Research with Alaska Native PlPeople · Emphasis on wellness of the whole person, family and community (physical, mental, emotional and spiritual wellness) Locations convenient for

Research with Alaska Native P lPeople

Denise A Dillard Ph DDenise A. Dillard, Ph.D.

OverviewOverview

1 D i ti f Al k N ti P l 1. Description of Alaska Native People and Relevant History

2. Regional Example - Southcentral FoundationFoundation

3 R l t Oth Al k N ti 3. Relevance to Other Alaska Native Regions and Other Communities

Relevant HistoryRelevant History

Health servicesHealth services

ResearchResearch

Education

Southcentral FoundationSouthcentral Foundation

An Alaska Native-owned and An Alaska Native owned and managed regional health corporation operating under the tribal authority operating under the tribal authority of Cook Inlet Region, Inc.

Setting• Southcentral Foundation provides services to…p

• 231 federally‐recognized tribes• 107,413 square miles• 60 communities• 60,000 people

Copyright © 2012 Southcentral Foundation. All Rights Reserved.NOTICE: Unless otherwise indicated, this work represents copyrighted material protected by United States and international law.This work may not be used, reproduced, downloaded, disseminated, published, transferred or transmitted, in whole or in part, in any form or by any means, electronic or mechanical, including photocopying, recording or information storage and retrieval, except with the express written permission of the publisher. This work may not be edited, altered, or otherwise modified, in whole or in part, except with the express written permission of the publisher.

Vision A Native Community that enjoys physical,

t l ti l mental, emotional and spiritual wellness

MissionWorking together with Working together with the Native Community to achieve wellness through health and through health and related services

Copyright © 2011 Southcentral Foundation. All Rights Reserved.

Key PointsyCommitment to

Q alit

Family WellnessShared

R ibilit Quality

We strive to provide the best services for the Native

community.

We value the family as the heart of the Native

community.

ResponsibilityWe value working together

with the individual, the family, and the community. y

We employ fully qualified staff in all positions and we

commit ourselves to iti g d t i i g N ti

We work to promote wellness that goes beyond

absence of illness and prevention of disease.

We strive to honor the dignity of every individual.

We see the journey to ellness being tra eled in recruiting and training Native

staff to meet this need.

We structure our organization to optimize the

p

We encourage physical, mental, social, spiritual, and economic wellness in the individual the family the

wellness being traveled in shared responsibility and partnership with those for whom we provide services.

g pskills and contributions of our

staff.

individual, the family, the community, and the world in

which we live.


Operational PrinciplesRelationships between customer‐owner, family and provider must be fostered and supportedEmphasis on wellness of the whole person, family and community (physical, mental, emotional and

Operational Principles

spiritual wellness)Locations convenient for customer‐owners with minimal stops to get all their needs addressedAccess optimized and waiting times limitedTogetherwith the customer‐owner as an active partnerI ntentional whole‐system design to maximize coordination and minimize duplicationOutcome and process measures continuously evaluated and improvedNot complicated but simple and easy to useServices financially sustainable and viable Hub of the system is the familyI nterests of customer‐owners drive the system to determine what we do and how we do itPopulation‐based systems and servicesServices and systems build on the strengths of Alaska Native cultures


Approach to HealthcareApproach to Healthcare

Advanced access to a medical home for families

Integration of services Integration of services

Robust quality improvement system Robust quality improvement system

Approach to ResearchApproach to Research

f Review and approval of all research activities according to criteria

bl h d b b l l d h destablished by tribal leadership and what has been heard from customer-owners

Research priorities set by tribal leadership

Review CriteriaReview Criteria

1. Alignment with Southcentral Foundation Vision, Mission, Key

d l lPoints, and Operational Principles

AlignmentAlignment

R h bl d i f Research on problems and issues of special interest to the Alaska Native community namely the Family Wellness community, namely the Family Wellness Corporate Objectives

AlignmentAlignment

Effi d ff ti f h lth Efficacy and effectiveness of health practices and processes

Emphasis on wellness

Benefits to Alaska Native people i i dmaximized


f2. Quality of Research Design

Quality of DesignQuality of Design All important variables including

t th / t ti f tstrengths/protective factors

Valid comparisons

Results application and disseminationdissemination


f3. Depiction of Alaska Native People

Depiction Depiction Inaccurate/stigmatizing/

t li tipaternalistic

Involvement in design

Preferred language

StaffingStaffing

f ff 6 out of 10 department staff are Alaska Native/American Indian

Emphasis on mentoring and Emphasis on mentoring and training


4. Topical Areas Considered Sensitive

ProcessProcess

Concept approvalConcept approval

I tit ti l R i B dInstitutional Review Board

Full proposal approval

Abstracts/Manuscripts/Final Reports

Research PortfolioResearch Portfolio

Ethical and Cultural Considerations Ethical and Cultural Considerations of Research Using Banked Specimens Among Alaska Native Specimens Among Alaska Native People

Pharmacogenetic Testing and Pharmacogenetic Testing and Research Among Alaska Native PeoplePeople

Depression Management in an Alaska Native Primary Care SettingAlaska Native Primary Care Setting

Focus Group Results‐ ContextFocus Group Results ContextDiffering

UnderstandingsImmediate and Future Harms and Benefits

Understandings of Research Type and

Purpose of Research

Context

and Benefits

Ability to

Research

HistoricalContextAbility to Generalize and

Appropriateness of Research

Historical Experience

with Research

Historical I j ti

Future R h

Southcentral Foundation

Injustice Research

Specimen Bank NewsletterSpecimen Bank Newsletter

Pharmacogenetics PosterPharmacogenetics Poster

What can I do about my depression?

CounselingDrugs

Healthy Eating

Drugs

Exercise

ClergyClergy

Stress Reduction

Support Groups Traditional Healing

Herbal Remedies

Exit

Relevance to Other Alaska Native People/Populations

Increasingly diverse population of Increasingly diverse population of the United States

Persistent health and other di itidisparities

Call for new approaches

Questions????Questions????

Thank You!Thank You!

Qaĝaasakung Quyanaq ‘Awa'ahdahQaĝaasakungAleut

QuyanaqInupiaq

Háw'aa

Awa ahdahEyak

Mahsi' IgamsiqanaghhalekHaidaGwich’in Athabascan

g q gSiberian Yupik

Way Dankoo GunalchéeshQuyana

Tsin'aen

Tsimshian TlingitYup’ik

Chin’anQuyanaaAhtna Athabascan Dena’ina AthabascanAlutiiq


Documents

Research with Alaska Native PlPeople · Emphasis on wellness of the whole person, family and community (physical, mental, emotional and spiritual wellness) Locations convenient for