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Yarrow Hospice & Palliative Care
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SUGGESTED READING AND WEB SITES
Following is a list of resources for patients and families to consult for additional knowledge and support. The list is alphabetical by subject. In addition, we have included websites and publications you may find useful. Please allow us to assist you and clarify any of the information.
Topics on this List:
Aging Losing a Parent Medical Matters
Children Hospice & Palliative Care Sudden Loss
Culture Losing your Mate Spiritual/Faith
Death & Dying Funerals Caregiving
Aging
Books:
Another Country: Navigating the Emotional Terrain of Our Elders. By Mary Bray Pipher
Changing Places: A Journey With My Parents Into Their Old Age. By Judy Kramer
Choosing Medical Care in Old Age: What Kind, How Much, When to Stop. By Muriel Gillick
Consumer Reports Complete Guide to Health Services for Seniors: What You and Your Family Need to Know About Finding and Financing Medicare, Assisted Living, Nursing Homes, Home Care, Adult Day Care. Edited by Trudy Lieberman
Elder Rage or Take My Father...Please! How to Survive Caring for Aging Parents. By Jacqueline Marcell
From Age-ing to Sage-ing: A Profound New Vision of Growing Older. By Zalman Shalomi Shachter
Websites:
Aging With Dignity: www.agingwithdignity.org
American Association of Homes and Services for the Aging: www.aahsa.org
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American Association of Retired People: www.aarp.org
Caregiving
Books:
Always on Call: When Illness Turns Families into Caregivers. By Carol Levine
Another Country: Navigating the Emotional Terrain of Our Elders. By Mary Bray Pipher
Elder Rage or Take My Father...Please! How to Survive Caring for Aging Parents. By Jacqueline Marcell
Grief, Dying and Death. By Therese A. Rando
The Helper’s Journey: Working With People Facing Grief, Loss and Life-Threatening Illness. By Dale Larson
How Can I Help? By Ram Dass
Midwife for Souls. By Kathy Kalina
Share the Care: How to Organize a Group to Care for Someone Who Is Seriously Ill. By Cappy Capossela, Sheila Warnock and Sukie Miller
Websites:
Caring Road: www.caringroad.com
The Family Caregiver Alliance: www.caregiver.org
The National Alliance for Care giving: www.caregiving.org
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Children
Books:
A Broken Heart Still Beats: After Your Child Dies. By Anne McCracken and Mary Semel
Cancer Pain Relief and Palliative Care in Children. By The World Health Organization
Hospice Care for Children. Edited by Saraha Zarbock Golzer and Anne Armstrong-Dailey
How to Help Children Through a Parent’s Serious Illness. By Kathleen McCue and Ron Bonn
What Will We Do? Preparing a School Community to Cope With Crises. Edited by R. Stevenson
Websites:
Children’s Hospice International: www.chionline.org
Project Joy and Hope for Texas: www.joyandhope.org
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Culture
Books:
Cultural Issues in End-of-Life Decision Making. Edited by Kathryn L.Braun, James H. Pietsch and Patricia Blanchette
Facing Death: Where Culture, Religion and Medicine Meet. Edited by Howard M. Spiro, Mary G. McCrea Cumer and Lee Palmer Wandel
The Spirit Catches You and You Fall Down. By Anne Fadiman
The Perfect Stranger’s Guide to Funerals and Grieving Practices: A Guide to Etiquette in Other People’s Religious Ceremonies. By Stuart M. Martins
Remembering Well: Rituals for Celebrating Life and Mourning Death. By Sarah York
The Sacred Art of Dying. By Kenneth Kramer
Websites:
The Health and Human Services Office of Minority Health: www.omhrc.gov
Project on Death in America: www.soros.org/initiatives/pdia
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Death and Dying
Books:
Dying Well: Peace and Possibilities at the End of Life. by Ira Byock
The Eternal Pity: Reflections on Dying. Edited by Richard John Neuhaus
Handbook for Mortals. By Joanne Lynn, Joan Harrold, and Rosalynn Carter
How We Die. By Sherwin Nuland
Life Lessons. By Elisabeth Kübler-Ross and David Kessler
On Death and Dying. By Elisabeth Kübler-Ross
Peaceful Dying: The Step-by-Step Guide to Preserving Your Dignity, Your Choice, and Your Inner Peace at the End of Life. By Daniel Tobin
Reincarnation - A New Horizon in Science, Religion and Society. By Sylvia Cranston and Carey Williams
Death, Dying and the Biological Revolution. By Robert Veatch
Perspectives on Death and Dying – Cross-Cultural and Multi-Disciplinary Views. By Arthur Berger, et al.
