Resident and Family Resource Booklet

Hospice Prince Edward 40 Downes Avenue Picton, ON, K0K 2T0

Phone: 613-645-4040 www.hospiceprinceedward.ca

Myths about Palliative Care

Myth: Palliative care hastens death.

Fact: Palliative care does not hasten death. It provides

comfort and the best quality of life from diagnosis of an

illness until end of life.

Myth: Palliative care is only for people dying of cancer.

Fact: Palliative care can benefit patients and their

families from the time of diagnosis of any illness that

may shorten life.

Myth: Palliative care is only provided in a hospital.

Fact: Palliative care can be provided wherever the

patient lives: home, long term care facility, hospice

residence, or hospital.

Myth: Pain is a part of dying.

Fact: If pain is experienced near end of life, there are

many ways it can be alleviated.

Myth: I’ve let my family member down because he/she did

not die at home.

Fact: Sometimes the needs of the patient exceed what

can be provided at home despite best efforts. Ensuring

that the best care is delivered, regardless of setting, is

not a failure.

The History of the Hospice Prince Edward ………………. Page 3

Welcome ………………………………………………………………… Page 4

The People Involved ……………………………………………….. Page 4/5

General Information Resident Rooms ………………………Page 6 Visiting Hours ………………………… Page 6

Kitchen/Dining Room ………….....Page 7 Telephone ……………………………...Page 7 Ontario Health Card ………………. Page 7 Door Swipe Cards ..………………… Page 7

Guest Book ..………………… Page 7 Personal Supplies ………………….. Page 8 Resident Laundry ………………….. Page 8 Smoking ……………………………….Page 8

Pets ……………………………………….. Page 8 How much does it cost? …… ……Page 8

Items to bring …….…………………..Page 9

How You Can Help The Hospice ………………………………..Page 10/11

Contact Information………………………………………………….Page 11

Donate Only 22% of Hospice Prince Edward’s operational support for programs and services is provided by the Provincial Government, and every dona-tion we receive is very important for Hospice.

Make a Donation

We are grateful for any donations we receive. Donations can be made in person, by cash, monthly deposit or by cheque made payable to Hos-pice Prince Edward Foundation or via telephone by credit card, or by contacting our office at 613-645-4040. Make a secure online payment at www.hospiceprinceedward.ca through Canada Helps. We also accept donations of securities. A receipt is issued directly to you. www.canadahelps.org/

Gifts In-Kind

Hospice Prince Edward also welcomes in-kind gifts. Items such as auc-tion items, tickets to events, concerts, art work, furniture, grocery cards, as well food and beverage items are greatly appreciated. As a registered charity, we can issue tax receipts for the fair market value of some items. For such donations, please contact our office at 613-645-4040

Get Involved Hospice Prince Edward Special Events! If you would like to get in-volved in Hospice Prince Edward Special Events, such as, the "Hike For Hospice" please contact our office to discuss our coming events or take a look at our event listing at: www.hospiceprinceedward.ca

Contact information

If you would like further information regarding our residential home or services, or to make a donation, please contact us.

Hospice Prince Edward Foundation 40 Downes Avenue Picton, ON, K0K 2T0 Phone: 613-645-4040

Table of Contents How You Can Help the Hospice

Page 11

How You Can Help the Hospice Our History

Give the Gift of Your Time

Volunteers play a special role in the care of our patients and families. Carefully selected and specially trained, volunteers work alongside hos-pice professionals to provide support for persons with la life-limiting ill-nesses and for their families. Hospice volunteers provide companionship, caregiver support, light household or outdoor assistance and help with diverse activities. In addition to supportive care with families, volunteers are involved in grief and bereavement support, holistic modalities, pro-vide office assistance and help with special events and activities.

Hospice offers volunteers an opportunity to ‘give back’ to their communi-ty by providing compassionate, dignified support for those touched by a life-limiting illness and for those at end of life. Volunteering is about much more than giving a few hours of your time -- it is about making a differ-ence in someone's life. Volunteers receive 30 hours of volunteer training and additional training specific to their role. If you are interested in volun-teering, please contact Hospice Prince Edward.

Hospice Prince Edward Wish List

This list, at www.hospiceprinceedward.ca, provides examples of specific items needed at the Community Residential Hospice, illustrates our ex-penses and some of the general costs associated with providing hospice care and support. We welcome you to offer your time, talents or support.

