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Supporting Individuals with Intellectual and Mental Health Needs A framework for Inter – Systems Collaboration Dr. Robert J. Fletcher Founder and CEO, NADD North Bay Regional Center March 8, 2012

Supporting Individuals with Intellectual and Mental Health Needs

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Supporting Individuals with Intellectual and Mental Health Needs A framework for Inter – Systems Collaboration Dr. Robert J. Fletcher Founder and CEO, NADD North Bay Regional Center March 8, 2012. Outline of Presentation. Barriers to Service Delivery At the National Level : - PowerPoint PPT Presentation

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Page 1: Supporting Individuals with  Intellectual and Mental Health Needs

Supporting Individuals with Intellectual and Mental Health Needs

A framework for Inter – Systems Collaboration

Dr. Robert J. FletcherFounder and CEO, NADD

North Bay Regional Center March 8, 2012

Page 2: Supporting Individuals with  Intellectual and Mental Health Needs

Outline of Presentation

Barriers to Service DeliveryAt the National Level :

Working Together or Not

Principles in Service PlanningA Framework to Promote Cross System

Collaboration

Page 3: Supporting Individuals with  Intellectual and Mental Health Needs

Fletcher, 2008

Dual Diagnosis Policy Issues

Individuals with MI and ID are among the most challenging persons served by both MH and ID Service Delivery Systems

The Typical Picture:

Page 4: Supporting Individuals with  Intellectual and Mental Health Needs

Fletcher, 2008

Dual Diagnosis Policy Issues

The Typical Picture:

Failure to plan services

Failure to fund flexible services

Failure to obtain technical assistance

Page 5: Supporting Individuals with  Intellectual and Mental Health Needs

Fletcher, 2008

Dual Diagnosis Policy Issues

The Typical Picture:

Failure to provide adequate training and technology transfer

Failure to share and assume joint responsibility

Failure to articulate a policy

Page 6: Supporting Individuals with  Intellectual and Mental Health Needs

Fletcher, 2008

Dual Diagnosis Policy Issues

MH providers perceive that they do not have the skills to serve adults or children with a dual diagnosis

DD providers do not understand the services that the MH sector offers

MH providers do not understand the services that the DD sector offers

The Typical Picture:

Page 7: Supporting Individuals with  Intellectual and Mental Health Needs

NASDDS Survey, 2004

Dual Diagnosis Policy Issues

Professional staff with specialized clinical experience

Comprehensive service coordination

Presence of consistent backup support

Living requirements with fewer people

People with MI and ID typically require:

Page 8: Supporting Individuals with  Intellectual and Mental Health Needs

Fletcher, 2008

Dual Diagnosis Policy Issues

MH System Short term episodic

treatment Focus on psychiatric

needs Recovery model Local authority Medication Treatment Consumer/Client /Patient

DD System Services/supports over

lifetime Emphasis on direct

support Self Determination State authority Behavioral Support

(PBS) Self – Advocate/

ConsumerLittle Collaboration

Page 9: Supporting Individuals with  Intellectual and Mental Health Needs

Fletcher, 2008

Dual Diagnosis Principles

Co-occurring disorders should be treated as multiple primary disorders, in which each disorder receives specific and appropriate services.

Collaboration of appropriate services and supports must occur as needs are identified.

Page 10: Supporting Individuals with  Intellectual and Mental Health Needs

Fletcher, 2008

Dual Diagnosis Principles

Service collaboration between systems is essential

Services provided to the individual are consistent with what the person wants and what supports are needed

Page 11: Supporting Individuals with  Intellectual and Mental Health Needs

Fletcher, 2008

Dual Diagnosis Principles

Services are determined on the basis of comprehensive assessment of both MH and DD needs of each individual

Services are based on individual needs and not solely on either MH or ID diagnosis

Page 12: Supporting Individuals with  Intellectual and Mental Health Needs

Fletcher, 2008

Dual Diagnosis Principles

Emphasize early identification and intervention

Involve the person and family as full partners

Coordinate at the system and service delivery level.