Coming Home – A Guide to Dying at Home with Dignity. By Deborah Duda
The Meanings of Death. By John Bowker
Life after Life. By Raymond Moody, Jr.
We Don’t Die. By Joel Martin and Patricia Romanowski
Conversations at Midnight – Coming to Terms with Dying and Death. By Kay and Herbert Kramer
Death – The Final Stage of Growth. By Elisabeth Kuebler-Ross
The Mystery of Death and Dying. By Earlyne Chaney
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The Practice of Conscious Dying. By Benito Reyes
Websites:
Aging With Dignity: www.agingwithdignity.org
The American Association for Death Education: www.adec.org
The Center for Advanced Illness Coordinated Care: www.coordinatedcare.net
Growth House: www.growthhouse.org
Missoula Demonstration Project: www.dyingwell.com/MDP.htm
On Our Own Terms: Bill Moyers on Dying: www.pbs.org/wnet/onourownterms
Partnership for Caring: America’s Voices for the Dying: www.caringinfo.org
Project on Death in America : www.soros.org/initiatives/pdia
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Funerals
Books:
At Journey’s End: The Complete Guide to Funerals and Funeral Planning, By Abdullah Fatteh, Naaz Fatteh and David R. Pearson
A Child’s Book About Funerals and Cemeteries, By Earl Grollman
The Perfect Stranger’s Guide to Funerals and Grieving Practices: A Guide to Etiquette in Other People’s Religious Ceremonies, By Stuart M. Martins
Purified by Fire: A History of Cremation in America, By Stephen R. Prothero
Remembering Well: Rituals for Celebrating Life and Mourning Death, By Sarah York
The Undertaking: Life Studies from the Dismal Trade, By Thomas Lynch
Websites:
Funerals: A Consumer’s Guide: www.ftc.gov/bcp/conline/pubs/services/ funeral.htm
The Funeral Consumers Alliance: www.funerals.org
The National Funeral Directors Association: www.nfda.org
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Grief
Books:
A Broken Heart Still Beats: After Your Child Dies. By Anne McCracken and Mary Semel
A Decembered Grief: Living With Loss While Others Are Celebrating. By Harold Ivan Smith
Grief, Dying and Death. By Therese A. Rando
Living When A Loved One Has Died. By Earl Grollman
The Mourning Handbook: A Complete Guide for the Bereaved. By Helen Fitzgerald
Safe Passage: Words to Help the Grieving Hold Fast and Let Go. By Molly Fumia
Surviving Grief and Leaning to Live Again. By Catherin M. Saunders
Understanding Grief. By Alan Wolfett
The Undertaking: Life Studies from the Dismal Trade. By Thomas Lynch
The Promise of Green in the Season of Grief. By Deborah Roth
Working it Through. By Elisabeth Kuebler-Ross
Good Grief Rituals. By Elaine Childs-Gowell
The Courage to Grieve. By Judy Tatelbaum
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Hospice and Palliative Care
Books:
All Kinds of Love: Experiencing Hospice. By Carolyn Jaffe and Coral Ehlrich
Cancer Pain Relief and Palliative Care in Children. By The World Health Organization
The Dying Process: Patients’ Experiences of Palliative Care. By Cicely M. Saunders, Mary Baines and Robert Dunlop
Dying Well: Peace and Possibilities at the End of Life. By Ira Byock
Hospice and Palliative Care. By Virginia F. Sendor and Patrice M. O’Connor
The Hospice Choice: In Pursuit of a Peaceful Death. By Marcia Lattanzi-Licht, John J. Mahoney and Gallen Miller
The Hospice Handbook: A Complete Guide. By Larry Beresford
Hospice: Practice, Pitfalls, and Promise. By Stephen Connor
Living With Dying: A Guide for Palliative Care. By Cicely M. Saunders, Mary Baines and Robert Dunlop
Midwife for Souls. By Kathy Kalina
Peaceful Dying: The Step-by-Step Guide to Preserving Your Dignity, Your Choice, and Your Inner Peace at the End of Life. By Daniel Tobin
The Hospice Journal. By NHO
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Websites:
Palliative Medicine: www.abhpm.org