Host a Hospice Fundraiser

We find it exhilarating when individuals or groups in our community decide to host an event in support of Hospice Prince Edward. In the past, individuals or groups approach our organization with ideas for various fundraisers, including benefit dinners, golf tournaments, auctions, musical concerts, and more.

If you have an idea that excites you or your organization, please contact

us at 613-645-4040.

The emergence of hospices as volunteer, community-based organiza-tions coincides with two important developments within the Canadian health care delivery system:

The development of palliative care as specialized care for those with a life limiting illness, by providing quality of life.

The shift of the location of care from the hospital to the home.

The original organization, called Cope, was formed in 1989 by Mr. Mark Davis with a group of interested individuals, including Donna Joyce, Wendy Davis, and others, and incorporated in March 1990. Cope ap-plied for, and was granted, status as a registered charitable organiza-tion.

Dr. Graham Burke, a general practitioner in the County, with an interest in palliative care, formed the Prince Edward Palliative Care Association in 1996. In September of 2000, Cope and the Prince Edward County Palliative Care Association amalgamated to become Hospice Prince Ed-ward.

Since 1998 Hospice operated a home-visiting program. After the com-pletion of a 30-hour training program, our palliative-trained volunteers provide support and care to patients and their caregivers in the home.

Fundraising initiatives launched in 2012 provided enough funds to purchase 40 Downes Ave. We sincerely thank the Community for its generous support for the purchase of our Hospice.

This house was lovingly built in 2000 by Robert Logan for his mother, Harriett, and his sister, Wendy. HPEF is delighted to be carrying on its loving tradition as a community residential hospice home.

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Welcome Items You Might Like to Bring With Welcome to the Hospice Prince Edward Community Res-

idential Hospice Home, offering end-of-life care and

support in a comfortable home-like setting We are

honored that you have selected this home as your resi-

dence. We will do all we can to ensure that your stay

here is comfortable and that it reflects your wishes at

this tender time.

This resource booklet is designed to help you, your fami-

ly and friends learn about the services available to you in

this residence. At your Hospice Residence you will find

three large bedrooms filled with natural light, each with

a comfortable patient bed and a lift/recliner chair to

help friends and family remain close. We also welcome

you and your visitors to make use of the shared common

areas – kitchen, dining room and family/living room.

We will be gathering some important information which

is shared only with our hospice circle of care team in

order to ensure that appropriate care is given to each

resident. This information will be kept confidential at all

times to protect your privacy.

There is no cost to resident’s or their families for hospice

care. This is due to the generous donations of families,

friends and community members, as well as a result of

grants from the government and other organizations.

Hospice Prince Edward has a dedicated team of individ-

uals that make everything happen, this team includes:

Executive Director, Board of Directors, Service Coordina-

tor, Residential Manager, Events Lead, Administrative

Support, Welcoming Volunteers, and PEFHT Palliative

Care Coordinator.

Our Services:

Call us directly to

access our out-

reach services:

613-645-4040

Caregiver Support

Client Visitation

Grief Support

Bereavement

Meditation

Reflexology

Reiki

Individual &

Group Support

Our Mission:

Hospice Prince

Edward

Foundation ‘s

mission is to

provide quality of

life, dignity in

death, and grief &

bereavement

support for all

those living with

or affected by a

life limiting ill-

ness!

Contact information for your family and friends

Important paperwork such as Power of Attor-ney, OHIP card

Medications in their original containers, includ-ing over-the-counter medication

Medical supplies you currently require at home

Items of clothing you would like to wear in-cluding slippers and shoes

Your own toiletries, including lotions, hand care items (such as clippers, files)

Your favorite pillow or blanket

Favorite snacks or treats

Some small items and mementos to make the room your home

Photographs

CDs, DVD’s or music of your choice

There are two ways of

spreading light

To be the candle, or the

mirror that reflects it.

~ Edith Wharton ~

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Resident & Family General Information The Hospice Team

Personal Supplies

Resident’s or family members are asked to please bring per-

sonal hygiene items and toiletries from home as needed.

Resident Laundry

Our laundry facilities are located on the lower level. Staff/Volunteers are responsible for the laundry services for our residents.

Smoking

Hospice Prince Edward is a smoke free home. Visitors and residents are asked to smoke in designated outdoor spaces only, and may not smoke near any doorways or areas that may affect a resident’s ability to breathe.

Pets

Pets are family members to many people and visiting privileg-es can be arranged. We ask that they are kept under close supervision to ensure they do not disrupt other residents.

