid on the floor as quick as I could then came to feeling
nauseas with a headache but kind of shook it off and have felt great for the rest of the day besides
a minor headache
March 5
Today I still had a constant headache and am just really tired.
March 6
Today was good no pain just a little tired. Towards the end of the evening my back started really
hurting we popped it and have been stretching but nothing is relieving it.
March 7
Today is awful. I'm in so much pain. It is definitely a 10. I've been in tears all throughout the
day. My joints hurt so badly. I don't want to walk or sit it just hurts so bad. My back is killingme. I have a headache of about a 7. I just don't feel right. My body feels weird. My depthperception is off. I can't stand or walk without losing my balance and feeling like I'm either
going to throw up or pass out. Lying down is the only thing that helps as long as I am completely
still. I have a fever of 101. I am not feeling right something just isn't right.
March 8
Didn't go to school today. The pain is exactly the same my headache is about an 8. I haven't beentaking any Elavil since Sunday. My headaches just barely started intensifying. I'm so miserable. I
just have that feeling something isn't right. I can't eat without the urge to throw up. I'm really
shaky and can barely walk it just hurts to much and I can't keep my balance. Lying down is the
only way I feel somewhat alright. I spent most of the day sleeping. My back is still really hurtingand I've been having really bad abdominal pain. It's really tender when you slightly push on the
left side. I continue to have a fever of 101 also.
March 9
Didn't go to school today. My lower back and abdomen are still really tender and soar. I was
throwing up all last night and still continue to have a fever. I have a massive headache and my
body continues to ache really badly.
March 10
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Just laid around for most of the day. I'm super nauseas when I get up and move around. When I
stay lying down I feel fine except for my headache. It starts at the crown of my head then just
radiates everywhere else. I have a low grade fever if 99.8
March 11
Woke up feeling nauseas shaky bad joint and muscle aches. I think it is the flu that my step dadhad. Still kind of feverish only 99.8 -100. My depth perception was off for part of the day butseems to be fine this evening. I took the Elavil for the first time last night since Sunday and only
took two. I took the anti-nausea pull but it take several hours before it works and when it does
work it takes all of my nausea away and I feel perfectly fine.
March 12
I woke up feeling alright so I went to school. I started feeling nauseas and three up twice at
school. I went home 4th hour. I was really shaky and weak. I slept a lot of the day and felt alrighttowards the end of the night. I still haven't taken the Elavil and I continue to have headaches at
about a 7. I have a constant low grade fever between 99.4-99.8
March 13
I didn't go to school today. I slept till about 12:30 I woke up twice throwing up and now have
diarrhea. I showered and threw up afterward. I continue to have a low grade fever at 100.5.
March 14
Still no school today. I was up till 330 throwing up. I woke up at 1030 and threw up. I went and
lay back in bed and I'm incredibly nauseas with a really bad headache of about a 9. I took 3
Tylenol and two Benadryl and it hasn't helped at all. I still have a low grade fever of 99.8. Ithought I was feeling better today. I woke up feeling nauseas but it kind of went away. Then I
slept for a few hours when I woke up and started moving around again I got really sick with amassive headache. I haven't thrown up but I would definitely feel better if I did. I still havediarrhea. My temperature still hovers between 100-100.5. I itch everywhere but there are not
hives or little bumps.
March 15
I still haven't gone to school. I seem to feel a little better. I'm still super nauseas and have bad
headaches but I'm not throwing up as much. I slept a lot of the day again.
March 16
I went to school today and was regretting it the whole time. I was fine until I had to get up andchange classes then I would get even more nauseas and threw up a few times at school. I can't eat
anything but I seem to be okay with sprite so I try drinking what I can of that. I went to a friendshouse and knew I had a fever the whole time I was flushed and had chills but we just took it
easy. Ever since I've been off the Elavil I can't fall asleep until 230-330. It's like my mind wants
to sleep but my body won't let me. My headaches increase with the lack of sleep.
March 17
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I woke up feeling like a whole new person this morning. I was still pretty nauseas but I felt tons
better than I had earlier this week. I keep breaking out in hives and I've taken no meds the past
three days. The rash on my stomach is getting worse. Itsmore of an open wound now. I keep
Mel a Gel on it with a gauze pad because I have a reaction to the sticky stuff on band aids.
