SHINE NI Newsletter 6

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    GREASE

    Shine Northern Ireland

    PO Box 132, Cushendall BT44 OWA

    Email: [email protected]

    Contact no: 01733 555988 www.shinecharity.org.uk

    NI NewsletterRegistered Charity No. 249338

    From curtain up to the nal encore we thoroughlyenjoyed our night at GREASE in the MillenniumForum. The show was action packed with a fewsurprises in the production including an explodingcar exhaust and plenty of special effects to keepus entertained!

    The cast was brilliant and worked hard to put ona fantastic version of the GREASE story. But themoment we all looked forward to see was ourvery own Mary Byrne appearing, white curly wigand glittery suit and singing her heart out from a

    raised platform. And thats not all ...

    Following the show, we were given a Meet &Greet with the cast and production team andevery one of them, after a long night, came tospend some time talking to us all and posing forphotographs (we werent posing of course!). MaryByrne was in big demand and nobody was in anyrush so we made the most of photo opportunitiesas you can see!

    I have written a letter of thanks to the MillenniumForum staff and to the cast of GREASE for makingsure we had a great night out. Keeping an eye onAutumn programme CHICAGO on its way!

    Peace Bridge EventMeet at Ebrington Square at 11am for a

    really exciting event and WEAR SOMETHING

    YELLOW. We will be doing a lm for YouTubeon the day and it will be posted on to our site

    at shinecharity.org.uk

    Saturday 5th May 2012

    Peace Bridge - Londonderry/Derry

    11am - 12pm

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    I was thrilled to be appointed as a project workerto the Spina bida Hydrocephalus Information Networking Equality - SHINE NI team on5th March. It is an honour to work with such a

    decitated, hardworking, and committed team andmembers. My role as project worker will involvedeveloping services-user groups according tointerest/need, supporting existing groups, andproviding any relevant training that is seen to bebenecial.

    In addition I am here to offer condentialsupport and information on any concerns orissues members may have, through home visits,telephone contact etc. I am looking forward tomeeting members, families, carers, and welcomeyour calls, ideas etc.

    My background is in social work. I have workedas a social worker in both adult and childrensdisability teams for 15 years. Subsequently Ihave gained a level of understanding into thestresses and issues that people with disabilitiesof all ages, their families and carers have to dealwith on a daily basis. Throughout my many yearsexperience I have identied a gap in services for

    Magherafelt Parents GroupA group of parents of children who have spinabida and/or hydrocephalus from Magherafeltand surrounding areas have been meeting in theMeadowvale Leisure Complex in Magherafelt.

    This provides an environment for parents todiscuss various topics related to their childrens

    condition. Siblings are also welcome.

    We are organising an outing to a local donkeysanctuary in July, for more details contact Pamelaon: T. 028 25652273E. [email protected]

    Dolores Black

    young people making the transition from schoolto further education/employment. I carried outmy own research and found that there is a lackof communication, information, training, andunderstanding between agencies and resourceswhich can limit options.

    In addition to my social work role I have beenworking as a learning support mentor. This has

    provided me with the opportunity to work on aone-to-one basis with young people who havelearning and physical disabilities. By Identifyingneeds, I provide advice and information to otherprofessionals about implementing reasonableadjustments to ensure inclusive learning.

    I left social work in 2008 and joined the voluntarysector. I worked for two years as a family supportworker with the National Autistic Society. Thisprovided me with the opportunity to develop

    services and training to meet needs that thestatutory sector are unable to provide.

    I have personal experience of having a sister witha disability. Experiencing rst hand some of thesocial barriers, negative attitudes and stigmafaced by people with disabilities, has given mea drive to empower and enable people to reachtheir potential and achieve their goals.

    I am really looking forward to getting out there inthe eld, so to speak, meeting you all and hearing

    about the everyday issues that are relevant to you.I am hoping to assist with arranging a family funday on the 16th June in the Valley Leisure Centre.If you have any queries please do not hesitate tocontact me on:E. [email protected]. 02890814116 M. 07816966866

    Best Wishes

    Dolores

    Mid Ulster Adults Group.Shine Adult members from the Mid Ulster andsurrounding areas have met on a number ofoccasions in the past few months in Cookstown.We have held events such as Bowling, Boccaccio,New Age Curling and a social night out. Membershave enjoyed these nights and have requestedthat there are more of these events organised in

    the future. Some of the group attended BloodBrothers in the Opera House in Belfast withShine Members from other adult groups in April.Any member interested in joining this group cancontact Pamela on: T. 028 25652273E. [email protected]

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    Hello! For those of you who dont know me

    already my name is Lisa Law. I wanted to take

    this opportunity to introduce myself as a new

    member of the Shine Adult Members Council

    (SAMC), representing Northern Ireland.