Page 13: Supporting Individuals with  Intellectual and Mental Health Needs

Fletcher, 2008

Dual Diagnosis Principles

The whole system must be designed to be welcoming and accessible to people with co-occurring disorders

People with co-occurring disorders shall be supported in the least restrictive environment.

Page 14: Supporting Individuals with  Intellectual and Mental Health Needs

Fletcher, 2008

Dual Diagnosis Principles

People with co-occurring disorders and their significant others, when appropriate, shall be empowered to make treatment decisions.

The system recognizes and values the long-term cost effectiveness of providing best practice services and supports for persons with co-occurring disorders.

Page 15: Supporting Individuals with  Intellectual and Mental Health Needs

In 65% of states, policy is developed in collaboration with other state agencies

Relationships with Mental Health 55% Effective, very

effective or extremely effective

45% Not or not very effective

Working Together or Not

Relationships with Corrections 73% Not or not very

effective 22% Effective 5% Very effective

NASDDDS, 2011

Page 16: Supporting Individuals with  Intellectual and Mental Health Needs

Financial Operations Operational authorities

State governments Local counties and municipalities Regional boards

Working Together or Not

Medicaid and Medicare funding Medicaid covers 75% - 95% of costs for DD

services, limited MH supports Some potential under Medicare

NASDDDS, 2011

Page 17: Supporting Individuals with  Intellectual and Mental Health Needs

In general, . . .

DD has primary responsibility for long term support

in 70% of states

Working Together or Not

MH has primary responsibility for psychiatric care

in 78% of states

NASDDDS, 2011

Page 18: Supporting Individuals with  Intellectual and Mental Health Needs

MH State Plan Services are available, But access is frequently difficult…..

MH programs are: Under – funded Stretched to the limit Lack expertise to meet needs of people with

ID / DD Unable to bill for necessary activities Include structural barriers

Working Together or Not

NASDDDS, 2011

Page 19: Supporting Individuals with  Intellectual and Mental Health Needs

Emergency Support and Response in 13 States

DD exclusively in 5 of 13 states (38%)

MH exclusively in 3 of 13 states (24%)

Working Together or Not

Mixed in 5 states (38%) Usually MH but DD

may support Usually DD but MH

may support DD provides but MH

contributes funding

NASDDDS, 2011

Page 20: Supporting Individuals with  Intellectual and Mental Health Needs

Top Barriers in 2010

Availability of funding, targeted flexible dollars Providers with sufficient expertise and interest Access to appropriate psychiatric treatment

and related services Lack of trained staff MH and DD staff Effective and timely crisis supports

Working Together or Not

NASDDDS, 2011

Page 21: Supporting Individuals with  Intellectual and Mental Health Needs

Effective Practice Elements Leadership

Commitment Clear lines of authority Independence Protection Commitment to

collaboration Focus on the

Individual

Working Together or Not

The person-centered planning process must determine what is important TO the person and what is important FOR the person.

- Michael Smull

NASDDDS, 2011

Page 22: Supporting Individuals with  Intellectual and Mental Health Needs

Essential Elements….. Effective Staff

The right person The right match Build trust,

dependability Focus on the

System DD/MH interface

Working Together or Not

Training Coordination

Its not a matter of showing up – it is who shows up. It must be someone with commitment and interest in the individual. Someone who cares.