Note: Pet escorts are responsible for cleaning up after the pet.

How much does it cost?

There is no charge to residents and families for Hospice care, support & programs. Hospice Prince Edward would be grateful to be named as the charity of choice for Memorial Donations. These donations will enable us to continue our community programming, and to be available for the next family that needs our services.

Hospice Volunteers

Hospice volunteers are dedicated and trained community members who bring a wide range of skills to hospice. They work in a variety of roles within the residential hospice home and all have completed specialized training before they are assigned to the hospice home. Volunteers can be identified by their identification badges. If you have a con-cern regarding the care provided by a volunteer, please speak to the Residential Manager

Residential Manager & Assistant

H.P.E. Residential Manager ensures a safe environment for residents and their families, staff, volunteers and service providers of hospice. This manager guides and supports residents and their families through the hospice journey. Please let us know if you need additional support. Our vol-unteers are trained in grief & bereavement & caregiver sup-port. Clinical Residential Hospice Care

Registered nurses and personal support workers employed by local community healthcare agencies will assist you in completing activities and meet your care needs. They will welcome the involvement of your family members in your care as you wish, but are also trained and prepared to pro-vide all of your care in the absence of family. If you have a concern regarding the care please speak to Hospice Staff or your Health Care Coordinator, who will follow up with the agency.

South East Local Health Integration Network (SELHIN)

The Local Health Integration Network provides referral ser-vices for those wishing to be a resident at Hospice. Please call Hospice to find out more about how this could work for you or a loved one.

Our Services:

Call us directly to

access our

services: 613-645-

4040

Caregiver Support

Client Visitation

Grief Support

Meditation

Reflexology

Reiki

Individual &

Group Support

Our Mission

Hospice Prince

Edward

Foundation ‘s

mission is to

provide quality

of life, dignity in

death, and grief &

bereavement

support for all

those living with

or affected by a

life limiting ill-

ness!

Page 5 Page 8

Resident & Family General Information Resident & Family General Information cont’d

Resident Rooms

The focus of care is the resident and his/her family. In the resident

rooms our beds and mattresses are specifically designed for comfort

when spending long periods of time in bed. There are also bed side

tables, headboard lights, a cork board, a photo display ledge and

each room includes a recliner chair for family to remain comfortable

at the patient’s bedside. Overnight accommodation may be available

in our multi purpose room. Make requests to the Residential Manag-

er. Shower facilities are also available for family on the lower level.

All rooms are also equipped with cable TV.

We encourage families to bring in items from home to personalize

your room and to make it feel more like ‘home’.

Visiting

Families are encouraged and welcome to participate in the life and

care of their loved ones at the residential Hospice home, when they

are able. The open concept living room, dining room, kitchen is a

multifunctional/common

space for residents, fami-

lies and friends to use.

Family members and

friends are welcome to

visit their loved ones at

any time, subject to the

specific requests or needs

of the resident. Visitors

are required to sign in

and out in the Visitor log book. It is an important fire regulation to

know who is in the home at all times. Hospice Prince Edward re-

serves the right to refuse entrance to the Residential Hospice House

to any person at any time. When a visit is planned by a large family,

group, it is helpful to the staff to be advised of this visit ahead of

time.

Kitchen/Dining Room

Meals

A full kitchen is available for the use of resi-

dents and their families. Each residents room

has a small fridge for personal food. Volunteers

prepare snacks and soups for residents.

Family

Coffee, tea, juice, and snacks available daily in

the kitchen for family members and visitors.

Make yourself at home in the kitchen.

Telephone

Hospice Prince Edward phone #number is

613-645-4040. There is a phone available

for outgoing calls if needed.

Ontario Health Card

All residents are required to present both Ontario Health card and one official gov-ernment document containing the resi-dent’s date of birth (birth certificate, passport, driver’s license) at the time of admission.

Swipe Card for Door

Electronic swipe cards (courtesy of Tim Horton’s Picton) will be provided to family/families to access the hospice 24/7.

Guest Book

We encourage family members to sign our guest book located on the living room table. Testimonials help families and community members understand the hospice experience.

Purpose

Outreach & Resi-

dential Hospice:

Visiting Volunteers

Client Support

Caregiver Support

Grief & Bereave-

ment Support

Individual &

Groups

Meditation weekly

Reflexology

Call us directly to

find out more

about our pro-

grams & services

613-645-4040

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