March 18
Today was a pretty good day. Not so nauseas but I had a headache of about a 6 and really badjoint and muscle pain I'm thinking because of the cold weather. It's 12:47 am and I cannot fall
asleep. I've been having problems sleeping since last Friday. It's really starting to pay a toll on
me especially at school when I'm there. Imso tired and don't get a lot of work done so I getbehind. I really just want to sleep! Once I went off all medications I could no longer sleep at
night. I'm averaging 3-4 hrs. every night if I'm lucky. I keep breaking out in hives and I've not
taken any medications or eaten anything new that I know of.
March 19
Started out as a great day. Very minimal pain anywhere. I can't get past feeling nauseas all the
time and eating just makes it worse. When I eat or after I eat I always have this piercing feeling
in the middle of my abdomen. Around lunchtime I supposedly had a panic attack. I startedgetting really shake couldn't catch my breath and my heart rate was super high. It took almost
two hours before all the shaking completely subsided. Every time I cry I seem to get pink eye
afterwards or an infection of some sort.
20
I've been completely exhausted because I can't sleep at all at night so I stayed home and slept all
day. I had a massive headache I about a 9 and was still super nauseas. I started taking the Elavil
to see if it would help with sleep again I took 3. It seemed to give me an extra 3 hours of sleep.
21
I have a full on eye infection in my left eye but other than that I feel pretty good today. I was
super tired and nauseas today. I didn't eat much for breakfast just a cucumber and chobani yogurt
and managed to throw everything up the end of first and second hr. the nausea eased a little afterlunch. Ivehad a headache of only about a 6. So I guess itsconsidered a pretty good day! Also
the rash on my stomach is continually getting worse and bigger.
March 22
Today was an alright day. My joints were kind of achy and sore. I'm still really nauseas and don't
like eating much. I got out of the shower tonight and woke up with a splotchy rash all over myabdomen.
March 23
Today was a good day. I had a headache and this rash is really annoying. I now have little
splotches on my arms that are hardy itchy and kind of tender. I went to the doctor and he said it
might be crohns disease and enteropathic arthritis so I'm new medications.
8/13/2019 Symptom Journal Nov.'11-Jun.'12
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March 24
Today I'm completely miserable. I'm so nauseas and my head is pounding. I have diarrhea and
occasionally throwing up.
March 25
Today wasn't too bad. I'm still really nauseas and my joints are achy.
March 26
Today was a good day. I didn't really have any nausea or pain. I'm just extremely tired from all
the meds
March 27
Today was bad. I woke up with a massive headache really nauseas weak and sore joints.
March 28
I felt pretty good all day the nausea is getting better but the rash is spreading to my neck and
worse on my elbows
March 29
Today I felt like complete crap. I was achy I had a massive headache and was nauseas. I think a
lot of it had to do with the stress and overwhelming ness of the loss of a friend and fighting with
another one.
March 30
Today was an alright day. I went through a roller coaster of emotions and just had a badheadache all day.
March 31
My rash is worse and spread to my arms and neck and hurts. I haven't been as nauseas as I
usually am buy I still hurt pretty bad and have bad headaches.
April 1, 2012
I'm super tired and just hurt all over and keep getting light headed even though I've been drinking
a lot of fluids.
My head hurts pretty bad right on top and on my temples.
April 2
All together today was pretty good. No nausea or joint pain. I continue to have a bad headache.
April 3
8/13/2019 Symptom Journal Nov.'11-Jun.'12
14/23
Today I woke up with a bad headache just kind of felt badly. We were in the auditorium and I
started to get tunnel vision and that weird ringing noise. My friend sitting next to me told me I
said I thought I was going to pass out. I then fell forward then went limp and fell to her side andshe said she held me so I wouldn't fall out if the chair. I started shaking and jerking really bad
and she said I was out for a minute more. She said she kept calling my name but I didn't respond.
She said I sat up and just looked around trying to figure out where I was. She said I asked whatwe were doing and why we were in here. I was a little shaky afterwards and had a massiveheadache the rest of the day. She said it was the longest I've ever been out and just wasn't acting
right afterwards.
