So we hold each other -The story of Hong-

Chun-Yu Chiu

Type of siblings

The parentified child The withdrawn child The acting-out child The superachieving child

(Siegel & Silverstein, 1994)

Marisa

Withdrawn0%

Acting-out0%

Superachieving65%

Parentified35%

Meghan

Parentified49%

Withdrawn0%

Acting-out0%

Superachieving51%

Chun-Yu

Parentified30%

Withdrawn30%

Acting-out0%

Superachieving40%

Cultural concerns

Something about Hong…

The oldest son in the family.

Has one younger sister and one younger brother.

Now 28. MR+CP Non-verbal

communicator

5 12 18 24 25 27

Japanese encephalitis Day Program Pneumonia

Drool & towel Fracture of left leg now

5 12 18 24 25 27

Japanese encephalitis Day Program Pneumonia

Drool & towel Fracture of left leg now

5 year-old: Japanese encephalitis

A disease caused by the mosquito-borne Japanese encephalitis virus

Fever, headache Life-long neurological defects Epilepsy

5 year-old: Japanese encephalitis->Impact

Family support and crisis: Diagnosis: Profound MR

(Pervasive support) Placement: home Feeding+ Toileting

problem

--Oh well. I actually didn’t know what’s going on.

5 12 18 24 25 27

Japanese encephalitis Day Program Pneumonia

Drool & towel Fracture of left leg now

12 year-old: Drool & towel

Family: New family member Patrick

Placement: Self-Contained classroom

Accident! -> Towel

5 12 18 24 25 27

Japanese encephalitis Day Program Pneumonia

Drool & towel Fracture of left leg now

18 year-old: Day Program

Adolescent life Pet phrase

‘Retarded’

Placement: Day program Taipei Municipal Yang

Ming Home for the Disabled

3-60yr-old, 406 8:00am-3:30pm

5 12 18 24 25 27

Japanese encephalitis Day Program Pneumonia

Drool & towel Fracture of left leg now

24 year-old: Fracture of left leg

A phone call from Yang Ming

Home :‘Nothing happened.

But his leg is swollen.’ No treatment before my parents

arrived. The difficulty of transferring. A video indicated that there was a

staff on duty when Hong fell down.

To Sue or Not to Sue?

5 12 18 24 25 27

Japanese encephalitis Day Program Pneumonia

Drool & towel Fracture of left leg now

25 year-old: Pneumonia

A phone call from Yang Ming Home again…

High fever: Nightmare returns

Personal conflict Burden v.s. responsibility Free from duty? Fear of loss?

5 12 18 24 25 27

Japanese encephalitis Day Program Pneumonia

Drool & towel Fracture of left leg now

Supportive family v.s. personal sacrifice

Guiltiness

Hong’s health condition

Future plan

If I could explain it

Brother

Sister,

Is who you are

To one another.

-From Seasons of Love, Seasons of Loss by Connie Post, 1991

So we will hold each other…

Forever.

Thank you!

Questions?

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