Americans for Better Care of American Academy of Hospice and Palliative Medicine: www.aahpm.org
American Board of Hospice and the Dying: www.abcd-caring.org
American Hospice Foundation: www.americanhospice.org
Center to Advance Palliative Care: www.capcmssm.org
Department of Symptom Control and Palliative Care: www.mdanderson.org/departments/palliative
Growth House: www.growthhouse.org
The Hospice and Palliative Nurses Association: www.hpna.org
Hospice Foundation of America: www.hospicefoundation.org
National Hospice Foundation: www.nationalhospicefoundation.org
New York Beth Israel Medical Center: www.stoppain.org
National Hospice and Palliative Care Organization: www.nhpco.org
Promoting Excellence in End-of-Life Care: www.promotingexcellence.org
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Losing a Mate
Books
Doors Close, Doors Open: Widows, Grieving. By Morton Lieberman
How to Survive the Loss of a Love. By Peter McWilliams, Harold Bloomfield and Melba Colgrove
I’m Grieving as Fast As I Can: How Young Widows and Widowers Can Cope and Heal. By Linda Feinberg
Letters to My Husband. By Fern Field Brooks
Widowing: Surviving the First Year. By Jane Krimbill and Nancy Brown
Websites:
Parents Without Partners: www.parentswithoutpartners.org
Society of Military Widows: (National Association of Uniformed Services Inc.)
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Losing a Parent
Books
Changing Places: A Journey With My Parents Into Their Old Age. By Judy Kramer
Fatherloss: How Sons of All Ages Come to Terms With the Deaths of Their Dads. By Neil Chethik
Losing Your Parents and Finding Yourself: The Defining Turning Point of Adult Life. By Victoria Secunda
Motherless Daughters: The Legacy of Loss. By Hope Edelman
Nobody’s Child Anymore: Grieving, Caring and Comforting When Parents Die. By Barbara Bartocci
Yarrow Hospice & Palliative Care 13
Medical Matters
Books:
Choosing a Nursing Home: A Step-by-Step Guide. By Rick Wilfong
Choosing Medical Care in Old Age: What Kind, How Much, When to Stop. By Muriel Gillick
Nursing Homes 101. By Susan Goldberg
Consumer Reports Complete Guide to Health Services for Seniors: What You and Your Family Need to Know About Finding and Financing Medicare, Assisted Living, Nursing Homes, Home Care, Adult Day Care. Edited by Trudy Lieberman
Websites:
American Medical Association: www.ama-assn.org
American Pain Foundation: www.painfoundation.org
The Hospice and Palliative Nurses Association: www.hpna.org
Missoula Demonstration Project: www.dyingwell.com/MDP.htm
The National Organization for Rare Disorders Inc.: www.rarediseases.org
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Sudden Loss
Books
Coping with Trauma: A Guide to Self-Understanding. By J. Allen
Healing After the Suicide of a Loved One. By Ann Smolin
I Wasn’t Ready to Say Goodbye: Surviving, Coping and Healing After the Sudden Death of a Loved One. By Brook Noel and Pamela D. Blair
Living with Grief After Sudden Loss: Suicide, Homicide, Accident, Heart Attack, Stroke. Edited by Ken Doka
No Time for Goodbyes: Coping with Sorrow, Anger and Injustice After a Tragic Death. By Janice Harris Lord
No Time to Say Goodbye: Surviving the Suicide of a Loved One. By Carla Fine
Remember Lee: The End is the Beginning – A Toughing Story About the Unexpected Loss of a Child. By Linda Musser
Yarrow Hospice & Palliative Care 15
Spirituality and Faith
Books:
The Grace in Dying: How We Are Transformed Spiritually As We Die. By Kathleen Dowling Singh
Peaceful Dying: The Step-by-Step Guide to Preserving Your Dignity, Your Choice, and Your Inner Peace at the End of Life. By Dan Tobin
Recovering the Soul: A Scientific and Spiritual Approach. By Larry Dossey
Who Dies?: An Investigation of Conscious Living and Conscious Dying. By Stephen Levine
Websites
American Association of Pastoral Counselors: www.aapc.org
Beliefnet: www.beliefnet.com