April 4
I have a massive headache today and took one dosage of all my meds. The dr said to stop
everything for the time being.
April 5
Went to the dermatologist and found out I have a severe allergy to nickel. This morning I ate a
gluten free pancake, piece of raisin bread, and eggs and kind of felt nauseas afterwards but not
too bad. We ate at Wendy's and I had a BLT salad with vinaigrette and a few French fries andnothing seemed to have obvious gluten. I started getting a bad headache again and pretty nauseas
about a hr. after eating. I haven't taken any meds except for the D3. I now have diarrhea again
and just don't feel good.
April 6
Today was pretty good I still had a bad headache and was just really tired. I had the chest pain
where it felt like someone was sitting on it every now and then.
April 7Today I had a headache and have just felt kind of bleh. I'm really tired and stuff.
April 8
Today was pretty good I just can't seem to get rid of this massive headache
April 9
Today I felt completely awful. I thought I was going to throw up all morning. I had a massive
headache that just worsened throughout the day. I felt faint and kept shivering through themorning but I wasn't cold. By about 6 my headache wasn't quite as bad but my heart rate was
definitely elevated.
April 10
Today I can't seem to get rid of my headache. It's like a burning sensation and feels like my brain
is going to explode from my skull there is so much pressure. At times it hurts so much I want to
throw up. I keep getting really sharp chest pain. I can hardly hear out of my left ear. Sometime it
feels like I'm looking through a glass of water which just makes the nausea worse.
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April 11
Today I feel awful. My head hurts so badly. My joints and muscle hurt really badly. I feel like
I'm on fire. I'm super nauseas without a huge appetite. I have chest where it's almost hard to
catch my breath. I'm super angry with really no reason to be. My ears hurt. I have a low grade
fever of 99.5
April 12
Today my headache wasn't quite as bad but I think it's because the alive actually took the edgeoff. I still have a low grade fever. My arms legs spine and head all feel like they're on fire.
Occasionally I will get a tingling sensation down my legs and arms. My spine and everything are
just really tender.
April 13
I went to school today but wasn't feeling too great. The pain was bearable but continually got
worse. I just felt like I had fire running through my veins. I had a low grade fever. I took alieve
and it took the edge off everything.
April 14
Today was not so great. I was really achy and had a bad headache. My chest pain continues tocome and go. I got a few hours of sleep during the night. I'm just ready to be pain free. None of
the OTC meds are helping much.
April 15
I feel the same today as I did yesterday so far.
April 16
I still don't feel that great but I don't feel better than the last two days. My body is still achy and
my head hurts really badly.
April 17
I went to the neurologist today. I feel worse today than I did yesterday but better than Saturday
and Sunday. My head hurts really badly. I'm sick to my stomach just exhausted weak and sore.
Still have a low grade fever. I was put on gabapentin
April 18
I don't feel too terrible today. I stayed at school for half the day to take the SAT and then wenthome because it took all the energy out of me and just started feeling sick again.
April 19
Today isn't too bad. I still have a headache but my body doesn't ache as much.
April 20
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I woke up feeling the same but everything got worse and I started throwing up. I think I took too
many pills and didn't eat enough food. I slept for 5 hours and felt the same.
April 21
Today I woke up feeling like a whole new person. I was full of energy and ready for everything.
My body didn't hurt at all. I still had a headache but it wasn't nearly as bad as it has been.
April 22
Today I woke up feeling good again. Not so much energy but still feel good. My body hurts a
little and my head still hurts.
April 23
Decent day with minimal pain and low grade fever
April 24
I was extremely nauseas all day throwing up and low grade fever
April 25
Another decent day with minimal pain
April 26
Today I was really nauseas with a massive headache. I kept thinking the lights were flickering
and just was weak and weird feeling.
April 27
Felt a lot better today. I still had the flickering light sensation and a headache and was just
dragging.
April 28
Today I went to prom and had a great day. I had a headache but it wasn't thing I couldn't ignore.
Later in the evening the left side of my right foot went numb. There was no tingling there was
just nothing.
April 29
Today was good but my foot is still numb.