- David Petonyak

NASDDDS, 2011

Page 23: Supporting Individuals with  Intellectual and Mental Health Needs

Effective Treatment Timely Access to:

Appropriate psychiatric treatment and medication management

Positive Behavioral analysis and supports Effective treatment strategies such as dialectical

behavior therapy, EMDR, etc. Community services, supports and resources Employment and meaningful opportunities to

participate in community life Supports in home and with family

Working Together or Not

NASDDDS, 2011

Page 24: Supporting Individuals with  Intellectual and Mental Health Needs

Top New Initiatives and Good Ideas Expanding Community Support Teams Developing new psychiatric practice standards Increasing DD expertise among MH Establishing Centers for Excellence for training,

leadership and technical assistance Deinstitutionalization creates opportunities Developing capacities through university programs Cross-System Planning Formats Strengthening crisis supports

Working Together or Not

NASDDDS, 2011

Page 25: Supporting Individuals with  Intellectual and Mental Health Needs

Fletcher - 2008

A Framework To Promote Cross Systems Collaboration

Cross Systems Task Force/Committee

Page 26: Supporting Individuals with  Intellectual and Mental Health Needs

Fletcher, 2008

Cross Systems Collaboration

Mission of a Dual Diagnosis Task Force/Committee

A Cross System Task Force is a mechanism to draw attention to and make recommendations about, policy and services for individuals with ID and MH needs

Page 27: Supporting Individuals with  Intellectual and Mental Health Needs

Fletcher, 2008

Cross Systems Collaboration

Purpose/Function of A Dual Diagnosis Task Force/Committee

Gather relevant data/formation

Identify strengths in service delivery systems

Identify challenges in service delivery system

Page 28: Supporting Individuals with  Intellectual and Mental Health Needs

Fletcher, 2008

Cross Systems Collaboration

Purpose/Function of A Dual Diagnosis Task Force/Committee

Generate options for improvement in service delivery systems

Promote cross systems education/training to enhance staff competencies

Advocate for policy initiative that advance cross systems collaboration

Page 29: Supporting Individuals with  Intellectual and Mental Health Needs

Fletcher, 2008

Cross Systems Collaboration

Composition Of A Dual Diagnosis Task Force/Committee

Representatives from Mental Health Departments

Representatives from ID/DD Departments

Representatives from provider agencies Family/consumer/advocate representatives

Page 30: Supporting Individuals with  Intellectual and Mental Health Needs

Fletcher, 2008

Cross Systems Collaboration

Stakeholders from other than MH & IDD systems could be included as appropriate, perhaps on an “as needed” basis. These include, but are not limited to representatives from:

Substance abuse Criminal Justice Health Department Social Services

Education Early Intervention Child Welfare Coordinated

Children’s Services

Page 31: Supporting Individuals with  Intellectual and Mental Health Needs

Adapted from Kline, et al, 1993

Five Aspects Of A Coordinated Care System

1. Collaboration

2. Comprehensiveness

3. Flexibility

4. Continuity

5. Leadership and Partnership

Page 32: Supporting Individuals with  Intellectual and Mental Health Needs

Adapted from Kine, et al, 1993

Coordinated Care System

1. Service Collaboration:

Policy level – linkage

Program level – integrated

Individual level – person-centered coordination

Page 33: Supporting Individuals with  Intellectual and Mental Health Needs

Adapted from Kine, et al, 1993

Coordinated Care System

2. ComprehensivenessNo One System Can Serve All People

with MH/IDMental Health EducationMH/DD Social ServicesChild & Family Substance AbuseHealth Criminal Justice

Page 34: Supporting Individuals with  Intellectual and Mental Health Needs

Fletcher, 2007

Vocational

Education

Social Serv.

Child & Family Serv.

MR-DD

Housing

Health

Criminal JusticeSubstance

AbuseMental Health

Coordinated Care System

PERSON

Page 35: Supporting Individuals with  Intellectual and Mental Health Needs

Adapted from Kine, et al, 1993

Coordinated Care System

3. FlexibilityFlexible Enough to Modify Traditional Approaches

Sufficient flexibility for: increase time/resources in assessments cross training modification of traditional approaches

Page 36: Supporting Individuals with  Intellectual and Mental Health Needs

Adapted from Kine, et al, 1993

Coordinated Care System

4. ContinuityKeep an eye on: changing needs changing systems propensity for behavioral problems need for long term treatment &

supports need to focus on multiple systems in

different contexts over a life span

Page 37: Supporting Individuals with  Intellectual and Mental Health Needs

Adapted from Kine, et al, 1993

Coordinated Care System

5. Leadership and Partnership

Partnership across systems Need leadership to facilitate

coordination Ensure accountability Political will

Page 38: Supporting Individuals with  Intellectual and Mental Health Needs

US HHS, 2005

Other Important Aspects of Policy Development:

Children and Adolescent Issues

Cross Systems Training

Cross Systems Crisis Intervention Service

Consultation and Treatment

Cross System Coordination: State/Local Level

Other Policy Recommendations

Page 39: Supporting Individuals with  Intellectual and Mental Health Needs

Fletcher, 2007

Children & Adolescent Issues

Train teachers, other professionals, and parents to recognize signs and symptoms of ED in children with ID

Improve transitional planning from school to adult systems system operations:

Page 40: Supporting Individuals with  Intellectual and Mental Health Needs

Fletcher, 2008

Training Issues

Need Cross-Systems Training Mutual understanding of different culture,

language and philosophy Acquire knowledge regarding how the other

system operations:- eligibility - funding- assessment - structure

Learn how habititative/treatment strategies are different from one system to another

Page 41: Supporting Individuals with  Intellectual and Mental Health Needs

Fletcher, 2008

Crises Intervention Service

A Cross System Approach

1. Provide short term crisis intervention with the goal of minimizing a need for hospitalization, crisis residential care or out-of-home placement

2. Staff from crisis service interacts with all appropriate systems

Page 42: Supporting Individuals with  Intellectual and Mental Health Needs

Fletcher, 2008

Consultation & Treatment Issues

Bio-Psycho social model in assessment

Rationale psychopharmacology Integrating mental health treatment

with behavioral approaches Effective cross-systems transitional

services Modifying individual and group

therapy

Page 43: Supporting Individuals with  Intellectual and Mental Health Needs

Fletcher, 2008

Cross Systems Planning & Coordination

State and Local Planning and coordination at local

level Planning and coordination at state

level Planning and coordination between

local and state level

Page 44: Supporting Individuals with  Intellectual and Mental Health Needs

If you need expert assistance to forge collaboration, get it!

Treat Collaboration as Seriously as You Do Your Budget

Page 45: Supporting Individuals with  Intellectual and Mental Health Needs

J. Jacobson, 2003

Service Planning and Policy

Plan cross systems services strategically

Design flexible service models that can change over time as individual needs change

Obtain technical assistance

Provide cross systems training to enhance agency and practitioner competencies

Provide incentives for assuming and sharing responsibility

Page 46: Supporting Individuals with  Intellectual and Mental Health Needs

Ament, 1987

Collaboration Strategies

Identify and clearly state specific purposes for collaboration

Allow time to consider all provisions, so that final decisions will be more fully supported

Negotiate written agreements for organizational responsibilities, program design, fiscal arrangements, and established time frames

Page 47: Supporting Individuals with  Intellectual and Mental Health Needs

Collaboration Means Sharing Resources and Authority

Make sure that each organization understands what it brings to the collaboration and reach a middle ground.

Page 48: Supporting Individuals with  Intellectual and Mental Health Needs

State Regional County Staff Training

Clinical Quality

Advocacy/Other

How are you doing now?

How could you improve over the next year?What plans can you make for the next 1-3 years?

ID/MI Discussion Matrix

Page 49: Supporting Individuals with  Intellectual and Mental Health Needs

Action to be Taken

Resources Needed to Complete Action

Date of Expected Completion

Responsibility Person(s) Organization(s)

System Strategies

State

Regional

County

Staff Training

Clinical Quality

Advocacy/Other

ID/MI Action Plan

Page 50: Supporting Individuals with  Intellectual and Mental Health Needs

THANK YOU!

For more information, please contact:

Dr. Robert J. Fletcher

NADD132 Fair Street, Kingston, NY 12401

Telephone: 845-331-4336

E-mail: [email protected] site: www.thenadd.org