    It is my responsibility to act as a communication

    channel between the adult members here in

    Northern Ireland, and at national level. This is

    an exciting development as it is the rst time

    NI adult members have had a representative. I

    have witnessed rst-hand the eagerness of the

    members in Northern Ireland to get involved in

    and support the work of Shine and as a fellow

    member who benets from the Shine NI team I

    want to say thank you and keep up the momentum.

    I am here to work for the adult members too.

    Since taking my place on the council I have

    had productive discussions as to how I can

    communicate with any adult member here in

    Northern Ireland and encourage the promotion

    of Shine throughout the province, both with

    members of the council and locally. So far this

    has included the promotion of the work of Shine

    through fundraising through sponsorship for the

    upcoming Shine Across the Bridge event on 5th

    May, encouraging primary schools in my local

    area to hold a Benny Bear Birthday Party and

    possibly a province-wide media work involving

    interested members willing to share their stories.

    I will be getting out and around our adult groups

    in the coming days to meet as many of you as

    possible; in the meantime anyone who believesthere is something we are missing, or feels we

    should be directing our energies towards any

    other issue, can contact me on 028 94464435 or

    07851142111 or nd me on Facebook. An email

    address will follow in my next update.

    Coleraine Young Adults Group

    During the month of February 2012, a four-weekcourse took place between the Lodge Hoteland the University of Ulster Sports Complex,Coleraine. This course was aimed at youngadult members of Shine from Coleraine andsurrounding areas.

    The course was well attended with 8 Shinemembers taking part.

    Week one looked at the conditions of spina bidaand hydrocephalus, and how each person can beaffected individually. There was lively discussionamong the group on their experiences and timewas allocated for individuals who had morepersonal questions at the end of the night.

    Week two looked at the importance of diet andhealthy eating. Continence, skin care and folicacid were also discussed briey. Members hadan opportunity to try out Pamelas home-madesmoothies which went down very well!

    Week three was held in the University SportsComplex. Once again members had theopportunity to try out different sports includingtable tennis, basket-ball and new age curling.Everyone enjoyed the night and requested thatmore events like this be organised.

    The nal week looked at self-esteem and theimportance of looking after our mental health aswell as our physical health. Two volunteers fromthe Beauty Department in Coleraine College ofFurther Education gave a demonstration on goodskin care. Hand massages, and nail painting werealso available.

    The evaluations were very positive and newfriends were made among the group. It is hopedto repeat a similar programme to this in otherareas of N. Ireland

    Lisa law

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    Fundraising round-up

    Fundraising - Eglinton Vintage rally. TheEglinton Classic Car Rally was held on 1 April inthe City of Derry Rugby Club. There was a brilliant

    Challenge Karen

    Shine supporter Karen Tilson is raising money for the charity byundertaking a variety of unusual challenges.

    So far Challenge Karen has included learning 100 words ofGerman, swimming 100 widths, and reading 100 books. Withmore challeges and a fundraising Cinema Night planned Karenis well on her way to raising her target of 1000 for Shine.Thank you Karen!

    2 Foyle Toddlers Group3 Omagh Group

    5 Foyle Peace Bridge Event and Fun Day

    9 Lurgan Group10 Enniskillen Group

    24 Foyle Parents Group

    27 Belfast Forum

    31 Multi sports - Magee

    turn out at the event and some amazing cars. Wewere chosen by the Club as their Charity of theYear - more information later about how muchwe received. Thanks to Martin Henderson ourMember who is also a member of the Eglintonclassic Car Club.

    For more information on any of these eventsEmail: [email protected] Contact no: 01733 555988

    Forthcoming Events

    May 2012 June 2012

    2 Wheelchair Basket ball - Magee

    6 Foyle Toddlers Group

    7 Omagh Group

    13 Lurgan group

    14 Enniskillen Group

    16 Wheelchair Basket Ball Magee

    16 Fun Day Valley Leisure Centre

    21 Multisport - Magee

    28 Foyle Parrnts group

    30 Wheelchair Basket Ball

    If you havent already joined us on facebook like us today at www.facebook.com/shineUKcharity