April 30
Today I had a massive headache and left hand felt sort of weird all morning kind of like it was
about to fall asleep but no tingling. At lunch the feeling got worse and over the next few hrs. I
lost complete feeling in my hand. I was prescribed two different migraine medications.
May 1, 2012
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I still have no feeling in my hand and zero strength. Its purple cold and swollen. I've been given a
new med to take for at least two weeks
May 2
Today my headache just keeps hanging on. My hand progressively got worse. It's frozen
extremely swollen, and purple. I was able to loosely grip things yesterday but by the end of todayI couldn't even bend my fingers and part of the issue is how swollen it is.
May 3
My hand is exactly the same swelling purple cold with no sensation. My. Arm started hurtingreally bad after lunch it's a level 8. My migraine is completely gone and so are all the symptoms
besides the hand.
May 4
My hand is still purple and cold but not as swollen. I have a minor headache otherwise
everything feels good
May 5
Today I woke up with a headache but it went away throughout the day. It was a good day with
no pain. My hand isn't very swollen and not purple but still zero sensations
May 6
Today my hand still feels numb and it's nice and swollen and cold. My arms really aches from
my elbow to my shoulder and I have a constant headache
May 7
Went to the doctor and my hand was swollen and hot. My arm was really aching and still had
that minor headache.
May 8
Hand is still hot Swollen and numb. I continue to have the constant headache like right at the
base of my skull then it radiates to all over my head.
May 9
Hand is still swollen numb and a little warm. I feel good today with no pain.
May 10
My hand is still swollen numb and a little warm. I had a low grade fever of 99.1. I had a bad
headache all around my head and my arm still aches.
May 11
Today was pretty good no pain but still a swollen hand and numbness.
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May 12
I woke up with a massive headache extremely fatigued and my skin just hurt. My hand is still
numb with no motion.
May 13
Today I felt pretty good with no pain but a numb motionless hand. It hasn't gone back to being
cold and purple.
May 14
Felt pretty good today just that constant headache and numb hand. I've noticed a difference in my
vision. Things are starting to get blurry.
May 15
Felt kind of fatigued and sluggish. My hand is swelling again and still numb. My vision has
stayed the same no better no worse.
May 16
I'm extremely fatigued with lots of muscle and joint pain. I've been taking the indomethacin only
in the morning and night since Sunday. My vision is weird. It feels like my eyes are pulling awaywhen I try focusing on something. My skin hurts. I was coughing and spitting blood this morning
but haven't anymore. I'm just tired in pain with a migraine an increased arm pain. My hand is
swollen and numb
May 17
I woke up with a headache and my hand is still numb. The headache progressively got worse and
I started seeing the flashing lights and got sick to my stomach so I took the dosages of migraine
pills. Things are getting even more blurry.
May 18
I was sick all night throwing up and continued to have the migraine. It let up a little bit before
noon. I wasn't as sick to my stomach. I continued to have a thudding headache throughout the
night. My vision is pretty blurry last night I could see the faces in my little sisters play but
tonight I can't.
May 19
Today my headache wasn't a pounding one but there was definitely one there. I was kind of sickto my stomach but not too bad. My vision is really blurry. I have to zoom in on the computerscreen to make the words big enough to see. I can't read the guide on the TV or the letters when I
text.
May 20
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Today I woke up feeling fine but my headache and stomach pains are progressively getting
worse. Last night I got really dizzy just lying in bed with my eyes closed. I felt like I was being
spun in circles. I was half asleep at the time. It got so bad it made me really nauseas and mademe throw up. I couldn't keep my balance and walk straight so I crawled to the bathroom. I just
wanted to pass out. I felt like I had been hit by a bus. The road signs are getting blurrier and
blurrier.
May 21
My hand and vision are still the same. I had a significant headache all day. I just have no energy
and my joints are starting to hurt again. I feel nauseas and cold and just really sore.
May 22
My hand and vision are still the same. I didn't really have a headache at all today until later in the
afternoon. I passed out today towards the very end of class. I was talking to my friend and shesaid I just stopped and blankly stared at her then turned really pale and leaned over. I came to
just nauseas and there was a huge change in my vision. My depth perception was off. It in
improved slightly after about an hour. My vision has worsened at this point to where my glasses
make me sick to wear them. I can no longer see anything but the basic blurred shapes of big
things.
May 23
Today my joint pain was really bad. The worst pain was in my knees and elbows. It was about an
8. I'm just not feeling well today. I can't wear my glasses anymore because they just make me
sick. My vision is still pretty bad. I've had a bad headache all day particularly on the right side of
my head kind of behind my ear and up on top. It was just a constant ache and then I had aboutthree spurts where it felt like I had just been shot in the head. There was a huge burning pain then
felt like a bunch of pressure. My hand is still numb. My headache significantly increased whilelying in bed and throughout the night. I feel like the right side of my head is going to explode.The rest of my head just has that throbbing ache feeling. My joint pain also increases. I'm very
nauseas. Ivebacked off the Benadryl and take two three times a day instead of three. I also take
one baby aspirin every day.
May 24
Today wasn't too terrible. I have a very obnoxious pain just on the right side of my head right
above my ear. Sometimes it will feel like I've been shot in the head and a very intense burning
sensation will shoot across every part of my right side of my head. Afterwards it'll feel like a
bunch of pressure has built up and it just leaves me with a thudding painful headache.
May 25
Today I passed out again. I felt it coming on. I laid my head down and just woke up like 30 sec
later. I woke up with a pounding headache and really nauseas. I threw up and my headache
decreased. It was hurting everywhere but it was far more intense in my right side.
May 26
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Today I'm just extremely fatigued. The right side of my head still really hurts. I've been glasses
free since yesterday because I felt like they increased the headaches.
May 27
Today I noticed my vision has black spots and it's almost as if I can see things float in my eye.
It's really weird and hard to explain. Once again I have the constant headache and it is morepainful on the right side. I gouged my left wrist and think I did it on the bathroom sink but I'mnot completely sure because I didn't feel it. It bled forever! I went through 4 band aids and a
gauze pad.
May 28
I woke up and my wrist was still bleeding quite a bit. I gauzed it and taped it to try and apply
pressure to get it to stop. I finally got it to stop bleeding this afternoon. I've felt dizzy and light
headed all day with a pounding headache once again more intense on the right. I don't see somany black dots but it is harder to see and the floating images are still there. I haven't been on
Benadryl since last Tuesday. I break out in hives when I take my meds. (Indomethacin,
gabapentin, verapamil, and baby aspirin)
May 29
Today was a normal day. My joints and muscles were really tight and sore. I went on a 2 mile
bike ride. Didn't really notice a difference in pain level. My head has been hurting more. It's still
the same pain on my right side and now it's the straining headache from trying to see.
May 30
Today I was really light head dizzy and just felt achy. I had a massive headache in the morningand it kind of toned down throughout the day. It was mainly the right side again plus the strain
headache. I noticed a droop in my left hand. I've been working really hard to get it to be strong.Today it just falls to one side I can no longer hold things like I could before. Everything just slipspast my fingers. I noticed when I'm trying to focus on one item I begin to see. Either squiggly
line or bubble type things overtake the object.
May 31
Today I felt pretty normal. I had the usual pain on the right side of my head just above my head.
Every now and then it will just be a burst of pain out of nowhere and almost bursts into tears. I
noticed when that burst happens it makes me light headed and dizzy more so than not.
June 1
Today I'm exhausted after painting and moving for the past couple of days. My hand is still very
numb however I can grip better I just can't hold it very strong. My vision is the same and I keep
having strain headaches right on my forehead from trying to see.
Jun 2
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Today my body just hurts from exhaustion and Imvery stiff. My headache is a lot worse I'm
thinking because I'm so tired.
Jun 3
I'm very tired and achy. I don't have the pain on the right side of my head. I still have the strain
headache. I was very light headed and nauseas for a good part of the day, I had terrible stomachpain like cramps to the point I could hardly move.
Jun 4
Today I had the right side head pain along with the strain headaches. My body is extremely stiff
achy and sore today. I'm starting to see small black dots in my vision.
Jun 5
Today I felt alright. My joints were pretty achy but it kind of worked itself out and went away.My headache is pretty significant on the right side just above my ear. I haven't really noticed a
pattern to it.
Jun 6
Today I felt pretty normal. No achy joints just a headache and a few bouts of lightheadedness
and nausea. I only noticed that when I got up or lifted something
Jun 7
Today Imsuper tired with the same normal headaches but no achy joints.
Jun 8
Today I woke up feeling fine but the more I worked the more painful my joints became. When itgets to a bad point my muscles begin to hurt and so does my skin. I took 4 ibuprofen and 2
Benadryl and that kind of took the edge off. I took the same dose of medication about three hrs.
later. I've been lying in bed and attempting to sleep because it's just too painful to move.
Jun 9
Today I woke up and the pain was significantly worse. My spine is super sore and I have a fever.Everything has gotten significantly worse. I have extreme chest pain that made it painful to
breathe and stuff. We went to the hospital and they put me on pain meds and did an EKG, X-ray,
and blood tests. Everything seemed to be normal. I had a fever which concerned them and the dr
things I have a bacterial infection. I was put on prednisone, Zithromax, and a pain med.Jun 10
Today I have been completely miserable. I woke up with a fever feeling pretty nauseas. My painwas definitely a 10. I didn't want to move or eat because it just made it all worse. My joints were
swollen and my headache was pretty bad.
Jun 11
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Today I'm not as nauseas. Imstill running a fever of an average of 101.5.
Ion still in quite a bit of pain. I take two meloxicam twice a day to get rid of the pain.
Jun 12
Today my joints are still really sore and my but I'm not as nauseas. I get dizzy and light headedwhenever I bend down or anything. I'm running a low grade fever.
Jun 13
Today I feel a little better but I'm still really sore and fatigued. The really bad pain comes in
waves so I just try to sleep it off.
Jun 14
I feel even better today. I'm not running a fever. I'm not sore everywhere just my hips down. My
headache isn't as bad as it has been. I had my spinal tap and it all went well.
Jun 15
Today I'm just super sore particularly my spine and head because of the spinal tap. I've been
really nauseas because of the pain.
Jun 16
Today I feel better. I can be up for about 5 minutes then the excruciating headache comes and
my spine feels like itson fire. I've been drinking tons of fluids. Today I noticed itsgotten really
hard to hear. It feels like my ears are plugged but they aren't.
Jun 17
I'm able to stand and sit up a little bit longer than yesterday but I'm still struggling with hearing.My neck really hurts when I turn my head and my spine feels like itson fire. My joint pain is
getting better. No fever today. I also noticed itsharder to breathe. I feel like someone's sitting on
my chest and I can't get a full breath of air. When I do breathe in deep it hurts. I also keep getting
this sharp pain on the left side of my abdomen close to my ribs.
Jun 18
Today I felt great when I woke up but as soon as I got up and started getting ready my headstarted to hurt more and more. Today's the worst it has hurt. It like massive pressure everywhere
and throbbing. The pain mostly subsides when I lay down. It gets so bad I throw up and am just
really nauseas sometimes.
Jun 19
Today the pain wasn't terrible to start with. I took it pretty easy today and still had a really bad
headache. My spine is really stiff and sore. I've been stretching and stud to try and loosen andrelax. It just keeps burning and I noticed the more it burns the worse my headaches are. I'm still
having a hard time breathing.
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Jun 20
Today I feel a lot better. My joints are still a little achy but I can move around a lot better. I still
have a headache from the spinal tap and I've been feeling pretty nauseas all day.
Jun 21
Today I don't feel well at all. My whole body just hurts. My head is pounding and my joints are
aching plus I'm still really nauseas. My kidneys have really been hurting also. It's kind of an
aching pain then when I use the restroom it feels like someonesconstricting them and just
makes everything miserable.
Jun 22
Today I'm feeling alright. I'm still taking out easy so I don't mess anything up. It's one of thoseroller coaster days. I feel pretty good in the morning then by midafternoon I'm nauseas and in
pain and just want to sleep.
Jun 23
Today's a great day. My headache is back to the normal ones I have which are bearable with
Tylenol and the meloxicam Imon. I got my new glasses and my brain doesn't like them very
much. I get a massive headache when I wear them. It's not the straining headache though it's likethe back of my head and does the whole halo thing around my skull. It's like a sharp aching pain
and then starts throbbing. If I don't wear my glasses I don't really have that problem.